Validation of the QOLIBRI – Quality of Life after Brain Injury questionnaire in patients after TBI in Israel

References

• Dikmen SS, Machamer JE, Powell JM, Temkin NR. Outcome 3 to 5 years after moderate to severe traumatic brain injury. Arch Phys Med Rehabil. 2003;84:1449–57. doi:10.1016/S0003-9993(03)00287-9.
   PubMed Web of Science ®Google Scholar
• Langlois JA, Rutland-Brown W, Wald MM. The epidemiology and impact of traumatic brain injury. J Head Trauma Rehabil. 2006;21:375–78. doi:10.1097/00001199-200609000-00001.
   PubMed Web of Science ®Google Scholar
• Tagliaferri F, Compagone C, Korsic M, Servadei F, Kraus J. A systematic review of brain injury epidemiology in Europe. Acta Neurochir (Wien). 2006;148:255–68. doi:10.1007/s00701-005-0651-y.
   PubMed Web of Science ®Google Scholar
• Myburgh JA, Cooper DJ, Finfer SR, Venkatesh B, Jones D, Higgins A, Bishop N, Higlett T. the Australasian traumatic brain injury study (ATBIS) investigators for the Australian and New Zealand intensive care society clinical trials group. Epidemiology and 12-month outcomes from traumatic brain injury in Australia and New Zealand. J Trauma, Injury, Infect Crit Care. 2008;64:854–62. doi:10.1097/TA.0b013e3180340e77.
   PubMedGoogle Scholar
• Wu X, Hu J, Zhuo L, Fu C, Hui G, Wang Y, Yang W, Teng L, Lu S, Xu G. Epidemiology of traumatic brain injury in Eastern China, 2004: a prospective large case study. J Trauma, Injury, Infect Crit Care. 2008;64:1313–19. doi:10.1097/TA.0b013e318165c803.
   PubMed Web of Science ®Google Scholar
• Hoofien D, Gilboa A, Vakil E, Donovick PJ. Traumatic brain injury (TBI) 10-20 years later: a comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Inj. 2001;15:189–209. doi:10.1080/026990501300005659.
   PubMed Web of Science ®Google Scholar
• Huebner RA, Johnson K, Bennett CM, Schneck C. Community participation and quality of life outcomes after adult traumatic brain injury. Am J Occup Ther. 2003;57:177–85. doi:10.5014/ajot.57.2.177.
   PubMed Web of Science ®Google Scholar
• Sloan S, Winkler D, Anson K. Long-term outcome following traumatic brain injury. Brain Impair. 2007;8:251–61. doi:10.1375/brim.8.3.251.
   Google Scholar
• Testa JA, Malec JF, Moessner AM, Brown AW. Outcome after traumatic brain injury: effects of aging on recovery. Arch Phys Med Rehabil. 2005;86:1815–23. doi:10.1016/j.apmr.2005.03.010.
   PubMed Web of Science ®Google Scholar
• Willemse-Van Son AH, Ribbers GM, Verhagen AP, Stam HJ. Prognostic factors of long-term functioning and productivity after traumatic brain injury: a systematic review of prospective cohort studies. Clin Rehabil. 2007;21:1024–37. doi:10.1177/0269215507077603.
   PubMed Web of Science ®Google Scholar
• Wood RL. Long-term outcome of serious traumatic brain injury. Eur J Anaesthesiol. 2008;25(Suppl.42):115–22. doi:10.1017/S0265021507003432.
   Web of Science ®Google Scholar
• Von Steinbüchel N, Wilson L, Gibbons H, Hawthorne G, Höfer S, Schmidt S, Bullinger M, Maas A, Neugebauer E, Powell J, et al., the QOLIBRI Task Force. Quality of life after brain injury (QOLIBRI): scale validity and correlates of quality of life. J Neurotrauma. 2010;27:1157–65. doi:10.1089/neu.2009.1077.
   PubMed Web of Science ®Google Scholar
• Von Steinbüchel N, Wilson L, Gibbons H, Hawthorne G, Höfer S, Schmidt S, Bullinger M, Maas A, Neugebauer E, Powell J, et al., the QOLIBRI Task Force. Quality of life after brain injury (QOLIBRI): scale development and metric properties. J Neurotrauma. 2010;27:1167–85. doi:10.1089/neu.2009.1076.
   PubMed Web of Science ®Google Scholar
• Truelle JL, Koskinen S, Hawthorne G, Sarajuuri J, Formisano R, Von Wild K, Neugebauer E, Wilson L, Gibbons H, Powell J, et al., the Qolibri Task Force. Quality of life after traumatic brain injury: the clinical use of the QOLIBRI, a novel disease-specific instrument. Brain Inj. 2010;24:1272–91. doi:10.3109/02699052.2010.506865.
   PubMed Web of Science ®Google Scholar
• Truelle JL, Von Wild K, Höfer S, Neugebauer E, Lischetzke T, Von Steinbüchel N, the QOLIBRI Group. The QOLIBRI – towards a quality of life tool after traumatic brain injury: current developments in Asia. Acta Neurochir. 2008;101(Supplement):125–29.
   Google Scholar
• Hawthorne G, Kaye AH, Gruen R, Houseman D, Bauer I. Traumatic brain injury and quality of life: initial Australian validation of the QOLIBRI. J Clin Neurosci. 2011;18:197–202. doi:10.1016/j.jocn.2010.06.015.
   PubMed Web of Science ®Google Scholar
• Koskinen S, Hokkinen EM, Wilson L, Sarajuuri J, Von Steinbüchel N, Truelle JL. Comparison of subjective and objective assessments of outcome after traumatic brain injury using the international classification of functioning, disability and health (ICF). Disabil Rehabil. 2011;33:2464–78. doi:10.3109/09638288.2011.574776.
   PubMed Web of Science ®Google Scholar
• Lin YN, Chu SF, Liang WM, Chiu WT, Lin MR. Validation of the quality of life after brain injury in Chinese persons with traumatic brain injury in Taiwan. Head Trauma Rehabil. 2014;29:37–47. doi:10.1097/HTR.0b013e3182816363.
   Web of Science ®Google Scholar
• Pagulayan KF, Temkin NR, Machamer J, Dikmen SS. A longitudinal study of health-related quality of life after traumatic brain injury. Arch Phys Med Rehabil. 2006;87:611–18. doi:10.1016/j.apmr.2006.01.018.
   PubMed Web of Science ®Google Scholar
• Petersen C, Bullinger M. Assessing health-related quality of life after severe brain damage: potentials and limitations. Prog Brain Res. 2005;150:545–53.
   PubMed Web of Science ®Google Scholar
• Von Steinbüchel N, Richter S, Morawetz C, Riemsma R. Assessment of subjective health and health-related quality of life in persons with acquired or degenerative brain injury. Curr Opin Neurol. 2005;18:681–91. doi:10.1097/01.wco.0000194140.56429.75.
   PubMed Web of Science ®Google Scholar
• Bullinger M, the TBI Consensus Group. Quality of life in patients with traumatic brain injury-basic issues, assessment and recommendations. Restor Neurol Neurosci. 2002;20:111–24.
   PubMed Web of Science ®Google Scholar
• Von Steinbüchel N, Petersen C, Bullinger M, the QOLIBRI Group. Assessment of health-related quality of life in persons after traumatic brain injury - development of the Qolibri, a specific measure. Acta Neurochir. 2005a;93:43–49. Supplement.
   Google Scholar
• Mailhan L, Azouvi P, Dazord A. Life satisfaction and disability after severe traumatic brain injury. Brain Inj. 2005;19:227–38. doi:10.1080/02699050410001720149.
   PubMed Web of Science ®Google Scholar
• Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36) I. Conceptual framework and item selection. Med Care. 1992;30:473–83. doi:10.1097/00005650-199206000-00002.
   PubMed Web of Science ®Google Scholar
• Bentur N, Epstein S. Sf-36: a measure for evaluating health related Quality of Life. Gerontology. 2001;28:187–216. (in Hebrew).
   Google Scholar
• Findler M, Cantor J, Haddad L, Gordon W, Ashman T. The reliability and validity of the SF-36 health survey questionnaire for use with individuals with traumatic brain injury. Brain Inj. 2001;15:715–23. doi:10.1080/02699050010013941.
   PubMed Web of Science ®Google Scholar
• Lewin-Epstein N, Sagiv-Schifter T, Shabati EL, Shmueli A. Validation of the 36-item short-form health survey (Hebrew version) in the adult population of Israel. Med Care. 1998;36:1361–70. doi:10.1097/00005650-199809000-00008.
   PubMed Web of Science ®Google Scholar
• Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67:361–70. doi:10.1111/j.1600-0447.1983.tb09716.x.
   PubMed Web of Science ®Google Scholar
• Bjelland I, Dahl AA, Haug TT, Neckelman D. The validity of the hospital anxiety and depression scale: an updated literature review. J Psychosom Res. 2002;52:69–77. doi:10.1016/S0022-3999(01)00296-3.
   PubMed Web of Science ®Google Scholar
• Whelan-Goodinson R, Ponsford J, Schönberger M. Validity of the hospital anxiety and depression scale to assess depression and anxiety following traumatic brain injury as compared with the structured clinical interview for DSM-IV. J Affect Disord. 2009;114:94–102. doi:10.1016/j.jad.2008.06.007.
   PubMed Web of Science ®Google Scholar
• Read JL, Quinn RJ, Hoefer MA. Measuring overall health: an evaluation of three important approaches. J Chronic Dis. 1987;40(Suppl.1):7S–21S. doi:10.1016/S0021-9681(87)80027-9.
   PubMedGoogle Scholar
• McHorney CA, Ware JE Jr., Rogers W, Raczek AE, Rachel Lu JF. The validity and relative precision of MOS short- and long-form health status scales and Dartmouth COOP charts. Results from the medical outcomes study. Med Care. 1992;30(Suppl.5):MS253–65. doi:10.1097/00005650-199205001-00025.
   PubMed Web of Science ®Google Scholar
• McHorney CA, Ware JE Jr., Rachel Lu JF, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care. 1994;32:40–66. doi:10.1097/00005650-199401000-00004.
   PubMed Web of Science ®Google Scholar
• Dahm J, Wong D, Ponsford J. Validity of the depression anxiety stress scales in assessing depression and anxiety following traumatic brain injury. J Affect Disord. 2013;151:392–96. doi:10.1016/j.jad.2013.06.011.
   PubMed Web of Science ®Google Scholar
• Dijkers MP. Quality of life after traumatic brain injury: a review of research approaches and findings. Arch Phys Med Rehabil. 2004;85(Suppl.2):S21–S35. doi:10.1016/j.apmr.2003.08.119.
   PubMed Web of Science ®Google Scholar
• Melamed S, Stern JM, Rahmani L, Groswasser Z, Najenson T. Work congruence, behavioral pathology and rehabilitation status of severe cranio-cerebral injury (CCI) patients. In: Lahav M, editors. Psychological research0 in Rehabilitation. Tel-Aviv: Ministry of Defence Publishing House; 1982. p. 59–74.
   Google Scholar
• Wilson LJT, Pettigrew LEI, Teasdale GM. Structured interviews for the Glasgow outcome scale and the extended Glasgow outcome scale: guidelines for their use. J Neurotrauma. 1998;15:573–85. doi:10.1089/neu.1998.15.573.
   PubMed Web of Science ®Google Scholar
• Pettigrew LEI, Wilson LJT, Teasdale GM. Reliability of ratings on the Glasgow outcome scales from in-person and telephone structured interviews. J Head Trauma Rehabil. 2003;18:252–58. doi:10.1097/00001199-200305000-00003.
   PubMed Web of Science ®Google Scholar
• Levin HS, Boake C, Song J, McCauley S, Contant C, Diaz-Marchan P, Brundage S, Goodman H, Kotrla KJ. Validity and sensitivity to change of the extended Glasgow outcome scale in mild to moderate traumatic brain injury. J Neurotrauma. 2001;18:575–84. doi:10.1089/089771501750291819.
   PubMed Web of Science ®Google Scholar
• Nichol AD, Higgins AM, Gabbe BJ, Murray LJ, Cooper DJ, Cameron PA. Measuring functional and quality of life outcomes following major head injury: common scales and checklists. Injury. 2011;42:281–87. doi:10.1016/j.injury.2010.11.047.
   PubMed Web of Science ®Google Scholar
• Marx RG, Menezes A, Horovitz L, Jones EC, Warren RF. A comparison of two time intervals for test-retest reliability of health status instruments. J Clin Epidemiol. 2003;56:730–35. doi:10.1016/S0895-4356(03)00084-2.
   PubMed Web of Science ®Google Scholar
• Brooks DN, Hosie J, Bond MR, Jennet B, Aughton M. Cognitive sequelae of severe head injury in relation to the Glasgow outcome scale. J Neurol Neurosurg Psychiatry. 1986;49:549–53. doi:10.1136/jnnp.49.5.549.
   PubMed Web of Science ®Google Scholar
• Ware JE Jr. SF-36® health survey update. The SF Community; 2002. http://www.sf-36.org/tools/sf36.shtml.
   Google Scholar
• Hays RD, Sherbourne CD, Mazel RM. The rand 36-item health survey 1.0. Health Econ. 1993;2:217–27. doi:10.1002/(ISSN)1099-1050.
   PubMedGoogle Scholar
• Ware JE Jr, Kosinski M. Interpreting SF-36 summary health measures: a response. Qual Life Res. 2001;10:405–13. doi:10.1023/A:1012588218728.
   PubMed Web of Science ®Google Scholar
• Johns R. Likert items and scales. Methods Fact Sheet. 2010;1:1–14.
   Google Scholar