Sexuality >1 year after brain injury rehabilitation: A cross-sectional study in Sweden

References

• O’Shea A, Frawley P, Leahy JW, Nguyen HD. A critical appraisal of sexuality and relationships programs for people with acquired brain injury. Sex Disabil. 2020;38(1):57–83.doi:10.1007/s11195-020-09616-5.
   Web of Science ®Google Scholar
• Etminan N, Chang HS, Hackenberg K, de Rooij NK, Vergouwen MDI, Rinkel GJE, Algra A. Worldwide incidence of aneurysmal subarachnoid hemorrhage according to region, time period, blood pressure, and smoking prevalence in the population: a systematic review and meta-analysis. JAMA Neurol. 2019;76(5):588–97.doi:10.1001/jamaneurol.2019.0006.
   PubMed Web of Science ®Google Scholar
• Wafa HA, Wolfe CDA, Emmett E, Roth GA, Johnson CO, Wang Y. Burden of stroke in Europe: thirty-Year projections of incidence, prevalence, deaths, and disability-adjusted life years. Stroke. 2020;51(8):2418–27.doi:10.1161/STROKEAHA.120.029606.
   PubMed Web of Science ®Google Scholar
• Dewan MC, Rattani A, Gupta S. Estimating the global incidence of traumatic brain injury. J Neurosurg 2019;130:1080–97.
   Web of Science ®Google Scholar
• Dulhanty LH, Hulme S, Vail A, Patel HC, Tyson SF. The self-reported needs of patients following subarachnoid hemorrhage (SAH). Disabil Rehabil. 2020;42(24):3450–56.doi:10.1080/09638288.2019.1595748.
   PubMed Web of Science ®Google Scholar
• Moreno JA, McKerral M. Relationships between risky sexual behaviour, dysexecutive problems, and mental health in the years following interdisciplinary TBI rehabilitation. Neuropsychol Rehabil. 2018;28(1):34–56.doi:10.1080/09602011.2015.1136222.
   PubMed Web of Science ®Google Scholar
• Moreno A, Gan C, Zasler ND, Moreno A, Gan C, Zasler ND. Neurosexuality: a transdisciplinary approach to sexuality in neurorehabilitation. NeuroRehabilitation. 2017;41(2):255–59.doi:10.3233/NRE-001480.
   PubMed Web of Science ®Google Scholar
• Strizzi J, Olabarrieta-Landa L, Olivera S, Valdivia Tangarife R, Andrés Soto Rodríguez I, Fernández Agis I, Arango-Lasprilla JC. Sexual function in men with traumatic brain injury. Sex Disabil. 2017;35(4):461–70.doi:10.1007/s11195-017-9493-9.
   Web of Science ®Google Scholar
• Strizzi J, Olabarrieta Landa L, Pappadis M, Olivera SL, Valdivia Tangarife ER, Fernandez Agis I, Perrin PB, Arango-Lasprilla JC, et al. Sexual functioning, desire, and satisfaction in women with TBI and healthy controls. Behav Neurol. 2015;2015:1–7.
   Web of Science ®Google Scholar
• Ponsford JL, Downing MG, Stolwyk R. Factors associated with sexuality following traumatic brain injury. J Head Trauma Rehabil. 2013;28(3):195–201.doi:10.1097/HTR.0b013e31828b4f7b.
   PubMed Web of Science ®Google Scholar
• Sander AM, Maestas KL, Pappadis MR, Sherer M, Hammond FM, Hanks R. Sexual functioning 1 year after traumatic brain injury: findings from a prospective traumatic brain injury model systems collaborative study. Arch Phys Med Rehabil. 2012;93(8):1331–37.doi:10.1016/j.apmr.2012.03.037.
   PubMed Web of Science ®Google Scholar
• Nilsson MI, Fugl-Meyer K, von Koch L, Ytterberg C, et al. Experiences of sexuality six years after stroke: a qualitative study. J Sex Med. 2017;14(6):797–803.doi:10.1016/j.jsxm.2017.04.061.
   PubMed Web of Science ®Google Scholar
• Park J-H, Ovbiagele B, Feng W. Stroke and sexual dysfunction — a narrative review. J Neurol Sci. 2015;350(1–2):7–13.doi:10.1016/j.jns.2015.02.001.
   PubMed Web of Science ®Google Scholar
• Pryor J, Lever S. Insights into the nature of female sexuality from the perspective of female stroke survivors. Disabil Rehabil. 2020;42(1):71–77.doi:10.1080/09638288.2018.1492635.
   PubMed Web of Science ®Google Scholar
• Vikan JK, Nilsson MI, Bushnik T, Deng W, Elessi K, Frost-Bareket Y, Kovrigina E, Shahwan J, Snekkevik H, Åkesson E, et al. Sexual health policies in stroke rehabilitation: a multi national study. J Rehabil Med. 2019;51(5):361–68.doi:10.2340/16501977-2552.
   PubMed Web of Science ®Google Scholar
• Moreno JA, Arango Lasprilla JC, Gan C, McKerral M. Sexuality after traumatic brain injury: a critical review. NeuroRehabilitation. 2013;32(1):69–85.doi:10.3233/NRE-130824.
   PubMed Web of Science ®Google Scholar
• Anto-Ocrah M, Tiffany K, Hasman L, van Wijngaarden E. Mild traumatic brain injury/concussion and female sexuality, a scoping review of the literature. Inj Epi. 2020;7(1):1–13.doi:10.1186/s40621-020-0232-9.
   PubMedGoogle Scholar
• Grenier-Genest A, Gérard M, Courtois F, Moreno A, Gan C, Zasler ND. Stroke and sexual functioning: a literature review. NeuroRehabilitation. 2017;41(2):293–315.doi:10.3233/NRE-001481.
   PubMed Web of Science ®Google Scholar
• Lever S, Pryor J. The impact of stroke on female sexuality. Disabil Rehabil. 2017;39(21):2011–20.doi:10.1080/09638288.2016.1213897.
   PubMed Web of Science ®Google Scholar
• Vikan JK, Snekkevik H, Nilsson MI, Stanghelle JK, Geirdal AØ, Fugl-Meyer KS, et al. Sexual satisfaction and associated biopsychosocial factors in stroke patients admitted to specialized cognitive rehabilitation. Sexual Med. 2021;9(5):100424.doi:10.1016/j.esxm.2021.100424.
   PubMed Web of Science ®Google Scholar
• Epprecht L, Messerli M, Samuel R, Seule M, Weber J, Fournier J-Y, Surbeck W, et al. Sexual dysfunction after good-grade aneurysmal subarachnoid hemorrhage. World Neurosurg. 2018;111:e449–e453.
   PubMed Web of Science ®Google Scholar
• Layman DE, Dijkers MP, Ashman TA. Exploring the impact of traumatic brain injury on the older couple: ‘yes, but how much of it is age, I can’t tell you … ’. Brain Injury. 2005 Oct;19(11):909–23. doi:10.1080/02699050500109928.
   PubMed Web of Science ®Google Scholar
• Ek A-S. Individual experiences of sexual life after an acquired brain injury - an interview study [ 1-year master student thesis, in Swedish]. Malmö: Malmö University; 2010.
   Google Scholar
• Ek A-S. Balancing between individual and relational needs - a qualitative study of partners’ perspectives on sexual life after acquired brain injury [ 2-year master student thesis, in Swedish]. Malmö: Malmö University; 2011.
   Google Scholar
• Kreuter M, Dahllöf AG, Gudjonsson G, Sullivan M, Siösteen A, et al. Sexual adjustment and its predictors after traumatic brain injury. Brain Injury. 1998;12(5):349–68.doi:10.1080/026990598122494.
   PubMed Web of Science ®Google Scholar
• Fugl-Meyer KS, Nilsson MI, Von Koch L, Ytterberg C, et al. Closeness and life satisfaction after six years for persons with stroke and spouses. J Rehabil Med. 2019;51(7):492–98.doi:10.2340/16501977-2566.
   PubMed Web of Science ®Google Scholar
• Lingsom S. Invisible Impairments: dilemmas of concealment and disclosure. Scandinavian J Disabil Res. 2008;10(1):2–16.doi:10.1080/15017410701391567.
   Google Scholar
• Sjögren K, Fugl-Meyer AR. Sexual problems in hemiplegia. Disabil Rehabil. 1981;3(1):26–31.
   Google Scholar
• Goldin Y, Cantor JB, Tsaousides T, Spielman L, Gordon WA, et al. Sexual functioning and the effect of fatigue in traumatic brain injury. J Head Trauma Rehabil. 2014;29(5):418–26.doi:10.1097/HTR.0b013e31829cf76d.
   PubMed Web of Science ®Google Scholar
• Bivona U, Antonucci G, Contrada M, Rizza F, Leoni F, Zasler ND, Formisano R. A biopsychosocial analysis of sexuality in adult males and their partners after severe traumatic brain injury. Brain Injury. 2016;30(9):1082–95.doi:10.3109/02699052.2016.1165867.
   PubMed Web of Science ®Google Scholar
• Lemieux L, Cohen-Schneider R, Holzapfel S. Aphasia and sexuality. Sex Disabil. 2001;19(4):253–66.doi:10.1023/A:1017953308761.
   Web of Science ®Google Scholar
• Verschuren JE, Geertzen JH, Enzlin P, Dijkstra PU, Dekker R, et al. People with lower limb amputation and their sexual functioning and sexual well-being. Disabil Rehabil. 2015;37(3):187–93.doi:10.3109/09638288.2014.913704.
   PubMed Web of Science ®Google Scholar
• SRHR 2017. Pub Health Agency Sweden. 2019. Available from. https://www.folkhalsomyndigheten.se/publikationer-och-material/publikationsarkiv/s/sexuell-och-reproduktiv-halsa-och-rattigheter-i-sverige-2017/?pub=60999.
   Google Scholar
• Stentagg M, Skär L, Berglund JS, Lindberg T. Cross-sectional study of sexual activity and satisfaction among older adult’s ≥60 years of age. Sexual Med. 2021 Apr;9(2):100316. doi:10.1016/j.esxm.2020.100316.
   PubMed Web of Science ®Google Scholar
• Beckman N, Waern M, Gustafson D, Skoog I. Secular trends in self reported sexual activity and satisfaction in Swedish 70 year olds: cross sectional survey of four populations, 1971-2001. Br Med J. 2008;337(7662):151–54.doi:10.1136/bmj.a279.
   Web of Science ®Google Scholar
• Sjögren K, Fugl-Meyer AR. Adjustment to life after stroke with special reference to sexual intercourse and leisure. J Psychosom Res. 1982;26(4):409–17.doi:10.1016/0022-3999(82)90015-0.
   PubMed Web of Science ®Google Scholar
• Latella D, Maggio MG, De Luca R, Maresca G, Piazzitta D, Sciarrone F, Carioti L, Manuli A, Bramanti P, Calabro RS, et al. Changes in sexual functioning following traumatic brain injury: an overview on a neglected issue. J Neurosurgical Soc Australasia. 2018;58:1–6.
   Web of Science ®Google Scholar
• Engel GL. The need for a new medical model: a challenge for biomedicine. J Interprof Care. 1989;4(1):37–53.
   Google Scholar
• Borrell-Carrio F, Suchman AL, Epstein RM. The biopsychosocial model 25 years later: principles, practice, and scientific inquiry. Annals of Family Medicine. 2004;2(6):576–82.doi:10.1370/afm.245.
   PubMed Web of Science ®Google Scholar
• Svenskt register för rehabiliteringsmedicin, in Swedish [cited 2022 24 october]. Available from: https://svereh.registercentrum.se
   Google Scholar
• Stibrant-Sunnerhagen K, Tölli A, Lannsjö M. Diagnosgrupper för NASS, in Swedish: svenskt register för rehabiliteringsmedicin; 2016 [cited 2022 october 24]. Available from: https://registercentrum.blob.core.windows.net/svereh/r/Diagnosgrupper-for-NASS-BJl4IZZz7Y.pdf
   Google Scholar
• Stineman MG, Shea JA, Jette A, Tassoni CJ, Ottenbacher KJ, Fiedler R, Granger CV. The functional Independence measure: tests of scaling assumptions, structure, and reliability across 20 diverse impairment categories. Arch Phys Med Rehabil. 1996;77(11):1101–08.doi:10.1016/S0003-9993(96)90130-6.
   PubMed Web of Science ®Google Scholar
• Stolwyk RJ, Downing MG, Taffe J, Kreutzer JS, Zasler ND, Ponsford JL. Assessment of sexuality following traumatic brain injury: validation of the brain injury questionnaire of sexuality. J Head Trauma Rehabil. 2013;28(3):164–70.doi:10.1097/HTR.0b013e31828197d1.
   PubMed Web of Science ®Google Scholar
• Elmerstig E, Wijma B, Swahnberg K. Prioritizing the partner’s enjoyment: a population-based study on young Swedish women with experience of pain during vaginal intercourse. Journal of Psychosomatic Obstetrics & Gynecology. 2013;34(2):82–89.doi:10.3109/0167482X.2013.793665.
   PubMed Web of Science ®Google Scholar
• Voormolen DC, Cnossen MC, Spikman J, Polinder S, Iverson GL, de Koning M, van der Naalt J. Rating of pre-injury symptoms over time in patients with mild traumatic brain injury: the good-old-days bias revisited. Brain Injury. 2020;34(8):1001–09.doi:10.1080/02699052.2020.1761563.
   PubMed Web of Science ®Google Scholar
• Verschuren JEA, Enzlin P, Geertzen JHB, Dijkstra PU, Dekker R. Sexuality in people with a lower limb amputation: a topic too hot to handle? Disabil Rehabil. 2013;35(20):1698–704.doi:10.3109/09638288.2012.751134.
   PubMed Web of Science ®Google Scholar