Hospice Care: Nurses’ Experience and Perception of Older Adult Patients’ Experience

References

• Aeling, J. A., & Vacha-Haase, T. (2016). Hospice as experienced by LTC nurses and their perception of resident experiences. Clinical Gerontologist, 1–17. doi:10.1080/07317115.2016.1208314
   PubMed Web of Science ®Google Scholar
• Bowen, G. A. (2008). Naturalistic inquiry and the saturation concept: A research note. Qualitative Research, 8(1), 137–152. doi:10.1177/1468794107085301
   Web of Science ®Google Scholar
• Brocki, J. M., & Wearden, A. J. (2006). A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology. Psychology & Health, 21(1), 87–108. doi:10.1080/14768320500230185
   Web of Science ®Google Scholar
• Candy, B., Holman, A., Leurent, B., Davis, S., & Jones, L. (2011). Hospice care delivered at home, in nursing homes and in dedicated hospice facilities: A systematic review of quantitative and qualitative evidence. International Journal of Nursing Studies, 48(1), 121–133. doi:10.1016/j.ijnurstu.2010.08.003
   PubMed Web of Science ®Google Scholar
• Casarett, D., Pickard, A., Bailey, F. A., Ritchie, C., Furman, C., Rosenfeld, K., … Shea, J. A. (2008). Do palliative consultations improve patient outcomes? Journal of the American Geriatrics Society, 56, 593–599. doi:10.1111/j.1532-5415.2007.01610.x
   PubMed Web of Science ®Google Scholar
• Christakis, N. A., & Iwashyna, T. J. (2000). Impact of individual and market factors on the timing of initiation of hospice terminal care. Medical Care, 38(5), 528–541. doi:10.1097/00005650-200005000-00009
   PubMed Web of Science ®Google Scholar
• Creswell, J. W. (2013). Qualitative inquiry and research design: Choosing among five approaches (3rd ed.). Thousand Oaks, CA: SAGE.
   Google Scholar
• Forbes, S., Bern-Klug, M., & Gessert, C. (2000). End-of-life decision making for nursing home residents with dementia. Journal of Nursing Scholarship, 32(3), 251–258. doi:10.1111/j.1547-5069.2000.00251.x
   PubMed Web of Science ®Google Scholar
• Han, B., Remsburg, R. E., McAuley, W. J., Keay, T. J., & Travis, S. S. (2007). Length of hospice care among U.S. adults: 1992-2000. Inquiry, 44(1), 104–113. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/17583264
   PubMed Web of Science ®Google Scholar
• Johnson, K. S., Kuchibhatla, M., & Tulsky, J. A. (2011). Racial differences in location before hospice enrollment and association with hospice length of stay. Journal of the American Geriatrics Society, 59(4), 732–737. doi:10.1111/j.1532-5415.2011.03326.x
   PubMed Web of Science ®Google Scholar
• Kirkendall, A., Holland, J. M., Keene, J. R., & Luna, N. (2015). Evaluation of hospice care by family members of Hispanic and non-Hispanic patients. American Journal of Hospice & Palliative Medicine, 32(3), 313–321. doi:10.1177/1049909114526969
   PubMed Web of Science ®Google Scholar
• Kris, A. E., Cherlin, E. J., Prigerson, H., Carlson, A., Johnson-Hurzeler, R., Kasl, S. V., & Bradley, E. H. (2006). Length of hospice enrollment and subsequent depression in family caregivers: 13-month follow-up study. The American Journal of Geriatric Psychiatry, 14(3), 264–269. doi:10.1097/01.JGP.0000194642.86116.ce
   PubMed Web of Science ®Google Scholar
• McGorty, E. K., & Bornstein, B. H. (2003). Barriers to physicians’ decisions to discuss hospice: Insights gained from the United States hospice model. Journal of Evaluation in Clinical Practice, 9(3), 363–372. doi:10.1046/j.1365-2753.2003.00406.x
   PubMed Web of Science ®Google Scholar
• Miller, S. C., Kinzbrunner, B., Pettit, P., & Williams, J. R. (2003). How does the timing of hospice referral influence hospice care in the last days of life? Journal of the American Geriatrics Society, 51(6), 798–806. doi:10.1046/j.1365-2389.2003.51253.x
   PubMed Web of Science ®Google Scholar
• Miller, S. C., Weitzen, S., & Kinzbrunner, B. (2003). Factors associated with the high prevalence of short hospice stays. Journal of Palliative Medicine, 6(5), 725–736. doi:10.1089/109662103322515239
   PubMedGoogle Scholar
• Munn, J. C. (2012). Telling the story: Perceptions of hospice in long-term care. American Journal of Hospice & Palliative Medicine, 29(3), 201–209. doi:10.1177/1049909111421340
   PubMed Web of Science ®Google Scholar
• Naik, A., & DeHaven, D. J. (2001). Short stays in hospice: A review & update. Caring: National Association for Home Care Magazine, 20(2), 13–20.
   Google Scholar
• National Hospice and Palliative Care Organization (NHPCO) (2014). Facts and Figures: 2014. Retrieved from: http://www.nhpco.org/sites/default/files/public/Statistics_Research/2014_Facts_Figures.pdf
   Google Scholar
• Port, C. L., Gruber-Baldini, A. L., Burton, L., Baumgarten, M., Hebel, J. R., Zimmerman, S. I., & Magaziner, J. (2001). Resident contact with family and friends following nursing home admission. Gerontologist, 41(5), 589–596. doi:10.1093/geront/41.5.589
   PubMed Web of Science ®Google Scholar
• Quill, T. E. (2007). Is length of stay on hospice a critical quality of care indicator? Journal of Palliative Medicine, 10(2), 290–292. doi:10.1089/jpm.2006.9984
   PubMed Web of Science ®Google Scholar
• Rickerson, E., Harrold, J., Kapo, J., Carroll, J. T., & Casarett, D. (2005). Timing of hospice referral and families’ perceptions of services: Are earlier hospice referrals better? Journal of the American Geriatrics Society, 53, 819–823. doi:10.1111/j.1532-5415.2005.53259.x
   PubMed Web of Science ®Google Scholar
• Schockett, E. R., Teno, J. M., Miller, S. C., & Stuart, B. (2005). Late referral to hospice and bereaved family member perception of quality of end-of-life care. Journal of Pain and Symptom Management, 30(5), 400–407. doi:10.1016/j.jpainsymman.2005.04.013
   PubMed Web of Science ®Google Scholar
• Schulman-Green, D., McCorkle, R., Curry, L., Cherlin, E., Johnson-Hurzeler, R., & Bradley, E. (2004). At the crossroads: Making the transition to hospice. Palliative & Supportive Care, 2(4), 351–360. doi:10.1017/S1478951504040477
   PubMedGoogle Scholar
• Smith, J. A. (2011). Evaluating the contribution of interpretative phenomenological analysis. Health Psychology Review, 5(1), 9–27. doi:10.1080/17437199.2010.510659
   Web of Science ®Google Scholar
• Smith, J. A., Jarman, M., & Osborn, M. (1999). Doing interpretative phenomenological analysis. In M. Murray & K. Chamberlain (Eds.). Qualitative Health Psychology: Theories and Methods (pp. 218–240.). London, UK: Sage.
   Google Scholar
• Szirony A, T., Sopko, P., Masiulaniec AS, B., & Binder, M. (2011). The decision to accept hospice services: A qualitative study. Journal of Hospice & Palliative Nursing, 13(5), 340–346. http://doi.org/10.1097/NJH.0b013e3182271a87
   Web of Science ®Google Scholar
• Taylor, D. H., Ostermann, J., Van Houtven, C. H., Tulsky, J. A., & Steinhauser, K. (2007). What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program? Social Science & Medicine, 65(7), 1466–1478. doi:10.1016/j.socscimed.2007.05.028
   PubMed Web of Science ®Google Scholar
• Teno, J. M., Casarett, D., Spence, C., & Connor, S. (2012). It is “too late” or is it? Bereaved family member perceptions of hospice referral when their family member was on hospice for seven days or less. Journal of Pain and Symptom Management, 43(4), 732–738. http://doi.org/10.1016/j.jpainsymman.2011.05.012
   PubMed Web of Science ®Google Scholar
• U.S. Department of Commerce, United States Census Bureau. (2014). An aging nation. Retrieved from: https://www.census.gov/prod/2014pubs/p25-1140.pdf
   Google Scholar
• Waldrop, D. P. (2006). At the eleventh hour: Psychosocial dynamics in short hospice stays. The Gerontologist, 46(1), 106–114. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/16452290
   PubMed Web of Science ®Google Scholar
• Waldrop, D. P., & Rinfrette, E. S. (2009). Can short hospice enrollment be long enough? Comparing the perspectives of hospice professionals and family caregivers. Palliative & Supportive Care, 7(1), 37–47. doi:10.1017/S1478951509000066
   PubMedGoogle Scholar
• Wright, A. A., Zhang, B., Ray, A., Mack, J. W., Trice, E., Balboni, T., … Prigerson, H. G. (2008). Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA, 300(14), 1665–1673. doi:10.1001/jama.300.14.1665
   PubMed Web of Science ®Google Scholar