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Articles

Adolescents’ practical knowledge of asthma self-management and experiences in the context of acute asthma: a qualitative content analysis

, , PhD RNORCID Icon, , , PhD PNPORCID Icon, , , PhD RNORCID Icon, , , PhD RNORCID Icon, , , PhD RNORCID Icon, , , PhD ABPPORCID Icon, , , PhD APRNORCID Icon & , , PhD RNORCID Icon show all
Pages 277-287 | Received 18 Sep 2021, Accepted 18 Feb 2022, Published online: 14 Mar 2022

References

  • Centers for Disease Control and Prevention [CDC]. Most recent national asthma data | CDC. Asthma data statistics and surveillance. 2018. Available from: https://www.cdc.gov/asthma/most_recent_national_asthma_data.htm.
  • Sullivan PW, Ghushchyan V, Navaratnam P, Friedman HS, Kavati A, Ortiz B, Lanier B. The national burden of poorly controlled asthma, school absence and parental work loss among school-aged children in the United States. J Asthma. 2018; 55(6):659–667. doi:10.1080/02770903.2017.1350972.
  • Foronda CL, Kelley CN, Nadeau C, Prather SL, Lewis-Pierre L, Sarik DA, Muheriwa SR. Psychological and socioeconomic burdens faced by family caregivers of children with asthma: an integrative review. J Pediatr Health Care. 2020; 34(4):366–376. doi:10.1016/j.pedhc.2020.02.003.
  • Gupta RS, Carrión-Carire V, Weiss KB. The widening black/white gap in asthma hospitalizations and mortality. J Allergy Clin Immunol. 2006; 117(2):351–358. doi:10.1016/j.jaci.2005.11.047.
  • Bruzzese J-M, Stepney C, Fiorino EK, Bornstein L, Wang J, Petkova E, Evans D. Asthma self-management is sub-optimal in urban Hispanic and African American/black early adolescents with uncontrolled persistent asthma. J Asthma. 2012; 49(1):90–97. doi:10.3109/02770903.2011.637595.
  • Lau M, Lin H, Flores G. Racial/ethnic disparities in health and health care among U.S. adolescents. Health Serv Res. 2012; 47(5):2031–2059. doi:10.1111/j.1475-6773.2012.01394.x.
  • Price JH, Khubchandani J, Mckinney M, Braun R. Racial/ethnic disparities in chronic diseases of youths and access to health care in the United States. Biomed Res Int. 2013;2013:787616. doi:10.1155/2013/787616.
  • Naar S, Ellis D, Cunningham P, Pennar AL, Lam P, Brownstein NC, et al. Comprehensive community-based intervention and asthma outcomes in African American adolescents. Pediatrics. 2018; 142(4):e20173737. doi:10.1542/peds.2017-3737.
  • Schaffer SD, Yarandi HN. Measuring asthma self-management knowledge in adults. J Am Acad Nurse Pract. 2007; 19(10):530–535. doi:10.1111/j.1745-7599.2007.00253.x.
  • Rhee H, Belyea MJ, Ciurzynski S, Brasch J. Barriers to asthma self-management in adolescents: Relationships to psychosocial factors. Pediatr Pulmonol. 2009; 44(2):183–191. doi:10.1002/ppul.20972.
  • Holley S, Walker D, Knibb R, Latter S, Liossi C, Mitchell F, Radley R, Roberts G. Barriers and facilitators to self-management of asthma in adolescents: an interview study to inform development of a novel intervention. Clin Exp Allergy. 2018; 48(8):944–956. doi:10.1002/ppul.23556.
  • Bruzzese J-M, Bonner S, Vincent EJ, Sheares BJ, Mellins RB, Levison MJ, Wiesemann S, Du Y, Zimmerman BJ, Evans D, et al. Asthma education: the adolescent experience. Patient Educ Couns. 2004; 55(3):396–406. doi:10.1016/j.pec.2003.04.009.
  • National Asthma Education and Prevention Program. Guidelines for the diagnosis and management of asthma: Expert panel 3 report. Section 5, managing exacerbations of asthma. 2007. Available from: https://www.ncbi.nlm.nih.gov/books/NBK7228/.
  • Mammen J, Rhee H. Adolescent asthma self-management: a concept analysis and operational definition. Pediatr Allergy Immunol Pulmonol. 2012; 25(4):180–189. doi:10.1089/ped.2012.0150.
  • Mammen J, Rhee H, Norton SA, Butz AM, Halterman JS, Arcoleo K. An integrated operational definition and conceptual model of asthma self-management in teens. J Asthma. 2018; 55(12):1315–1327. doi:10.1080/02770903.2017.1418888.
  • Bellin MH, Newsome A, Land C, Kub J, Mudd SS, Bollinger ME, Butz AM. Asthma home management in the inner-City: what can the children teach us? J Pediatr Health Care. 2017; 31(3):362–371. doi:10.1016/j.pedhc.2016.11.002.
  • Mammen JR, Rhee H, Norton SA, Butz AM. Perceptions and experiences underlying self-management and reporting of symptoms in teens with asthma. J Asthma. 2017; 54(2):143–152. doi:1080/02770903.2016.1201835
  • Rich M, Taylor SA, Chalfen R. Illness as a social construct: understanding what asthma means to the patient to better treat the disease. Jt Commun J Qual Improv. 2000; 26(5):244–253. doi:10.1016/s1070-324(00)26019-7.
  • Bartholomew LK, Shegog R, Parcel GS, Gold RS, Fernandez M, Czyzewski DI, Sockrider MM, Berlin N. Watch, discover, think, and act: a model for patient education program development. Patient Educ Couns. 2000; 39(2–3):253–268. doi:10.1016/S0738-3991(99)00045-2.
  • Parcel GS, Nader PR, Tiernan K. A health education program for children with asthma. J Dev Behav Pediatr. [Internet]. 1980;1(3):128–132. Available from: https://pubmed.ncbi.nlm.nih.gov/7229057/
  • Rhee H, McQuillan BE, Belyea MJ. Evaluation of a peer-led asthma self-management program and benefits of the program for adolescent peer leaders. Respir Care. 2012; 57(12):2082–2089. doi:10.4187/respcare.01488.
  • Sandelowski M. Focus on research methods: whatever happened to qualitative description? Res Nurs Health. 2000; 23(4):334–340. doi:10.1002/1098-240x(200008)23:4 < 334::aid-nur9 > 3.0.co;2-g.
  • Rhee H, Belyea MJ, Hunt JF, Brasch J. Effects of a peer-led asthma self-management program for adolescents. Arch Pediatr Adolesc Med. 2011;165(6):513–519. doi:10.1001/archpediatrics.2011.79.
  • Kolbe J, Vamos M, James F, Elkind G, Garrett J. Assessment of practical knowledge of self-management of acute asthma. Chest. 1996; 109(1):86–90. doi:10.1378/chest.109.1.86.
  • Garrett MH, Hooper MA, Hooper BM, Abramson MJ. Respiratory symptoms in children and indoor exposure to nitrogen dioxide and gas stoves. Am J Respir Crit Care Med. 1998;158(3):891–895. doi:10.1164/ajccm.158.3.9701084
  • Sibbald B. Patient self care in acute asthma. Thorax. 1989; 44(2):97–101. Available from: http://thorax.bmj.com/
  • Zebracki K, Drotar D. Outcome expectancy and self-efficacy in adolescent asthma self-management. Child Heal Care. 2004; 33(2):133–149. Available from:/record/2004-13994-004 doi:10.1207/s15326888chc3302_4.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004; 24(2):105–112. doi:10.1016/j.nedt.2003.10.001.
  • Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008; 62(1):107–115. doi:10.1111/j.1365-2648.2007.04569.x.
  • Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005; 15(9):1277–1288. doi:10.1177/1049732305276687.
  • Creswell JW, Creswell JW.. Qualitative inquiry & research design choosing among five approaches. 3rd ed. Thousand Oaks, CA: SAGE – References – Scientific Research Publishing; 2013. Available from: https://www.scirp.org/(S(351jmbntvnsjt1aadkposzje))/reference/ReferencesPapers.aspx?ReferenceID=1807302
  • Denzin NK, Strauss AL. Qualitative analysis for social scientists. Contemp Sociol. 1988; 17(3):430. Available from: https://psycnet.apa.org/record/1987-98092-000
  • Strauss AL. Qualitative Analysis for Social Scientists. Qualitative Analysis for Social Scientists. New York: Cambridge University Press; 1987.
  • Ayres L, Kavanaugh K, Knafl KA. Within-case and across-case approaches to qualitative data analysis. Qual Health Res. 2003; 13(6):871–883. Available from: https://pubmed.ncbi.nlm.nih.gov/12891720/
  • Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Dir Progr Eval. 1986; 1986(30):73–84. Available from: https://onlinelibrary.wiley.com/doi/full/10.1002/ev.1427
  • Creswell J, Poth C. Qualitative Inquiry and Research Design: Choosing Among Five Approaches. Vol. 16. Thousand Oaks, CA: Health Promotion Practice; 2015. pp. 473–475.
  • McHugh SM, Ewan PW. A clinical index: a new method to assess efficacy of allergen immunotherapy. Allergy. 1992; 47(2 Pt 1):115–120. doi:10.1111/j.1398-9995.1992.tb05098.x.
  • Rhee H, Miner S, Sterling M, Halterman JS, Fairbanks E. The development of an automated device for asthma monitoring for adolescents: Methodologic approach and user acceptability. JMIR Mhealth Uhealth. 2014; 2(2):e27 doi:10.2196/mhealth.3118.
  • Koster ES, Philbert D, De Vries TW, Van Dijk L, Bouvy ML. “I just forget to take it”: asthma self-management needs and preferences in adolescents”. J Asthma. 2015; 52(8):831–837. Available from: https://pubmed.ncbi.nlm.nih.gov/26037397/
  • Sadof M, Kaslovsky R. Adolescent asthma: A developmental approach. Curr Opin Pediatr. 2011;23(4):373–378. doi:10.1097/MOP.0b013e32834837cb.
  • Cotton S, Luberto CM, Yi MS, Tsevat J. Complementary and alternative medicine behaviors and beliefs in urban adolescents with asthma. J Asthma. 2011; 48(5):531–538. Available from: https://pubmed.ncbi.nlm.nih.gov/21504264/
  • McQuaid EL, Everhart RS, Seifer R, Kopel SJ, Mitchell DK, Klein RB, Esteban CA, Fritz GK, Canino G. Medication adherence among Latino and non-Latino white children with asthma. Pediatr. 2012; 129(6):e1404–e1410. Available from:/pmc/articles/PMC3362901/?report = abstract
  • McQuaid EL, Fedele DA, Adams SK, Koinis-Mitchell D, Mitchell J, Kopel SJ, Seifer R, Jandasek B, Fritz GK, Canino G, et al. Complementary and alternative medicine use and adherence to asthma medications among Latino and non-Latino white families. Acad Pediatr. 2014; 14(2):192–199. Available from: http://dx.doi.org/10.1016/j.acap.2013.09.006
  • Reznik M, Ozuah PO, Franco K, Cohen R, Motlow F. Use of complementary therapy by adolescents with asthma. Arch Pediatr Adolesc Med. 2002; 156(10):1042–1044. Available from: https://pubmed.ncbi.nlm.nih.gov/12361452/
  • Joseph CLM, Peterson E, Havstad S, Johnson CC, Hoerauf S, Stringer S, Gibson-Scipio W, Ownby DR, Elston-Lafata J, Pallonen U, Asthma in Adolescents Research Team, et al. A web-based, tailored asthma management program for urban African-American high school students. Am J Respir Crit Care Med. 2007;175(9):888–895. Available from: https://pubmed.ncbi.nlm.nih.gov/17290041/
  • Barton C, Abramson M, Aroni R, Stewart K, Thien F, Sawyer S. What determines knowledge of asthma among young people and their families? J Asthma. 2002; 39(8):701–709. Available from: https://pubmed.ncbi.nlm.nih.gov/12507190/
  • Zemek RL, Bhogal SK, Ducharme FM. Systematic review of randomized controlled trials examining written action plans in children: what is the plan? Arch Pediatr Adolesc Med. 2008; 162(2):157–163. doi:10.1001/archpediatrics.2007.34.
  • Simon AE, Akinbami LJ. Asthma action plan receipt among children with asthma 2–17 years of age, United States, 2002–2013. J Pediatr. 2016; 171:283–289.e1. Available from: https://pubmed.ncbi.nlm.nih.gov/26858189/
  • Portnoy JM, Murphy H. Is it time for asthma action plan apps? Ann Allergy Asthma Immunol. 2017; 118(3):239–240. doi:10.1016/j.anai.2017.01.001.
  • Saxby N, Beggs S, Battersby M, Lawn S. What are the components of effective chronic condition self-management education interventions for children with asthma, cystic fibrosis, and diabetes? a systematic review. Patient Educ Couns. 2019; 102(4):607–622. doi:10.1016/j/pec.2018.11.001
  • Sin MK, Kang DH, Weaver M. Relationships of asthma knowledge, self-management, and social support in African American adolescents with asthma. Int J Nurs Stud. 2005; 42(3):307–313. doi:10.1016/j.ijnurstu.2004.06.013.
  • Chang LC. Health literacy, self-reported status and health promoting behaviours for adolescents in Taiwan. J Clin Nurs. 2011; 20(1–2):190–196. doi:10.1111/j.1365-2702.2009.03181.x.
  • Frey SM, Jones MR, Goldstein N, Riekert K, Fagnano M, Halterman JS. Knowledge of inhaled therapy and responsibility for asthma management among young teens with uncontrolled persistent asthma. Acad Pediatr. 2018; 18(3):317–323. doi:10.1016/j.acap.2018.01.006.
  • Valerio MA, Peterson EL, Wittich AR, Joseph CLM. Examining health literacy among urban African-American adolescents with asthma. J Asthma. 2016; 53(10):1041–1047. doi:10.1080/02770903.2016.1175473.
  • Evans-Agnew RA. Asthma disparity photovoice: the discourses of black adolescent and public health policymakers. Health Promot Pract. 2018; 19(2):213–221. doi:10.1177/1524839917691039.
  • Evans-Agnew R. Asthma management disparities: A photovoice investigation with African American youth. J Sch Nurs. 2016; 32(2):99–111. doi:10.1177/1059840515588192.

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