First do no harm: using ‘ethical triage’ to minimise causing harm when undertaking educational research among vulnerable participants

References

• Alexander, S., R. Pillay, and B. Smith. 2018. “A Systematic Review of the Experiences of Vulnerable People Participating in Research on Sensitive Topics.” International Journal of Nursing Studies 88: 85–96. doi:https://doi.org/10.1016/j.ijnurstu.2018.08.013.
   PubMed Web of Science ®Google Scholar
• Association of Social Anthropologists. 2011. “Ethical Guidelines for Good Research Practice.” https://www.theasa.org/downloads/ASA%20ethics%20guidelines%202011.pdf
   Google Scholar
• Atkinson, D. 1988. “Research Interviews with People with Mental Handicaps.” Mental Handicap Research 1: 75–90. doi:https://doi.org/10.1111/j.1468-3148.1988.tb00006.x.
   Google Scholar
• BERA. 2018. “Ethical Guidelines for Educational Research.” https://www.bera.ac.uk/wp-content/uploads/2018/06/BERA-Ethical-Guidelines-for-Educational-Research_4thEdn_2018.pdf?noredirect=1
   Google Scholar
• Booth, T. I. M., and W. Booth. 1996. “Sounds of Silence: Narrative Research with Inarticulate Subjects.” Disability & Society 11 (1): 55–70. doi:https://doi.org/10.1080/09687599650023326.
   Web of Science ®Google Scholar
• BPS. 2014. “Code of Human Research Ethics.” https://www.bps.org.uk/sites/bps.org.uk/files/Policy/Policy%20-%20Files/BPS%20Code%20of%20Human%20Research%20Ethics.pdf
   Google Scholar
• Bracken-Roche, D., E. Bell, M. E. Macdonald, and E. Racine. 2017. “The Concept of ‘Vulnerability’ in Research Ethics: An In-depth Analysis of Policies and Guidelines.” Health Research Policy and Systems 15. doi:https://doi.org/10.1186/s12961-016-0164-6.
   Web of Science ®Google Scholar
• Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. doi:https://doi.org/10.1191/1478088706qp063oa.
   Google Scholar
• British Sociological Association. 2017. “Statement of Ethical Practice.” https://www.britsoc.co.uk/media/24310/bsa_statement_of_ethical_practice.pdf
   Google Scholar
• Buchanan, D. 2019. “Five Years Ago I Was on Suicide Watch … Now I’m in College Gaining a Qualification.” Journal of Further and Higher Education 1–13. doi:https://doi.org/10.1080/0309877X.2019.1612861.
   Web of Science ®Google Scholar
• Buchanan, D., and I. Warwick. 2020. “Supporting Adults with Mental Health Problems through Further Education.” Health Education Journal 1–12. doi:https://doi.org/10.1177/2F0017896920929739.
   Web of Science ®Google Scholar
• CIOMS. 2016. International Ethical Guidelines for Health-related Research Involving Humans. Geneva, Swizterland: CIOMS.
   Google Scholar
• Cohen, L., L. Manion, and K. Morrison. 2011. Research Methods in Education. 7th ed. Oxford, UK: Routledge.
   Google Scholar
• Dempsey, L., M. Dowling, P. Larkin, and K. Murphy. 2016. “Sensitive Interviewing in Qualitative Research.” Research in Nursing & Health 39: 480–490. doi:https://doi.org/10.1002/nur.21743.
   PubMed Web of Science ®Google Scholar
• Department of Health and Social Care. 2011. Governance Arrangements for Research Ethics Committees. Leeds, England. https://www.gov.uk/government/publications/health-research-ethics-committees-governance-arrangements
   Google Scholar
• Dickson-Swift, V., E. James, and P. Liamputtong. 2008. Undertaking Sensitive Research in the Health and Social Sciences Managing Boundaries, Emotions and Risks. Cambridge; New York: Cambridge University Press.
   Google Scholar
• Dickson-Swift, V., E. L. James, S. Kippen, and P. Liamputtong. 2007. “Doing Sensitive Research: What Challenges Do Qualitative Researchers Face?” Qualitative Research 7 (3): 327–353. doi:https://doi.org/10.1177/1468794107078515.
   Google Scholar
• Dickson-Swift, V., E. L. James, S. Kippen, and P. Llamputtong. 2009. “Researching Sensitive Topics: Qualitative Research as Emotion Work.” Qualitative Research 9 (1): 61–69. doi:https://doi.org/10.1177/1468794108098031.
   Web of Science ®Google Scholar
• Dingwall, R. 2012. “How Did We Ever Get into This Mess? The Rise of Ethical Regulation in the Social Sciences.” Studies in Qualitative Methodolgy 12: 3–26. doi:https://doi.org/10.1108/S1042-3192(2012)0000012004.
   Google Scholar
• Dixon, S., and L. Quirke. 2017. “What’s the Harm? The Coverage of Ethics and Harm Avoidance in Research Methods Textbooks.” Teaching Sociology 46 (1): 12–24. doi:https://doi.org/10.1177/0092055X17711230.
   Web of Science ®Google Scholar
• Dodge, R., A. Daly, J. Huyton, and L. D. Sanders. 2012. “The Challenge of Defining Wellbeing.” International Journal of Wellbeing 2 (3): 222–235. doi:https://doi.org/10.5502/ijw.v2i3.4.
   Google Scholar
• ESRC. 2020. “Research with Children and Young People.” https://esrc.ukri.org/funding/guidance-for-applicants/research-ethics/frequently-raised-topics/research-with-children-and-young-people/
   Google Scholar
• Fitzpatrick, P., and R. Olson. 2015. “A Rough Road Map to Reflexivity in Qualitative Research into Emotions.” Emotion Review 7 (1): 49–54. doi:https://doi.org/10.1177/1754073914544710.
   Web of Science ®Google Scholar
• Hesse-Biber, S. N. 2014. Feminist Research Practice: A Primer. 2nd ed. Los Angeles, London: SAGE.
   Google Scholar
• Hochschild, A. R. 1983. The Managed Heart: Commercialization of Human Feeling. California: University of California Press.
   Google Scholar
• Hollway, W., and T. Jefferson. 2000. Doing Qualitative Research Differently: Free Association, Narrative and the Interview Method. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Hudson, W. D. 1970. Modern Moral Philosophy. London: Macmillan.
   Google Scholar
• Juritzen, T. I., H. Grimen, and K. Heggen. 2011. “Protecting Vulnerable Research Participants: A Foucault-inspired Analysis of Ethics Committees.” Nursing Ethics 18 (5): 640–650. doi:https://doi.org/10.1177/0969733011403807.
   PubMed Web of Science ®Google Scholar
• Karnieli-Miller, O., R. Strier, and L. Pessach. 2009. “Power Relations in Qualitative Research.” Qualitative Health Research 19 (2): 279–289. doi:https://doi.org/10.1177/1049732308329306.
   PubMed Web of Science ®Google Scholar
• Krayer, A. 2003. “Fieldwork, Participation and Practice: Ethics and Dilemmas in Qualtiative Research.” Sociology of Health and Illness 25 (1): 134–136. doi:https://doi.org/10.1111/1467-9566.03052.
   Web of Science ®Google Scholar
• Lee, R., and C. Renzetti. 1990. “The Problems of Researching Sensitive Topics. As Overview and Introduction.” American Behavioural Scientist 33: 510–528. https://doi.org/10.1177%2F0002764290033005002
   Google Scholar
• Levine, C., R. Faden, C. Grady, D. Hammerschmidt, L. Eckenwiler, and J. Sugarman. 2004. “The Limitations of ‘Vulnerability’ as a Protection for Human Research Participants.” The American Journal of Bioethics 4 (3): 44–49. doi:https://doi.org/10.1080/15265160490497083.
   PubMed Web of Science ®Google Scholar
• Marks, R. 2014. “Educational Triage and Ability-Grouping in Primary Mathematics.” Research in Mathematics Education 16 (1): 38–53. doi:https://doi.org/10.1080/14794802.2013.874095.
   Google Scholar
• Marsh, H. 2014. Do No Harm: Stories of Life, Death and Brain Surgery. London: Phoenix.
   Google Scholar
• McDonald, K., N. Conroy, and R. Olick. 2017. “What’s the Harm? Harms in Research with Adults with Intellectual Disability.” Amercian Journal on Intellectual and Developmental Disability 122 (1): 78–92. doi:https://doi.org/10.1352/1944-7558-122.1.78.
   PubMedGoogle Scholar
• Mental Capacity Act. 2005. “Mental Capacity Act.” http://ethicsguidebook.ac.uk/Mental-Capacity-Act-118
   Google Scholar
• Mind. 2017. “What are Mental Health Problems?” https://www.mind.org.uk/information-support/types-of-mental-health-problems/mental-health-problems-introduction/#.W-QrEvn7SUl
   Google Scholar
• NSPCC. 2020. “Research with Children: Ethics, Safety and Avoiding Harm.” https://learning.nspcc.org.uk/research-resources/briefings/research-with-children-ethics-safety-avoiding-harm
   Google Scholar
• Oakley, A. 1981. “Interviewing Women: A Contradiction in Terms.” In Doing Feminist Research, edited by H. Roberts. Routledge & Kegan Paul.
   Google Scholar
• Oakley, A. 2000. Experiments in Knowing: Gender and Method in the Social Sciences. Cambridge: Polity Press.
   Google Scholar
• Oliver, P. 2003. The Student’s Guide to Research Ethics. Maidenhead, UK: Open University Press.
   Google Scholar
• Refugee Studies Centre. 2007. “Ethical Guidelines for Good Research Practice.” Refugee Survey Quarterly 26 (3): 162–172. doi:https://doi.org/10.1093/rsq/hdi0250.
   Google Scholar
• Riessman, C. K. 1993. Narrative Analysis. Newbury Park, Calif.; London: SAGE.
   Google Scholar
• Robson, C. 2011. Real World Research. 3rd ed. Chichester, UK: John Wiley & Sons.
   Google Scholar
• Santinele Martino, A., and A. Fudge Schormans. 2018. “When Good Intentions Backfire: University Research Ethics Review and the Intimate Lives of People Labeled with Intellectual Disabilities.” Forum: Qualitative Social Research 19: 3/9. doi:https://doi.org/10.17169/fqs-19.3.3090.
   Google Scholar
• Scott, D., and M. Morrison. 2006. Key Ideas in Educational Research. London: Continuum.
   Google Scholar
• Shaw, R., J. Howe, J. Beazer, and T. Carr. 2020. “Ethics and Positionality in Qualitative Research with Vulnerable and Marginal Groups.” Qualtiative Research 20 (3): 277–293. doi:https://doi.org/10.1177/2F1468794119841839.
   Web of Science ®Google Scholar
• Silverman, D. 2010. Doing Qualitative Research: A Practical Handbook. 3rd ed. Los Angeles; London: Sage.
   Google Scholar
• Sokol, D. K. 2013. “‘First Do No Harm’ Revisited.” British Medical Journal 347. doi:https://doi.org/10.1136/bmj.f6426.
   Web of Science ®Google Scholar
• Stanley, L., and S. Wise. 1983. Breaking Out Again: Feminist Ontology and Epistomology London. 2nd ed. London: Routledge.
   Google Scholar
• Van den Hoonaard, W. C. 2018. “The Vulnerability of Vulnerability: Why Social Science Researchers Should Abandon the Doctrine of Vulnerability.” In The SAGE Handbook of Qualitative Research Ethics, edited by R. Iphofen and M. Tolich, 305–321. London: Sage Publications.
   Google Scholar