Equal palliative care for patients with COPD? A nationwide register study

References

• Global Strategy for the Diagnosis MaPoC. Global Initiative for Chronic Obstructive Lung Disease (GOLD). Volume 2017, 2017.
   Google Scholar
• Faes K, De Frene V, Cohen J, Annemans L. Resource Use and Health Care Costs of COPD Patients at the End of Life: A Systematic Review. J Pain Symptom Manage. 2016;52:588–99.
   PubMed Web of Science ®Google Scholar
• Gore JM, Brophy CJ, Greenstone MA. How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax 2000;55:1000–6.
   PubMed Web of Science ®Google Scholar
• Henoch I, Strang S, Lofdahl CG, Ekberg-Jansson A. Health-related quality of life in a nationwide cohort of patients with COPD related to other characteristics. Eur Clin Respir J. 2016;3:31459.
   PubMed Web of Science ®Google Scholar
• Habraken JM, ter Riet G, Gore JM, Greenstone MA, Weersink EJ, Bindels PJ, et al. Health-related quality of life in end-stage COPD and lung cancer patients. J Pain Symptom Manage. 2009;37:973–81.
   PubMed Web of Science ®Google Scholar
• Blakemore A, Dickens C, Guthrie E, Bower P, Kontopantelis E, Afzal C, et al. Depression and anxiety predict health-related quality of life in chronic obstructive pulmonary disease: systematic review and meta-analysis. Int J Chron Obstruct Pulmon Dis 2014;9:501–12.
   PubMed Web of Science ®Google Scholar
• Ng TP, Niti M, Tan WC, Cao Z, Ong KC, Eng P. Depressive symptoms and chronic obstructive pulmonary disease: effect on mortality, hospital readmission, symptom burden, functional status, and quality of life. Arch Intern Med. 2007;167:60–7.
   PubMed Web of Science ®Google Scholar
• Sundh J, Montgomery S, Hasselgren M, Kämpe M, Janson C, Ställberg B, et al. Change in health status in COPD: a seven-year follow-up cohort study. NPJ Prim Care Respir Med. 2016;26:16073
   PubMed Web of Science ®Google Scholar
• Sundh J, Ekstrom M. Persistent disabling breathlessness in chronic obstructive pulmonary disease. Copd. 2016;Volume 11:2805–12.
   Google Scholar
• Eckerblad J, Todt K, Jakobsson P, Unosson M, Skargren E, Kentsson M, et al. Symptom burden in stable COPD patients with moderate or severe airflow limitation. Heart Lung. 2014;43:351–7.
   PubMed Web of Science ®Google Scholar
• Vogelmeier CF, Criner GJ, Martinez FJ, Anzueto A, Barnes PJ, Bourbeau J, et al. Global Strategy for the Diagnosis, Management and Prevention of Chronic Obstructive Lung Disease 2017 Report: GOLD Executive Summary. Respirology 2017; 22:575–601.
   PubMed Web of Science ®Google Scholar
• Disler RT, Green A, Luckett T, Newton PJ, Inglis S, Currow DC, et al. Experience of advanced chronic obstructive pulmonary disease: metasynthesis of qualitative research. J Pain Symptom Manage. 2014;48:1182–99.
   PubMed Web of Science ®Google Scholar
• Dalgliesh V, Pinnock H. Pharmacological Management of People Living with End-Stage Chronic Obstructive Pulmonary Disease. Drugs Aging. 2017;34:241–53.
   PubMed Web of Science ®Google Scholar
• Ahmadi Z, Lundstrom S, Janson C, Strang P, Emtner M, Currow DC, et al. End-of-life care in oxygen-dependent COPD and cancer: a national population-based study. Eur Respir J. 2015; 46:1190–3.
   PubMed Web of Science ®Google Scholar
• McCaffrey N, Bradley S, Ratcliffe J, Currow DC. What Aspects of Quality of Life Are Important From Palliative Care Patients' Perspectives? A Systematic Review of Qualitative Research. J Pain Symptom Manage. 2016;52:318–28 e315.
   PubMed Web of Science ®Google Scholar
• Strang S, Ekberg-Jansson A, Strang P, Larsson LO. Palliative care in COPD-web survey in Sweden highlights the current situation for a vulnerable group of patients. Ups J Med Sci. 2013;118:181–6.
   PubMed Web of Science ®Google Scholar
• Mc Veigh C, Reid J, Larkin P, Porter S, Hudson P. The experience of palliative care service provision for people with non-malignant respiratory disease and their family carers: An all-Ireland qualitative study. J Adv Nurs. 2018;74:383–94.
   PubMed Web of Science ®Google Scholar
• Mousing CA, Timm H, Lomborg K, Kirkevold M. Barriers to palliative care in people with chronic obstructive pulmonary disease in home care: A qualitative study of the perspective of professional caregivers. J Clin Nurs. 2018;27:650–60.
   PubMed Web of Science ®Google Scholar
• Bestall JC, Paul EA, Garrod R, Garnham R, Jones PW, Wedzicha JA. Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax 1999;54:581–6.
   PubMed Web of Science ®Google Scholar
• van der Molen T, Willemse BW, Schokker S, ten Hacken NH, Postma DS, Juniper EF. Development, validity and responsiveness of the Clinical COPD Questionnaire. Health Qual Life Outcomes. 2003;1:13.
   PubMedGoogle Scholar
• Zhou Z, Zhou A, Zhao Y, Chen P. Evaluating the Clinical COPD Questionnaire: A systematic review. Respirology. 2017;22:251–62.
   PubMed Web of Science ®Google Scholar
• Jones PW, Harding G, Berry P, Wiklund I, Chen WH, Kline Leidy N. Development and first validation of the COPD Assessment Test. Eur Respir J. 2009;34:648–54.
   PubMed Web of Science ®Google Scholar
• Cohen J, Beernaert K, Van den Block L, Morin L, Hunt K, Miccinesi G, et al. Differences in place of death between lung cancer and COPD patients: a 14-country study using death certificate data. NPJ Primary Care Respiratory Medicine 2017;27:14.
   PubMed Web of Science ®Google Scholar
• Fleming J, Calloway R, Perrels A, Farquhar M, Barclay S, Brayne C, et al. Dying comfortably in very old age with or without dementia in different care settings - a representative "older old" population study. BMC Geriatr 2017;17:222.
   PubMed Web of Science ®Google Scholar
• Travis SS, Bernard M, Dixon S, McAuley WJ, Loving G, McClanahan L. Obstacles to palliation and end-of-life care in a long-term care facility. Gerontologist. 2002;42:342–9.
   PubMed Web of Science ®Google Scholar
• WHO. National Cancer Control Programmes. Policies and Behavioural Guidelines. In: World Health Organization ne, ed., Volume 2009, 2002.
   Google Scholar
• Krishnan P. Concept analysis of good death in long term care residents. Int J Palliat Nurs. 2017;23:29–34.
   PubMed Web of Science ®Google Scholar