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Original Articles

Going to school with narcolepsy – perceptions of families and teachers of children with narcolepsy

, , &
Pages 869-881 | Received 11 Jun 2013, Accepted 01 Jul 2013, Published online: 14 Aug 2013

References

  • Ahvenainen, O., Ikonen, O., & Koro, J. (2001). Johdatus erityiskasvatuksen käytäntöön [Introduction to practices of special education]. Helsinki: WSOY.
  • Ainscow, M. (2007). Taking an inclusive turn. Journal of Research in Special Educational Needs, 7(1), 3–7. doi: 10.1111/j.1471-3802.2007.00075.x
  • Al'Abri, K. (2012). Toward effective inclusion at universities and colleges: Applications of Universal Design for Learning. Journal of Educational and Instructional Studies in the World, 2(2), 124–129.
  • Broderick, A., Mehta-Parekh, H., & Reid, K. (2005). Differentiating instruction for disabled students in inclusive classrooms. Theory into Practice, 44(3), 194–202. doi: 10.1207/s15430421tip4403_3
  • Burghstaler, B. (2007). Universal design of instruction: Definition, principles, and examples. National Service Resources. Retrieved on 6 June 2013 from: https://www.nationalserviceresources.org/files/legacy/filemanager/download/accessibility/UofWash_UD_instruction.pdf
  • Coull, J. T. (1998). Neural correlates of attention and arousal: Insights from electrophysiology, functional neuroimaging and psychopharmacology. Progress in Neurobiology, 55(4), 343–361. doi: 10.1016/S0301-0082(98)00011-2
  • D'Agostino, A., & Limosnai, I. (2010). Hypnagogic hallucinations and sleep paralysis. In M. Goswami, S. R. Pandi-Perumal, & M. J. Thorpy (Eds.), Narcolepsy. A clinical guide (pp. 87–96). New York: Humana Press.
  • Dauvilliers, Y., & Plazzi, G. (2010). Diurnal and nocturnal sleep in narcolepsy with cataplexy. In M. Goswami, S. R. Pandi-Perumal, & M. J. Thorpy (Eds.), Narcolepsy. A clinical guide (pp. 77–85). New York: Humana Press.
  • Dorris, L., Sameer, M., Zuberi, N., Moffat, C., & McArthur, I. (2008). Psychosocial and intellectual functioning in childhood narcolepsy. Developmental Neurorehabilitation, 11(3), 187–194. doi: 10.1080/17518420802011493
  • Federico, M. A., Herrold, B., & Venn, J. (2000). Programs in practice: Inclusion reaches beyond the classroom. Kappa Delta Pi Record, 36(4), 178–180. doi: 10.1080/00228958.2000.10518781
  • Green, P., & Stillman, M. J. (1998). Narcoplepsy – signs, symptoms, differential diagnosis, and management. Archives of Family Medicine, 7(5), 472–478. doi: 10.1001/archfami.7.5.472
  • Hall, T. (2002). Differentiated instruction. Wakefield, MA: CAST. Retrieved from http://www.cast.org/publications/ncac/ncac_diffinstruc.html
  • Houlette, M. A., Gaertner, S. L., Johnson, K. M., Banker, B. S., Riek, B. M., & Dovidio, J. F. (2004). Developing a more inclusive social identity: An elementary school intervention. Journal of Social Issues, 60(1), 35–55. doi: 10.1111/j.0022-4537.2004.00098.x
  • Hublin, C., Kirjavainen, T., Partinen, M., Ojala, M., & Saarenpää-Heikkilä, O. (2011). Narkolepsiapotilaan toimintakyvyn ja haitta-asteen arviointi [Evaluation of the ability to function and disability level of patients with narcolepsy]. Lääketieteellinen Aikakauskirja Duodecim, 17, 1779–1786.
  • Ikonen, O., & Virtanen, P. (2007). Yhteiskunta tukee kokonaisvaltaista koulun kehittämistyötä [Society supports the holistic developmental work of school]. In O. Ikonen & P. Virtanen (Eds.), Erilainen oppija – yhteiseen kouluun [Diverse learners – to common school] (pp. 67–83). Juva: PS-kustannus.
  • Ivankova, N. V., Creswell, J. W., & Stick, S. L. (2006). Using mixed-methods sequential explanatory design: from theory to practice. Field Methods, 18(3), 3–20, http://fmx.sagepub.com/cgi/content/abstract/18/1/3 doi: 10.1177/1525822X05282260
  • Johnson, R. B., & Onwuegbuzie, A. J. (2004). Mixed methods research. A research paradigm whose time has come. Educational Researcher, 33(7), 14–26. doi: 10.3102/0013189X033007014
  • Jylhä, I. (2007). Ohjaus- ja opetustaidot: oppilaiden erot huomioiva pedagogiikka ja didaktiikka [Guidance and teaching skills: Pedagogy and didactics that notices differences in pupils]. In O. Ikonen & P. Virtanen (Eds.), Erilainen oppija – yhteiseen kouluun [Diverse learners – to common school] (pp. 197–218). Juva: PS-kustannus.
  • Järventie, I. (2005). Millaisia lapsia tällaisina aikoina? [What kind of children we have these days?]. Psykologia, 40(4), 415–422.
  • Käll, A. (2013). The Pandemrix – narcolepsy tragedy: How it started and what we know today. Acta Paediatrica, 102(1), 2–4. doi: 10.1111/apa.12012
  • Koskela, T., Määttä, K., & Uusiautti, S. (2012). Pupil welfare in Finnish schools – communal or falling apart? Early Child Development and Care. iFirst 1 Oct 2012. doi:10.1080/03004430.2012.725049
  • Kotagal, S., & Paruthi, S. (2010). Narcolepsy in childhood. In M. Goswami, S. R. Pandi-Perumal, & M. J. Thorpy (Eds.), Narcolepsy. A clinical guide (pp. 55–64). New York: Humana Press.
  • Kupiainen, S., Hautamäki, J., & Karjalainen, T. (2009). The Finnish education system and PISA. Finland: Ministry of Education. Retrieved  June 7, 2013 from http://www.pisa2006.helsinki.fi/files/The_Finnish_education_system_and_PISA.pdf
  • Lahtinen, M., & Lankinen, T. (2010). Koulutuksen lainsäädäntö käytännössä [Educational legislation in practice]. Helsinki: Tietosanoma Oy.
  • Lakkala, S., & Määttä, K. (2011). Towards a theoretical model of inclusive teaching strategies – An action research in an inclusive elementary class. Global Journal of Human Social Science, 1(8), 31–40.
  • Linnilä, M. -L. (2006). Kouluvalmiudesta koulun valmiuteen. Poikkeuksellinen koulunaloitus koulumenestyksen, viranomaislausuntojen ja perheiden kokemusten valossa [From school readiness to the readiness of school. Exceptional beginning of school in the light of school success, authority statements, and families’ experiences]. Jyväskylä: Jyväskylän yliopisto: Studies in education, psychology and social research 294.
  • Mäensivu, K., Uusiautti, S., & Määttä, K. (2012). Special needs assistants – the special characteristic and strength of the school system of Finland. European Journal of Educational Research, 1(1), 23–36.
  • Määttä, K., & Uusiautti, S. (2011). Pedagogical love and good teacherhood. In Education, 17(2). http://ineducation.ca/article/pedagogical-love-and-good-teacherhood
  • Määttä, K., & Uusiautti, S. (2013). Editorial: How do the Finnish family policy and early education system support the well-being, happiness, and success of families and children? In K. Määttä & S. Uusiautti (Eds.), Early child care and education in Finland (pp. 1–8). Abingdon: Routledge.
  • Manninen, J., Burman, A., Koivunen, A., Kuittinen, E., Luukannel, S., Passi, S., & Särkkä, H. (2007). Oppimista tukevat ympäristöt. Johdatus oppimisympäristöajatteluun [Enviroments that support learning. Introduction to the idea of learning envinronments]/italic>. Helsinki: National Board of Education.
  • Martin, M. (2005). The causes and nature of bullying and social exclusion in schools. Education Journal, 86, 28–30.
  • McGuire, J. M., Scott, S. S., & Shaw, S. F. (2006). Universal Design and its applications in educational environments. Remedial and Special Education, 27(3), 166–175. doi: 10.1177/07419325060270030501
  • Messiou, K. (2006). Conversations with children: Making sense of marginalisation on primary school settings. European Journal of Special Needs Education, 21(1), 39–54. doi: 10.1080/08856250500491807
  • Naumann, A., & Daum, I. (2003). Narcolepsy: Pathophysiology and neuropsychological changes. Behavioral Neurology, 14(3–4), 89–98. doi: 10.1155/2003/323060
  • Naumann, A., Bellebaum, C., & Daum, I. (2006). Cognitive deficits in narcolepsy. Journal of Sleep Research, 15, 329–338. doi: 10.1111/j.1365-2869.2006.00533.x
  • Nuikkinen, K. (2005). Terveellinen ja turvallinen koulurakennus [Healthy and safe school building]. Helsinki: National Board of Education.
  • Ohna, S. T. (2005). Researching classroom processes of inclusion and exclusion. European Journal of Special Needs Education, 20(2), 167–178. doi: 10.1080/08856250500055651
  • Ohtake, Y. (2004). Meaningful inclusion of all students in team sports. Teaching Exceptional Children, 37(2), 22–27.
  • Peacock, J., & Benca, R. M. (2010). Narcolepsy: Clinical features, co-morbidities & treatment. Indian Journal of Medical Research, 131, 338–349.
  • Peterson, P. C., & Husain, A. M. (2008). Pediatric narcolepsy. Brain and Development, 30, 609–623. doi: 10.1016/j.braindev.2008.02.004
  • Piippo-Näätänen, K., Uusiautti, S., & Määttä, K. (2012). Parents’ perceptions of multiprofessional collaboration during their children's with special needs transition to school in Finland. International Journal of Academic Research in Progressive Education and Development, 1(4), 295–308.
  • Piispanen, M. (2008). Hyvä oppimisympäristö. Oppilaiden, vanhempien ja opettajien hyvyyskäsitysten kohtaaminen peruskoulussa [Good learning environment. The confrontation of pupils’, parents’, and teachers’ conceptions of good in elementary school]. PhD dissertation, Jyväskylä, Finland: University of Jyväskylä.
  • Posch, P. (2000). Community, school change, and strategic networking. In H. Altrichter & J. Elliot (Eds.), Images of educational change (pp. 55–65). Buckingham: Open University Press.
  • Stores, G. (1999). Recognition and management of narcolepsy. Archives of Disease in Childhood, 81, 519–524. doi: 10.1136/adc.81.6.519
  • Stores, G. (2010). Psychosocial impact of narcolepsy in children and adolescents. In M. Goswami, S. R. Pandi-Perumal, & M. J. Thorpy (Eds.), Narcolepsy. A clinical guide (pp. 181–187). New York, NY: Humana Press.
  • Stores, G., Montgomery, P., & Wiggs, L. (2006). The psychosocial problems of children with narcolepsy and those with excessive daytime sleepiness of uncertain origin. American Academy of Pediatrics, 118(4), e1116–e1123, doi:10.1542/peds.2006-0647
  • Sugai, G. (2003). Commentary, establishing efficient and durable systems of school-based support. School Psychology Review, 32(4), 530–535.
  • Sullivan Palincsar, A., Magnusson, S. J., Collins, K. M., & Cutter, J. (2001). Making science accessible to all: Results of a design experiment in inclusive classrooms. Learning Disability, 24, 15–32. doi: 10.2307/1511293
  • THL. (2013). Narkolepsia ja sikainfluenssarokote [Narcolepsy and swine flu vaccination]. Helsinki: National Institute for Health and Welfare. Retrieved January 4, 2013 from: http://www.thl.fi/fi_FI/web/fi/rokotteet/narkolepsia_ja_sikainfluenssarokote?&print=true
  • Tomlinson, C. A. (2005). The differentiated classroom. Responding to the needs of all learners. New Jersey, NJ: Merrill Prentice Hall.
  • Tomlinson, C. (2010). Leading and managing a differentiated classroom. Alexandria: Association for Supervision and Curriculum Development (ASCD).
  • Tomlinson, C., Brimijoin, K., & Narvaez, L. (2008). The differentiated school: Making revolutionary changes in teaching and learning. Alexandria, VA: Association for Supervision and Curriculum Development (ASCD).
  • Trade Union of Education in Finland. (2013). Toteutuuko kolmiportainen tuki? Selvitys Opetusalan Ammattijärjestö OAJ:n kyselystä oppimisen ja koulunkäynnin tukea koskevan lakimuutoksen vaikutuksista kasvatus- ja opetushenkilöstön työhön ja oppilaiden saamaan tukeen [Does the tripartite support come true? A report of survey by Trade Union of Education in Finland about the change in law concerning support for learning and school going and its influence on teachers and educators work and support pupils receive]. Helsinki: Trade Union of Education in Finland.
  • Walther-Thomas, C., Bryant, M., & Land, S. (1996). Planning for effective co-teaching: The key to successful inclusion. Remedial and Special Education, 17(4), 255–264. doi: 10.1177/074193259601700408

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