The validity, reliability, and responsiveness of a new biopscyhosocial questionnaire for patients with systemic lupus erythematosus

References

• Connelly K, Morand EF. Systemic lupus erythematosus: a clinical update. Intern Med J. 2021;51(8):1219–1228. doi:10.1111/imj.15448.
   PubMed Web of Science ®Google Scholar
• Kiriakidou M, Ching CL. Systemic lupus erythematosus. Ann Intern Med. 2020;172(11):ITC81–ITC96. doi:10.7326/AITC202006020.
   PubMed Web of Science ®Google Scholar
• Elefante E, Tani C, Stagnaro C, et al. Impact of fatigue on health-related quality of life and illness perception in a monocentric cohort of patients with systemic lupus erythematosus. RMD Open. 2020;6(1):e001133. doi:10.1136/rmdopen-2019-001133.
   PubMed Web of Science ®Google Scholar
• Chalhoub NE, Luggen ME. Depression-, pain-, and health-related quality of life in patients with systemic lupus erythematosus. Int J Rheumatol. 2022;2022:6290736–6290738. doi:10.1155/2022/6290736.
   PubMed Web of Science ®Google Scholar
• Chen HJ, Wang H, Qiu LJ, et al. Relation among anxiety, depression, sleep quality and health-related quality of life among patients with systemic lupus erythematosus: path analysis. Patient Prefer Adherence. 2022;16:1351–1358. doi:10.2147/PPA.S366083.
   PubMed Web of Science ®Google Scholar
• Liu M, Dou J, Wang Q. The effect of systemic lupus erythematosus on sexual function in women: an updated meta-analysis based on cross-sectional studies. Adv Rheumatol. 2022;62(1):24. doi:10.1186/s42358-022-00257-0.
   PubMedGoogle Scholar
• Nichilatti LP, Fernandes JM, Marques CP. Physiopathology of pain in systemic erythematosus lupus. Lupus. 2020;29(7):721–726. doi:10.1177/0961203320919872.
   PubMed Web of Science ®Google Scholar
• Rutter SJ, Kiemle G. Exploring the social and interpersonal experiences of South asian women with a diagnosis of systemic lupus erythematosus. Psychol Health. 2015;30(3):318–335. doi:10.1080/08870446.2014.972397.
   PubMed Web of Science ®Google Scholar
• Monahan RC, Beaart-van de Voorde LJJ, Steup-Beekman GM, et al. Neuropsychiatric symptoms in systemic lupus erythematosus: impact on quality of life. Lupus. 2017;26(12):1252–1259. doi:10.1177/0961203317694262.
   PubMed Web of Science ®Google Scholar
• Moghadam ZB, Rezaei E, Faezi ST, et al. Prevalence of sexual dysfunction in women with systemic lupus erythematosus and its related factors. Reumatologia. 2019;57(1):19–26. doi:10.5114/reum.2019.83235.
   PubMedGoogle Scholar
• Larsen JL, Hall EOC, Jacobsen S, et al. Being in a standstill-of-life: women’s experience of being diagnosed with systemic lupus erythematosus: a hermeneutic-phenomenological study. Scand J Caring Sci. 2018;32(2):654–662. doi:10.1111/scs.12491.
   PubMed Web of Science ®Google Scholar
• Basta F, Fasola F, Triantafyllias K, et al. Systemic lupus erythematosus (SLE) therapy: the old and the new. Rheumatol Ther. 2020;7(3):433–446. doi:10.1007/s40744-020-00212-9.
   PubMed Web of Science ®Google Scholar
• Dey M, Parodis I, Nikiphorou E. Fatigue in systemic lupus erythematosus and rheumatoid arthritis: a comparison of mechanisms, measures and management. J Clin Med. 2021;10(16):3566. doi:10.3390/jcm10163566.
   PubMed Web of Science ®Google Scholar
• Ratanasiripong NT, Ratanasiripong P. Predictive factors of quality of life among systemic lupus erythematosus patients in Thailand: a web-based cross-sectional study. Qual Life Res. 2020;29(9):2415–2423. doi:10.1007/s11136-020-02494-6.
   PubMed Web of Science ®Google Scholar
• Kisacik P, Unal E, Akman U, et al. Investigating the effects of a multidimensional exercise program on symptoms and antiinflammatory status in female patients with ankylosing spondylitis. Complement Ther Clin Pract. 2016;22:38–43. doi:10.1016/j.ctcp.2015.11.002.
   PubMed Web of Science ®Google Scholar
• Karaca NB, Ünal E, Karakaya J, et al. Effectiveness of a supervised group exercise therapy based on the biopsychosocial model introduced simultaneously with anti-TNF therapy in anti-TNF-naive patients with active ankylosing spondylitis. Turk J Med Sci. 2022;52(3):667–676. doi:10.55730/1300-0144.5359.
   PubMed Web of Science ®Google Scholar
• Ünal E, Arın G, Karaca NB, et al. Development of a quality of life measurement for rheumatic patients: item Pool construction. J Exerc Ther Rehabil. 2017;4:67–75.
   Google Scholar
• Kumbaroğlu FB, Karakaya Karabulut J, Apraş Bilgen Ş, et al. Determination of the validity, reliability, and sensitivity of the BETY-biopsychosocial questionnaire in patients with a diagnosis of rheumatoid arthritis. J Exerc Ther Rehabil. 2021;8:90–98.
   Google Scholar
• Zahid M, Unal E, Özdemir Işık Ö, et al. The reliability, validity, and responsiveness of cognitive exercise therapy approach-biopsychosocial questionnaire for patients with fibromyalgia. Int J Rheum Dis. 2022;25(6):685–691. doi:10.1111/1756-185X.14325.
   PubMed Web of Science ®Google Scholar
• Bulut S, Karakaya J, Oksuz S, et al. The reliability, validity, and responsiveness of cognitive exercise therapy approach: biopsychosocial questionnaire for patients with psoriatic arthritis. Rheumatol Int. 2022;42(11):1973–1981. doi:10.1007/s00296-022-05170-9.
   PubMed Web of Science ®Google Scholar
• Bulut ZI, Ünal E, Dogru A, et al. A new biopsychosocial questionnaire for patients with knee osteoarthritis. Ann Rheum Dis. 2020;79(Suppl 1):1736. doi:10.1136/annrheumdis-2020-eular.2756.
   Google Scholar
• Verep U, Unal E, Oksüz S, et al. A new biopsychosocial questionnaire (BETY-BQ) for patients with ankylosing spondylitis. Eur J Integr Med. 2023;61:102267.
   Web of Science ®Google Scholar
• Petri M, Orbai A-M, Alarcón GS, et al. Derivation and validation of the systemic lupus international collaborating clinics classification criteria for systemic lupus erythematosus. Arthritis Rheum. 2012;64(8):2677–2686. doi:10.1002/art.34473.
   PubMed Web of Science ®Google Scholar
• Aringer M, Costenbader K, Daikh D, et al. 2019 European league against rheumatism/American college of rheumatology classification criteria for systemic lupus erythematosus. Arthritis Rheumatol. 2019;71(9):1400–1412. doi:10.1002/art.40930.
   PubMed Web of Science ®Google Scholar
• Anthoine E, Moret L, Regnault A, et al. Sample size used to validate a scale: a review of publications on newly-developed patient reported outcomes measures. Health Qual Life Outcomes. 2014;12(1):176. doi:10.1186/s12955-014-0176-2.
   PubMedGoogle Scholar
• Pamuk ON, Onat AM, Donmez S, et al. Validity and reliability of the lupus QoL index in Turkish systemic lupus erythematosus patients. Lupus. 2015;24(8):816–821. doi:10.1177/0961203314565412.
   PubMed Web of Science ®Google Scholar
• Bilir Kaya B, İçağasıoğlu A. Reliability and validity of the Turkish version of short form 36 (SF-36) in patients with rheumatoid arthritis. J Surg Med. 2018;2:11–16.
   Google Scholar
• Küçükdeveci AA, Sahin H, Ataman S, et al. Issues in cross-cultural validity: example from the adaptation, reliability, and validity testing of a Turkish version of the Stanford health assessment questionnaire. Arthritis Rheum. 2004;51(1):14–19. doi:10.1002/art.20091.
   PubMed Web of Science ®Google Scholar
• Aydemir O, Güvenir T, Küey L, et al. Reliability and validity of the Turkish version of hospital anxiety and depression scale. Turkish J Psychiatr. 1997;8:280–287.
   Google Scholar
• Shrout PE, Fleiss JL. Intraclass correlations: uses in assessing rater reliability. Psychol Bull. 1979;86(2):420–428. doi:10.1037//0033-2909.86.2.420.
   PubMed Web of Science ®Google Scholar
• Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16(3):297–334. doi:10.1007/BF02310555.
   Web of Science ®Google Scholar
• Izmirly PM, Wan I, Sahl S, et al. The incidence and prevalence of systemic lupus erythematosus in New York County (Manhattan), New York: the manhattan lupus surveillance program. Arthritis Rheumatol. 2017;69(10):2006–2017. doi:10.1002/art.40192.
   PubMed Web of Science ®Google Scholar
• Terwee CB, Bot SDM, de Boer MR, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60(1):34–42. doi:10.1016/j.jclinepi.2006.03.012.
   PubMed Web of Science ®Google Scholar
• Tharwat S, Husain SM. Musculoskeletal symptoms in systemic lupus erythematosus patients and their impact on health-related quality of life. BMC Musculoskelet Disord. 2024;25(1):272. doi:10.1186/s12891-024-07367-4.
   PubMed Web of Science ®Google Scholar