Self-awareness following a traumatic brain injury in childhood: a developmental perspective

References

• Anderson V, Catroppa C. Advances in postacute rehabilitation after childhood-acquired brain injury: a focus on cognitive, behavioral, and social domains. Am J Phys Med Rehabil. 2006;85:767–78. doi:10.1097/01.phm.0000233176.08480.22.
   PubMed Web of Science ®Google Scholar
• Wade SL, Oberjohn K, Burkhardt A, Greenberg I. Feasibility and preliminary efficacy of a web-based parenting skills program for young children with traumatic brain injury. J Head Trauma Rehabil. 2009;24(4):239–47. doi:10.1097/HTR.0b013e3181ad6680.
   PubMed Web of Science ®Google Scholar
• Hamilton C, Maw A, Gill A, Brahmbhatt M, Phaal R, Pickard J. Paediatric neurorehabilitation: finding and filling the gaps through the use of the institute for manufacturing strategic roadmapping method. BMJ Innovations. 2017. doi:10.1136/bmjinnov-2017-000202.
   Google Scholar
• Hawley C, Ward A, Magnay A, Long J. Outcomes following childhood head injury: a population study. J Neurol Neurosurg Psychiatry. 2004;75(5):737–42.
   PubMed Web of Science ®Google Scholar
• Parslow RC, Morris KP, Tasker RC, Forsyth RJ, Hawley CA; UK Paediatric Traumatic Brain Injury Study Steering Group; Paediatric Intensive Care Society Study Group. Epidemiology of traumatic brain injury in children receiving intensive care in the UK. Arch Dis Child. 2005;90:1182–87.
   PubMed Web of Science ®Google Scholar
• Trefan L, Houston R, Pearson G, Edwards R, Hyde P, Maconochie I, Parslow RC, Kemp A. Epidemiology of children with head injury: a national overview. Arch Dis Child. 2016. doi:10.1136/archdischild-2015-308424.
   Web of Science ®Google Scholar
• Toglia J, Kirk U. Understanding awareness deficits following brain injury. Neurorehabilitation. 2000;15:57–70.
   PubMed Web of Science ®Google Scholar
• Geurten M, Catale C, Geurten C, Wansard M, Meulemans T. Studying self-awareness in children: validation of the Questionnaire of Executive Functioning (QEF). Clin Neuropsychol. 2016;30(4):558–78. doi:10.1080/13854046.2016.1178331.
   PubMed Web of Science ®Google Scholar
• Lloyd O, Ownsworth T, Fleming J. Development and preliminary validation of the paediatric awareness questionnaire for children and adolescents with traumatic brain injury. Child Neuropsychology. 2018;24(5):702–22. doi:10.1080/09297049.2017.1332173.
   Google Scholar
• Krasny-Pacini A, Limond J, Evans J, Hiebel J, Bendjelida K, Chevignard M. Self-awareness assessment during cognitive rehabilitation in children with acquired brain injury: a feasibility study and proposed model of child anosognosia. Disabil Rehabil. 2015:1–15.
   Web of Science ®Google Scholar
• Wolfe KR, Bigler ED, Dennis M, Gerhardt CA, Rubin K, Taylor HG, Vannatta K, Yeates KO. Self-awareness of peer-rated social attributes in children with traumatic brain injury. J Pediatr Psychol. 2015;40(3):272–84. doi:10.1093/jpepsy/jsu060.
   PubMed Web of Science ®Google Scholar
• Rochat P. Five levels of self-awareness as they unfold early in life. Conscious Cogn. 2003;12:717–31.
   PubMed Web of Science ®Google Scholar
• Di Battista A, Godfrey C, Soo C, Catroppa C, Anderson V. “In my before life”: relationships, coping and post-traumatic growth in adolescent survivors of a traumatic brain injury. J Rehabil Med. 2014;46(10):975–83. doi:10.2340/16501977-1883.
   PubMed Web of Science ®Google Scholar
• Dirette DK, Plaisier BR, Jones SJ. Patterns and Antecedents of the development of self-awareness following traumatic brain injury; the importance of occupation. Br J Occuap Ther. 2008;71:44–51.
   Google Scholar
• Hart T, Seignourel P, Sherer M. A longitudinal study of awareness of deficit after moderate to severe traumatic brain injury. Neuropsychol Rehabil. 2009;19(2):161–76. doi:10.1080/09602010802188393.
   PubMed Web of Science ®Google Scholar
• Shaffer DR, Kipp K.Developmental psychology: childhood and adolescence. 8th Australia; United Kingdom:Wadsworth; 2010. xxxvii, 647[97] p. p.
   Google Scholar
• Kizony R, Tau S, Bar O, Engel Yeger B. Comparing memory and meta-memory abilities between children with acquired brain injury and healthy peers. Res Dev Disabil. 2014;35(7):1666–73. doi:10.1016/j.ridd.2014.03.041.
   PubMed Web of Science ®Google Scholar
• Ryan NP, van Bijnen L, Catroppa C, Beauchamp MH, Crossley L, Hearps S, Anderson V. Longitudinal outcome and recovery of social problems after pediatric traumatic brain injury (TBI): contribution of brain insult and family environment. Int J Dev Neurosci. 2016;49:23–30. doi:10.1016/j.ijdevneu.2015.12.004.
   PubMed Web of Science ®Google Scholar
• Fougeyrollas P, Lepage C, Boissiere L, Deaudelin I, Dore L. Assessment of social participation in three measurement times in children with Traumatic Brain Injuries (TBI) based on parental perceptions. Open J Ther Rehabil. 2014;02(04):10. doi:10.4236/ojtr.2014.24021.
   Google Scholar
• Williams WH, Mewse AJ, Tonks J, Mills S, Burgess CN, Cordan G. Traumatic brain injury in a prison population: prevalence and risk for re-offending. Brain Inj. 2010;24:1184–88. doi:10.3109/02699052.2010.495697.
   PubMed Web of Science ®Google Scholar
• Wales L, Hawley C, Sidebotham P. How an occupational therapist should conceptualise self-awareness following traumatic brain injury in childhood; a literature review. Br J Occup Ther. 2013;76(7):325–32. doi:10.4276/030802213X13729279115013.
   Web of Science ®Google Scholar
• Chesnel C, Jourdan C, Bayen E, Ghout I, Darnoux E, Azerad S, Charanton J, Aegerter P, Pradat-Diehl P, Ruet A, et al. Self-awareness four years after severe traumatic brain injury: discordance between the patient’s and relative’s complaints. results from the PariS-TBI study. Clin Rehabil. 2017;32(5):692–704. doi:10.1177/0269215517734294.
   PubMed Web of Science ®Google Scholar
• Lee A. Specific mental functions: emotionalfunctions, experience of self and time (B152, B180). In: Majnemer A, editor. Measures for children with developmental disabilities. London: MacKeith Press; 2012. p. 100–16.
   Google Scholar
• Morse JM, Niehaus L. Mixed method design: principlesand procedures. Morse J editor, Walnut Creek:Left Coast Press Inc; 2009
   Google Scholar
• Harter S. The perceived competence scale for children. Child Dev. 1982;53:87–97. doi:10.2307/1129640.
   Web of Science ®Google Scholar
• Harter S. Self-perception profile for adolescents. [Manual and Questionnaires]; 2012. In press.
   Google Scholar
• Goodman R. Psychometric properties of the strengths and difficulties questionnaire. J Am Acad Child Adolesc Psychiatry. 2001;40:1337–45. doi:10.1097/00004583-200111000-00015.
   PubMed Web of Science ®Google Scholar
• Damon W, Hart D. Self-understanding in childhood and adolescence. Cambridge: Cambridge University Press; 1988.
   Google Scholar
• Harter S. The construction of the self. 2nd ed. New York: The Guildford Press; 2012.
   Google Scholar
• Beardmore S, Tate R, Liddle B. Does information and feedback improve children’s knowledge and awareness of deficits after traumatic brain injury? Neuropsychol Rehabil. 1999;9:45–62. doi:10.1080/713755588.
   Web of Science ®Google Scholar
• Miles MB, Huberman AM. Qualitative data analysis. 2nd. california:Sage Publications, Inc; 1994.
   Google Scholar
• Appleton B, Baldwin T. Management of brain injured children. Oxford: Oxford University Press; 2009.
   Google Scholar
• Ponsford J. Traumatic brain injury: rehabilitation for everyday adaptive living. 2nd ed. Hove: Psychology Press; 2013.
   Google Scholar
• Walker S, Wicks B. Educating children with acquired brain injury. Oxon: David Fulton Publishers; 2005.
   Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101. doi:10.1191/1478088706qp063oa.
   Google Scholar
• Lloyd O, Ownsworth T, Fleming J, Zimmer-Gembeck MJ. Awareness deficits in children and adolescents after traumatic brain injury: a systematic review. J Head Trauma Rehabil. 2015;30(5):311–23. doi:10.1097/HTR.0000000000000113.
   PubMed Web of Science ®Google Scholar
• Anderson V, Spencer-Smith M, Wood A. Do children really recover better? Neurobehavioural plasticity after early brain insult. Brain. 2011;134:2197–221. doi:10.1093/brain/awr103.
   PubMed Web of Science ®Google Scholar
• Choe KS, Keil FC, Bloom P. Developing intuitions about how personal and social properties are linked to the brain and the body. Infant Child Dev. 2012;21(4):430–41. doi:10.1002/icd.v21.4.
   Web of Science ®Google Scholar
• Flavell JH. COGNITIVE DEVELOPMENT: children’s knowledge about the mind. Annu Rev Psychol. 1999;50(1):21–45. doi:10.1146/annurev.psych.50.1.21.
   PubMedGoogle Scholar
• Krasny-Pacini A, Limond J, Evans J, Hiebel J, Bendjelida K, Chevignard M. Self-awareness assessment during cognitive rehabilitation in children with acquired brain injury: a feasibility study and proposed model of child anosognosia. Disabil Rehabil. 2015;37(22):2092–106. doi:10.3109/09638288.2014.998783.
   PubMed Web of Science ®Google Scholar
• Crosson B, Barco P, Velozo C, Bolesta M, Cooper P, Werts D, Brobeck TC. Awareness and compensation in postacute head injury rehabilitation. J Head Trauma Rehabil. 1989;4:46–54. doi:10.1097/00001199-198909000-00008.
   Google Scholar
• Toglia J, Johnston M, Goverover Y, Dain B. A multicontext approach to promoting transfer of strategy use and self regulation after brain injury: an exploratory study. Brain Inj. 2010;24(4):664–77. doi:10.3109/02699051003610474.
   PubMed Web of Science ®Google Scholar