Validity and reliability of the Swedish version of the Self-Efficacy for Managing Chronic Disease scale for individuals with systemic sclerosis

References

• Denton CP, Khanna D. Systemic sclerosis. Lancet 2017;390:1685–99.
   PubMed Web of Science ®Google Scholar
• Hussein H, Lee P, Chau C, Johnson SR. The effect of male sex on survival in systemic sclerosis. J Rheumatol 2014;41:2193–200.
   PubMed Web of Science ®Google Scholar
• Pope JE. Musculoskeletal involvement in scleroderma. Rheum Dis Clin North Am 2003;29:391–408.
   PubMed Web of Science ®Google Scholar
• Kwakkenbos L, Delisle VC, Fox RS, Gholizadeh S, Jewett LR, Levis B, et al. Psychosocial aspects of scleroderma. Rheum Dis Clin North Am 2015;41:519–28.
   PubMed Web of Science ®Google Scholar
• Pettersson H, Bostrom C, Bringby F, Walle-Hansen R, Jacobsson L, Svenungsson E, et al. Muscle endurance, strength, and active range of motion in patients with different subphenotypes in systemic sclerosis: a cross-sectional cohort study. Scand J Rheumatol 2019;48:141–8.
   PubMed Web of Science ®Google Scholar
• Thombs BD, Van Lankveld W, Bassel M, Baron M, Buzza R, Haslam S, et al. Psychological health and well-being in systemic sclerosis: state of the science and consensus research agenda. Arthritis Care Res (Hoboken) 2010;62:1181–9.
   PubMed Web of Science ®Google Scholar
• Nakayama A, Tunnicliffe DJ, Thakkar V, Singh-Grewal D, O’Neill S, Craig JC, et al. Patients’ perspectives and experiences living with systemic sclerosis: a systematic review and thematic synthesis of qualitative studies. J Rheumatol 2016;43:1363–75.
   PubMed Web of Science ®Google Scholar
• Stamm TA, Mattsson M, Mihai C, Stocker J, Binder A, Bauernfeind B, et al. Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries. Ann Rheum Dis 2011;70:1074–9.
   PubMed Web of Science ®Google Scholar
• Hudson M, Thombs BD, Steele R, Panopalis P, Newton E, Baron M, et al. Health-related quality of life in systemic sclerosis: a systematic review. Arthritis Rheum 2009;61:1112–20.
   PubMed Web of Science ®Google Scholar
• Bandura A. Guide for constructing self-efficacy scales. In: Pajares F, Urdan TC, editors. Self-efficacy beliefs of adolescents. Greenwich, CT: IAP – Information Age Publishing, 2006:307–37.
   Google Scholar
• Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 2003;26:1–7.
   PubMed Web of Science ®Google Scholar
• Thombs BD, Kwakkenbos L, Riehm KE, Saadat N, Fedoruk C. Comparison of self-efficacy for managing chronic disease between patients with systemic sclerosis and other chronic conditions: a systematic review. Rheumatol Int 2017;37:281–92.
   PubMed Web of Science ®Google Scholar
• Marks R. Self-efficacy and arthritis disability: an updated synthesis of the evidence base and its relevance to optimal patient care. Health Psychol Open 2014;1:2055102914564582.
   Google Scholar
• Khanna D, Serrano J, Berrocal VJ, Silver RM, Cuencas P, Newbill SL, et al. Randomized controlled trial to evaluate an internet-based self-management program in systemic sclerosis. Arthritis Care Res (Hoboken) 2019;71:435–47.
   PubMed Web of Science ®Google Scholar
• Samuelson UK, Ahlmen EM. Development and evaluation of a patient education program for persons with systemic sclerosis (scleroderma). Arthritis Care Res 2000;13:141–8.
   PubMed Web of Science ®Google Scholar
• Buck U, Poole J, Mendelson C. Factors related to self-efficacy in persons with scleroderma. Musculoskeletal Care 2010;8:197–203.
   PubMedGoogle Scholar
• Freund T, Gensichen J, Goetz K, Szecsenyi J, Mahler C. Evaluating self-efficacy for managing chronic disease: psychometric properties of the six-item self-efficacy scale in Germany. J Eval Clin Pract 2013;19:39–43.
   PubMed Web of Science ®Google Scholar
• Ritter PL, Lorig K. The English and Spanish Self-Efficacy to Manage Chronic Disease scale measures were validated using multiple studies. J Clin Epidemiol 2014;67:1265–73.
   PubMed Web of Science ®Google Scholar
• Lorig KR, Sobel DS, Ritter PL, Laurent D, Hobbs M. Effect of a self-management program on patients with chronic disease. Eff Clin Pract 2001;4:256–62.
   PubMedGoogle Scholar
• Riehm KE, Kwakkenbos L, Carrier ME, Bartlett SJ, Malcarne VL, Mouthon L, et al. Validation of the Self-Efficacy for Managing Chronic Disease (SEMCD) scale: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study. Arthritis Care Res (Hoboken) 2016;68:1195–200.
   PubMed Web of Science ®Google Scholar
• Van Den Hoogen F, Khanna D, Fransen J, Johnson SR, Baron M, Tyndall A, et al. 2013 classification criteria for systemic sclerosis: an American College of Rheumatology/European League Against Rheumatism collaborative initiative. Arthritis Rheum 2013;65:2737–47.
   PubMed Web of Science ®Google Scholar
• Mokkink LB, Prinsen CAC, Patrick DL, Alonso J, Bouter LM, De Vet HC, et al. COSMIN study design checklist for patient-reported outcome measurement instruments [Internet]. Amsterdam; 2019 [ updated July; cited 2019 Aug 23]. Available from: https://www.cosmin.nl/wp-content/uploads/COSMIN-study-designing-checklist_final.pdf#
   Google Scholar
• Tay T, Ferdowsi N, Baron M, Stevens W, Hudson M, Proudman SM, et al. Measures of disease status in systemic sclerosis: a systematic review. Semin Arthritis Rheum 2017;46:473–87.
   PubMed Web of Science ®Google Scholar
• Clements P, Lachenbruch P, Siebold J, White B, Weiner S, Martin R, et al. Inter and intraobserver variability of total skin thickness score (modified Rodnan TSS) in systemic sclerosis. J Rheumatol 1995;22:1281–5.
   PubMed Web of Science ®Google Scholar
• Medsger TA Jr, Bombardieri S, Czirjak L, Scorza R, Della Rossa A, Bencivelli W. Assessment of disease severity and prognosis. Clin Exp Rheumatol 2003;21:42–6.
   PubMed Web of Science ®Google Scholar
• Steen VD, Medsger TA. The value of the Health Assessment Questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time. Arthritis Rheum 1997;40:1984–91.
   PubMed Web of Science ®Google Scholar
• Johnson SR, Hawker GA, Davis AM. The Health Assessment Questionnaire Disability Index and Scleroderma Health Assessment Questionnaire in scleroderma trials: an evaluation of their measurement properties. Arthritis Rheum 2005;53:256–62.
   PubMed Web of Science ®Google Scholar
• Hesselstrand R, Nilsson JA, Sandqvist G. Psychometric properties of the Swedish version of the Scleroderma Health Assessment Questionnaire and the Cochin Hand Function Scale in patients with systemic sclerosis. Scand J Rheumatol 2013;42:317–24.
   PubMed Web of Science ®Google Scholar
• Sandqvist G, Archenholtz B, Scheja A, Hesselstrand R. The Swedish version of the Multidimensional Assessment of Fatigue (MAF) in systemic sclerosis: reproducibility and correlations to other fatigue instruments. Scand J Rheumatol 2011;40:493–4.
   PubMed Web of Science ®Google Scholar
• Kroenke K, Strine TW, Spitzer RL, Williams JB, Berry JT, Mokdad AH. The PHQ-8 as a measure of current depression in the general population. J Affect Disord 2009;114:163–73.
   PubMed Web of Science ®Google Scholar
• Mattsson M, Sandqvist G, Hesselstrand R, Nordin A, Bostrom C. Validity and reliability of the Patient Health Questionnaire-8 in Swedish for individuals with systemic sclerosis. Rheumatol Int 2020;40:1675–87.
   PubMed Web of Science ®Google Scholar
• Orwelius L, Nilsson M, Nilsson E, Wenemark M, Walfridsson U, Lundstrom M, et al. The Swedish RAND-36 health survey – reliability and responsiveness assessed in patient populations using Svensson’s method for paired ordinal data. J Patient Rep Outcomes 2017;2:4.
   PubMedGoogle Scholar
• Danieli E, Airo P, Bettoni L, Cinquini M, Antonioli CM, Cavazzana I, et al. Health-related quality of life measured by the Short Form 36 (SF-36) in systemic sclerosis: correlations with indexes of disease activity and severity, disability, and depressive symptoms. Clin Rheumatol 2005;24:48–54.
   PubMed Web of Science ®Google Scholar
• Khanna D, Furst DE, Clements PJ, Park GS, Hays RD, Yoon J, et al. Responsiveness of the SF-36 and the Health Assessment Questionnaire Disability Index in a systemic sclerosis clinical trial. J Rheumatol 2005;32:832–40.
   PubMed Web of Science ®Google Scholar
• Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A, et al. Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR task force for translation and cultural adaptation. Value Health 2005;8:94–104.
   PubMed Web of Science ®Google Scholar
• Forsberg A, Nilsson M, Jakobsson S, Lennerling A, Kisch A. Fear of graft rejection 1-5 years after lung transplantation – a nationwide cohort study. Nurs Open 2018;5:484–90.
   PubMed Web of Science ®Google Scholar
• Graneheim UH, Lindgren BM, Lundman B. Methodological challenges in qualitative content analysis: a discussion paper. Nurse Educ Today 2017;56:29–34.
   PubMed Web of Science ®Google Scholar
• Prinsen CAC, Mokkink LB, Bouter LM, Alonso J, Patrick DL, De Vet HCW, et al. COSMIN guideline for systematic reviews of patient-reported outcome measures. Qual Life Res 2018;27:1147–57.
   PubMed Web of Science ®Google Scholar
• Akoglu H. User’s guide to correlation coefficients. Turk J Emerg Med 2018;18:91–3.
   PubMed Web of Science ®Google Scholar
• Streiner DL, Norman GR, Cairney J. Health measurement scales: a practical guide to their development and use, 5th edn. Oxford: Oxford University Press, 2015.
   Google Scholar
• Ferketich S. Focus on psychometrics. aspects of item analysis. Res Nurs Health 1991;14:165–8.
   PubMed Web of Science ®Google Scholar
• Koo TK, Li MY. A guideline of selecting and reporting intraclass correlation coefficients for reliability research. J Chiropr Med 2016;15:155–63.
   PubMed Web of Science ®Google Scholar
• Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977;33:159–74.
   PubMed Web of Science ®Google Scholar
• Terwee CB, Bot SD, De Boer MR, Van Der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol 2007;60:34–42.
   PubMed Web of Science ®Google Scholar
• Palfreyman S. Patient-reported outcome measures and how they are used. Nurs Older People 2011;23:31–6.
   PubMedGoogle Scholar
• Brady TJ. Measures of self-efficacy: Arthritis Self-Efficacy Scale (ASES), Arthritis Self-Efficacy Scale-8 item (ASES-8), Children’s Arthritis Self-Efficacy scale (CASE), Chronic Disease Self-Efficacy Scale (CDSES), Parent’s Arthritis Self-Efficacy scale (PASE), and Rheumatoid Arthritis Self-Efficacy scale (RASE). Arthritis Care Res (Hoboken) 2011;63:473–85.
   PubMed Web of Science ®Google Scholar
• Gruber-Baldini AL, Velozo C, Romero S, Shulman LM. Validation of the PROMIS((R)) measures of self-efficacy for managing chronic conditions. Qual Life Res 2017;26:1915–24.
   PubMed Web of Science ®Google Scholar
• Dal Bello-Haas V, Klassen L, Sheppard MS, Metcalfe A. Psychometric properties of activity, self-efficacy, and quality-of-life measures in individuals with Parkinson disease. Physiother Can 2011;63:47–57.
   PubMed Web of Science ®Google Scholar
• Frei A, Svarin A, Steurer-Stey C, Puhan MA. Self-efficacy instruments for patients with chronic diseases suffer from methodological limitations – a systematic review. Health Qual Life Outcomes 2009;7:86.
   PubMed Web of Science ®Google Scholar
• Andreasson K, Saxne T, Bergknut C, Hesselstrand R, Englund M. Prevalence and incidence of systemic sclerosis in southern Sweden: population-based data with case ascertainment using the 1980 ARA criteria and the proposed ACR-EULAR classification criteria. Ann Rheum Dis 2014;73:1788–92.
   PubMed Web of Science ®Google Scholar
• Dougherty DH, Kwakkenbos L, Carrier ME, Salazar G, Assassi S, Baron M, et al. The Scleroderma Patient-Centered Intervention Network cohort: baseline clinical features and comparison with other large scleroderma cohorts. Rheumatology (Oxford) 2018;57:1623–31.
   PubMed Web of Science ®Google Scholar
• Stanford Patient Education Research Center. Self-Efficacy for Managing Chronic Disease 6-item scale [Internet]. Palo Alto, CA: Stanford Patient Education Research Center [ Cited 2016 Feb 11] Available from: http://patienteducation.stanford.edu/research/secd6.html.
   Google Scholar