Rehabilitation and palliative care for socioeconomically disadvantaged patients with advanced cancer: a scoping review

References

• Ibfelt E, Kjaer SK, Johansen C, et al. Socioeconomic position and stage of cervical cancer in Danish women diagnosed 2005 to 2009. Cancer Epidemiol Biomarkers Prev. 2012;21(5):835–842.
   PubMed Web of Science ®Google Scholar
• Dalton SO, Frederiksen BL, Jacobsen E, et al. Socioeconomic position, stage of lung cancer and time between referral and diagnosis in Denmark, 2001–2008. Br J Cancer. 2011;105(7):1042–1048.
   PubMed Web of Science ®Google Scholar
• Frederiksen BL, Brown P. d N, Dalton SO, et al. Socioeconomic inequalities in prognostic markers of non-Hodgkin lymphoma: analysis of a national clinical database. Eur J Cancer. 2011;47(6):910–917.
   PubMed Web of Science ®Google Scholar
• Frederiksen BL, Osler M, Harling H, et al. Social inequalities in stage at diagnosis of rectal but not in colonic cancer: a nationwide study. Br J Cancer. 2008;98(3):668–673.
   PubMed Web of Science ®Google Scholar
• Ibfelt EH, Steding-Jessen M, Dalton SO, et al. Influence of socioeconomic factors and region of residence on cancer stage of malignant melanoma: a Danish nationwide population-based study. Clin Epidemiol. 2018;10:799–807.
   PubMed Web of Science ®Google Scholar
• Olsen MH, Bøje CR, Kjaer TK, et al. Socioeconomic position and stage at diagnosis of head and neck cancer - a nationwide study from DAHANCA. Acta Oncol. 2015;54(5):759–766.
   PubMed Web of Science ®Google Scholar
• Seidelin UH, Ibfelt E, Andersen I, et al. Does stage of cancer, comorbidity or lifestyle factors explain educational differences in survival after endometrial cancer? A cohort study among Danish women diagnosed 2005–2009. Acta Oncol. 2016;55(6):680–685.
   PubMed Web of Science ®Google Scholar
• Kjaer TK, Johansen C, Andersen E, et al. Influence of social factors on patient-reported late symptoms: report from a controlled trial among long-term head and neck cancer survivors in Denmark. Head Neck. 2016;38(Suppl 1):E1713–E1721.
   PubMed Web of Science ®Google Scholar
• Dalton SO, Olsen MH, Johansen C, et al. Socioeconomic inequality in cancer survival - changes over time. A population-based study, Denmark, 1987–2013. Acta Oncol. 2019;58(5):737–744.
   PubMed Web of Science ®Google Scholar
• Galobardes B, Shaw M, Lawlor DA, et al. Indicators of socioeconomic position (part 1). J Epidemiol Community Health. 2006;60(1):7–12.
   PubMed Web of Science ®Google Scholar
• Holm LV, Hansen DG, Larsen PV, et al. Social inequality in cancer rehabilitation: a population-based cohort study. Acta Oncol. 2013;52(2):410–422.
   PubMed Web of Science ®Google Scholar
• Oksbjerg Dalton S, Halgren Olsen M, Moustsen IR, et al. Socioeconomic position, referral and attendance to rehabilitation after a cancer diagnosis: a population-based study in Copenhagen, Denmark 2010–2015. Acta Oncol. 2019;58(5):730–736.
   PubMed Web of Science ®Google Scholar
• Moustsen IR, Larsen SB, Vibe-Petersen J, et al. Social position and referral to rehabilitation among cancer patients. Acta Oncol. 2015;54(5):720–726.
   PubMed Web of Science ®Google Scholar
• American Cancer Society. What is advanced cancer? 2017 [cited 2017 Dec 21]. Available from: https://www.cancer.org/treatment/understanding-your-diagnosis/advanced-cancer/what-is.html.
   Google Scholar
• Moghaddam N, Coxon H, Nabarro S, et al. Unmet care needs in people living with advanced cancer: a systematic review. Support Care Cancer. 2016;24(8):3609–3622.
   PubMed Web of Science ®Google Scholar
• Salakari MR, Surakka T, Nurminen R, et al. Effects of rehabilitation among patients with advances cancer: a systematic review. Acta Oncol. 2015;54(5):618–628.
   PubMed Web of Science ®Google Scholar
• Gomes B, Calanzani N, Curiale V, et al. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev. 2013;6(6):CD007760.
   Google Scholar
• Sarmento VP, Gysels M, Higginson IJ, et al. Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers. BMJ Support Palliat Care. 2017;7(4):0
   PubMed Web of Science ®Google Scholar
• World Health Organisation. WHO Definition of Palliative Care; 2019 [cited 2019 January 2]. Available from: https://www.who.int/cancer/palliative/definition/en/.
   Google Scholar
• Nottelmann L, Jensen LH, Vejlgaard TB, et al. A new model of early, integrated palliative care: palliative rehabilitation for newly diagnosed patients with non-resectable cancer. Support Care Cancer. 2019;27(9):3291–3300.
   PubMed Web of Science ®Google Scholar
• Tiberini R, Richardson H. Rehabilitative palliative care enabling people to live fully until they die: a challenge for the 21st century. London: Hospice UK, St Joseph’s Hospice, St Christopher’s, Burdett Trust for Nursing; 2015.
   Google Scholar
• Danish Health Authority [Sundhedsstyrelsen]. Strengthened efforts in the field of cancer. In: Danish Health Authority, editor. Scientific Plan for Cancer Plan IV [Styrket indsats på kraeftområdet. Fagligt oplaeg til kraeftplan IV]. Copenhagen: Danish Health Authority; 2016.
   Google Scholar
• Olsen MH, Kjaer TK, Dalton SO. Social inequality in cancer in Denmark. Whitebook [Social Ulighed i Kraeft i Danmark. Hvidbog]. 1 ed. Copenhagen: Danish Cancer Association; 2019.
   Google Scholar
• Hanneke R, Asada Y, Lieberman L, et al. The scoping review method: mapping the literature in “structural change” public health interventions. SAGE; 2017.
   Google Scholar
• Tricco AC, Lillie E, Zarin W, et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467–473.
   PubMed Web of Science ®Google Scholar
• Grant MJ, Booth A. A typology of reviews: an analysis of 14 review types and associated methodologies. Health Info Libr J. 2009;26(2):91–108.
   PubMed Web of Science ®Google Scholar
• World Health Organisation. WHO Definition of Rehabilitation [cited 2020 April 29]. Available from: https://www.who.int/news-room/fact-sheets/detail/rehabilitation.
   Google Scholar
• Ouzzani M, Hammady H, Fedorowicz Z, et al. Rayyan-a web and mobile app for systematic reviews. Syst Rev. 2016;5(1):210.
   PubMedGoogle Scholar
• Clarivate Analytics. EndNote. [2020 April 29]. Available from: https://www.endnote.com/.
   Google Scholar
• Okafor PN, Stobaugh DJ, Nnadi AK, et al. Determinants of palliative care utilization among patients hospitalized with metastatic gastrointestinal malignancies. Am J Hosp Palliat Care. 2017;34(3):269–274.
   PubMed Web of Science ®Google Scholar
• Rubens M, Ramamoorthy V, Saxena A, et al. Palliative care consultation trends among hospitalized patients with advanced cancer in the United States, 2005 to 2014. Am J Hosp Palliat Care. 2019;36(4):294–301.
   PubMed Web of Science ®Google Scholar
• Forst D, Adams E, Nipp R, et al. Hospice utilization in patients with malignant gliomas. Neuro-Oncology. 2018;20(4):538–545.
   PubMed Web of Science ®Google Scholar
• Lyckholm LJ, Coyne PJ, Kreutzer KO, et al. Barriers to effective palliative care for low-income patients in late stages of cancer: report of a study and strategies for defining and conquering the barriers. Nurs Clin North Am. 2010;45(3):399–409.
   PubMed Web of Science ®Google Scholar
• Mack JW, Chen K, Boscoe FP, et al. Underuse of hospice care by Medicaid-insured patients with stage IV lung cancer in New York and California. J Clin Oncol. 2013;31(20):2569–2579.
   PubMed Web of Science ®Google Scholar
• Maddison AR, Asada Y, Burge F, et al. Inequalities in end-of-life care for colorectal cancer patients in Nova Scotia. J Palliat Care. 2012;28(2):90–96.
   PubMed Web of Science ®Google Scholar
• Penrod JD, Garrido MM, McKendrick K, et al. Characteristics of hospitalized cancer patients referred for inpatient palliative care consultation. J Palliat Med. 2017;20(12):1321–1326.
   PubMed Web of Science ®Google Scholar
• Rosenfeld EB, Chan JK, Gardner AB, et al. Disparities associated with inpatient palliative care utilization by patients with metastatic gynecologic cancers: a study of 3337 women. Am J Hosp Palliat Care. 2018;35(4):697–703.
   PubMed Web of Science ®Google Scholar
• Saeed F, Hoerger M, Norton SA, et al. Preference for palliative care in cancer patients: are men and women alike? J Pain Symptom Manage. 2018;56(1):1–6.e1.
   PubMed Web of Science ®Google Scholar
• Santos Salas A, Watanabe SM, Tarumi Y, et al. Social disparities and symptom burden in populations with advanced cancer: specialist palliative care providers' perspectives. Support Care Cancer. 2019;27(12):4733–4744.
   PubMed Web of Science ®Google Scholar
• Schuurhuizen C, Braamse AMJ, Konings I, et al. Predictors for use of psychosocial services in patients with metastatic colorectal cancer receiving first line systemic treatment. BMC Cancer. 2019;19(1):115.
   PubMed Web of Science ®Google Scholar
• Bleijenberg N, Janneke M, Trappenburg JC, et al. Increasing value and reducing waste by optimizing the development of complex interventions: enriching the development phase of the Medical Research Council (MRC) Framework. Int J Nurs Stud. 2018;79:86–93.
   PubMed Web of Science ®Google Scholar
• Johnston FM, Neiman JH, Parmley LE, et al. Stakeholder perspectives on the use of community health workers to improve palliative care use by African Americans with cancer. J Palliat Med. 2019;22(3):302–306.
   PubMed Web of Science ®Google Scholar
• Johnsen AT, Petersen MA, Pedersen L, et al. Symptoms and problems in a nationally representative sample of advanced cancer patients. Palliat Med. 2009;23(6):491–501.
   PubMed Web of Science ®Google Scholar
• Johnsen AT, Petersen MA, Pedersen L, et al. Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to 12 frequent symptoms/problems. Psychooncology. 2013;22(8):1724–1730.
   PubMed Web of Science ®Google Scholar
• Rainbird K, Perkins J, Sanson-Fisher R, et al. The needs of patients with advanced, incurable cancer. Br J Cancer. 2009;101(5):759–764.
   PubMed Web of Science ®Google Scholar
• Cheville AL, Troxel AB, Basford JR, et al. Prevalence and treatment patterns of physical impairments in patients with metastatic breast cancer. J Clin Oncol. 2008;26(16):2621–2629.
   PubMed Web of Science ®Google Scholar
• Padgett LS, Asher A, Cheville A. The intersection of rehabilitation and palliative care: patients with advanced cancer in the inpatient rehabilitation setting. Rehabil Nurs. 2018;43(4):219–228.
   PubMed Web of Science ®Google Scholar
• Silver JK, Raj VS, Fu JB, et al. Cancer rehabilitation and palliative care: critical components in the delivery of high-quality oncology services. Support Care Cancer. 2015;23(12):3633–3643.
   PubMed Web of Science ®Google Scholar
• Berry DL. editor Patient-reported symptoms and quality of life integrated into clinical cancer care. Semin Oncol Nurs. 2011;27(3):203–210.
   PubMedGoogle Scholar
• Temel JS, Greer JA, Muzikansky A, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010;363(8):733–742.
   PubMed Web of Science ®Google Scholar
• Cole AP, Nguyen D-D, Meirkhanov A, et al. Association of care at minority-serving vs non–minority-serving hospitals with use of palliative care among racial/ethnic minorities with metastatic cancer in the United States. JAMA Netw Open. 2019;2(2):e187633–e187633.
   PubMed Web of Science ®Google Scholar
• Hanson LC, Armstrong TD, Green MA, et al. Circles of care: development and initial evaluation of a peer support model for African Americans with advanced cancer. Health Educ Behav. 2013;40(5):536–543.
   PubMed Web of Science ®Google Scholar
• Abdollah F, Sammon JD, Majumder K, et al. Racial disparities in end-of-life care among patients with prostate cancer: a population-based study. J Natl Compr Canc Netw. 2015;13(9):1131–1138.
   PubMed Web of Science ®Google Scholar
• Ejem DB, Barrett N, Rhodes RL, et al. Reducing disparities in the quality of palliative care for older African Americans through improved advance care planning: study design and protocol. J Palliat Med. 2019;22(S1):90–100.
   PubMed Web of Science ®Google Scholar
• Hanratty B, Addington-Hall J, Arthur A, et al. What is different about living alone with cancer in older age? A qualitative study of experiences and preferences for care. BMC Fam Pract. 2013;14:22.
   PubMed Web of Science ®Google Scholar
• Bunt S, Steverink N, Andrew MK, et al. Cross-cultural adaptation of the social vulnerability index for use in the Dutch context. Int J Environ Res Public Health. 2017;14(11):14.
   Web of Science ®Google Scholar
• Wallace LM, Theou O, Pena F, et al. Social vulnerability as a predictor of mortality and disability: cross-country differences in the survey of health, aging, and retirement in Europe (SHARE). Aging Clin Exp Res. 2015;27(3):365–372.
   PubMed Web of Science ®Google Scholar
• Friis K, Larsen F, Nielsen C, et al. Social inequality in cancer survivors' health behaviours: a Danish population-based study. Eur J Cancer Care (Engl). 2018;27(3):e12840.
   PubMed Web of Science ®Google Scholar
• Friis K, Lasgaard M, Rowlands G, et al. Health literacy mediates the relationship between educational attainment and health behavior: a Danish population-based study. J Health Commun. 2016;21(sup2):54–60.
   PubMed Web of Science ®Google Scholar
• Kjaer TK, Mellemgaard A, Stensøe Oksen M, et al. Recruiting newly referred lung cancer patients to a patient navigator intervention (PACO): lessons learnt from a pilot study. Acta Oncol. 2017;56(2):335–341.
   PubMed Web of Science ®Google Scholar
• Levin-Zamir D, Baron-Epel OB, Cohen V, et al. The association of health literacy with health behavior, socioeconomic indicators, and self-assessed health from a National Adult Survey in Israel. J Health Commun. 2016;21(sup2):61–68.
   PubMed Web of Science ®Google Scholar
• Neergaard MS, Jensen AB, Olesen F, et al. Access to outreach specialist palliative care teams among cancer patients in Denmark. J Palliat Med. 2013;16(8):951–957.
   PubMed Web of Science ®Google Scholar
• COMPAS. Danish Cancer Society National Center for Optimal Cancer Outcomes for All [COMPAS, Dansk Forskningscenter for Lighed i Kraeft]. [cited 2020 May 18]. Available from: https://www.compas.dk/.
   Google Scholar