479
Views
9
CrossRef citations to date
0
Altmetric
Articles

Twelve-month prospective cohort study of patients with severe traumatic brain injury and their relatives: Coping, satisfaction with life and neurological functioning

Pages 1903-1909 | Received 17 Jan 2017, Accepted 19 Jun 2017, Published online: 22 Aug 2017

References

  • Monat A, Lazarus RS. Stress and coping: An anthology. New York (NY): Columbia University Press; 1991.
  • Endler NS, Parker JD. Multidimensional assessment of coping: A critical evaluation. J Pers Soc Psychol. 1990;58(5):844.
  • Gregório GW, Gould KR, Spitz G, van Heugten CM, Ponsford JL. Changes in self-reported pre-to postinjury coping styles in the first 3 years after traumatic brain injury and the effects on psychosocial and emotional functioning and quality of life. J Head Trauma Rehabil. 2014;29(3):E43–E53.
  • Hurt CS, Landau S, Burn DJ, Hindle JV, Samuel M, Wilson K, Brown RG. Cognition, coping, and outcome in Parkinson’s disease. Int Psychogeriatr. 2012;24(10):1656–1663.
  • Krpan KM, Levine B, Stuss DT, Dawson DR. Executive function and coping at one-year post traumatic brain injury. J Clin Exp Neuropsychol. 2007;29(1):36–46.
  • Hesdorffer DC, Rauch SL, Tamminga CA. Long‐term psychiatric outcomes following traumatic brain injury: A review of the literature. J Head Trauma Rehabil. 2009;24(6):452–459.
  • Rogers JM, Read CA. Psychiatric comorbidity following traumatic brain injury. Brain Inj. 2007;21(13–14):1321–1333.
  • Bay EH, Sikorskii A, Gao F. Functional status, chronic stress, and cortisol response after mild-to-moderate traumatic brain injury. Biol Res Nurs. 2008; 10(3):213–225.
  • Kortte KB, Wegener ST, Chwalisz K. Anosognosia and denial: Their relationship to coping and depression in acquired brain injury. Rehabil Psychol. 2003;48(3):131.
  • Sander AM, Caroselli JS, Jr WMH, Becker C, Neese L, Scheibel R. Relationship of family functioning to progress in a post-acute rehabilitation programme following traumatic brain injury. Brain Inj. 2002;16(8):649–657.
  • Lehan T, Arango-Lasprilla JC, de los Reyes CJ, Quijano MC. The ties that bind: The relationship between caregiver burden and the neuropsychological functioning of TBI survivors. NeuroRehabil-Interdiscip J. 2012;30(1):87.
  • Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: A review of the literature. J Clin Nurs. 2005;14(8):1004–1012.
  • Dawson DR, Schwartz ML, Winocur G, Stuss DT. Return to productivity following traumatic brain injury: Cognitive, psychological, physical, spiritual, and environmental correlates. Disabil Rehabil. 2007;29(4):301–313.
  • Anson K, Ponsford J. Evaluation of a coping skills group following traumatic brain injury. Brain Inj. 2006;20(2):167–178.
  • Walder B, Haller G, Rebetez MML, Delhumeau C, Bottequin E, Schoettker P, Ravussin P, Brodmann Maeder M, Stover JF, Zürcher M. Severe traumatic brain injury in a high-income country: An epidemiological study. J Neurotrauma 2013;30(23):1934–1942.
  • Tohme S, Delhumeau C, Zuercher M, Haller G, Walder B. Prehospital risk factors of mortality and impaired consciousness after severe traumatic brain injury: An epidemiological study. Scand J Trauma Resuscitat Emerg Med. 2014;22(1):1.
  • Rossi-Mossuti F, Fisch U, Rebetez M, Schoettker P, Gugliotta M, Kothbauer K, Morard M, Schucht P, Levivier M, Walder B. Standards for surgical treatment of severe traumatic brain injury in Switzerland: Results of a nationwide study. J Neurol Surg A: Central Eur Neurosurg. 2014;75(S 02):p67.
  • Pielmaier L, Maercker A. Psychological adaptation to life threatening injury in dyads: The role of dysfunctional disclosure of trauma. Eur J Psychotraumatol. 2011;2(1): p. 8749.
  • Haller CS, Walder B. Severe neurotrauma in Switzerland: Have short-term outcomes improved? Swiss Med Wkly. 2014;145:w14177–w14177.
  • Haller CS, Walder B. Definitions, epidemiology and outcomes of severe traumatic brain injury in high-income countries—a narrative review. Swiss Arch Neurol Psychiatry Psychother. 2016;4(167):114–119.
  • Haller CS. The relatives’ big five personality influences the trajectories of recovery of patients after severe TBI: A multilevel analysis. J Pers. 2016; 85(4): 481–493.
  • Haller CS, Bosma CM, Kapur K, Zafonte R, Langer EJ. Mindful creativity matters: trajectories of reported functioning after severe traumatic brain injury as a function of mindful creativity in patients’ relatives: a multilevel analysis. Quality of life research. 2017;26(4): 893–902.
  • Dick W, Baskett P. Recommendations for uniform reporting of data following major trauma—the Utstein style: A report of a working party of the international trauma anaesthesia and critical care society (ITACCS). Resuscitation. 1999;42(2):81–100.
  • Farin A, Marshall L. Lessons from epidemiologic studies in clinical trials of traumatic brain injury. Mechanisms of secondary brain damage from trauma and ischemia. Vienna: Springer; 2004. p. 101–107.
  • Medicine AAftAfA. The abbreviated injury scale 1990 revision update 1998. Barrington (IL): Des Plaines; 2001.
  • Wilson JL, Pettigrew LE, Teasdale GM. Structured interviews for the Glasgow outcome scale and the extended Glasgow outcome scale: Guidelines for their use. J Neurotrauma. 1998;15(8):573–585.
  • Borgaro SR, Prigatano GP. Modification of the patient competency rating scale for use on an acute neurorehabilitation unit: The PCRS-NR. Brain Inj. 2003;17(10):847–853.
  • Haller CS, Delhumeau-Cartier C, De Pretto M, Schumacher R, Pielmaier L, Walder B. Trajectory of disability and quality of life in non-geriatric and geriatric survivors after severe traumatic brain injury. Brain Inj. 2017:31(3):319–328.
  • Sasse N, Gibbons H, Wilson L, Martinez-Olivera R, Schmidt H, Hasselhorn M, von Wild K, von Steinbuchel N. Self-awareness and health-related quality of life after traumatic brain injury. J Head Trauma Rehabil. 2013;28(6):464–472.
  • Ware J, Kosinski M, Turner-Bowker D, Gandek B. Sf–12v2: How to score version 2 of the sf-12 health survey. Boston (MA)/Lincoln (RI): Quality Metric Incorporated Health Assessment Lab; 2002.
  • Hill J, Gelman A. Data analysis using regression and multilevel/hierarchical models. New York (NY): Cambridge University Press; 2007.
  • Kwok O-M, Underhill AT, Berry JW, Luo W, Elliott TR, Yoon M. Analyzing longitudinal data with multilevel models: An example with individuals living with lower extremity intra-articular fractures. Rehabil Psychol. 2008;53(3):370.
  • Haller CS. The relatives’ big five personality influences the trajectories of recovery of patients after severe tbi: A multilevel analysis. J Pers Soc Psychol. 2017;85(4):481–493.
  • Degeneffe CE. Family caregiving and traumatic brain injury. Health Soc Work. 2001;26(4):257–268.
  • Lefebvre H, Cloutier G, Josee Levert M. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Inj. 2008;22(7–8):535–543.
  • Jumisko E, Lexell J, Söderberg S. Living with moderate or severe traumatic brain injury the meaning of family members’ experiences. J Family Nurs. 2007;13(3):353–369.
  • Machamer J, Temkin N, Dikmen S. Significant other burden and factors related to it in traumatic brain injury. J Clin Exp Neuropsychol. 2002;24(4):420–433.
  • Marsh NV, Kersel DA, Havill JH, Sleigh JW. Caregiver burden during the year following severe traumatic brain injury. J Clin Exp Neuropsychol. 2002;24(4):434–447.
  • Bayen E, Jourdan C, Ghout I, Darnoux E, Azerad S, Vallat-Azouvi C, Weiss J-J, Aegerter P, Pradat-Diehl P, Joël M-E. Objective and subjective burden of informal caregivers 4 years after a severe traumatic brain injury: Results from the paris-tbi study. J Head Trauma Rehabil. 2014;31(5):E59–E67.
  • Ponsford J, Schoenberger M. Family functioning and emotional state two and five years after traumatic brain injury. J Int Neuropsychol Soc. 2010;16(2):306–317.
  • Leonardi M, Giovannetti A, Pagani M, Raggi A, Sattin D. National consortium functioning and disability in vegetative and in minimal conscious state patients. Burden and needs of 487 caregivers of patients in vegetative state and in minimally conscious state: Results from a national study. Brain Inj. 2012;26(10):1201–1210.
  • Giovannetti A, Covelli V, Sattin D, Leonardi M. Caregivers of patients with disorder of consciousness: Burden, quality of life and social support. Acta Neurol Scand. 2015; 132(4): 259–269.
  • Johnson CL, Resch JA, Elliott TR, Villarreal V, Kwok O-M, Berry JW, Underhill AT. Family satisfaction predicts life satisfaction trajectories over the first 5 years after traumatic brain injury. Rehabil Psychol. 2010;55(2):180.
  • Nabors N, Seacat J, Rosenthal M. Predictors of caregiver burden following traumatic brain injury. Brain Inj. 2002;16(12):1039–1050.
  • Smeets SM, van Heugten CM, Geboers JF, Visser-Meily JM, Schepers VP. Respite care after acquired brain injury: The well-being of caregivers and patients. Arch Phys Med Rehabil. 2012;93(5):834–841.
  • Pagani M, Giovannetti A, Covelli V, Sattin D, Raggi A, Leonardi M. Physical and mental health, anxiety and depressive symptoms in caregivers of patients in vegetative state and minimally conscious state. Clin Psychol Psychother. 2014;21(5):420–426.
  • Roozenbeek B, Maas AI, Menon DK. Changing patterns in the epidemiology of traumatic brain injury. Nat Rev Neurol. 2013;9(4):231–236.
  • Von Elm E, Osterwalder JJ, Graber C, Schoettker P, Stocker R, Zangger P, Vuadens P, Egger M, Walder B. Severe traumatic brain injury in switzerland-feasibility and first results of a cohort study. Swiss Med Wkly. 2008;138(23/24):327.
  • Jakobsson U. Using the 12-item short form health survey (sf-12) to measure quality of life among older people. Aging Clin Exp Res. 2007;19(6):457–464.
  • Pelletier P, Alfano D. Depression, social support, and family coping following traumatic brain injury. Brain Cognit. 2000;44(1):45–49.
  • Sander AM, Sherer M, Malec JF, High WM, Thompson RN, Moessner AM, Josey J. Preinjury emotional and family functioning in caregivers of persons with traumatic brain injury. Arch Phys Med Rehabil. 2003;84(2):197–203.
  • Leach L, Frank RG, Bouman D, Farmer J. Family functioning, social support and depression after traumatic brain injury. Brain Inj. 1994;8(7):599–606.
  • Linn RT, Allen K, Willer BS. Affective symptoms in the chronic stage of traumatic brain injury: A study of married couples. Brain Inj. 1994;8(2):135–147.
  • Klonoff PS. Family psychotherapy for concussions and the postconcussive syndrome. Psychotherapy for families after brain injury. New York: Springer US; 2014. p. 179–203.
  • Talbot LR, Lévesque A, Trottier J. Process of implementing collaborative care and its impacts on the provision of care and rehabilitation services to patients with a moderate or severe traumatic brain injury. J Multidiscip Healthcare. 2014;7:313.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.