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ORIGINAL ARTICLES: CANCER REHABILITATION

Cancer patients’ interest in participating in cancer rehabilitation

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Pages 1676-1683 | Received 08 Jan 2019, Accepted 12 Jun 2019, Published online: 26 Jun 2019

References

  • MASCC. Strategic plan. 2017. Multinational Association of Supportive Care 2017. Available from: http://www.mascc.org/index.php?option=com_content&view=article&id=493:mascc-strategic-plan&catid=30:navigation.
  • Weis J, Giesler JM. Rehabilitation for cancer patients. Recent Results Cancer Res. 2018;210:105–122.
  • Alfano CM, Ganz PA, Rowland JH. Cancer survivorship and cancer rehabilitation: revitalizing the link. J Clin Oncol. 2012;30:904–906.
  • de Moor JS, Mariotto AB, Parry C, et al. Cancer survivors in the United States: prevalence across the survivorship trajectory and implications for care. Cancer Epidemiol Biomarkers Prev. 2013;22:561–570.
  • Duncan M, Moschopoulou E, Herrington E, et al. Review of systematic reviews of non-pharmacological interventions to improve quality of life in cancer survivors. BMJ Open. 2017;7:e015860.
  • Midtgaard J, Hammer NM, Andersen C, et al. Cancer survivors' experience of exercise-based cancer rehabilitation - a meta-synthesis of qualitative research. Acta Oncol. 2015;54:609–617.
  • Stout NL, Silver JK, Raj VS, et al. Toward a national initiative in cancer rehabilitation: recommendations from a subject matter expert group. Arch Phys Med Rehabil. 2016;97:2006–2015.
  • Faller H, Schuler M, Richard M, et al. Effects of psycho-oncologic interventions on emotional distress and quality of life in adult patients with cancer: systematic review and meta-analysis. J Clin Oncol. 2013;31:782–793.
  • Jassim GA, Whitford DL, Hickey A, et al. Psychological interventions for women with non-metastatic breast cancer. Cochrane Database Syst Rev. 2015;(5)CD008729. DOI:10.1002/14651858.CD008729.pub2.
  • Cramer H, Lauche R, Klose P, et al. Yoga for improving health-related quality of life, mental health and cancer-related symptoms in women diagnosed with breast cancer. Cochrane Database Syst Rev. 2017;1:Cd010802.
  • McCaughan E, Parahoo K, Hueter I, et al. Online support groups for women with breast cancer. Cochrane Database Syst Rev. 2017;3:Cd011652.
  • Vehling S, Philipp R. Existential distress and meaning-focused interventions in cancer survivorship. Curr Opin Support Palliat Care. 2018;12:46–51.
  • Holm LV, Hansen DG, Johansen C, et al. Participation in cancer rehabilitation and unmet needs: a population-based cohort study. Support Care Cancer. 2012;20:2913–2924.
  • van Harten WH, van Noort O, Warmerdam R, et al. Assessment of rehabilitation needs in cancer patients. Int J Rehabil Res. 1998;21:247–257.
  • Thorsen L, Gjerset GM, Loge JH, et al. Cancer patients' needs for rehabilitation services. Acta Oncol. 2011;50:212–222.
  • Bayly JL, Lloyd-Williams M. Identifying functional impairment and rehabilitation needs in patients newly diagnosed with inoperable lung cancer: a structured literature review. Support Care Cancer. 2016;24:2359–2379.
  • Patrick H, Williams GC. Self-determination theory: its application to health behavior and complementarity with motivational interviewing. Int J Behav Nutr Phys Act. 2012;9:18.
  • Ryan RM, Deci EL. Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. Am Psychol. 2000;55:68–78.
  • Cipolletta S, Simonato C, Faccio E. The effectiveness of psychoeducational support groups for women with breast cancer and their caregivers: a mixed methods study. Front Psychol. 2019;10:288.
  • Barlow L, Westergren K, Holmberg L, et al. The completeness of the Swedish Cancer Register: a sample survey for year 1998. Acta Oncol. 2009;48:27–33.
  • Patrick DL, Burke LB, Gwaltney CJ, et al. Content validity–establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force report: part 2–assessing respondent understanding. Value Health. 2011;14:978–988.
  • Ohlsson-Nevo E, Andershed B, Nilsson UG, et al. Finding a wider horizon: experiences of being a next-of-kin of a person suffering from colorectal cancer as told after having participated in a psychoeducational program. Eur J Oncol Nurs. 2013;17:324–330.
  • Hartman SJ, Rosen RK. Breast cancer relatives' physical activity intervention needs and preferences: qualitative results. BMC Womens Health. 2017;17:36.
  • Mirosevic S, Prins JB, Selic P, et al. Prevalence and factors associated with unmet needs in post-treatment cancer survivors: a systematic review. Eur J Cancer Care. 2019;28:e13060.
  • Boyes AW, Girgis A, D'Este C, et al. Prevalence and correlates of cancer survivors' supportive care needs 6 months after diagnosis: a population-based cross-sectional study. BMC Cancer. 2012;12:150.
  • Kent EE, Mitchell SA, Oakley-Girvan I, et al. The importance of symptom surveillance during follow-up care of leukemia, bladder, and colorectal cancer survivors. Support Care Cancer. 2014;22:163–172.
  • Jansen F, van Uden-Kraan CF, van Zwieten V, et al. Cancer survivors' perceived need for supportive care and their attitude towards self-management and eHealth. Support Care Cancer. 2015;23:1679–1688.
  • Shi Q, Smith TG, Michonski JD, et al. Symptom burden in cancer survivors 1 year after diagnosis: a report from the American Cancer Society's Studies of Cancer Survivors. Cancer. 2011;117:2779–2790.
  • Wiedenbein L, Kristiansen M, Adamsen L, et al. Assessment of rehabilitation needs in colorectal cancer treatment: results from a mixed audit and qualitative study in Denmark. Acta Oncol. 2016;25:1–7.
  • van der Heide I, Wang J, Droomers M, et al. The relationship between health, education, and health literacy: results from the Dutch Adult Literacy and Life Skills Survey. J Health Commun. 2013;18:172–184.
  • Rudd RE. Health literacy skills of U.S. adults. Am J Health Behav. 2007;31 Suppl 1:S8–S18.
  • Mantwill S, Monestel-Umaña S, Schulz PJ. The relationship between health literacy and health disparities: a systematic review. PLoS One. 2015;10:e0145455.
  • Menendez ME, van Hoorn BT, Mackert M, et al. Patients with limited health literacy ask fewer questions during office visits with hand surgeons. Clin Orthop Relat Res. 2017;475:1291–1297.
  • Koh HK, Rudd RE. The arc of health literacy. JAMA. 2015;314:1225–1226.
  • Halverson JL, Martinez-Donate AP, Palta M, et al. Health literacy and health-related quality of life among a population-based sample of cancer patients. J Health Commun. 2015;20:1320–1329.
  • Felicitas-Perkins JQ, Palalay MP, Cuaresma C, et al. A pilot study to determine the effect of an educational DVD in Philippine languages on cancer clinical trial participation among Filipinos in Hawai'i. Hawai'i J Med Public Health. 2017;76:171–177.
  • Lewis CL, Golin CE, DeLeon C, et al. A targeted decision aid for the elderly to decide whether to undergo colorectal cancer screening: development and results of an uncontrolled trial. BMC Med Inform Decis Mak. 2010;10:54.
  • Kim EJ, Kim SH. Simplification improves understanding of informed consent information in clinical trials regardless of health literacy level. Clin Trials. 2015;12:232–236.
  • Playdon M, Ferrucci LM, McCorkle R, et al. Health information needs and preferences in relation to survivorship care plans of long-term cancer survivors in the American Cancer Society's Study of Cancer Survivors-I. J Cancer Surviv. 2016;10:674–685.
  • Eheman CR, Berkowitz Z, Lee J, et al. Information-seeking styles among cancer patients before and after treatment by demographics and use of information sources. J Health Commun. 2009;14:487–502.
  • Hellbom M, Bergelt C, Bergenmar M, et al. Cancer rehabilitation: a Nordic and European perspective. Acta Oncol. 2011;50:179–186.
  • Westman B, Kirkpatrick L, Ebrahim F, et al. Patient-reported experiences on supportive care strategies following the introduction of the first Swedish national cancer strategy and in accordance with the new patient act. Acta Oncol. 2018;57:382–392.
  • Hoyer M, Johansson B, Nordin K, et al. Health-related quality of life among women with breast cancer - a population-based study. Acta Oncol. 2011;50:1015–1026.
  • Rissanen R, Arving C, Ahlgren J, et al. Group versus individual stress management intervention in breast cancer patients for fatigue and emotional reactivity: a randomised intervention study. Acta Oncol. 2014;53:1221–1229.