Physical Activity in Hospice Care: A Social Ecological Perspective to Inform Policy and Practice

References

• Albrecht, T. A., & Taylor, A. G. (2012). Physical activity in patients with advanced-stage cancer: A systematic review of the literature. Clinical Journal of Oncology Nursing, 16(3), 293–300. doi:10.1188/12.CJON.293-300
   PubMed Web of Science ®Google Scholar
• Andrews, G. J., Hall, E., Evans, B., & Colls, R. (2012). Moving beyond walkability: On the potential of health geography. Social Science and Medicine, 75, 1925–1932. doi:10.1016/j.socscimed.2012.08.013
   PubMed Web of Science ®Google Scholar
• Bade, B. C., Hyer, J. M., Bevill, B. T., Pastis, A., Rojewski, A. M., Toll, B. A., & Silvestri, G. A. (2018). A patient-centred activity regimen improves participation in physical activity interventions in advanced-stage lung cancer. Integrative Cancer Therapies, 17(3), 921–927. doi:10.1177/1534735418781739
   PubMed Web of Science ®Google Scholar
• Belchamber, C. A., & Gousy, M. H. (2004). Rehabilitative care in a specialist palliative day care centre: A study of patients’ perspectives. International Journal of Therapy and Rehabilitation, 11(9), 425–434. doi:10.12968/ijtr.2004.11.9.19590
   Google Scholar
• Belchamber, C. A., Gousy, M. H., & Ellis-Hill, C. (2013). Fostering hope through palliative rehabilitation. European Journal of Palliative Care, 20(3), 136–139.
   Google Scholar
• Bethancourt, H. J., Rosenberg, D. E., Beatty, T., & Arterburn, D. E. (2014). Barriers to and facilitators of physical activity program use among older adults. Clinical Medicine and Research, 12(1–2), 10–20. doi:10.3121/cmr.2013.1171
   PubMedGoogle Scholar
• Bone, A. E., Gomes, B., Etkind, S. N., Verne, J., Murtagh, F. E. M., Evans, C. J., & Higginson, I. J. (2018). What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death. Palliative Medicine, 32(2), 329–336. doi:10.1177/0269216317734435
   PubMed Web of Science ®Google Scholar
• Boulton, E. R., Horne, M., & Todd, C. (2017). Multiple influences on participating in physical activity in older age: Developing a social ecological approach. Health Expectations, 21(1), 239–248. doi:10.1111/hex.12608
   PubMed Web of Science ®Google Scholar
• Burke, S. M., Brunet, J., Jack, S., Grocott, M., & West, M. (2015). Exploring the meaning of adhering to a pre-surgical exercise program for patients with advanced rectal cancer: A phenomenological study. Psychology of Sport and Exercise, 16, 88–95. doi:10.1016/j.psychsport.2014.09.005
   Web of Science ®Google Scholar
• Colorafi, K. J., & Evans, B. (2016). Qualitative descriptive methods in health science research. HERD: Health Environments Research & Design Journal, 9(4), 16–25. doi:10.1177/1937586715614171
   Web of Science ®Google Scholar
• Costello, E., Kafchinski, M., Vrazel, J., & Sullivan, P. (2011). Motivators, barriers, and beliefs regarding physical activity in an older adult population. Journal of Geriatric Physical Therapy, 34(3), 138–147. doi:10.1519/JPT.0b013e31820e0e71
   PubMed Web of Science ®Google Scholar
• Deci, E. L., & Ryan, R. M. (2008). Facilitating optimal motivation and psychological well-being across life’s domains. Canadian Psychology, 49(1), 14–23. doi:10.1037/0708-5591.49.1.14
   Web of Science ®Google Scholar
• Duff, C. (2011). Networks, resources and agencies: On the character and production of enabling places. Health and Place, 17, 149–156. doi:10.1016/j.healthplace.2010.09.012
   PubMed Web of Science ®Google Scholar
• Etkind, S. N., Bone, A. E., Gomes, B., Lovell, N., Evans, C. J., Higginson, I. J., & Murtagh, F. E. M. (2017). How many people will need palliative care in 2040? Past trends, future projections and implications for services. BMC Medicine, 15, 102. doi:10.1186/s12916-017-0860-2
   PubMed Web of Science ®Google Scholar
• Eyigor, S., & Akdeniz, S. (2014). Is exercise ignored in palliative cancer patients? World Journal of Clinical Oncology, 5(3), 554–559. doi:10.5306/wjco.v5.i3.554
   PubMedGoogle Scholar
• Flick, U. (2018). Managing quality in qualitative research. London, UK: SAGE.
   Google Scholar
• Gale, N. K., Heath, G., Cameron, E., Rashid, S., & Redwood, S. (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Medical Research Methodology, 13, 117. doi:10.1186/1471-2288-13-117
   PubMed Web of Science ®Google Scholar
• Garfinkel, S. N., Seth, A. K., Barrett, A. B., Suzuki, K., & Critchley, H. D. (2015). Knowing your own heart: Distinguishing interoceptive accuracy from interoceptive awareness. Biological Psychology, 104, 65–74. doi:10.1016/j.biopsycho.2014.11.004
   PubMed Web of Science ®Google Scholar
• Gomes, B., & Higginson, I. J. (2008). Where people die (1974-2030): Past trends, future projections and implications for care. Palliative Medicine, 22, 33–41. doi:10.1177/0269216307084606
   PubMed Web of Science ®Google Scholar
• Green, J., & Thorogood, N. (2009). Qualitative research methods for health care (2nd ed.). London, UK: SAGE.
   Google Scholar
• Gysels, M., Shipman, C., & Higginson, I. (2008). Is the qualitative research interview an acceptable medium for research in palliative care patients and carers? BMC Medical Ethics, 9, 7. doi:10.1186/1472-6939-9-7
   PubMedGoogle Scholar
• Hospice UK. (2016). Hospice care in the UK 2016. Retrieved from https://www.hospiceuk.org/what-we-offer/publications?page=4
   Google Scholar
• Javier, N. S. C., & Montagnini, M. L. (2011). Rehabilitation of the hospice and palliative care patient. Journal of Palliative Medicine, 14(5), 638–648. doi:10.1089/jpm.2010.0125
   PubMed Web of Science ®Google Scholar
• Kuczynski, L., & Parkin, M. C. (2007). Agency and bidirectionality in socialization: Interactions, transactions, and relational dialectics. In J. E. Grusec & P. Hastings (Eds.), Handbook of socialization (pp. 259–283). New York, NY: Guilford Press.
   Google Scholar
• Kumar, S. P., & Jim, A. (2010). Physical therapy in palliative care: From symptom control to quality of life: A critical review. Indian Journal of Palliative Care, 16(3), 138–146. doi:10.4103/0973-1075.73670
   PubMedGoogle Scholar
• Levitt, H. M., Motulsky, S. L., Wertz, F. J., Morrow, S. L., & Ponterotto, J. G. (2016). Recommendations for designing and reviewing qualitative research in psychology: Promoting methodological integrity. Qualitative Psychology, 4(1), 2–22.
   PubMedGoogle Scholar
• Lowe, S., Watanabe, S. M., Baracos, V. E., & Courneya, K. S. (2012). Determinants of physical activity in palliative cancer patients: An application of the theory of planned behaviour. The Journal of Supportive Oncology, 10, 30–36. doi:10.1016/j.suponc.2011.07.005
   PubMedGoogle Scholar
• Lowe, S. S., Watanabe, S. M., & Courneya, K. S. (2009). Physical activity as a supportive care intervention in palliative cancer patients: A systematic review. The Journal of Supportive Oncology, 7(1), 27–34.
   PubMedGoogle Scholar
• MacDonald, N. (2009). Physical activity as a supportive care intervention in palliative care patients. The Journal of Supportive Oncology, 7(1), 36–37.
   PubMedGoogle Scholar
• Malcolm, L., Mein, G., Jones, A., Talbot-Rice, H., Maddocks, M., & Bristowe, K. (2016). Strength in numbers: Patient experiences of group exercise within hospice palliative care. BMC Palliative Care, 15, 97. doi:10.1186/s12904-016-0173-9
   PubMed Web of Science ®Google Scholar
• Mas, S, Xavier, Q, & Ninot, G. (2015). Barriers to, and facilitators of physical activity in patients receiving chemotherapy for lung cancer: an exploratory study. Journal of Palliative Care, 31, 89-96. doi: 10.1177/082585971503100204
   PubMed Web of Science ®Google Scholar
• McLeroy, K. R., Bibeau, D., Steckler, A., & Glanz, K. (1988). An ecological perspective on health promotion programs. Health Education Quarterly, 15(4), 351–377. doi:10.1177/109019818801500401
   PubMedGoogle Scholar
• Nyatanga, B. (2017). Physical exercise for those living with and beyond cancer: Changing perceptions in palliative caring. British Journal of Community Nursing, 22(6), 308. doi:10.12968/bjcn.2017.22.6.308
   PubMedGoogle Scholar
• O’reilly, M., & Parker, N. (2013). ‘Unsatisfactory Saturation’: A critical exploration of the notion of saturated sample sizes in qualitative research. Qualitative Research, 13(2), 190–197. doi:10.1177/1468794112446106
   Web of Science ®Google Scholar
• Oldervoll, L. M., Loge, J. H., Paltiel, H., Asp, M. B., Vidvei, U., Wiken, A. N., … Kaasa, S. (2006). The effect of a physical exercise program in palliative care: A phase II study. Journal of Pain and Symptom Management, 31(5), 421–430. doi:10.1016/j.jpainsymman.2005.10.004
   PubMed Web of Science ®Google Scholar
• Paltiel, H., Solvoll, E., Loge, J. H., Kaasa, S., & Oldervoll, L. (2009). The healthy me appears: Palliative cancer patients’ experiences of participation in a physical group exercise program. Palliative and Supportive Care, 7(4), 459–467. doi:10.1017/S1478951509990460
   PubMedGoogle Scholar
• Phoenix, C., & Orr, N. (2017). Analysing exceptions within qualitative data: Promoting analytical diversity to advance knowledge of ageing and physical activity. Qualitative Research in Sport, Exercise and Health, 9(3), 271–284. doi:10.1080/2159676X.2017.1282539
   Web of Science ®Google Scholar
• Richie, J., & Spencer, L. (1994). Qualitative data analysis for applied policy research. In A. Bryman & B. Burgess (Eds.), Analysing qualitative data (pp. 173–194). London, UK: Routledge.
   Google Scholar
• Sallis, J., Owen, N., & Fisher, E. (2008). Ecological models of health behavior. In K. Glanz, B. Rimer, & K. Viswanath (Eds.), Health behavior and health education (4th ed., pp. 465–485). San Francisco, CA: Jossey-Bass.
   Google Scholar
• Sand, L., Olsson, M., & Strang, P. (2009). Coping strategies in the presence of one’s own impeding death from cancer. Journal of Pain and Symptom Management, 37(1), 13–22. doi:10.1016/j.jpainsymman.2008.01.013
   PubMed Web of Science ®Google Scholar
• Sandelowski, M. (2010). What’s in a name? Qualitative description revisited. Research in Nursing and Health, 33(1), 77–84. doi:10.1002/nur.20362
   PubMed Web of Science ®Google Scholar
• Sheill, G., Guinan, E., Neill, L. O., Hevey, D., & Hussey, J. (2018). Physical activity and advanced cancer: The views of oncology and palliative care physicians in Ireland. Irish Journal of Medical Science, 187(2), 337–342. doi:10.1007/s11845-017-1677-x
   PubMed Web of Science ®Google Scholar
• Smith, B. (2018). Generalizability in qualitative research: Misunderstandings, opportunities and recommendations for the sport and exercise sciences. Qualitative Research in Sport, Exercise and Health, 10(1), 137–149. doi:10.1080/2159676X.2017.1393221
   Web of Science ®Google Scholar
• Smith, B., & McGannon, K. (2018). Developing rigor in qualitative research: Problems and opportunities within sport and exercise psychology. International Review of Sport and Exercise Psychology, 11(1), 101–121. doi:10.1080/1750984X.2017.1317357
   Web of Science ®Google Scholar
• Sparkes, A. C., & Smith, B. (2009). Judging the quality of qualitative inquiry: Criteriology and relativism in action. Psychology of Sport and Exercise, 10, 491–497. doi:10.1016/j.psychsport.2009.02.006
   Web of Science ®Google Scholar
• Sparkes, A. C., & Smith, B. (2014). Qualitative research methods in sport, exercise and health. London, UK: Routledge.
   Google Scholar
• Tracy, S. J. (2010). Qualitative quality: Eight “big-tent” criteria for excellent qualitative research. Qualitative Inquiry, 16(10), 837–851. doi:10.1177/1077800410383121
   Web of Science ®Google Scholar
• Turner, K., Tookman, A., Bristowe, K., & Maddocks, M. (2016). ‘I am actually doing something to keep well. That feels really good’: Experiences of exercise within hospice care. Progress in Palliative Care, 24(4), 204–212. doi:10.1080/09699260.2015.1123441
   PubMed Web of Science ®Google Scholar
• Zelle, D. M., Corpeleijn, E., Klaassen, G., Schutte, E., Navis, G., & Bakker, S. J. L. (2016). Fear of movement and low self-efficacy are important barriers in physical activity after renal transplantation. PLoS ONE, 11(2), e0147609. doi:10.1371/journal.pone.0147609
   PubMed Web of Science ®Google Scholar