Doing Good and Feeling Good: The Experiences of Older Volunteers in a University Research Registry

REFERENCES

• Allsup , S. J. , & Gosney , M. A. ( 2002 ). Difficulties of recruitment for a randomized controlled trial involving influenza vaccination in healthy older people . Gerontology , 48 ( 3 ), 170 – 173 .
   PubMed Web of Science ®Google Scholar
• Barnes , M. , & Taylor , S. L. ( 2008 ). Involving older people in research: Examples, purposes and good practice . Sheffield , UK : European Research Area in Ageing Research .
   Google Scholar
• Beresford , P. ( 2002 ). User involvement in research and evaluation: Liberation or regulation? Social Policy & Society , 12 , 95 – 105 .
   Google Scholar
• Beresford , P. ( 2007 ). User involvement, research and health inequalities: Developing new directions . Health and Social Care in the Community , 15 ( 4 ), 306 – 312 .
   PubMed Web of Science ®Google Scholar
• Branfield , F. , & Beresford , P. ( 2006 ). Making user involvement work: Supporting service user networking and knowledge . York , UK : The Joseph Rowntree Foundation .
   Google Scholar
• Chau , R. C. M. ( 2007 ). The involvement of Chinese older people in policy and practice: Aspirations and expectations . York , UK : The Joseph Rowntree Foundation .
   Google Scholar
• Cook , G. , & Klein , B. ( 2005 ). Involvement of older people in care, service and policy planning . Journal of Clinical Nursing , 14 ( 3a ), 43 – 47 .
   Google Scholar
• Dewar , B. ( 2005 ). Beyond tokenistic involvement of older people in research—a framework for future development and understanding . Journal of Clinical Nursing , 14 ( 3a ), 48 – 53 .
   Google Scholar
• Dewar , B. , Jones , C. , & O'May , F. ( 2004 ). Involving older people: Lessons for community planning . Edinburgh , UK : Scottish Executive Social Research .
   Google Scholar
• Donovan , J. L. , Brindle , L. , & Mills , N. ( 2002 ). Capturing users' experiences of participating in cancer trials . European Journal of Cancer Care , 11 , 210 – 214 .
   PubMed Web of Science ®Google Scholar
• Dyer , M. , Bartlett , H. , & Worrall , L. ( 2003 ). The 50+ Registry: helping older people play an important role in research . Brisbane , Australia : Australasian Centre on Ageing, University of Queensland .
   Google Scholar
• Glaser , B. G. , & Strauss , A. ( 1967 ). The discovery of grounded theory . Chicago : Aldine .
   Google Scholar
• Hanson , E. , Magnusson , L. , Nolan , J. , & Nolan , M. ( 2006 ). Developing a model of participatory research involving researchers, practitioners, older people and their family carers: An international collaboration . Journal of Research in Nursing , 11 ( 4 ), 325 – 342 .
   Google Scholar
• Harris , P. A. , Lane , L. , & Biaggioni , I. ( 2005 ). Clinical research subject recruitment: The Volunteer for Vanderbilt Research Program www.volunteer.mc.vanderbilt.edu . Journal of the American Medicine Informatics Association , 12 ( 6 ), 608 – 613 .
   Google Scholar
• Harris , R. , & Dyson , E. ( 2001 ). Recruitment of frail older people to research: Lessons learnt through experience . Journal of Advanced Nursing , 36 ( 5 ), 643 – 651 .
   PubMed Web of Science ®Google Scholar
• HelpAge International. ( 2002 ). Participatory research with older people: A sourcebook . London : HelpAge International .
   Google Scholar
• Hunninghake , D. B. , Darby , C. A. , & Probstfield , J. L. ( 1987 ). Recruitment experience in clinical trials: Literature summary and annotated bibliography . Controlled Clinical Trials , 8 ( Supplement ), 6S – 30S .
   Google Scholar
• Jagger , C. , & Arthur , A. J. (2004). Clinical trials involving older people. In D. Machin , S. Day , & S. Green (Eds.), Textbook of clinical trials (pp. 55–62.) Chichester , UK : Wiley.
   Google Scholar
• Joseph Rowntree Foundation . ( 2004 ). Older people shaping policy and practice . York , UK : Joseph Rowntree Foundation .
   Google Scholar
• Joseph Rowntree Foundation. ( 2005 ). Involving older people: What standards should we expect? York , UK : The Joseph Rowntree Foundation .
   Google Scholar
• Loughland , C. M. , Carr , V. J. , & Lewin , T. J. ( 2001 ). The NISAD Schizophrenia Research Register: Why do we need a database of schizophrenia volunteers? Australian and New Zealand Journal of Psychiatry , 35 ( 5 ), 660 – 667 .
   PubMed Web of Science ®Google Scholar
• Lowes , L. , & Hulatt , I. (Eds.). ( 2005 ). Involving service users in health and social care research . London : Routledge .
   Google Scholar
• Mapstone , J. , Elbourne , D. , & Roberts , I. G. ( 2007 ). Strategies to improve recruitment to research studies . Cochrane Database of Systematic Reviews , 1 , 1 – 23 .
   Google Scholar
• McMurdo , M. E. T. , Witham , M. D. , & Gillespie , N. D. ( 2005 ). Including older people in clinical research . British Medical Journal , 331 , 1036 – 1037 .
   PubMed Web of Science ®Google Scholar
• Mercer , G. ( 2002 ). Emancipatory disability research . In C. Barnes , M. Oliver , & L. Barton (Eds.), Disability studies today (pp. 228 – 249 .) Cambridge , UK : Polity Press .
   Google Scholar
• Peel , N. , & Wilson , C. ( 2008 ). Frail older people as participants in research . Educational Gerontology , 34 ( 5 ), 404 – 417 .
   Google Scholar
• Ray , M. ( 2007 ). Redressing the balance? The participation of older people in research . In M. Bernard & T. Scharf (Eds.), Critical perspective on ageing societies (pp. 73 – 87 .) Bristol , UK : The Policy Press .
   Google Scholar
• Reed , J. , Weiner , R. , & Cook , G. ( 2004 ). Partnership research with older people: Moving towards making the rhetoric a reality . Journal of Clinical Nursing , 13 ( 3A ), 3 – 10 .
   Google Scholar
• Richards , L. ( 2005 ). Handling qualitative data: A practical guide . London : Thousand Oaks .
   Google Scholar
• Rogers , J. L. , Johnson , T. R. , Brown , M. B. , Lantz , P. M. , Greene , A. , & Smith , Y. R. ( 2007 ). Recruitment of women research participants: The Women's Health Registry at the University of Michigan . Journal of Women's Health , 16 ( 5 ), 721 – 728 .
   Google Scholar
• Ross , F. , Donovan , S. , Brearley , S. , Victor , C. , Cottee , M. , Crowther , P. , & Clark , E. ( 2005 ). Involving older people in research: Methodological issues . Health and Social Care in the Community , 13 ( 3 ), 268 – 275 .
   PubMed Web of Science ®Google Scholar
• Simon , N. ( 2008 ). Clinical trials—why you're left out . AARP Bulletin Today . Retrieved September 23, 2008, fromhttp://bulletin.aarp.org/yourhealth/policy/articles/clinical_trials_why.html
   Google Scholar
• Strauss , A. , & Corbin , J. ( 1998 ). Basics of qualitative research: Techniques and procedures for developing grounded theory ( , 2nd ed.). Newbury Park , CA : Sage .
   Google Scholar
• Townsley , C. A. , Selby , R. , & Siu , L. L. ( 2005 ). Systematic review of barriers to the recruitment of older patients with cancer onto clinical trials . Journal of Clinical Oncology , 23 ( 13 ), 3112 – 3124 .
   PubMed Web of Science ®Google Scholar
• Walker , A. ( 2007 ). Why involve older people in research? Age and Ageing , 36 , 481 – 483 .
   PubMed Web of Science ®Google Scholar
• Warburton , J. , Carroll , M. , Bartlett , H. , & Kendig , H. (2009). Involving older people in community-based research: Developing a guiding framework for researchers and community organizations. Australasian Journal of Ageing , 28(1), 41–45.
   Google Scholar
• Warburton , J. , & Dyer , M. ( 2004 ). Older volunteers participating in a university research registry: Helping others my age . Educational Gerontology , 30 ( 5 ), 367 – 381 .
   Web of Science ®Google Scholar
• Warburton , J. , Terry , D. J. , Rosenman , L. S. , & Shapiro , M. ( 2001 ). Differences between older volunteers and nonvolunteers: Attitudinal, normative, and control beliefs . Research on Aging , 23 , 586 – 605 .
   Web of Science ®Google Scholar