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Articles

Disability and health-related quality of life are associated with restricted social participation in young adults with juvenile idiopathic arthritis

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Pages 105-113 | Accepted 21 Jun 2018, Published online: 30 Sep 2018

References

  • Oen K, Malleson PN, Cabral DA, Rosenberg AM, Petty RE, Cheang M. Disease course and outcome of juvenile rheumatoid arthritis in a multicenter cohort. J Rheumatol 2002;29:1989–99.
  • Selvaag AM, Aulie HA, Lilleby V, Flato B. Disease progression into adulthood and predictors of long-term active disease in juvenile idiopathic arthritis. Ann Rheum Dis 2016;75:190–5.
  • Bertilsson L, Andersson-Gare B, Fasth A, Petersson IF, Forsblad-D’elia H. Disease course, outcome, and predictors of outcome in a population-based juvenile chronic arthritis cohort followed for 17 years. J Rheumatol 2013;40:715–24.
  • Vidqvist KL, Malin M, Varjolahti-Lehtinen T, Korpela MM. Disease activity of idiopathic juvenile arthritis continues through adolescence despite the use of biologic therapies. Rheumatology (Oxford) 2013;52:1999–2003.
  • Laas K, Roine R, Rasanen P, Sintonen H, Leirisalo-Repo M. HUS QoL Study Group. Health-related quality of life in patients with common rheumatic diseases referred to a university clinic. Rheumatol Int 2009;29:267–73.
  • Foster HE, Marshall N, Myers A, Dunkley P, Griffiths ID. Outcome in adults with juvenile idiopathic arthritis: a quality of life study. Arthritis Rheum 2003;48:767–75.
  • Barth S, Haas JP, Schlichtiger J, Molz J, Bisdorff B, Michels H, et al. Long-term health-related quality of life in German patients with juvenile idiopathic arthritis in comparison to German general population. PLoS One 2016;11:e0153267.
  • Arkela-Kautiainen M, Haapasaari J, Kautiainen H, Vilkkumaa I, Malkia E, Leirisalo-Repo M. Favourable social functioning and health related quality of life of patients with JIA in early adulthood. Ann Rheum Dis 2005;64:875–80.
  • Ostile IL, Johansson I, Aasland A, Flato B, Moller A. Self-rated physical and psychosocial health in a cohort of young adults with juvenile idiopathic arthritis. Scand J Rheumatol 2010;39:318–25.
  • Diaz-Mendoza AC, Modesto Caballero C, Navarro-Cendejas J. Analysis of employment rate and social status in young adults with childhood-onset rheumatic disease in Catalonia. Pediatr Rheumatol Online J 2015;13:29.
  • Anink J, Prince FH, Dijkstra M, Otten MH, Twilt M, ten Cate R, et al. Long-term quality of life and functional outcome of patients with juvenile idiopathic arthritis in the biologic era: a longitudinal follow-up study in the Dutch arthritis and biologicals in children register. Rheumatology (Oxford) 2015;54:1964–9.
  • Guzman J, Gomez-Ramirez O, Jurencak R, Shiff NJ, Berard RA, Duffy CM, et al. What matters most for patients, parents, and clinicians in the course of juvenile idiopathic arthritis? A qualitative study. J Rheumatol 2014;41:2260–9.
  • Petty RE, Southwood TR, Manners P, Baum J, Glass DN, Goldenberg J, et al. International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001. J Rheumatol 2004;31:390–2.
  • Hakala M, Nieminen P, Koivisto O. More evidence from a community based series of better outcome in rheumatoid arthritis. Data on the effect of multidisciplinary care on the retention of functional ability. J Rheumatol 1994;21:1432–7.
  • Fries JF, Spitz P, Kraines RG, Holman HR. Measurement of patient outcome in arthritis. Arthritis Rheum 1980;23:137–45.
  • Kalyoncu U, Dougados M, Daures JP, Gossec L. Reporting of patient-reported outcomes in recent trials in rheumatoid arthritis: a systematic literature review. Ann Rheum Dis 2009;68:183–90.
  • Bruce B, Fries JF. The Stanford Health Assessment Questionnaire: dimensions and practical applications. Health Qual Life Outcomes 2003;1:20.
  • Bruce B, Fries JF. The Health Assessment Questionnaire (HAQ). Clin Exp Rheumatol 2005;23(Suppl 39):S14–18.
  • Felson DT, Anderson JJ, Boers M, Bombardier C, Chernoff M, Fried B, et al. The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. The Committee on Outcome Measures in Rheumatoid Arthritis Clinical Trials. Arthritis Rheum 1993;36:729–40.
  • Krishnan E, Sokka T, Hakkinen A, Hubert H, Hannonen P. Normative values for the Health Assessment Questionnaire Disability Index: benchmarking disability in the general population. Arthritis Rheum 2004;50:953–60.
  • Aalto A-M, Aro AR, Teperi J. [RAND-36 as a measure of health-related quality of life. Reliability, construct validity and reference values in the Finnish general population], in Finnish. National Research and Development Center for Welfare and Health, Research Reports 101. Helsinki: STAKES, 1999.
  • Hays RD, Morales LS. The RAND-36 measure of health-related quality of life. Ann Med 2001;33:350–7.
  • Kaarlola A, Pettila V, Kekki P. Performance of two measures of general health-related quality of life, the EQ-5D and the RAND-36 among critically ill patients. Intensive Care Med 2004;30:2245–52.
  • Jaari A. Self-esteem, sense of coherence and values: a correlational study of the underlying variables in Morris Rosenberg’s concept of self-esteem in Finnish work-aged samples. PhD thesis, University of Helsinki, 2004.
  • Rosenberg M, ed. Society and the adolescent self-image. Princeton, NJ: Princeton Univeristy Press, 1965.
  • Gray-Little B, Williams V, Hancock TD. An item response theory analysis of the Rosenberg self-esteem scale. Pers Soc Psychol Bull 1997;23:443–51.
  • Seigel WM, Golden NH, Gough JW, Lashley MS, Sacker IM. Depression, self-esteem, and life events in adolescents with chronic diseases. J Adolesc Health Care 1990;11:501–4.
  • Button EJ, Sonuga-Barke EJ, Davies J, Thompson M. A prospective study of self-esteem in the prediction of eating problems in adolescent schoolgirls: questionnaire findings. Br J Clin Psychol 1996;35:193–203.
  • Young DK, Ng PY, Kwok T. Predictors of the health-related quality of life of Chinese people with major neurocognitive disorders and their caregivers: the roles of self-esteem and caregiver’s burden. Geriatr Gerontol Int 2017;17:2319–28.
  • Limperg PF, Haverman L, Maurice-Stam H, Coppens M, Valk C, Kruip MJHA, et al. Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders. Qual Life Res 2018;27:159–71.
  • Beck A, Steer R, Brown G. Manual for the Beck Depression Inventory-II, 2nd ed. San Antonio (TX): The Psychological Corporation, 1996.
  • Olaya-Contreras P, Persson T, Styf J. Comparison between the Beck Depression Inventory and psychiatric evaluation of distress in patients on long-term sick leave due to chronic musculoskeletal pain. J Multidiscip Healthc 2010;3:161–7.
  • Roshanaei-Moghaddam B, Katon WJ, Russo J. The longitudinal effects of depression on physical activity. Gen Hosp Psychiatry 2009;31:306–15.
  • Trivedi RB, Blumenthal JA, O’Connor C, Adams K, Hinderliter A, Dupree C, et al. Coping styles in heart failure patients with depressive symptoms. J Psychosom Res 2009;67:339–46.
  • Raab A, Sengler C, Niewerth M, Klotsche J, Horneff G, Zink A, et al. Comorbidity profiles among adult patients with juvenile idiopathic arthritis: results of a biologic register. Clin Exp Rheumatol 2013;31:796–802.
  • Memari AH, Chamanara E, Ziaee V, Kordi R, Raeeskarami SR. Behavioral problems in juvenile idiopathic arthritis: a controlled study to examine the risk of psychopathology in a chronic pediatric disorder. Int J Chronic Dis 2016;2016:5726236.
  • Krause ML, Zamora-Legoff JA, Crowson CS, Muskardin TW, Mason T, Matteson EL. Population-based study of outcomes of patients with juvenile idiopathic arthritis (JIA) compared to non-JIA subjects. Semin Arthritis Rheum 2017;46:439–43.
  • Greenberg PE, Kessler RC, Birnbaum HG, Leong SA, Lowe SW, Berglund PA, et al. The economic burden of depression in the United States: how did it change between 1990 and 2000? J Clin Psychiatry 2003;64:1465–75.
  • Tollisen A, Selvaag AM, Aulie HA, Lilleby V, Aasland A, Lerdal A, et al. Physical functioning, pain and health-related quality of life in adults with juvenile idiopathic arthritis: a longitudinal 30-year follow-up study. Arthritis Care Res (Hoboken) 2018;70:741–9.
  • Prakken B, Albani S, Martini A. Juvenile idiopathic arthritis. Lancet 2011;377:2138–49.
  • Angeles-Han ST, McCracken C, Yeh S, Jenkins K, Stryker D, Rouster-Stevens K, et al. Characteristics of a cohort of children with juvenile idiopathic arthritis and JIA-associated uveitis. Pediatr Rheumatol Online J 2015;13:19.
  • Haasnoot AJW, Sint Jago NFM, Tekstra J, de Boer JH. Impact of uveitis on quality of life in adult patients with juvenile idiopathic arthritis. Arthritis Care Res (Hoboken) 2017;69:1895–902.

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