Autonomy and Control in Everyday Life in Care of Older People in Nursing Homes

REFERENCES

• Altheide , D. L. and Johnson , J. M. 2011 . “ Reflections on interpretive adequacy in qualitative research ” . In The Sage handbook of qualitative research (4th ed. , Edited by: Denzin , N. K. and Lincoln , Y. S. 581 – 594 . Thousand Oaks , CA : Sage .
   Google Scholar
• Alvesson , M. 2002 . Understanding organizational culture , London : Sage .
   Google Scholar
• Angrosino , M. and Rosenberg , J. 2011 . “ Observations on observation: Continuities and challenges ” . In The Sage handbook of qualitative research (4th ed. , Edited by: Denzin , N. K. and Lincoln , Y. S. 467 – 478 . Thousand Oaks , CA : Sage .
   Google Scholar
• Askheim , O. P. 2003 . Empowerment as guidance for professional social work: An act of balancing on a slack rope . European Journal of Social Work , 6 : 229 – 240 .
   Google Scholar
• Ball , M. M. , Perkins , M. M. , Whittington , F. J. , Hollingsworth , C. , King , S. V. and Combs , B. L. 2004 . Independence in assisted living . Journal of Aging Studies , 18 : 467 – 483 . doi: 10.1016/j.jaging.2004.06.002
   Web of Science ®Google Scholar
• Barnes , M. 2005 . The same old process? Older people, participation and deliberation . Ageing & Society , 25 : 245 – 259 . doi: 10.1017/S0144686x04002508
   Web of Science ®Google Scholar
• Beresford , P. and Croft , S. 2004 . Service users and practitioners reunited: The key component for social work reform . British Journal of Social Work , 34 : 53 – 68 .
   Web of Science ®Google Scholar
• Binder , A. 2007 . For love and money: Organizations’ creative responses to multiple environmental logics . Theory and Society , 36 : 547 – 571 . doi: 10.1007/s11186-007-9045-x
   Web of Science ®Google Scholar
• Binstock , R. H. 2011 . “ Ethical, moral, and policy challenges in our aging society ” . In Aging well: Gerontological education for nurses and other health professionals , Edited by: Wykle , M. L. and Gueldner , S. H. 3 – 16 . Sudbury , MA : Jones and Bartlett .
   Google Scholar
• Boyle , G. 2004 . Facilitating choice and control for older people in long-term care . Health & Social Care in the Community , 12 : 212 – 220 .
   PubMed Web of Science ®Google Scholar
• Butler , R. N. 2005 . Ageism: Looking back over my shoulder . Generations , 29 ( 3 ) : 84 – 86 .
   Web of Science ®Google Scholar
• Callaghan , G. D. and Wistow , G. 2006 . Publics, patients, citizens, consumers? Power and decision making in primary health care . Public Administration , 84 : 583 – 601 .
   Web of Science ®Google Scholar
• Carstens , E. , Kurth , M. , Bjelke Jensen , B. and Evans , N. 2007 . Brugerinddragelse på handicapområdet: Et nøglebegreb i velfærdssamfundets udvikling [User involvement in disability: A key concept in welfare development] , Århus : Videnscenter for Bevægelseshandicap .
   Google Scholar
• Charmaz , K. 2011 . “ Grounded theory methods in social justice research ” . In The Sage handbook of qualitative research, , 4th ed. , Edited by: Denzin , N. K. and Lincon , Y. S. 359 – 380 . Thousand Oaks , CA : Sage .
   Google Scholar
• Clarke , J. 2006 . Consumers, clients or citizens? Politics, policy and practice in the reform of social care . European Societies , 8 : 423 – 442 .
   Web of Science ®Google Scholar
• Clemens , E. L. and Hayes , H. E. 1997 . Assessing and balancing elder risk, safety and autonomy: Decision-making practices of health care professionals . Home Health Care Services Quarterly , 16 ( 3 ) : 3 – 20 .
   PubMedGoogle Scholar
• Comas-Herrera , A. , Wittenberg , R. , Costa-Font , J. , Gori , C. , Di Maio , A. , Patxot , C. and Rothgang , H. 2006 . Future long-term care expenditure in Germany, Spain, Italy and the United Kingdom . Ageing & Society , 26 : 285 – 302 .
   Web of Science ®Google Scholar
• Cook , G. and Brown-Wilson , C. 2010 . Care home residents’ experiences of social relationships with staff . Nursing Older People , 22 ( 1 ) : 24 – 29 .
   PubMedGoogle Scholar
• Cowden , S. and Singh , G. 2007 . The ‘User’: Friend, foe or fetish?: A critical exploration of user involvement in health and social care . Critical Social Policy , 27 ( 1 ) : 5 – 23 . doi: 10.1177/0261018307072205
   Web of Science ®Google Scholar
• Creswell , J. W. 2011 . “ Controversies in mixed methods research ” . In The Sage handbook of qualitative research (4th ed. , Edited by: Denzin , N. K. and Lincoln , Y. S. 269 – 284 . Thousand Oaks , CA : Sage .
   Google Scholar
• de Campo , M. E. 2007 . Exit and voice: An investigation of care service users in Austria, Belgium, Italy, and Northern Ireland . European Journal of Ageing , 4 ( 2 ) : 59 – 69 .
   PubMed Web of Science ®Google Scholar
• Denzin , N. K. and Lincoln , Y. S. 2011 . The Sage handbook of qualitative research (4th ed. , Thousand Oaks , CA : Sage .
   Google Scholar
• Dunér , A. and Nordström , M. 2006 . The discretion and power of street-level bureaucrats: An example from Swedish municipal eldercare . European Journal of Social Work , 9 : 425 – 444 . doi: 10.1080/13691450600958486
   Google Scholar
• Edebalk , P. G. 1990 . Hemmaboendeideologins genombrott: Åldringsvård och socialpolitik 1945–1965 , Lund : Socialhögskolan . [Living at home ideology breakthrough: Elderly, social policy 1945–1965]
   Google Scholar
• Elster , J. 1983 . Sour grapes: Studies in the subversion of rationality , Cambridge , MA : Cambridge University Press .
   Google Scholar
• Glaser , B. G. 1998 . Doing grounded theory: Issues and discussions , Mill Valley , CA : Sociology Press .
   Google Scholar
• Glickman , L. L. , Stocker , K. B. and Caro , F. G. 1997 . Self-direction in home care for older people: A consumer's perspective . Home Health Care Services Quarterly , 16 ( 1–2 ) : 41 – 54 .
   PubMedGoogle Scholar
• Hacking , I. 1999 . The social construction of what? , Cambridge , MA : Harvard University Press .
   Google Scholar
• Hallett , T. 2003 . Symbolic power and organizational culture . Sociological Theory , 21 : 128 – 149 .
   Web of Science ®Google Scholar
• Hardy , B. , Young , R. and Wistow , G. 1999 . Dimensions of choice in the assessment and care management process: The views of older people, carers and care managers . Health & Social Care in the Community , 7 : 483 – 491 .
   PubMed Web of Science ®Google Scholar
• Harnett , T. The trivial matters: Everyday power in Swedish elder care . (Unpublished doctoral dissertation). School of Health Science, Jönköping University, Jönköping, Sweden ,
   Google Scholar
• Hernandez , L. , Robson , P. and Sampson , A. 2010 . Towards integrated participation: Involving seldom heard users of social care services . British Journal of Social Work , 40 : 714 – 736 . doi: 10.1093/bjsw/bcn118
   Web of Science ®Google Scholar
• Højlund , H. 2005 . “ At give de ældre røst: Tre brugerorienterede tilgange til udviklingen i ældresektorn [Giving the eldery a voice: Three user-oriented approaches to development in elder care] ” . In Äldreforskningen i Norden: En kunskapsöversikt [Older research in the Nordic countries: a research overview] , Edited by: Szebehely , M. 113 – 142 . Copenhagen : Nordisk Ministerråd .
   Google Scholar
• Jakobsen , R. and Sørlie , V. 2010 . Dignity of older people in a nursing home: Narratives of care providers . Nursing Ethics , 17 : 289 – 300 .
   PubMed Web of Science ®Google Scholar
• Johnsson , R. Transactional analysis psychotherapy: Three methods describing a transactional analysis group therapy . (Unpublished doctoral dissertation). Department of Psychology, Lund University, Lund, Sweden ,
   Google Scholar
• Jönson , H. 2013 . We will be different! Ageism and the temporal construction of old age . The Gerontologist , 53 : 198 – 204 . doi: 10.1093/geront/gns 066
   PubMed Web of Science ®Google Scholar
• Kambrelius , G. and Dimitriadis , G. 2011 . “ Focus groups: Contingent articulations of pedagogy, politics, and inquiry ” . In The Sage handbook of qualitative research (4th ed. , Edited by: Denzin , N. K. and Lincoln , Y. S. 545 – 561 . Thousand Oaks , CA : Sage .
   Google Scholar
• Karlsson , S. , Bucht , G. , Rasmussen , B. H. and Sandman . 2000 . Restraint use in elder care: Decision making among registered nurses . Journal of Clinical Nursing , 9 : 842 – 850 . doi: 10.1046/j.1365-2702.2000.00442.x
   Web of Science ®Google Scholar
• Kemshall , H. 2002 . Risk, social policy and welfare , Buckingham : Open University Press .
   Google Scholar
• Krekula , C. 2009 . Age coding: On age-based practices of distinction . International Journal of Ageing and Later Life , 4 ( 2 ) : 7 – 31 .
   Google Scholar
• Larsson , K. and Szebehely , M. 2006 . “ Äldreomsorgens förändringar under de senaste decennierna [Eldercare changes in recent decades] ” . In Äldres levnadsförhållanden: Arbete, ekonomi, hälsa och sociala nätverk 1980–2003 [Living conditions of the elderly: Work, economy, health and social networks 1980–2003] , Edited by: Centralbyrån , Statistiska . 411 – 420 . Stockholm : Author .
   Google Scholar
• Lukes , S. 2005 . Power: A radical view , Basingstoke , UK : Palgrave Macmillan .
   Google Scholar
• Mallidou , A. A. , Cummings , G. G. , Estabrooks , C. A. and Giovannetti , P. B. 2011 . Nurse specialty subcultures and patient outcomes in acute care hospitals: A multiple-group structural equation modeling . International Journal of Nursing Studies , 48 ( 1 ) : 81 – 93 . doi: 10.1016/j.ijnurstu.2010.06.002
   PubMed Web of Science ®Google Scholar
• Melin Emilsson , U. 2009 . Health care, social care or both? A qualitative explorative study of different focuses in long-term care of older people in France, Portugal and Sweden . European Journal of Social Work , 12 : 419 – 434 . doi: 10.1080/13691450902981467
   Web of Science ®Google Scholar
• Melin Emilsson , U. 2012 . The staff's view on dementia and the care in three cultures: A qualitative study in France, Portugal and Sweden . Dementia: The International Journal of Social Research and Practice , 11 ( 1 ) : 31 – 47 . doi: 10.1177/1471301211416613
   Web of Science ®Google Scholar
• Meyer , J. 2011 . Review: Nursing home culture, teamwork and culture change . Journal of Research in Nursing , 16 ( 1 ) : 51 – 52 . doi: 10.1177/17449871103- 66189
   Google Scholar
• National Board of Health and Welfare . 2003 . Brukarmedverkan i socialtjänstens kunskapsutveckling [User involvement in social service knowledge] , Stockholm : Socialstyrelsen .
   Google Scholar
• National Board of Health and Welfare . 2008a . Brukarinflytande i praktiken: Exempel från äldreomsorgen [User involvement in practice: Examples from elderly care] , Stockholm : Socialstyrelsen .
   Google Scholar
• National Board of Health and Welfare . 2008b . Brukarinflytande inom äldreomsorgen [User involvement in elderly care] , Stockholm : Socialstyrelsen .
   Google Scholar
• National Board of Health and Welfare . 2012 . Official Statistics of Sweden (2012) Statistics—Social Welfare. Care and services to elderly persons 1 October 2011 , Stockholm : Socialstyrelsen .
   Google Scholar
• Nelson , T. D. 2005 . Ageism: Prejudice against our feared future self . Journal of Social Issues , 61 : 207 – 221 .
   Web of Science ®Google Scholar
• Nelson , H. W. , Allen , P. D. and Cox , D. 2008 . Rights-based advocacy in long-term care: Geriatric nursing and long-term care ombudsmen . Clinical Gerontologist , 28 ( 4 ) : 1 – 16 . doi: 10.1300/J018v28n04_01
   Google Scholar
• Ono , W. and Asahara , K. 2007 . Nursing philosophy of visiting nurses who support families caring for their dying elders at home . Journal of Japan Academy of Nursing Science , 27 ( 2 ) : 34 – 42 .
   Google Scholar
• Perkins , M. M. , Ball , M. M. , Whittington , F. J. and Hollingsworth , C. 2012 . Relational autonomy in assisted living: A focus on diverse care settings for older adults . Journal of Aging Studies , 26 : 214 – 225 .
   PubMed Web of Science ®Google Scholar
• Rahman , A. N. and Schnelle , J. F. 2008 . Nursing home culture-change movement: recent past, present, and future directions for research . Gerontologist , 48 : 142 – 148 .
   PubMed Web of Science ®Google Scholar
• Ronch , J. L. 2004 . Changing institutional culture: Can we re-value the nursing home? . Journal of Gerontological Social Work , 43 ( 1 ) : 61 – 82 . doi: 10.1300/J018v28n04_01
   Google Scholar
• Roth , E. G. and Eckert , J. K. 2011 . The vernacular landscape of assisted living . Journal of Aging Studies , 25 : 215 – 224 .
   PubMed Web of Science ®Google Scholar
• Rudman , D. L. 2006 . Shaping the active, autonomous and responsible modern retiree: An analysis of discursive technologies and their links with neo-liberal political rationality . Ageing & Society , 26 : 181 – 201 .
   Web of Science ®Google Scholar
• Sandman , L. 2004 . On the autonomy turf: Assessing the value of autonomy to patients . Medicine, Health Care and Philosophy , 7 : 261 – 268 .
   PubMedGoogle Scholar
• Schein , E. H. 2010 . Organizational culture and leadership , San Francisco , CA : Jossey Bass .
   Google Scholar
• Scott-Cawiezell , J. , Jones , K. , Moore , L. and Vojir , C. 2005 . Nursing home culture: A critical component in sustained improvement . Journal of Nursing Care Quality , 20 : 321 – 348 .
   Web of Science ®Google Scholar
• Scourfield , P. 2007 . Helping older people in residential care remain full citizens . British Journal of Social Work , 37 : 1135 – 1152 .
   Web of Science ®Google Scholar
• Selander , M. 2001 . Mångfaldens problematik: Om mötet mellan Ädelreformen och sjukhemmets verksamhet [The problems of plurality: On the meeting between the Ädel Reform and the nursing home. Unpublished doctoral dissertation, University of Gothenburg, Gothenburg, Sweden
   Google Scholar
• Söderberg , M. , Ståhl , A. and Melin Emilsson , U. 2012 . Självständighet som en stigmatiserande värdering för gamla människor som överväger att flytta till ett särskilt boende [Independence as a stigmatizing value for older people considering relocation to a residential home] . European Journal of Social Work , 16 : 1 – 16 . doi: 10.1080/13691457.2012.685054
   Web of Science ®Google Scholar
• Stalker , K. 2003 . Managing risk and uncertainty in social work: A literature review . Journal of Social Work , 3 : 211 – 233 .
   Google Scholar
• Swedish Association of Local Authorities and Regions . 2008 . Aktuellt på äldreområdet 2008 [News from the older area in 2008] , Stockholm : Sveriges kommuner och landsting .
   Google Scholar
• Szebehely , M. 2005 . Äldreomsorgsforskning i Norden: En kunskapsöversikt [Elder Care in the Nordic Countries: An overview over knowledge] , Copenhagen : Nordisk Ministerråd .
   Google Scholar
• Tailor , M. , Zaturenskaya , M. , Iwamasa , G. Y. and Ferrari , J. R. 2007 . Perceptions of older adults: The voices of eldercare employees . Educational Gerontology , 33 : 365 – 376 .
   Web of Science ®Google Scholar
• Vabø , M. 2006 . Caring for people or caring for proxy consumers? . European Societies , 8 : 403 – 422 .
   Web of Science ®Google Scholar
• van Beek , A. P. A. and Gerritsen , D. L. 2010 . The relationship between organizational culture of nursing staff and quality of care for residents with dementia: Questionnaire surveys and systematic observations in nursing homes . International Journal of Nursing Studies , 47 : 1274 – 1282 .
   PubMed Web of Science ®Google Scholar
• Wallcraft , J. and Sweeney , A. 2011 . User involvement in adult safeguarding Adults’ Service Report 47. Great Britain: Social Care Institute for Excellence. Retrieved from http://www.scie.org.uk/publications/reports/report47/files/report47.pdf
   Google Scholar
• Welford , C. , Murphy , K. , Wallace , M. and Casey , D. 2010 . A concept analysis of autonomy for older people in residential care . Journal of Clinical Nursing , 19 : 1226 – 1235 .
   PubMed Web of Science ®Google Scholar
• Wetzels , R. , Harmsen , M. , Van Weel , C. , Grol , R. and Wensing , M. 2008 . Interventions for improving older patients’ involvement in primary care episodes (Review) . The Cochrane Library ,
   Google Scholar
• Wikström , E. 2005 . Inflytandets paradoxer: Möjligheter och hinder för självbestämmande och inflytande i hemtjänsten (lic.) [The Paradox of Influence: Opportunities and barriers for self-determination and influence in public home service services] Växjö, Sweden: Department of Social Studies, Växjö University
   Google Scholar
• World Health Organization and Milbank Memorial Fund . 2000 . Towards an international consensus on policy for long-term care of the ageing , Geneva , , Switzerland : World Health Organization .
   Google Scholar