Health-Related Quality of Life in Children and Adolescents With Inflammatory Bowel Disease

REFERENCES

• Akobeng , A. , Miller , V. , Firth , D. , Suresh-Babu , M. V. , Mir , P. and Thomas , A. G. 1999 . Quality of life of parents and siblings of children with inflammatory bowel disease . Journal of Pediatric Gastroenterology and Nutrition , 28 : S40 S42
   Google Scholar
• Akobeng , A. K. , Mirajkar , B. , Suresh-Babu , M. V. , Firth , D. , Miller , D. Mir , P. 1999 . Quality of life in children with Crohn's disease: A pilot study . Journal of Pediatric Gastroenterology and Nutrition , 28 : S37 – S39 .
   PubMedGoogle Scholar
• Auvin , S. , Molinie , F. , Grower-Rousseau , C. , Brazier , F. , Merle , V. Grandbastien , B. 2005 . Incidence, clinical presentation and location at diagnosis of pediatric inflammatory bowel disease. A prospective population-based study in northern France (1988–1999) . Journal of Pediatric Gastroenterology and Nutrition , 41 : 49 – 55 .
   PubMed Web of Science ®Google Scholar
• Banez , G. A. and Cunningham , C. 2003 . “ Pediatric gastrointestinal disorders: Recurrent abdominal pain, inflammatory bowel disease, and rumination disorder/cyclic vomiting ” . In Handbook of pediatric psychology, , 3rd ed. , Edited by: Roberts , M. C. 462 – 480 . New York : Guilford .
   Google Scholar
• Best , W. R. , Becktel , J. M. , Singleton , J. W. and Kern , F. 1976 . Development of Crohn's disease activity index. National Cooperative Crohn's Disease Study . Gastroenterology , 70 : 439 – 444 .
   PubMed Web of Science ®Google Scholar
• Crohn's and Colitis Foundation of America . 1999 . http://www.ccfa.org/medcentral/library/basci/news122.htmHow many Americans have IBD? Retrieved August 20, 1990, from
   Google Scholar
• De Boer , M. A. , Grootenhuis , M. , Derkx , B. and Last , B. 2005 . Health-related quality of life and psychosocial functioning of adolescents with inflammatory bowel disease . Inflammatory Bowel Disease , 11 : 400 – 406 .
   PubMed Web of Science ®Google Scholar
• Drotar , D. , Levi , R. , Palermo , T. , Riekert , K. A. , Robinson , J. R. and Walders , N. 1998 . “ Clinical applications of health related quality of life assessment for children and adolescents ” . In Measuring health related quality of life in children and adolescents: Implications for research and practice , Edited by: Drotar , D. 331 – 341 . Mahwah, NJ : Lawrence Erlbaum Associates, Inc. .
   Google Scholar
• Drotar , D. , Schwartz , L. , Palermo , T. and Burant , C. 2006 . Factor structure in the Child Health Questionnaire-Parent Form in pediatric populations . Journal of Pediatric Psychology , 31 : 127 – 138 .
   PubMed Web of Science ®Google Scholar
• Drotar , D. , Walders , N. , Burgess , E. , Nobile , C. , Dasari , M. Kahana , S. 2001 . Recommendations to enhance comprehensive care for children with chronic health conditions and their families . Children's Services: Social Policy, Research, and Practice , 4 : 251 – 264 .
   Google Scholar
• Engstrom , I. 1999 . Inflammatory bowel disease in children and adolescents: Mental health and family functioning . Journal of Pediatric Gastroenterology and Nutrition , 28 : S28 – S33 .
   PubMed Web of Science ®Google Scholar
• Griffiths , A. M. , Nicholas , D. , Smith , C. , Munk , M. , Stephens , D. Durno , C. 1999 . Development of a quality of life index for pediatric inflammatory bowel disease: Dealing with differences related to age and IBD type . Journal of Pediatric Gastroenterology and Nutrition , 28 : S46 – S52 .
   PubMed Web of Science ®Google Scholar
• Gryboski , J. D. 1994 . Crohn's disease in children 10 years old and younger: Comparison with ulcerative colitis . Journal of Pediatric Gastroenterology and Nutrition , 4 : S46 – S52 .
   Google Scholar
• Harvey , R. F. and Bradshaw , J. M. 1980 . A simple index of Crohn's disease activity . Lancet, 1 , 514 : 15
   Google Scholar
• Hepner , K. A. and Seechrest , L. 2002 . Confirmatory factor analysis of the Child Health Questionnaire Parent Form in a predominately minority sample . Quality of Life Research , 4 : 763 – 773 .
   Google Scholar
• Hyams , J. S. , Ferry , G. D. , Mandel , F. S. , Gryboski , J. D. , Kibort , P. M. Kirschner , B. S. 1991 . Development and validation of a pediatric Crohn's disease activity index . Journal of Pediatric Gastroenterology and Nutrition , 12 : 439 – 447 .
   PubMed Web of Science ®Google Scholar
• Ireys , H. , Chernoff , R. , DeVet , K. and Kim , Y. 2001 . Maternal outcomes of a randomized controlled trial of a community-based support program for families of children with chronic illnesses . Archives of Pediatrics and Adolescent Medicine , 155 : 771 – 777 .
   PubMed Web of Science ®Google Scholar
• Kugathasan , S. , Judd , R. H. , Hoffmann , R. G. , Helkenen , J. , Telega , G. Khan , F. 2003 . Epidemiologic and clinical characteristics of children with newly diagnosed inflammatory bowel disease in Wisconsin: A statewide population-based study . Journal of Pediatrics , 143 : 525 – 531 .
   PubMed Web of Science ®Google Scholar
• Landgraf , J. M. and Abetz , L. N. 1997 . The physical and psychosocial well-being of children representing three cultural groups: Initial self-reports using the Child Health Questionnaire (CHQ-CF87) . Psychology and Health , 12 : 1 – 16 .
   Google Scholar
• Landgraf , J. M. , Abetz , L. and Ware , J. E. 1996 . The CHQ User's manual, , 1st ed. , Boston : The Health Institute, New England Medical Center .
   Google Scholar
• Lindberg , E. , Lindquist , B. , Holmquist , L. and Hildebrand , H. 2000 . Inflammatory bowel disease in children and adolescents in Sweden, 1984–1995 . Journal of Pediatric Gastroenterology and Nutrition , 30 : 259 – 264 .
   PubMed Web of Science ®Google Scholar
• Loonen , H. J. , Derkx , B. H. F. , Koopman , H. M. and Heymans , H. S. A. 2002 . Are parents able to rate the symptoms and quality of life of their offspring with IBD? . Inflammatory Bowel Diseases , 8 : 270 – 276 .
   PubMed Web of Science ®Google Scholar
• Loonen , H. J. , Grootenhuis , M. A. , Last , B. P. , Koopman , H. M. and Derkx , H. H. F. 2002 . Quality of life in paediatric inflammatory bowel disease measured by a generic and a disease specific questionnaire . Acta Paediatrica , 91 : 347 – 354 .
   Google Scholar
• Mackner , L. M. and Crandall , W. V. 2004 . Long-term psychosocial outcomes reported by children and adolescents with inflammatory bowel disease . American Journal of Gastroenterology , 100 : 1386 – 1392 .
   Google Scholar
• Mackner , L. M. , Sisson , D. P. and Crandall , W. V. 2004 . Review: Psychosocial issues in pediatric inflammatory bowel disease . Journal of Pediatric Psychology , 29 : 243 – 257 .
   PubMed Web of Science ®Google Scholar
• MacPhee , M. , Hoffenberg , E. J. and Feranchak , A. 1988 . Quality-of-life factors in adolescents inflammatory bowel disease . Inflammatory Bowel Disease , 4 : 6 – 11 .
   Google Scholar
• Mamula , P. , Markowitz , J. E. and Baldassano , R. N. 2003 . Inflammatory bowel disease in early childhood and adolescence: Special considerations . Gastroenterology Clinics of North America , 32 : 967 – 995 .
   PubMed Web of Science ®Google Scholar
• Mayberry , J. F. 1999 . Impact of inflammatory bowel disease on educational achievements and work prospects . Journal of Pediatric Gastroenterology and Nutrition , 28 : S34 – S36 .
   Google Scholar
• Moody , G. , Eaden , J. and Mayberry , J. 1999 . Social implications of childhood Crohn's disease . Journal of Pediatric Gastroenterology and Nutrition , 28 : S43 – S45 .
   Google Scholar
• Myren , J. , Bouchier , I. A. , Watkinson , G. , Softley , A. , Clamp , S. E. and de Dombal , F. T. 1985 . The O.M.G.E. Multinational Inflammatory Bowel Disease Survey 1976–1982. A further report on 2,657 cases. . Scandinavian Journal of Gastroenterology , 95 : 1 – 27 . Suppl.
   Google Scholar
• Rabbett , H. , Elbadri , A. , Thwaites , R. , Northover , H. , Dady , I. and Firth , D. 1996 . Quality-of-life in children with Crohn's disease . Journal of Pediatric Gastroenterology and Nutrition , 5 : 528 – 533 .
   Google Scholar
• Waters , E. B. , Salmon , L. A. , Wake , M. , Wright , M. and Hesketh , K. D. 2001 . The health and well-being of adolescents: A school-based population study of the self-report Child Health Questionnaire . Journal of Adolescent Health , 29 : 140 – 149 .
   PubMed Web of Science ®Google Scholar