Advanced search
Publication Cover
Scandinavian Journal of Rheumatology Volume 48, 2019 - Issue 3
Submit an article Journal homepage
197
Views
11
CrossRef citations to date
0
Altmetric
Short Communications

Comparing patient-reported outcomes entered at home versus at hospital, and testing touch screens for initial recruitment to scientific trials in arthritis patients

AE SecherThe Danish Rheumatologic Database (DANBIO) and Copenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, DenmarkCorrespondence[email protected]
View further author information
,
B GlintborgThe Danish Rheumatologic Database (DANBIO) and Copenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark;Department of Rheumatology, Herlev and Gentofte University Hospital, Copenhagen, DenmarkView further author information
,
H GudbergsenThe Parker Institute, Bispebjerg and Frederiksberg Hospitals, Frederiksberg, DenmarkView further author information
,
NS KroghZitelab, Frederiksberg, DenmarkView further author information
,
IJ SørensenThe Danish Rheumatologic Database (DANBIO) and Copenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, DenmarkView further author information
,
DV JensenThe Danish Rheumatologic Database (DANBIO) and Copenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark;Department of Rheumatology, Herlev and Gentofte University Hospital, Copenhagen, DenmarkView further author information
,
R ChristensenThe Parker Institute, Bispebjerg and Frederiksberg Hospitals, Frederiksberg, Denmark;Department of Rheumatology, Odense University Hospital, Odense, DenmarkView further author information
,
M SkougaardThe Parker Institute, Bispebjerg and Frederiksberg Hospitals, Frederiksberg, DenmarkView further author information
,
PL PedersenPatient Partner, Gentofte, DenmarkView further author information
&
ML HetlandThe Danish Rheumatologic Database (DANBIO) and Copenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Rigshospitalet, Glostrup, Denmark;Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, DenmarkView further author information
 show all
Pages 178-184 | Accepted 09 Sep 2018, Published online: 16 Nov 2018

References

  • Deshpande PR, Rajan S, Sudeepthi BL, Abdul Nazir CP. Patient-reported outcomes: a new era in clinical research. Perspect Clin Res 2011;2:137–44.
  • Schefte DB, Hetland ML. An open-source, self-explanatory touch screen in routine care. Validity of filling in the Bath measures on Ankylosing Spondylitis Disease Activity Index, Function Index, the Health Assessment Questionnaire and Visual Analogue Scales in comparison with paper versions. Rheumatology (Oxford) 2010;49:99–104.
  • Ibfelt EH, Jensen DV, Hetland ML. The Danish nationwide clinical register for patients with rheumatoid arthritis: DANBIO. Clin Epidemiol 2016;8:737–42.
  • Walker UA, Mueller RB, Jaeger VK, Theiler R, Forster A, Dufner P, et al. Disease activity dynamics in rheumatoid arthritis: patients’ self-assessment of disease activity via WebApp. Rheumatology (Oxford) 2017;56:1707–12.
  • Hendrikx J, Fransen J, van Riel PL. Monitoring rheumatoid arthritis using an algorithm based on patient-reported outcome measures: a first step towards personalised healthcare. RMD Open 2015;1:e000114.
  • van Riel P, Alten R, Combe B, Abdulganieva D, Bousquet P, Courtenay M, et al. Improving inflammatory arthritis management through tighter monitoring of patients and the use of innovative electronic tools. RMD Open 2016;2:e000302.
  • NetsDanID. Introduction to NemID. https://www.nemid.nu/dk-en/about_nemid/introduktion_til_nemid/. Accessed 9 September 2018.
  • Bland JM, Altman DG. Statistical methods for assessing agreement between two methods of clinical measurement. Lancet 1986;1:307–10.
  • Altman DG. Statistics and ethics in medical research: III How large a sample? Br Med J 1980;281:1336–8.
  • Richter JG, Becker A, Koch T, Nixdorf M, Willers R, Monser R, et al. Self-assessments of patients via Tablet PC in routine patient care: comparison with standardised paper questionnaires. Ann Rheum Dis 2008;67:1739–41.
  • Waehrens EE, Amris K, Bartels EM, Christensen R, Danneskiold-Samsoe B, Bliddal H, et al. Agreement between touch-screen and paper-based patient-reported outcomes for patients with fibromyalgia: a randomized cross-over reproducibility study. Scand J Rheumatol 2015;44:503–10.
  • Rolfson O, Salomonsson R, Dahlberg LE, Garellick G. Internet-based follow-up questionnaire for measuring patient-reported outcome after total hip replacement surgery-reliability and response rate. Value Health 2011;14:316–21.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.