Posttraumatic stress and resilience in parents of youth with chronic pain

References

• Asmundson, G. J., Noel, M., Petter, M., & Parkerson, H. A. (2012). Pediatric fear-avoidance model of chronic pain: Foundation, application and future directions. Pain Research & Management, 17(6), 397–405. doi:10.1155/2012/908061
   PubMed Web of Science ®Google Scholar
• Barakat, L. P., Alderfer, M. A., & Kazak, A. E. (2006). Posttraumatic growth in adolescent survivors of cancer and their mothers and fathers. Journal of Pediatric Psychology, 31(4), 413–419. doi:10.1093/jpepsy/jsj058
   PubMed Web of Science ®Google Scholar
• Best, M., Streisand, R., Catania, L., & Kazak, A. E. (2001). Parental distress during pediatric leukemia and posttraumatic stress symptoms (PTSS) after treatment ends. Journal of Pediatric Psychology, 26(5), 299–307.
   PubMed Web of Science ®Google Scholar
• Blevins, C. A., Weathers, F. W., Davis, M. T., Witte, T. K., & Domino, J. L. (2015). The posttraumatic stress disorder checklist for DSM-5 (PCL-5): Development and initial psychometric evaluation. Journal of Traumatic Stress, 28(6), 489–498. doi:10.1002/jts.22059
   PubMed Web of Science ®Google Scholar
• Campo, J. V., Bridge, J., Lucas, A., Savorelli, S., Walker, L., Di Lorenzo, C., … Brent, D. A. (2007). Physical and emotional health of mothers of youth with functional abdominal pain. Archives of Pediatrics & Adolescent Medicine, 161(2), 131–137. doi:10.1001/archpedi.161.2.131
   PubMedGoogle Scholar
• Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., … Hays, R. (2010). The patient-reported outcomes measurement information system (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. doi:10.1016/j.jclinepi.2010.04.011
   PubMed Web of Science ®Google Scholar
• Coakley, R, & Wihak, T. (2017). Evidence-based psychological interventions for the management of pediatric chronic pain: new directions in research and clinical practice. Children, 4(2), 9. doi:10.3390/children4020009
   Google Scholar
• Cohen, L. L., Vowles, K. E., & Eccleston, C. (2010). The impact of adolescent chronic pain on functioning: Disentangling the complex role of anxiety. Journal of Pain, 11(11), 1039–1046. doi:10.1016/j.jpain.2009.09.009
   PubMed Web of Science ®Google Scholar
• Colville, G., & Cream, P. (2009). Post-traumatic growth in parents after a child’s admission to intensive care: Maybe Nietzsche was right? Intensive Care Medicine, 35(5), 919–923. doi:10.1007/s00134-009-1444-1
   PubMed Web of Science ®Google Scholar
• Connelly, M., Bromberg, M. H., Anthony, K. K., Gil, K. M., & Schanberg, L. E. (2016). Use of smartphones to prospectively evaluate predictors and outcomes of caregiver responses to pain in youth with chronic disease. Pain. Advance online publication. doi: 10.1097/j.pain.0000000000000804
   PubMed Web of Science ®Google Scholar
• Cousins, L. A., Kalapurakkel, S., Cohen, L. L., & Simons, L. E. (2015). Topical review: Resilience resources and mechanisms in pediatric chronic pain. Journal of Pediatric Psychology, 40(9), 840–845. doi:10.1093/jpepsy/jsv037
   PubMed Web of Science ®Google Scholar
• Eccleston, C., Crombez, G., Scotford, A., Clinch, J., & Connell, H. (2004). Adolescent chronic pain: Patterns and predictors of emotional distress in adolescents with chronic pain and their parents. Pain, 108(3), 221–229. doi:10.1016/j.pain.2003.11.008
   PubMed Web of Science ®Google Scholar
• Fergus, S., & Zimmerman, M. A. (2005). Adolescent resilience: A framework for understanding healthy development in the face of risk. Annual Review of Public Health, 26, 399–419. doi:10.1146/annurev.publhealth.26.021304.144357
   PubMed Web of Science ®Google Scholar
• Fisher, E., Heathcote, L., Palermo, T. M., De C. Williams, A. C., Lau, J., & Eccleston, C. (2014). Systematic review and meta-analysis of psychological therapies for children with chronic pain. Journal of Pediatric Psychology, 39(8), 763–782. doi:10.1093/jpepsy/jsu008
   PubMed Web of Science ®Google Scholar
• Flory, J. D., & Yehuda, R. (2015). Comorbidity between post-traumatic stress disorder and major depressive disorder: Alternative explanations and treatment considerations. Dialogues in Clin Neuroscience, 17(2), 141–150.
   PubMed Web of Science ®Google Scholar
• Gaughan, V., Logan, D., Sethna, N., & Mott, S. (2014). Parents’ perspective of their journey caring for a child with chronic neuropathic pain. Pain Management Nursing, 15(1), 246–257. doi:10.1016/j.pmn.2012.09.002
   PubMed Web of Science ®Google Scholar
• Gold, S. D, Marx, B. P, Soler-Baillo, J. M, & Sloan, D. M. (2005). Is life stress more traumatic than traumatic stress?. Journal Of Anxiety Disorders, 19(6), 687–698. doi:10.1016/j.janxdis.2004.06.002
   PubMed Web of Science ®Google Scholar
• Goubert, L., Eccleston, C., Vervoort, T., Jordan, A., & Crombez, G. (2006). Parental catastrophizing about their child’s pain. The parent version of the pain catastrophizing scale (PCS-P): A preliminary validation. Pain, 123(3), 254–263. doi:10.1016/j.pain.2006.02.035
   PubMed Web of Science ®Google Scholar
• Harris, P. A., Taylor, R., Thielke, R., Payne, J., Gonzalez, N., & Conde, J. G. (2009). Research electronic data capture (REDCap) - A metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Informatics, 42(2), 377–381. doi:10.1016/j.jbi.2008.08.010
   PubMed Web of Science ®Google Scholar
• Hayes, A. F. (2013). Introduction to mediation, moderation, and conditional process analysis: A regression-based approach. New York, NY: Guilford Press.
   Google Scholar
• Heim, C., & Nemeroff, C. B. (2001). The role of childhood trauma in the neurobiology of mood and anxiety disorders: Preclinical and clinical studies. Biological Psychiatry, 49(12), 1023–1039.
   PubMed Web of Science ®Google Scholar
• Helgeson, V. S., Reynolds, K. A., & Tomich, P. L. (2006). A meta-analytic review of benefit finding and growth. Journal of Consulting and Clinical Psychology, 74(5), 797–816. doi:10.1037/0022-006x.74.5.797
   PubMed Web of Science ®Google Scholar
• Hungerbuehler, I., Vollrath, M. E., & Landolt, M. A. (2011). Posttraumatic growth in mothers and fathers of children with severe illnesses. Journal of Health Psychology, 16(8), 1259–1267. doi:10.1177/1359105311405872
   PubMed Web of Science ®Google Scholar
• Janoff-Bulman, R. (1992). Shattered assumptions: Towards a new psychology of trauma. New York, NY: Free Press.
   Google Scholar
• Jordan, A., Crabtree, A., & Eccleston, C. (2015). ‘You have to be a jack of all trades’: Fathers parenting their adolescent with chronic pain. Journal of Health Psychology. doi:10.1177/1359105315580461
   PubMed Web of Science ®Google Scholar
• Jordan, A. L., Eccleston, C., & Osborn, M. (2007). Being a parent of the adolescent with complex chronic pain: An interpretative phenomenological analysis. European Journal of Pain, 11(1), 49–56. doi:10.1016/j.ejpain.2005.12.012
   PubMed Web of Science ®Google Scholar
• Joseph, S., Murphy, D., & Regel, S. (2012). An affective-cognitive processing model of post-traumatic growth. Clinical Psychology & Psychotherapy, 19(4), 316–325. doi:10.1002/cpp.1798
   PubMed Web of Science ®Google Scholar
• Kashikar-Zuck, S., King, C., Ting, T. V., & Arnold, L. M. (2016). Juvenile fibromyalgia: Different from the adult chronic pain syndrome? Current Rheumatology Reports, 18(4), 19. doi:10.1007/s11926-016-0569-9
   PubMed Web of Science ®Google Scholar
• Konrad, S. C. (2006). Posttraumatic growth in mothers of children with acquired disabilities. Journal of Loss and Trauma, 11(1), 101–113. doi:10.1080/15325020500358274
   Web of Science ®Google Scholar
• Kroenke, K., Yu, Z., Wu, J., Kean, J., & Monahan, P. O. (2014). Operating characteristics of PROMIS four-item depression and anxiety scales in primary care patients with chronic pain. Pain Medicine, 15(11), 1892–1901. doi:10.1111/pme.12537
   PubMed Web of Science ®Google Scholar
• Levine, S. Z., Laufer, A., Hamama-Raz, Y., Stein, E., & Solomon, Z. (2008). Posttraumatic growth in adolescence: Examining its components and relationship with PTSD. Journal of Traumatic Stress, 21(5), 492–496. doi:10.1002/jts.20361
   PubMed Web of Science ®Google Scholar
• Lewandowski, A. S., Palermo, T. M., Stinson, J., Handley, S., & Chambers, C. T. (2010). Systematic review of family functioning in families of children and adolescents with chronic pain. Journal of Pain, 11(11), 1027–1038. doi:10.1016/j.jpain.2010.04.005
   PubMed Web of Science ®Google Scholar
• Luthar, S. S., Cicchetti, D. V., & Becker, B. (2000). The construct of resilience: A critical evaluation and guidelines for future work. Child Development, 71(3), 543–562.
   PubMed Web of Science ®Google Scholar
• Meyerson, D. A., Grant, K. E., Carter, J. S., & Kilmer, R. P. (2011). Posttraumatic growth among children and adolescents: A systematic review. Clinical Psychology Review, 31(6), 949–964. doi:10.1016/j.cpr.2011.06.003
   PubMed Web of Science ®Google Scholar
• Michel, G., Taylor, N., Absolom, K., & Eiser, C. (2010). Benefit finding in survivors of childhood cancer and their parents: Further empirical support for the benefit finding scale for children. Child: Care, Health and Development, 36(1), 123–129. doi:10.1111/j.1365-2214.2009.01034.x
   PubMed Web of Science ®Google Scholar
• Moskowitz, J. T., & Epel, E. S. (2006). Benefit finding and diurnal cortisol slope in maternal caregivers: A moderating role for positive emotion. The Journal of Positive Psychology, 1(2), 83–91. doi:10.1080/17439760500510510
   Google Scholar
• Noel, M., Beals-Erickson, S. E., Law, E. F., Alberts, N. M., & Palermo, T. M. (2016). Characterizing the pain narratives of parents of youth with chronic pain. The Clinical Journal of Pain, 32(10), 849–858. doi:10.1097/AJP.0000000000000346
   PubMed Web of Science ®Google Scholar
• Noel, M., Wilson, A. C., Holley, A. L., Durkin, L., Patton, M., & Palermo, T. M. (2016). Posttraumatic stress disorder symptoms in youth with vs without chronic pain. Pain, 157(10), 2277–2284. doi:10.1097/j.pain.0000000000000642
   PubMed Web of Science ®Google Scholar
• Palermo, T. M. (2000). Impact of recurrent and chronic pain on child and family daily functioning: A critical review of the literature. Journal of Developmental and Behavioral Pediatrics, 21(1), 58–69.
   PubMed Web of Science ®Google Scholar
• Palermo, T. M., & Eccleston, C. (2009). Parents of children and adolescents with chronic pain. Pain, 146(1–2), 15–17. doi:10.1016/j.pain.2009.05.009
   PubMed Web of Science ®Google Scholar
• Palermo, T. M., Valrie, C. R., & Karlson, C. W. (2014). Family and parent influences on pediatric chronic pain: A developmental perspective. American Psychologist, 69(2), 142–152. doi:10.1037/a0035216
   PubMed Web of Science ®Google Scholar
• Palermo, T. M., Witherspoon, D., Valenzuela, D., & Drotar, D. D. (2004). Development and validation of the child activity limitations interview: A measure of pain-related functional impairment in school-age children and adolescents. Pain, 109(3), 461–470. doi:10.1016/j.pain.2004.02.023
   PubMed Web of Science ®Google Scholar
• Phipps, S., Klosky, J. L., Long, A., Hudson, M. M., Huang, Q., Zhang, H., & Noll, R. B. (2014). Posttraumatic stress and psychological growth in children with cancer: Has the traumatic impact of cancer been overestimated? Journal of Clinical Oncology, 32(7), 641–646. doi:10.1200/jco.2013.49.8212
   PubMed Web of Science ®Google Scholar
• Picoraro, J. A., Womer, J. W., Kazak, A. E., & Feudtner, C. (2014). Posttraumatic growth in parents and pediatric patients. Journal of Palliative Medicine, 17(2), 209–218. doi:10.1089/jpm.2013.0280
   PubMed Web of Science ®Google Scholar
• Pilkonis, P. A., Choi, S. W., Reise, S. P., Stover, A. M., Riley, W. T., & Cella, D. (2011). Item banks for measuring emotional distress from the patient-reported outcomes measurement information system (PROMIS®): Depression, anxiety, and anger. Assessment, 18(3), 263–283. doi:10.1177/1073191111411667
   PubMed Web of Science ®Google Scholar
• Reeve, B. B., & Teresi, J. A. (2016). Overview to the two-part series: Measurement equivalence of the patient reported outcomes measurement information system®(PROMIS®) short forms. Psychological Test and Assessment Modeling, 58, 31–35.
   Google Scholar
• Rodríguez-Rey, R., Alonso-Tapia, J., Kassam-Adams, N., & Garrido-Hernansaiz, H. (2016). The factor structure of the posttraumatic growth inventory in parents of critically ill children. Psicothema, 28(4), 495–503.
   Web of Science ®Google Scholar
• Savedra, M. C., Tesler, M. D., Holzemer, W. L., Wilkie, D. J., & Ward, J. A. (1989). Pain location: Validity and reliability of body outline markings by hospitalized children and adolescents. Research in Nursing & Health, 12(5), 307–314. doi:10.1002/nur.4770120506
   PubMed Web of Science ®Google Scholar
• Shakespeare-Finch, J., & Lurie-Beck, J. (2014). A meta-analytic clarification of the relationship between posttraumatic growth and symptoms of posttraumatic distress disorder. Journal of Anxiety Disorders, 28(2), 223–229. doi:10.1016/j.janxdis.2013.10.005
   PubMed Web of Science ®Google Scholar
• Sleed, M., Eccleston, C., Beecham, J., Knapp, M., & Jordan, A. (2005). The economic impact of chronic pain in adolescence: Methodological considerations and a preliminary costs-of-illness study. Pain, 119(1–3), 183–190. doi:10.1016/j.pain.2005.09.028
   PubMed Web of Science ®Google Scholar
• Taylor, S. E. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38(11), 1161–1173. doi:10.1037/0003-066X.38.11.1161
   Web of Science ®Google Scholar
• Tedeschi, R. G., & Calhoun, L. G. (1996). The posttraumatic growth inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress, 9(3), 455–471.
   PubMed Web of Science ®Google Scholar
• Tedeschi, R. G., & Calhoun, L. G. (2004). Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry, 15(1), 1–18. doi:10.1207/s15327965pli1501_01
   Web of Science ®Google Scholar
• Tedeschi, R. G., Calhoun, L. G., & Groleau, J. M. (2015). Clinical applications of posttraumatic growth. In S. Joseph (Ed.), Positive psychology in practice: Promoting human flourishing in work, health, education and everyday life. (pp. 503–518). Hoboken, NJ: John Wiley & Sons, Inc.
   Google Scholar
• Teresi, J. A., Ocepek-Welikson, K., Kleinman, M., Ramirez, M., & Kim, G. (2016a). Measurement equivalence of the patient reported outcomes measurement information system(R) (PROMIS(R)) anxiety short forms in ethnically diverse groups. Psychological Test and Assessment Modeling, 58(1), 183–219.
   PubMedGoogle Scholar
• Teresi, J. A., Ocepek-Welikson, K., Kleinman, M., Ramirez, M., & Kim, G. (2016b). Psychometric properties and performance of the patient reported outcomes measurement information system(R) (PROMIS(R)) depression short forms in ethnically diverse groups. Psychological Test and Assessment Modeling, 58(1), 141–181.
   PubMedGoogle Scholar
• Van Hooff, M, McFarlane, A. C, Baur, J, Abraham, M, & Barnes, D. J. (2009). The stressor criterion-A1 and PTSD: a matter of opinion?. Journal Of Anxiety Disorders, 23(1), 77–86. doi:10.1016/j.janxdis.2008.04.001
   PubMed Web of Science ®Google Scholar
• Walker, L. S., & Greene, J. W. (1989). Children with recurrent abdominal pain and their parents: More somatic complaints, anxiety, and depression than other patient families? Journal of Pediatric Psychology, 14(2), 231–243.
   PubMed Web of Science ®Google Scholar
• Wallace, D. P., Woodford, B., & Connelly, M. (2016). Promoting psychological flexibility in parents of adolescents with chronic pain: Pilot study of an 8-week group intervention. Clinical Practice in Pediatric Psychology, 4(4), 405–416. doi:10.1037/cpp0000160
   Google Scholar
• Weathers, F. W., Litz, B. T., Keane, T. M., Palmieri, P. A., Marx, B. P., & Schnurr, P. P. (2013). The PTSD checklist for DSM-5 (PCL-5). Scale available from the National Center for PTSD at www.ptsd.va.gov.
   Google Scholar
• Werdel, M. B., & Wicks, R. J. (2012). Primer on posttraumatic growth: An introduction and guide. Hoboken, NJ: John Wiley & Sons.
   Google Scholar
• White, M., & Epston, D. (1990). Narrative means to therapeutic ends. New York, NY: WW Norton.
   Google Scholar
• Williamson, G. M., Walters, A. S., & Shaffer, D. R. (2002). Caregiver models of self and others, coping, and depression: Predictors of depression in children with chronic pain. Health Psychology, 21(4), 405–410.
   PubMed Web of Science ®Google Scholar
• Zhang, W, Yan, T. T, Barriball, K. L, While, A. E, & Liu, X. H. (2015). Post-traumatic growth in mothers of children with autism: a phenomenological study. Autism, 19(1), 29–37. doi:10.1177/1362361313509732
   PubMed Web of Science ®Google Scholar
• Zoellner, T., & Maercker, A. (2006). Posttraumatic growth in clinical psychology - a critical review and introduction of a two component model. Clinical Psychology Review, 26(5), 626–653. doi:10.1016/j.cpr.2006.01.008
   PubMed Web of Science ®Google Scholar
• Zoellner, T, Rabe, S, Karl, A, & Maercker, A. (2011). Post-traumatic growth as outcome of a cognitive-behavioural therapy trial for motor vehicle accident survivors with PTSD. Psychology and Psychotherapy: Theory, Research and Practice, 84(2), 201–213. doi:10.1348/147608310X520157
   PubMed Web of Science ®Google Scholar