References
- Australian Institute of Health and Welfare. Disability in Australia: acquired brain injury. Canberra: AIHW; 2007.
- Ponsford JL, Downing MG, Olver J, Ponsford M, Acher R, Carty M, Spitz G. Longitudinal follow-up of patients with traumatic brain injury: outcome at two, five, and ten years post-injury. J Neurotrauma. 2014;31(1):64–77.doi:https://doi.org/10.1089/neu.2013.2997.
- Sabaz M, Simpson GK, Walker AJ, Rogers JM, Gillis I, Strettles B. Prevalence, comorbidities, and correlates of challenging behavior among community-dwelling adults with severe traumatic brain injury: a multicenter study. J Head Trauma Rehabil. 2014;29(2):E19–30. doi:https://doi.org/10.1097/HTR.0b013e31828dc590.
- Simpson GK, McRae P, Hallab L, Daher M, Strettles B. Participation in competitive employment after severe traumatic brain injury: New employment versus return to previous (pre-injury) employment. Neuropsychol Rehabil. 2018;30(6):995–1012. doi:https://doi.org/10.1080/09602011.2018.1531769.
- Tate RL, Broe GA, Cameron ID, Hodgkinson AE, Soo CA. Pre-injury, injury and early post-injury predictors of long-term functional and psychosocial recovery after severe traumatic brain injury. Brain Impairment. 2005;6(2):75–89. doi:https://doi.org/10.1375/brim.2005.6.2.75.
- Winter L, Moriarty HJ, Short TH. Beyond anger: emotion regulation and social connectedness in veterans with traumatic brain injury. Brain Inj. 2018;32(5):593–99. doi:https://doi.org/10.1080/02699052.2018.1432895.
- Wood RL, Yurdakul LK. Change in relationship status following traumatic brain injury. Brain Inj. 1997;11(7):491–501. doi:https://doi.org/10.1080/bij.11.7.491.501.
- Khan F, Baguley IJ, Cameron ID. 4: rehabilitation after traumatic brain injury. Med J Aust. 2003;178(6):290–95. doi:https://doi.org/10.5694/j.1326-5377.2003.tb05199.x.
- Turner-Stokes L. Evidence for the effectiveness of multi-disciplinary rehabilitation following acquired brain injury: a synthesis of two systematic approaches. J Rehabil Med. 2008;40(9):691–701. doi:https://doi.org/10.2340/16501977-0265.
- Doyle C, Lennox L, Bell D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open. 2013;3(1):e001570. doi:https://doi.org/10.1136/bmjopen-2012-001570.
- Bjertnaes OA, Sjetne IS, Iversen HH. Overall patient satisfaction with hospitals: effects of patient-reported experiences and fulfilment of expectations. BMJ Qual Saf. 2012;21(1):39–46. doi:https://doi.org/10.1136/bmjqs-2011-000137.
- Fleming J, Sampson J, Cornwell P, Turner B, Griffin J. Brain injury rehabilitation: the lived experience of inpatients and their family caregivers. Scand J Occup Ther. 2012;19(2):184–93. doi:https://doi.org/10.3109/11038128.2011.611531.
- Lefebvre H, Pelchat D, Swaine B, Gélinas I, Levert MJ. The experiences of individuals with a traumatic brain injury, families, physicians and health professionals regarding care provided throughout the continuum. Brain Inj. 2005;19(8):585–97. doi:https://doi.org/10.1080/02699050400025026.
- Graff HJ, Christensen U, Poulsen I, Egerod I. Patient perspectives on navigating the field of traumatic brain injury rehabilitation: a qualitative thematic analysis. Disabil Rehabil. 2018;40(8):926–34. doi:https://doi.org/10.1080/09638288.2017.1280542.
- Foster AM, Armstrong J, Buckley A, Sherry J, Young T, Foliaki S, James-Hohaia TM, Theadom A, McPherson KM. Encouraging family engagement in the rehabilitation process: a rehabilitation provider’s development of support strategies for family members of people with traumatic brain injury. Disabil Rehabil. 2012;34(22):1855–62.doi:https://doi.org/10.3109/09638288.2012.670028.
- Lannin NA, Coulter M, Laver K, Hyett N, Ratcliffe J, Holland AE, Callaway L, English C, Bragge P, Hill S, et al. Public perspectives on acquired brain injury rehabilitation and components of care: a citizens’ jury. Health Expectations. 2020:1–11. doi:https://doi.org/10.1111/hex.13176.
- McMordie WR, Rogers KF, Barker SL. Consumer satisfaction with services provided to head-injured patients and their families. Brain Inj. 1991;5(1):43–51. doi:https://doi.org/10.3109/02699059108998510.
- Deutsch A, Heinemann AW, Cook KF, Foster L, Miskovic A, Goldsmith A, Cella D. Inpatient rehabilitation quality of care from the patient’s perspective: effect of data collection timing and patient characteristics. Arch Phys Med Rehabil. 2019;100(6):1032–41.doi:https://doi.org/10.1016/j.apmr.2018.10.019.
- Oyesanya T. The experience of patients with ABI and their families during the hospital stay: A systematic review of qualitative literature. Brain Inj. 2017;31(2):151–73. doi:https://doi.org/10.1080/02699052.2016.1225987.
- Sander AM, Caroselli JS, High WM Jr., Becker C, Neese L, Scheibel R. Relationship of family functioning to progress in a post-acute rehabilitation programme following traumatic brain injury. Brain Inj. 2002;16(8):649–57. doi:https://doi.org/10.1080/02699050210128889.
- Simpson G, Pfeiffer D, Keogh S, Lane B. Describing an early social work intervention program for families after severe traumatic brain injury. J Soc Work Disabil Rehabil. 2016;15(3–4):213–33. doi:https://doi.org/10.1080/1536710X.2016.1220888.
- Aggar C, Pryor J, Fisher M. Partners’ experiences of caregiving and perceptions of inpatient rehabilitation following catastrophic injury. Int J Ther Rehabil. 2017;24(6):255–62. doi:https://doi.org/10.12968/ijtr.2017.24.6.255.
- Manskow US, Arntzen C, Damsgård E, Braine M, Sigurdardottir S, Andelic N, Røe C, Anke A. Family members’ experience with in-hospital health care after severe traumatic brain injury: a national multicentre study. BMC Health Serv Res. 2018;18(1):951.doi:https://doi.org/10.1186/s12913-018-3773-7.
- de Goumoëns V, Didier A, Mabire C, Shaha M, Diserens K. Families’ needs of patients with acquired brain injury: acute phase and rehabilitation. Rehabil Nur J. 2019;44(6).
- Pozzato I, Tate RL, Rosenkoetter U, Cameron ID. Epidemiology of hospitalised traumatic brain injury in the state of New South Wales, Australia: a population-based study. Aust N Z J Public Health. 2019;43(4):382–88. doi:https://doi.org/10.1111/1753-6405.12878.
- Brain Injury Rehabilitation Directorate. NSW brain injury rehabilitation program model of care - diagnostic report. Chatswood, NSW: NSW Agency for Clinical Innovation; 2015.
- Simpson G, Secheny T, Lane-Brown A, Strettles B, Ferry K, Phillips J. Post-acute rehabilitation for people with traumatic brain injury: a model description and evaluation of the liverpool hospital transitional living program. Brain Impairment. 2004;5(1):67–80. doi:https://doi.org/10.1375/brim.5.1.67.35401.
- Tate RL, Simpson GK, McRae P. Traumatic Brain Injury. In: Escorpizo R, Brage S, Homa D, Stucki G, editors. Handbook of vocational rehabilitation and disability evaluation: application and implementation of the ICF. Cham: Springer International Publishing; 2015. p. 263–94.
- Tate RL, Strettles B, Osoteo T. The clinical practice of a community rehabilitation team for people with acquired brain injury. Brain Impairment. 2004;5(1):81–92. doi:https://doi.org/10.1375/brim.5.1.81.35408.
- Rutherford C, Campbell R, Tinsley M, Speerin R, Soars L, Butcher A, King M. Implementing patient-reported outcome measures into clinical practice across NSW: mixed methods evaluation of the first year. Appl Res Qual Life. 2020. doi:https://doi.org/10.1007/s11482-020-09817-2.
- Attkisson CC, Zwick R. The client satisfaction questionnaire: psychometric properties and correlations with service utilization and psychotherapy outcome. Eval Program Plann. 1982;5(3):233–37. doi:https://doi.org/10.1016/0149-7189(82)90074-X.
- Swaine B, Dassa C, Koné A, Dutil É, Demers L, Trempe C. The PQRS-montreal: a measure of patients’ perceptions of the quality of rehabilitation services for persons with a traumatic brain injury. Disabil Rehabil. 2017;39(1):59–72. doi:https://doi.org/10.3109/09638288.2016.1140828.
- Simon SE, Patrick A. Understanding and assessing consumer satisfaction in rehabilitation. J Rehabil Outcomes Meas. 1997;1(5):1–14.
- Capella ME, Turner RC. Development of an instrument to measure consumer satisfaction in vocational rehabilitation. Rehabil Couns Bull. 2004;47(2):76–85. doi:https://doi.org/10.1177/00343552030470020201.
- Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi:https://doi.org/10.1191/1478088706qp063oa.
- Stanley M, Nayar S. Methodological rigour: ensuring quality in occupational therapy qualitative research. N Z Occup Ther. 2014;61(1):6–12.
- Piccenna L, Lannin NA, Gruen R, Pattuwage L, Bragge P. The experience of discharge for patients with an acquired brain injury from the inpatient to the community setting: A qualitative review. Brain Inj. 2016;30(3):241–51. doi:https://doi.org/10.3109/02699052.2015.1113569.
- Norup A, Perrin PB, Cuberos-Urbano G, Anke A, Andelic N, Doyle ST, Cristina Quijano M, Caracuel A, Mar D, Guadalupe Espinosa Jove I, et al. Family needs after brain injury: A cross cultural study. NeuroRehabilitation. 2015;36(2):203–14.doi:https://doi.org/10.3233/NRE-151208.
- Abrahamson V, Jensen J, Springett K, Sakel M. Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study. Disabil Rehabil. 2017;39(17):1683–94. doi:https://doi.org/10.1080/09638288.2016.1211755.
- Hassett L, Wong S, Sheaves E, Daher M, Grady A, Egan C, Seeto C, Hosking T, Moseley A. Time use and physical activity in a specialised brain injury rehabilitation unit: an observational study. Brain Inj. 2018;32(7):850–57.doi:https://doi.org/10.1080/02699052.2018.1463454.
- Kenah K, Bernhardt J, Cumming T, Spratt N, Luker J, Janssen H. Boredom in patients with acquired brain injuries during inpatient rehabilitation: a scoping review. Disabil Rehabil. 2018;40(22):2713–22. doi:https://doi.org/10.1080/09638288.2017.1354232.
- Janssen H, Ada L, Bernhardt J, McElduff P, Pollack M, Nilsson M, Spratt NJ. An enriched environment increases activity in stroke patients undergoing rehabilitation in a mixed rehabilitation unit: a pilot non-randomized controlled trial. Disabil Rehabil. 2014;36(3):255–62.doi:https://doi.org/10.3109/09638288.2013.788218.
- Rosbergen IC, Grimley RS, Hayward KS, Walker KC, Rowley D, Campbell AM, McGufficke S, Robertson ST, Trinder J, Janssen H, et al. Embedding an enriched environment in an acute stroke unit increases activity in people with stroke: a controlled before-after pilot study. Clin Rehabil. 2017;31(11):1516–28.doi:https://doi.org/10.1177/0269215517705181.