Grandparenting children with typical development and special educational needs and disabilities

References

• Ainbinder, J. G., Blanchard, L. W., Singer, G., Sullivan, M. E., Powers, L. K., Marquis, J. G., & Santelli, B. (1998). A qualitative study of parent to parent support for parents of children with special needs. Journal of Pediatric Psychology, 23(2), 99–109. https://doi.org/10.1093/jpepsy/23.2.99
   PubMed Web of Science ®Google Scholar
• Baranowski, M. D., & Schillmoeller, G. L. (1999). Grandparents in the lives of grandchildren with disabilities: Mothers’ perceptions. Education and Treatment of Children, 22(4), 427–446.
   Google Scholar
• Barnett, D., Clements, M., Kaplan-Estrin, M., & Fialka, J. (2003). Building new dreams: Supporting parents’ adaptation to their child with special needs. Infants and Young Children, 16(3), 184–200. https://doi.org/10.1097/00001163-200307000-00002
   Web of Science ®Google Scholar
• Bronfenbrenner, U. (1979). Ecology of human development: Experiments in nature and design. Harvard University Press.
   Google Scholar
• Clarke, C., & Roberts, C. (2004). Grandparenthood: Its meaning and its contribution to older people’s quality of life. In A. Walker & C. Henessey (Eds.), Growing older: Quality of life (pp. 149–168). Open University Press.
   Google Scholar
• Condon, J., Luszcz, M., & McKee, I. (2020). First-time grandparents’ role satisfaction and its determinants. The International Journal of Aging and Human Development, 91(3), 340–355. https://doi.org/10.1177/0091415019882005
   PubMed Web of Science ®Google Scholar
• Coutts-Clarke, L. (2002). Grandparent support and the family with a child with a disability [ Thesis for the degree of master science in Human Development]. University of Maine.
   Google Scholar
• Cox, M. J., & Paley, B. (1997). Families as systems. Annual Review of Psychology, 48(1), 243–267. https://doi.org/10.1146/annurev.psych.48.1.243
   PubMed Web of Science ®Google Scholar
• D’Astous, V., Wright, S. D., Wright, C. L., & Diener, M. L. (2013). Grandparents of grandchildren with autism spectrum disorders: Influences on engagement. Journal of Intergenerational Relationships, 11(2), 134–147. https://doi.org/10.1080/15350770.2013.782744
   Google Scholar
• DiGiulio, P., Philipov, D., & Jaschinski, I. (2014). Families with disabled children in different European countries. Retrieved August 22, 2023, from http://www.familiesandsocieties.eu/wp-content/uploads/2014/12/WP23GiulioEtAl.pdf
   Google Scholar
• Findler, L. (2007). Grandparents-the overlooked potential partners: Perceptions and practice of teachers in special and regular education. European Journal of Special Needs Education, 22(2), 199–216. https://doi.org/10.1080/08856250701269663
   Google Scholar
• Findler, L. (2014). The experience of stress and personal growth among grandparents of children with and without intellectual disability. Intellectual and Developmental Disabilities, 52(1), 32–48. https://doi.org/10.1352/1934-9556-52.1.32
   PubMed Web of Science ®Google Scholar
• Findler, L. S. (2000). The role of grandparents in the social support system of mothers of children with a physical disability. Families in Society, 81(4), 370–381. https://doi.org/10.1606/1044-3894.1033
   Web of Science ®Google Scholar
• Gardner, J. E., Sherman, A., Mobley, D., Brown, P., & Shutter, M. (1994). Grandparents’ beliefs regarding their role and relationship with special-needs grandchildren. Education and Treatment of Children, 17, 185–196. https://www.jstor.org/stable/42899352
   Google Scholar
• Gauthier, A. (2002). The role of grandparents. Current Sociology, 50(2), 295–307. https://doi.org/10.1177/0011392102050002623
   Google Scholar
• Griggs, J., Tan, J. P., Buchanan, A., Attar-Schwartz, S., & Flouri, E. (2010). ‘They’ve always been there for me’: Grandparental involvement and child well-being. Children & Society, 24(3), 200–214. https://doi.org/10.1111/j.1099-0860.2009.00215.x
   Web of Science ®Google Scholar
• Hank, K., & Buber, I. (2009). Grandparents caring for their grandchildren: Findings from the 2004 survey of health, ageing, and retirement in Europe. Journal of Family Issues, 30(1), 53–73. https://doi.org/10.1177/0192513X08322627
   Web of Science ®Google Scholar
• Hastings, R. P. (1997). Grandparents of children with disabilities: A review. International Journal of Disability, Development and Education, 44(4), 329–340. https://doi.org/10.1080/0156655970440404
   Google Scholar
• Hillman, J. (2007). Grandparents of children with autism: A review with recommendations for education, practice and policy. Educational Gerontology, 33(6), 513–527. https://doi.org/10.1080/03601270701328425
   Web of Science ®Google Scholar
• Hillman, J., Marvin, A., & Anderson, C. (2016). The experience, contributions, and resilience of grandparents of children with autism spectrum disorder. Journal of Intergenerational Relationships, 14(2), 76–92. https://doi.org/10.1080/15350770.2016.1160727
   Web of Science ®Google Scholar
• Hillman, J. L., Wentzel, M. C., & Anderson, C. M. (2017). Grandparents’ experience of autism spectrum disorder: Identifying primary themes and needs. Journal of Autism and Developmental Disorders, 47(10), 2957–2968. https://doi.org/10.1007/s10803-017-3211-4
   PubMed Web of Science ®Google Scholar
• Hornby, G., & Ashworth, T. (1994). Grandparents’ support for families who have children with disabilities. Journal of Child and Family Issues, 3, 403–412. https://doi.org/10.1007/BF02233999
   Google Scholar
• Kaczmarek, L. A. (2021). Supporting young children with disabilities: The role of grandparents. In M. R. Jalongo & P. A. Crawford (Eds.), Intergenerational bonds: The contributions of older adults to young children’s lives (pp. 144–167). Springer Nature.
   Google Scholar
• Katz, S., & Kessel, L. (2002). Grandparents of children with developmental disabilities: Perceptions, beliefs, and involvement in their care. Issues in Comprehensive Pediatric Nursing, 25(2), 113–128. https://doi.org/10.1080/01460860290042530
   PubMedGoogle Scholar
• King, V., & Elder, G. H., Jr. (1997). The legacy of grandparenting: Childhood experiences with grandparents and current involvement with grandchildren. Journal of Marriage and the Family, 59(4), 848–859. https://doi.org/10.2307/353787
   Web of Science ®Google Scholar
• Kirby, J. N. (2015). The potential benefits of parenting programs for grandparents: Recommendations and clinical implications. Journal of Child and Family Studies, 24(11), 3200–3212. https://doi.org/10.1007/s10826-015-0123-9
   Web of Science ®Google Scholar
• Kirby, J. N., & Sanders, M. R. (2014). A randomized controlled trial evaluating a parenting program designed specifically for grandparents. Behaviour Research and Therapy, 52, 35–44. https://doi.org/10.1016/j.brat.2013.11.002
   PubMed Web of Science ®Google Scholar
• Kornhaber, A. (1996). Contemporary grandparenting. Sage.
   Google Scholar
• Kornilaki, E., & Kypriotaki, M. (2014). Grandparenting an autistic child. In The Proceedings of the XVI European Conference on Developmental Psychology (pp.125–127). Medimond International Proceedings.
   Google Scholar
• Kypriotaki, M., & Kornilaki, E. (2016). The quality of grandparent-grandchild relationship and the role of the family. In The Proceedings of the 17th European Conference on Developmental Psychology (pp. 237–243). Medimond Publishing Company.
   Google Scholar
• Law 4547. (2018, June 12). Reorganization of support structures of primary and secondary education and other provisions. Government Gazette (no. 102). National Printing House.
   Google Scholar
• Lee, M., & Gardner, J. E. (2010). Grandparents’ involvement and support in families with children with disabilities. Educational Gerontology, 36(6), 467–499. https://doi.org/10.1080/03601270903212419
   Web of Science ®Google Scholar
• Margetts, J., Le Couteur, A., & Croom, S. (2006). Families in a state of flux: The experiences of grandparents in autism spectrum disorder. Child, Care, Health and Development, 32(5), 565–574. https://doi.org/10.1111/j.1365-2214.2006.00671.x
   PubMed Web of Science ®Google Scholar
• Mirfin-Veitch, B., Bray, A., & Watson, M. (1997). ‘We’re just that sort of family” intergenerational relationships in families including children with disabilities. Family Relations, 46(3), 305–311. https://doi.org/10.2307/585129
   Web of Science ®Google Scholar
• Moore, S., & Rosenthal, D. (2017). Grandparenting: Contemporary perspectives. Routledge.
   Google Scholar
• Nezlek, J. B., Kafetsios, K., & Smith, V. (2008). Emotions in everyday social encounters: Correspondence between culture and self-construal. Journal of Cross-Cultural Psychology, 39(4), 366–372. https://doi.org/10.1177/0022022108318114
   Web of Science ®Google Scholar
• Nybo, W. L., Scherman, A., & Freeman, P. (1998). Grandparents’ role in family systems with a deaf child. American Annals of the Deaf, 143(3), 260–267. https://doi.org/10.1353/aad.2012.0170
   PubMed Web of Science ®Google Scholar
• Papastylianou, D., & Lampridis, E. (2016). Social values priorities and orientation towards individualism and collectivism of Greek university students. Journal of Beliefs & Values, 37(1), 40–54. https://doi.org/10.1080/13617672.2016.1141528
   Web of Science ®Google Scholar
• Pappas, M. A., Papoutsi, C., & Drigas, A. S. (2018). Policies, practices, and attitudes toward inclusive education: The case of Greece. Social Sciences, 7(6), 90. https://doi.org/10.3390/socsci7050074
   Google Scholar
• Pit-ten Cate, I. M., Hastings, R. P., Johnson, H., & Titus, S. (2007). Grandparent support for mothers of children with and without physical disabilities. Families in Society, 88(1), 141–146. https://doi.org/10.1606/1044-3894.3601
   Web of Science ®Google Scholar
• Prendeville, P., & Kinsella, W. (2019). The role of grandparents in supporting families of children with autism spectrum disorders: A family systems approach. Journal of Autism and Developmental Disorders, 49(2), 738–749. https://doi.org/10.1007/s10803-018-3753-0
   PubMed Web of Science ®Google Scholar
• Schilmoeller, G. L., & Baranowski, M. D. (1998). Intergenerational support in families with disabilities: Grandparents’ perspective. Families in Society, 79(5), 465–476. https://doi.org/10.1606/1044-3894.714
   Web of Science ®Google Scholar
• Seligman, M., Goodwin, G., Paschal, K., Appelgate, A., & Lehman, L. (1997). Grandparents of children with disabilities: Perceived levels of support. Education and Training in Mental Retardation and Developmental Disabilities, 32(4), 293–303.
   Google Scholar
• Shaw, S. L. (2005). Grandparent involvement in the communication development of children who are deafblind. Educational Gerontology, 31(1), 51–71. https://doi.org/10.1080/03601270590522198
   Web of Science ®Google Scholar
• Sherman, A., Gardner, J. E., Brown, P., & Schutter, M. (1995). Grandparents’ adjustment to grandchildren with disabilities. Educational Gerontology, 21(3), 261–273. https://doi.org/10.1080/0360127950210306
   Web of Science ®Google Scholar
• Sobol, S., & Ben‐Shlomo, S. (2019). Stress‐related mental health and growth among first‐time grandparents: The moderating role of family support. Stress and Health, 35(4), 503–515. https://doi.org/10.1002/smi.2883
   PubMed Web of Science ®Google Scholar
• Sullivan, A., Winograd, G., Verkuilen, J., & Fish, M. C. (2012). Children on the autism spectrum: Grandmother involvement and family functioning. Journal of Applied Research in Intellectual Disabilities, 25(5), 484–494. https://doi.org/10.1111/j.1468-3148.2012.00695.x
   PubMed Web of Science ®Google Scholar
• Tan, J. P., Bucahnan, A., Flouri, E., Attar-Schwartz, S., & Griggs, J. (2010). Filling the parenting gap? Grandparent involvement with U.K. adolescents. Journal of Family Issues, 31(7), 992–1015. https://doi.org/10.1177/0192513X09360499
   Web of Science ®Google Scholar
• Vadasy, P. F., Fewell, R. R., & Meyer, D. J. (1986). Grandparents of children with special needs: Insights into their experiences and concerns. Journal of the Division for Early Childhood, 10(1), 36–44. https://doi.org/10.1177/105381518601000104
   Google Scholar
• Woodbridge, S., Buys, L., & Miller, E. (2009). Grandparenting a child with a disability: An emotional rollercoaster. Australasian Journal of Aging, 28(1), 37–40. https://doi.org/10.1111/j.1741-6612.2008.00344.x
   PubMed Web of Science ®Google Scholar
• Woodbridge, S., Buys, L., & Miller, E. (2011). ‘My grandchild has a disability’: Impact on grandparenting identity, roles and relationships. Journal of Aging Studies, 25(4), 355–363. https://doi.org/10.1016/j.jaging.2011.01.002
   Web of Science ®Google Scholar
• Zakirova-Engstrand, R., Roll-Pettersson, L., Andersson, K., Larsson, H., Allodi Westling, M., & Hirvikoski, T. (2021). Group psychoeducational intervention for grandparents of young children with ASD: An open feasibility study. Journal of Autism and Developmental Disorders, 53(2), 1–17. https://doi.org/10.1007/s10803-021-05189-0
   Web of Science ®Google Scholar