Cancer patients’ preferred and perceived level of involvement in treatment decision-making: an epidemiological study

References

• Makoul G, Clayman ML. An integrative model of shared decision making in medical encounters. Patient Educ Couns. 2006;60(3):301–312.
   PubMed Web of Science ®Google Scholar
• Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44(5):681–692.
   PubMed Web of Science ®Google Scholar
• Shay LA, Lafata JE. Where is the evidence? A systematic review of shared decision making and patient outcomes. Med Decis Making. 2015;35(1):114–131.
   PubMed Web of Science ®Google Scholar
• Stacey D, Légaré F, Lewis K, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2017;2017(4):CD001431.
   Web of Science ®Google Scholar
• Loh A, Simon D, Kriston L, et al. Shared decision making in medicine. Dtsch Arztebl. 2007;104(21):1483–1489.
   Google Scholar
• Calderon C, Ferrando PJ, Carmona-Bayonas A, et al. Validation of SDM-Q-Doc Questionnaire to measure shared decision-making physician’s perspective in oncology practice. Clin Transl Oncol. 2017.19(11):1312–1319.
   Google Scholar
• Whitney SN. A new model of medical decisions: exploring the limits of shared decision making. Med Decis Making. 2003;23(4):275–280.
   PubMed Web of Science ®Google Scholar
• Brom L, Hopmans W, Pasman HR, et al. Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature. BMC Med Inform Decis Mak. 2014;14:25.
   PubMed Web of Science ®Google Scholar
• Hubbard G, Kidd L, Donaghy E. Preferences for involvement in treatment decision making of patients with cancer: a review of the literature. Eur J Oncol Nurs. 2008;12(4):299–318.
   PubMed Web of Science ®Google Scholar
• Chewning B, Bylund CL, Shah B, et al. Patient preferences for shared decisions: a systematic review. Patient Educ Couns. 2012;86(1):9–18.
   PubMed Web of Science ®Google Scholar
• Schuler M, Schildmann J, Trautmann F, et al. Cancer patients’ control preferences in decision making and associations with patient-reported outcomes: a prospective study in an outpatient cancer center. Support Care Cancer. 2017;25(9):2753–2760.
   PubMed Web of Science ®Google Scholar
• Vogel BA, Helmes AW, Hasenburg A. Concordance between patients’ desired and actual decision-making roles in breast cancer care. Psycho-oncology. 2008;17(2):182–189.
   PubMed Web of Science ®Google Scholar
• Albrecht KJ, Nashan D, Meiss F, et al. Shared decision making in dermato-oncology: Preference for involvement of melanoma patients. Melanoma Res. 2014;24(1):68–74.
   PubMed Web of Science ®Google Scholar
• Kehl KL, Landrum M, Arora NK, et al. Association of actual and preferred decision roles with patient-reported quality of care: shared decision making in cancer care. JAMA Oncol. 2015;1(1):50.
   PubMed Web of Science ®Google Scholar
• Tariman JD, Berry DL, Cochrane B, et al. Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review. Ann Oncol. 2010;21(6):1145–1151.
   PubMed Web of Science ®Google Scholar
• Singh JA, Sloan JA, Atherton PJ, et al. Preferred roles in treatment decision making among patients with cancer: a pooled analysis of studies using the Control Preferences Scale. Am J Manag Care. 2010;16(9):688–696.
   PubMed Web of Science ®Google Scholar
• Nicolai J, Buchholz A, Seefried N, et al. When do cancer patients regret their treatment decision? A path analysis of the influence of clinicians’ communication styles and the match of decision-making styles on decision regret. Patient Educ Couns. 2016;99(5):739–746.
   PubMed Web of Science ®Google Scholar
• Mehnert A, Koch U, Schulz H, et al. Prevalence of mental disorders, psychosocial distress and need for psychosocial support in cancer patients – study protocol of an epidemiological multi-center study. BMC Psychiatry. 2012;12(1):70.
   PubMed Web of Science ®Google Scholar
• Mehnert A, Brahler E, Faller H, et al. Four-week prevalence of mental disorders in patients with cancer across major tumor entities. JCO. 2014;32(31):3540–3546.
   PubMed Web of Science ®Google Scholar
• Kaatsch P, Spix C, Katalinic A, et al. Cancer in Germany 2007/2008: frequencies and trends. 8 ed. Berlin: Robert Koch Institut; 2012.
   Google Scholar
• von Elm E, Altman DG, Egger M, et al. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. J Clin Epidemiol. 2008;61(4):344–349.
   PubMed Web of Science ®Google Scholar
• Degner LF, Sloan JA. Decision making during serious illness: what role do patients really want to play. J Clin Epidemiol. 1992;45(9):941–950.
   PubMed Web of Science ®Google Scholar
• Degner LF, Sloan JA, Venkatesh P. The control preferences scale. Can J Nurs Res. 1997;29(3):21–43.
   PubMedGoogle Scholar
• Kryworuchko J, Stacey D, Bennett C, et al. Appraisal of primary outcome measures used in trials of patient decision support. Patient Educ Couns. 2008;73(3):497–503.
   PubMed Web of Science ®Google Scholar
• Rothenbacher D, Lutz MP, Porzsolt F. Treatment decisions in palliative cancer care: patients’ preferences for involvement and doctors’ knowledge about it. Eur J Cancer. 1997;33(8):1184–1189.
   PubMed Web of Science ®Google Scholar
• Giersdorf N, Loh A, Härter M. Quantitative Messverfahren des Shared Decison-Making. In: Scheibler F, Pfaff H, editors. Shared Decision-Making: Der Patient als Partner im medizinischen Entscheidungsprozess. Weinheim, München: Juventa-Verlag; 2003. p. 69–85.
   Google Scholar
• Kriston L, Scholl I, Hölzel L, et al. The 9-item Shared Decision Making Questionnaire (SDM-Q-9). Development and psychometric properties in a primary care sample. Patient Educ Couns. 2010;80(1):94–99.
   PubMed Web of Science ®Google Scholar
• Rodenburg-Vandenbussche S, Pieterse AH, Kroonenberg PM, et al. Dutch translation and psychometric testing of the 9-item shared decision making questionnaire (SDM-Q-9) and shared decision making questionnaire-physician version (SDM-Q-Doc) in primary and secondary care. PloS One. 2015;10(7):e0132158.
   PubMed Web of Science ®Google Scholar
• De las Cuevas C, Perestelo-Perez L, Rivero-Santana A, et al. Validation of the Spanish version of the 9-item Shared Decision-Making Questionnaire. Health Expect. 2015;18(6):2143–2153.
   PubMed Web of Science ®Google Scholar
• Doherr H, Christalle E, Kriston L, et al. Use of the 9-item Shared Decision Making Questionnaire (SDM-Q-9 and SDM-Q-Doc) in intervention studies-A systematic review. PloS One. 2017;12(3):e0173904.
   PubMed Web of Science ®Google Scholar
• Scholl I, Hahlweg P, Lindig A, et al. Evaluation of a program for routine implementation of shared decision-making in cancer care: study protocol of a stepped wedge cluster randomized trial. Implement Sci. 2018;13(1):51.
   PubMed Web of Science ®Google Scholar
• Joseph-Williams N, Elwyn G, Edwards A. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Educ Couns. 2014;94(3):291–309.
   PubMed Web of Science ®Google Scholar
• Blanc X, Collet T-H, Auer R, et al. Publication trends of shared decision making in 15 high impact medical journals: A full-text review with bibliometric analysis. BMC Med Inform Decis Mak. 2014;14(1):71.
   PubMed Web of Science ®Google Scholar
• Härter M, Moumjid N, Cornuz J, et al. Shared decision making in 2017: International accomplishments in policy, research and implementation. Zeitschrift Für Evidenz, Fortbildung Und Qualität im Gesundheitswesen. 2017;123-124:1–5.
   PubMed Web of Science ®Google Scholar
• Charles C, Gafni A, Whelan T. Self-reported use of shared decision-making among breast cancer specialists and perceived barriers and facilitators to implementing this approach. Health Expect. 2004;7(4):338–348.
   PubMed Web of Science ®Google Scholar
• Légaré F, Witteman HO. Shared decision making: examining key elements and barriers to adoption into routine clinical practice. Health Aff. 2013;32(2):276–284.
   Web of Science ®Google Scholar
• Elwyn G, Scholl I, Tietbohl C, et al. Many miles to go…”: a systematic review of the implementation of patient decision support interventions into routine clinical practice. BMC Med Inform Decis Mak. 2013;13(S2):S14.
   PubMed Web of Science ®Google Scholar
• Hahlweg P, Hoffmann J, Harter M, et al. In absentia: an exploratory study of how patients are considered in multidisciplinary cancer team meetings. PloS One. 2015;10(10):e0139921.
   PubMed Web of Science ®Google Scholar
• Hahlweg P, Härter M, Nestoriuc Y, et al. How are decisions made in cancer care? A qualitative study using participant observation of current practice. BMJ Open. 2017;7(9):e016360.
   PubMed Web of Science ®Google Scholar
• Say R, Murtagh M, Thomson R. Patients’ preference for involvement in medical decision making: a narrative review. Patient Educ Couns. 2006;60(2):102–114.
   PubMed Web of Science ®Google Scholar
• Fisher KA, Tan ASL, Matlock DD, et al. Keeping the patient in the center: common challenges in the practice of shared decision making. Patient Educ Couns. 2018;101(12):2195–2201.
   PubMed Web of Science ®Google Scholar