Family Quality of Life: Perspectives of Family Caregivers of People with Dementia

References

• Alzheimer’s Association. 2017 Alzheimer’s disease facts and figures. Alzheimers Dement 2017;13:325–373. doi: 10.1016/j.jalz.2017.02.001.
   Google Scholar
• Todd S, Barr S, Roberts M, Passmore AP. Survival in dementia and predictors of mortality: a review. Int J Geriatr Psychiatry. 2013;28(11):n/a–n/a. doi: 10.1002/gps.3946.
   Web of Science ®Google Scholar
• Family Caregiver Alliance. Caregiver Health. Fam Caregiv Alliance | Natl Cent Caregiving. 2015. https://caregiver.org/caregiver-health.
   Google Scholar
• Allen AP, Curran EA, Duggan Á, et al. A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress. Neurosci Biobehav Rev. 2017;73:123–164. doi: 10.1016/j.neubiorev.2016.12.006.
   PubMed Web of Science ®Google Scholar
• Iavarone A, Ziello AR, Pastore F, Fasanaro AM, Poderico C. Caregiver burden and coping strategies in caregivers of patients with Alzheimer's disease. Neuropsychiatr Dis Treat. 2014;10:1407–1413. doi: 10.2147/NDT.S58063.
   PubMed Web of Science ®Google Scholar
• van der Lee J, Bakker T, Duivenvoorden HJ, Dröes R-M. Multivariate models of subjective caregiver burden in dementia: A systematic review. Ageing Res Rev. 2014;15:76–93. doi: 10.1016/j.arr.2014.03.003.
   PubMed Web of Science ®Google Scholar
• Brown RI, MacAdam–Crisp J, Wang M, Iarocci G. Family quality of life when there is a child with a developmental disability. J Policy Practice in Intell Disabilities. 2006;3(4):238–245. doi: 10.1111/j.1741-1130.2006.00085.x.
   Google Scholar
• Park J, Hoffman L, Marquis J, et al. Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. J Intellect Disabil Res. 2003;47(4–5):367–384. doi: 10.1046/j.1365-2788.2003.00497.x.
   PubMedGoogle Scholar
• World Health Organization (WHO). International classification of functioning, disability and health. In: International Classification of Functioning, Disability and Health.; 2001: Geneva: WHO. https://apps.who.int/iris/bitstream/handle/10665/42407/9241545429.pdf;jsessionid=DF7A7D255CB116069ED3F78E3EE13FCF?sequence=1
   Google Scholar
• Samuel PS, Hobden KL, LeRoy BW. Families of children with autism and developmental disabilities: A description of their community interaction. Res Soc Sci Disabil 2011;6:49–83. doi: 10.1108/S1479-3547(2011)0000006006.
   Google Scholar
• Samuel PS, Hobden KL, Leroy BW, Lacey KK. Analysing family service needs of typically underserved families in the USA. J Intellect Disabil Res. 2012;56(1):111–128. doi: 10.1111/j.1365-2788.2011.01481.x.
   PubMed Web of Science ®Google Scholar
• Samuel PS, Rillotta F, Brown I. Review: The development of family quality of life concepts and measures. J Intellect Disabil Res. 2012;56(1):1–16. doi: 10.1111/j.1365-2788.2011.01486.x.
   PubMed Web of Science ®Google Scholar
• Brown I, Brown RI, Baum NT, Isaacs BJ, Myerscough T, Neikrug S. Family quality of life survey: Main caregivers of people with intellectual developmental disabilities. Toronto: Surrey Place Centre; 2006.
   Google Scholar
• Samuel PS, Tarraf W, Marsack C. Family Quality of Life Survey (FQOLS-2006): Evaluation of internal consistency, construct, and criterion validity for socioeconomically disadvantaged families. Phys Occup Ther Pediatr 2018;38(1):46–63.
   PubMed Web of Science ®Google Scholar
• Isaacs B, Wang M, Samuel P, et al. Testing the factor structure of the Family Quality of Life Survey - 2006. J Intellect Disabil Res. 2012;56(1):17–29. doi: 10.1111/j.1365-2788.2011.01392.x.
   PubMed Web of Science ®Google Scholar
• Samuel PS, Pociask FD, Dizazzo-Miller R, Carrellas A, LeRoy BW. Concurrent validity of the international family quality of life survey. Occup Ther Heal Care 2016;30(2):187–201. doi: 10.3109/07380577.2015.1116129.
   PubMed Web of Science ®Google Scholar
• Perry A, Isaacs B. Validity of the family quality of life survey-2006. J Appl Res Intellect Disabil. 2015;28(6):584–588. doi: 10.1111/jar.12141.
   PubMed Web of Science ®Google Scholar
• Cortina JM. What is coefficient alpha? An examination of theory and applications. J Appl Psychol. 1993;78(1):98–104. doi: 10.1037/0021-9010.78.1.98.
   Web of Science ®Google Scholar
• Knapp TR. The Reliability of Measuring Instruments.; 2015. http://www.tomswebpage.net/images/reliability.doc%0A.
   Google Scholar
• DiZazzo-Miller R, Pociask FD, Samuel P. Understanding resource needs of persons with dementia and their caregivers. Michigan Fam Rev. 2013;17(1):1–20. doi: 10.3998/mfr.4919087.0017.102.
   Google Scholar
• Bauer JM, Sousa-Poza A. Impacts of informal caregiving on caregiver employment, health, and family. Population Ageing. 2015;8(3):113–145. doi: 10.1007/s12062-015-9116-0.
   Web of Science ®Google Scholar
• Losada A, Pérez-Peñaranda A, Rodriguez-Sanchez E, et al. Leisure and distress in caregivers for elderly patients. Arch Gerontol Geriatr. 2010;50(3):347–350. doi: 10.1016/j.archger.2009.06.001.
   PubMed Web of Science ®Google Scholar
• Papastavrou E, Andreou P, Middleton N, Tsangari H, Papacostas S. Dementia caregiver burden association with community participation aspect of social capital. J Adv Nurs. 2015;71(12):2898–2910. doi: 10.1111/jan.12762.
   PubMed Web of Science ®Google Scholar
• White-Means SI, Chang CF. Informal caregivers’ leisure time and stress. J Fam Econ Iss. 1994;15(2):117–136. doi: 10.1007/BF02353636.
   Google Scholar
• Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci. 2009;11(2):217–228. doi: 10.1002/gps
   PubMedGoogle Scholar
• Dhamija M. Role of community participation in improving quality of life in clients with dementia and their caregivers. 2016. Eastern Kentucky University. Online Theses and Dissertations. 360. https://encompass.eku.edu/cgi/viewcontent.cgi?article=1358&context=etd.
   Google Scholar
• Alzheimer’s Association. 2018 Alzheimer’s Disease facts and figures. Alzheimer’s Dementia 2018;14(3):367–429. https://www.alz.org/media/HomeOffice/FactsandFigures/facts-and-figures.pdf.
   Web of Science ®Google Scholar
• Corcoran MA. Caregiving styles: A cognitive and behavioral typology associated with dementia family caregiving. Gerontologist 2011;51(4):463–472. doi: 10.1093/geront/gnr002.
   PubMed Web of Science ®Google Scholar
• Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver Burden: A Clinical Review. JAMA 2014;311(10):1052. doi: 10.1001/jama.2014.304.
   PubMed Web of Science ®Google Scholar
• Savage S, Bailey S. The impact of caring on caregivers’ mental health: a review of the literature. Aust Health Review. 2004;27(1):111. doi: 10.1071/AH042710111.
   PubMedGoogle Scholar