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Articles

‘The feeling of not being entitled to something’: fertility, pregnancy, and sexuality among women with systemic lupus erythematosus in South Africa

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Pages 214-220 | Accepted 15 Aug 2019, Published online: 04 Oct 2019

References

  • Merrell M, Shulman LE. Determination of prognosis in chronic disease, illustrated by systemic lupus erythematosus. J Chronic Dis 1955;1:12–32.
  • Nossent J, Cikes N, Kiss E, Marchesoni A, Nassonova V, Mosca M, et al. Current causes of death in systemic lupus erythematosus in Europe, 2000-2004: relation to disease activity and damage accrual. Lupus 2007;16:309–17.
  • Phuti A, Schneider M, Tikly M, Hodkinson B. Living with systemic lupus erythematosus in the developing world. Rheumatol Int 2018;38:1601–13.
  • Lateef A, Petri M. Managing lupus patients during pregnancy. Best Pract Res Clin Rheumatol 2013;27:435–47.
  • Smyth A, Oliveira GHM, Lahr BD, Bailey KR, Norby SM, Garovic VD. A systematic review and meta-analysis of pregnancy outcomes in patients with systemic lupus erythematosus and lupus nephritis. Clin J Am Soc Nephrol 2010;5:2060–8.
  • Phuti A, Schneider M, Makan K, Tikly M, Hodkinson B. Living with systemic lupus erythematosus in South Africa: a bitter pill to swallow. Health Qual Life Outcomes 2019;17:65.
  • Al Arfaj AS, Khalil N. Pregnancy outcome in 396 pregnancies in patients with SLE in Saudi Arabia. Lupus 2010;19:1665–73.
  • Gladman DD, Tandon A, Ibanez D, Urowitz MB. The effect of lupus nephritis on pregnancy outcome and fetal and maternal complications. J Rheumatol 2010;37:754–8.
  • McAlindon T, Giannotta L, Taub N, D’Cruz D, Hughes G. Environmental factors predicting nephritis in systemic lupus erythematosus. Ann Rheum Dis 1993;52:720–4.
  • Georgiou PE, Politi EN, Katsimbri P, Sakka V, Drosos AA. Outcome of lupus pregnancy: a controlled study. Rheumatology (Oxford) 2000;39:1014–19.
  • Ruiz-Irastorza G, Lima F, Alves J, Khamashta MA, Simpson J, Hughes GR, et al. Increased rate of lupus flare during pregnancy and the puerperium: a prospective study of 78 pregnancies. Br J Rheumatol 1996;35:133–8.
  • Petri M, Howard D, Repke J. Frequency of lupus flare in pregnancy. The Hopkins Lupus Pregnancy Center experience. Arthritis Rheum 1991;34:1538–45.
  • Urowitz MB, Gladman DD, Farewell VT, Stewart J, McDonald J. Lupus and pregnancy studies. Arthritis Rheum 1993;36:1392–7.
  • Lockshin MD, Reinitz E, Druzin ML, Murrman M, Estes D. Lupus pregnancy. Case-control prospective study demonstrating absence of lupus exacerbation during or after pregnancy. Am J Med 1984;77:893–8.
  • Medeiros MM, Silveira VA, Menezes AP, Carvalho RC. Risk factors for ovarian failure in patients with systemic lupus erythematosus. Braz J Med Biol Res 2001;34:1561–8.
  • Toubi E, Kessel A, Bamberger E, Golan TD. Systemic lupus erythematosus vasculitis: A current therapeutic overview. Curr Treat Options Cardiovasc Med 2004;6:87–97.
  • Colaizzi PF. Psychological research as the phenomenologist views it. In: Valle RS, King M, editors. Existential phenomenological alternatives for psychology. New York: Oxford University Press, 1978:48–71.
  • Wojnar DM, Swanson KM. Phenomenology: an exploration. J Holist Nurs 2007;25:172–180; discussion 181–172; quiz 183–175.
  • Hodkinson B, Mapiye D, Jayne D, Kalla A, Tiffin N, Okpechi I. The African Lupus Genetics Network (ALUGEN) registry: standardized, prospective follow-up studies in African patients with systemic lupus erythematosus. Lupus 2016;25:325–30.
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care 2007;19:349–57.
  • Eudy AM, Siega-Riz AM, Engel SM, Franceschini N, Howard AG, Clowse MEB, et al. Effect of pregnancy on disease flares in patients with systemic lupus erythematosus. Ann Rheum Dis 2018;77:855–60.
  • McElhone K, Abbott J, Gray J, Williams A, Teh LS. Patient perspective of systemic lupus erythematosus in relation to health-related quality of life concepts: a qualitative study. Lupus 2010;19:1640–7.
  • Miles A. Emerging chronic illness: women and lupus in Ecuador. Health Care Women Int 2011;32:651–68.
  • Morales MG, Rubio JC, Peralta-Ramírez M, Romero LH, Fernández RR, García MC, et al. Impaired sexual function in women with systemic lupus erythematosus: a cross-sectional study. Lupus 2013;22:987–95.
  • Baer AN, Witter FR, Petri M. Lupus and pregnancy. Obstet Gynecol Surv 2011;66:639–53.
  • Witter FR. Management of the high-risk lupus pregnant patient. Rheum Dis Clin North Am 2007;33:253–65, v-vi.
  • Bae SC, Hashimoto H, Karlson EW, Liang MH, Daltroy LH. Variable effects of social support by race, economic status, and disease activity in systemic lupus erythematosus. J Rheumatol 2001;28:1245–51.
  • Zhu TY, Tam LS, Li EK. Labour and non-labour market productivity in Chinese patients with systemic lupus erythematosus. Rheumatology (Oxford) 2012;51:284–92.
  • Andreoli L, Bertsias GK, Agmon-Levin N, Brown S, Cervera R, Costedoat-Chalumeau N, et al. EULAR recommendations for women’s health and the management of family planning, assisted reproduction, pregnancy and menopause in patients with systemic lupus erythematosus and/or antiphospholipid syndrome. Ann Rheum Dis 2017;76:476–85.
  • Clowse MEB, Magder LS, Witter F, Petri M. The impact of increased lupus activity on obstetric outcomes. Arthritis Rheum 2005;52:514–21.

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