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Research Article

Barriers to Aging in Place for Rural, Institutionalized Older Adults: A Qualitative Exploration

, BA, , PhD, , MS, , PhD, , MSPH, , BS & , MSW show all

References

  • AARP. (2014). Baby Boomer facts on 50 livable communities and aging in place. AARP Liveable Communities.
  • Allen, S. M. (2008). Maintaining community residence for people with long term care needs: A literature review of factors associated with physical decline, cognitive decline, and nursing home placement. Rhode Island Executive Office of Health and Human Services.
  • Anarde, S. (2019). Home sweet home: Aging in place in rural America. Journal of the American Society on Aging, 43(2), 17–23. doi:10.2307/26760110
  • Bailey, C., Aitken, D., Wilson, G., Hodgson, P., Douglas, B., & Docking, R. (2019). “What? That’s for old people, that.” Home adaptations, ageing and stigmatisation: A qualitative inquiry. International Journal of Environmental Research and Public Health, 16(24), 4989. doi:10.3390/ijerph16244989
  • Ballard, S. M., Jenkins, C., Savut, N. Y., McKinnon, W. H., Carroll, K. E., & Escott-Stump, S. (2011). Innovative and complementary approaches to aging in place. Journal of Family and Consumer Sciences, 103(2), 24–34.
  • Barbour, R. S. (2001). Checklists for improving rigour in qualitative research: A case of the tail wagging the dog? BMJ, 322(7294), 1115. doi:10.1136/bmj.322.7294.1115
  • Bouldin, E. D., Shaull, L., Andresen, E. M., Edwards, V. J., & McGuire, L. C. (2018). Financial and health barriers and caregiving-related difficulties among rural and urban caregivers. The Journal of Rural Health, 34(3), 263–274. doi:10.1111/jrh.12273
  • Brown, S. H. M., & Abdelhafiz, A. H. (2011). Institutionalization of older people: Prediction and prevention. Aging Health, 7(2), 187–203. doi:10.2217/ahe.10.88
  • Brownson, R. C., Baker, E. A., Deshpande, A. D., & Gillespie, K. N. (2010). Evidence based public health. Oxford University Press.
  • Buys, D. R. (2011). Neighborhood context as a predictor of nursing home placement among older adults (Doctoral dissertation). University of Alabama at Birmingham. Available from ProQuest Central; ProQuest Dissertations & Theses Global. (889960532). Retrieved from http://proxy.lib.wy.us/login?url=https://search-proquest-com.proxy.lib.wy.us/docview/889960532?accountid=29653
  • Coburn, A. F., & Lundblad, J. P. (2017). Rural long-term services and supports: A primer. Rural Policy Research Institute.
  • De Jonge, K. E., Jamshed, N., Gilden, D., Kubisiak, J., Bruce, S. R., & Taler, G. (2014). Effects of home-based primary care on medicare costs in high-risk elders. Journal of the American Geriatrics Society, 62(10), 1825–1831. doi:10.1111/jgs.12974
  • Denzin, N. K., & Lincoln, Y. S. (1998). Strategies of qualitative inquiry: Handbook of qualitative research. Sage Publications.
  • Duan-Porter, W., Ratner, E., Ensrud, K. E., Gaugler, J. E., & Shippee, T. (2019). Systematic review: Risk factors and interventions to prevent or delay long-term nursing home placement for adults with impairments. Department of Veterans Affairs and the Veterans Health Association.
  • Feder, J., Komisar, H. L., & Niefeld, M. (2000). Long-term care in the United States: An overview. Health Affairs, 19(3), 40–56. doi:10.1377/hlthaff.19.3.40
  • Greene, V. L., & Ondrich, J. I. (1990). Risk factors for nursing home admissions and exits: A discrete-time hazard function approach. Journal of Gerontology, 45(6), S250–S258. doi:10.1093/geronj/45.6.S250
  • Guba, E. G. (1981). Criteria for assessing the trustworthiness of naturalistic inquiries. Educational Technology and Research Development, 29(2), 75–91. doi:10.1007/BF02766777
  • Henning-Smith, C., & Lahr, M. (2018). Perspectives on rural caregiving challenges and interventions. University of Minnesota Rural Health Research Center.
  • Hill, P. Z. (2001). Wanted and received services of community-based elderly (Order No. 1403662). Available from Nursing & Allied Health Database; ProQuest Central; ProQuest Dissertations & Theses Global. (250799746). Retrieved from http://proxy.lib.wy.us/login?url=https://search-proquest-com.proxy.lib.wy.us/docview/250799746?accountid=29653
  • Hunt, G. G., Johnson, J., Maus, C., & Murphy, M. B. (2006). Caregiving in rural America. Easter Seals Disability Services and National Alliance for Caregiving.
  • Hwang, A. S., Rosenberg, L., Kontos, P., Cameron, J. I., Mihailidis, A., & Nygård, L. (2017). Sustaining care for a parent with dementia: An indefinite and intertwined process. International Journal of Qualitative Studies on Health and Well-being, 12(1), 1–15. doi:10.1080/17482631.2017.1389578
  • Iecovich, E., & Biderman, A. (2013). Use of adult day care centers: Do they offset utilization of health care services? The Gerontologist, 53(1), 123–132. doi:10.1093/geront/gns036
  • Kane, R. L., & Kane, R. A. (2001). What older people want from long-term care, and how they can get it. Health Affairs, 20(6), 114–127. doi:10.1377/hlthaff.20.6.114
  • Kaye, N., & Long, K. (2019). Toolkit: State strategies to support older adults aging in place in rural areas. National Academy for State Health Policy. Retrieved from https://nashp.org/toolkit-state-strategies-to-support-older-adults-aging-in-place-in-rural-areas/
  • Ke, L.-S., Huang, X., Hu, W.-Y., O’Connor, M., & Lee, S. (2017). Experiences and perspectives of older people regarding advance care planning: A meta-synthesis of qualitative studies. Palliative Medicine, 31(5), 394–405. doi:10.1177/0269216316663507
  • Keenan, T. A. (2010). Home and community preferences of the 45+ population. Washington, D.C.: AARP.
  • Kleiner, A. C., Santos-Eggimann, B., Fustinoni, S., & Seematter-Bagnoud, L. (2018). Access to information on home- and community-based services and functional status. International Journal of Public Health, 63(2), 273–282. doi:10.1007/s00038-017-0990-5
  • Kojima, G. (2018). Frailty as a predictor of nursing home placement among community-dwelling older adults: A systematic review and meta-analysis. Journal of Geriatric Physical Therapy (2001), 41(1), 42–48. doi:10.1519/JPT.0000000000000097
  • Labun, N. M. (2000). Factors associated with the non-use of respite services by cognitively impaired older adults and their informal caregivers (Order No. MQ53169). Available from British Nursing Database; Nursing & Allied Health Database; ProQuest Central; ProQuest Dissertations & Theses Global. (304637152). Retrieved from http://proxy.lib.wy.us/login?url=https://search-proquest-com.proxy.lib.wy.us/docview/304637152?accountid=29653
  • Lau, D. T., Scandrett, K. G., Jarzebowski, M., Holman, K., & Emanuel, L. (2007). Health-related safety: A framework to address barriers to aging in place. The Gerontologist, 47(6), 830–837. doi:10.1093/geront/47.6.830
  • Lehning, A., Chun, Y., & Scharlach, A. (2007). Structural barriers to developing ‘aging-friendly’ communities. Public Policy & Aging Report, 17(3), 15–20. doi:10.1093/ppar/17.3.15
  • Lingler, J. H., Sherwood, P. R., Crighton, M. H., Song, M. K., & Happ, M. B. (2008). Conceptual challenges in the study of caregiver-care recipient relationships. Nursing Research, 57(5), 367–372. doi:10.1097/01.NNR.0000313499.99851.0
  • Luppa, M., Luck, T., Weyerer, S., König, -H.-H., Brähler, E., & Riedel-Heller, S. G. (2010). Prediction of institutionalization in the elderly. A systematic review. Age and Ageing, 39(1), 31–38. doi:10.1093/ageing/afp202
  • Martinez-Reig, M., Ahmad, L., & Duque, G. (2012). The orthogeriatrics model of care: Systematic review of predictors of institutionalization and mortality in post-hip fracture patients and evidence for interventions. Journal of the American Medical Directors Association, 13(9), 770–777. doi:10.1016/j.jamda.2012.07.011
  • Mathie, E., Goodman, C., Crang, C., Froggatt, K., Iliffe, S., Manthorpe, J., & Barclay, S. (2012). An uncertain future: The unchanging views of care home residents about living and dying. Palliative Medicine, 26(5), 734–743. doi:10.1177/0269216311412233
  • McAuley, W. J., Spector, W. D., Van Nostrand, J., & Shaffer, T. (2004). The influence of rural location on utilization of formal home care: The role of medicaid. The Gerontologist, 44(5), 655–664. doi:10.1093/geront/44.5.655
  • Michael, N., O’Callaghan, C., & Sayers, E. (2017). Managing ‘shades of grey’: A focus group study exploring community-dwellers’ views on advance care planning in older people. BMC Palliative Care, 16(2). doi:10.1186/s12904-016-0175-7
  • Miller, N. A. (2011). Relations among home- and community-based services investment and nursing home rates of use for working-age and older adults: A state-level analysis. American Journal of Public Health, 101(9), 1735–1741. doi:10.2105/AJPH.2011.300163
  • Morgan, D. G., Semchuk, K. M., Stewart, N. J., & D’Arcy, C. D. (2002). Rural families caring for a relative with dementia: Barriers to use of formal services. Social Science & Medicine, 55(7), 1129–1142. doi:10.1016/S0277-9536(01)00255-6
  • Morken, L., & Warner, M. (2012). Planning for the aging population: Rural responses to the challenge. National Association of Area Agencies on Aging (n4a).
  • National Advisory Committee on Rural Health and Human Services (NACRHHS), Department of Health and Human Services. (2019). Supportive services and caregiving for older rural adults: Policy brief and recommendations to the secretary.
  • National Alliance for Caregiving (NAC) and AARP Public Policy Institute. (2015). Caregiving in the U.S. 2015 report. Retrieved from http://www.caregiving.org/wp-content/uploads/2015/05/2015_CaregivingintheUS_Final-Report-June-4_WEB.pdf
  • National Conference of State Legislatures, Forum for State Health Policy Leadership. (n.d.). A guide to long-term care for state policy makers: Aging and disability resource centers. Retrieved from https://www.ncsl.org/print/health/adrltc.pdf
  • Oliver, R. E., & Foster, M. (2013). Adult day care: An important long-term care alternative & potential cost saver. Missouri Medicine, 110(3), 227–230.
  • Orsulic-Jeras, S., Whitlatch, C. J., Szabo, S. M., Shelton, E. G., & Johnson, J. (2019). The SHARE program for dementia: Implementation of an early-stage dyadic care-planning intervention. Dementia, 18(1), 360–379. doi:10.1177/1471301216673455
  • Palmer, J. L., Langan, J. C., Krampe, J., Krieger, M., Lorenz, R. A., Schneider, J. K., … Lach, H. W. (2014). A model of risk reduction for older adults vulnerable to nursing home placement. Research and Theory for Nursing Practice, 28(2), 162–192. doi:10.1891/1541-6577.28.2.162
  • Pinquart, M., & Sorensen, S. (2002). Preparation for death and preparation for care in older community-dwelling adults. OMEGA - Journal of Death and Dying, 45(1), 69–88. doi:10.2190/5K9J-C320-22LQ-KPH6
  • Pohl, J. S., Cochrane, B. B., Schepp, K. G., & Woods, N. F. (2018). Falls and social isolation of older adults in the national health and aging trends study. Research in Gerontological Nursing, 11(2), 61–70. doi:10.3928/19404921-20180216-02
  • QDA Miner Lite [Computer Software]. (2017). Retrieved from provalisresearch.com
  • Rosenwohl-Mack, A., Schumacher, K., Fang, M., & Fukuoka, Y. (2020). A new conceptual model of experiences of aging in place in the united states: Results of a systematic review and meta-ethnography of qualitative studies. International Journal of Nursing Studies, 103, 103496. doi:10.1016/j.ijnurstu.2019.103496
  • Rosenwohl-Mack, A., Schumacher, K., Min-Lin, F., & Fukuoka, Y. (2018). Experiences of aging in place in the United States: Protocol for a systematic review and meta-ethnography of qualitative studies. Systematic Reviews, 7(1). doi:10.1186/s13643-018-0820-8
  • Roth, D. L., Fredman, L., & Haley, W. E. (2015). Informal caregiving and its impact on health: A reappraisal from population-based studies. The Gerontologist, 55(2), 309–319. doi:10.1093/geront/gnu177
  • Rural Health Information Hub. (2018). Health and healthcare in frontier areas. Retrieved from https://www.ruralhealthinfo.org/topics/frontier
  • Saari, M. E. (2017). Home and community-based service utilization patterns for seniors with Alzheimer’s disease and related dementias (Order No. 10623870). Available from Nursing & Allied Health Database; ProQuest Central; ProQuest Dissertations & Theses Global. (1996230221). Retrieved from http://proxy.lib.wy.us/login?url=https://search-proquest-com.proxy.lib.wy.us/docview/1996230221?accountid=29653
  • Samsi, K., & Manthorpe, J. (2011). ‘I live for today’: A qualitative study investigating older people’s attitudes to advance planning. Health & Social Care in the Community, 19(1), 52–59. doi:10.1111/j.1365-2524.2010.00948.x
  • Spoelstra, S. L., Given, B., You, M., & Given, C. W. (2012). The contribution falls have to increasing risk of nursing home placement in community-Dwelling older adults. Clinical Nursing Research, 21(1), 24–42. doi:10.1177/1054773811431491
  • Starr, M., & Szebehely, M. (2017). Working longer, caring harder – The impact of ‘ageing-in-place’ policies on working carers in the UK and Sweden. International Journal of Care and Caring, 1(1), 115–119. doi:10.1332/239788217X14866307026424
  • Steinman, B. A., McKibbin, C., Carrico, C. P., Johnson, T., & Cooley, K. L. (2016). Aging in Wyoming: An atlas of resources targeting Wyoming’s older adults. Wyoming Center on Aging, University of Wyoming and the Wyoming Department of Health, Aging Division.
  • Stiefler, S., Seibert, K., Domhoff, D., Görres, S., Wolf-Ostermann, K., & Peschke, D. (2020). Factors influencing the decision to age in place despite the need for nursing interventions: A systemic review. Journal of Evidence, Education and Quality in Healthcare. [In press, available online]. doi:10.1016/j.zefq.2020.05.001
  • Stirling, C. M., Dwan, C. A., & McKenzie, A. R. (2014). Why carers use adult day respite: A mixed method case study. BMC Health Services Research, 14(1), 245. doi:10.1186/1472-6963-14-245
  • Stirling, C. M., Leggett, S., Lloyd, B., Scott, J., Blizzard, L., Quinn, S., & Robinson, A. (2012). Decision aids for respite service choices by carers of people with dementia: Development and pilot RCT. BMC Medical Informatics and Decision Making, 12(1), 21. doi:10.1186/1472-6947-12-21
  • Szanton, S. L., Wolff, J. W., Roberts, L., Leff, B. L., Thorpe, R. J., Tanner, E. K., … Gitlin, L. N. (2015). Preliminary data from CAPABLE, a patient directed, team-based intervention to improve physical function and decrease nursing home utilization: The first 100 completers of a CMS innovations project. Journal of the American Geriatrics Society, 63(2), 371–374. doi:10.1111/jgs.13245
  • Szinovacz, M. E., & Davey, A. (2007). Changes in adult child caregiver networks. The Gerontologist, 47(3), 280–295. doi:10.1093/geront/47.3.280
  • Wang, S.-Y., Shamliyan, T. A., Talley, K. M. C., Ramakrishnan, R., & Kane, R. L. (2013). Not just specific diseases: Systematic review of the association of geriatric syndromes with hospitalization or nursing home admission. Archives of Gerontology and Geriatrics, 57(1), 16–26. doi:10.1016/j.archger.2013.03.007
  • Wilger, S. (2016). What is frontier? National Center for Frontier Communities and Rural Health Congress.
  • Wyoming Department of Health, Aging Division. (2017). State plan on aging: Community living section.
  • Wysocki, A., Butler, M., Kane, R. L., Kane, R. A., Shippee, T., & Sainfort, F. (2012). Long-term care for older adults: A review of home and community-based services versus institutional care. Rockville, MD: Agency for Healthcare Research and Quality (US).
  • Young, Y., Kalamaras, J., Kelly, L., Hornick, D., & Yucel, R. (2015). Is aging in place delaying nursing home admission? Journal of the American Medical Directors Association, 16(10), 900.e1–900.e6. doi:10.1016/j.jamda.2015.07.017
  • Zarit, S. H., Parris Stephens, M. A., Townsend, A., & Greene, R. (1998). Stress reduction for family caregivers: Effects of adult day care use. The Journals of Gerontology, 53b(5), S267–S277. doi:10.1093/geronb/53b.5.s267

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