References
- Antelius, E., Kiwi, M., & Strandroos, L. (2017). Ethnographic methods for understanding practices around dementia among culturally and linguistically diverse people. In KeadyJ., HydénL-C., JohnsonA. & SwarbrickC. (Eds.), Social Research Methods in Dementia Studies: Inclusion and Innovation (pp. 121–139). London, UK: Routledge
- Askari, N., Bilbrey, A. C., Garcia Ruiz, I., Humber, M. B., & Gallagher-Thompson, D. (2018). Dementia awareness campaign in the Latino community: A novel community engagement pilot training program with promotoras. Clinical Gerontologist, 41(3), 200–208. doi:https://doi.org/10.1080/07317115.2017.1398799
- Bartlett, R., & O’Connor, D. (2010). Broadening the dementia debate: towards social citizenship. Bristol, UK: Policy Press
- Brijnath, B. (2014). Unforgotten: Love and the culture of dementia care in India. New York, NY: Berghahn Books.
- Caspar, S., Davis, E. D., Douziech, A., & Scott, D. R. (2018). Nonpharmacological management of behavioral and psychological symptoms of dementia: What works, in what circumstances, and why? Innovation in Aging, 2(1), 001. doi:https://doi.org/10.1093/geroni/igy001
- Cryle, P., & Stephens, E. (2017). Normality: A critical genealogy. Chicago, IL: University of Chicago Press.
- de Witt, L., & Fortune, D. (2019). Relationship-centered dementia care: Insights from a community-based culture change coalition. Dementia (London, England), 18(3), 1146–1165. doi:https://doi.org/10.1177/1471301217708814
- Dewing, J. (2008). Process consent and research with older persons living with dementia. Research Ethics, 4(2), 59–64. doi:https://doi.org/10.1177/174701610800400205
- Digby, R., Lee, S., & Williams, A. (2016). Interviewing people with dementia in hospital: Recommendations for researchers. Journal of Clinical Nursing, 25(7–8), 1156–1165. doi:https://doi.org/10.1111/jocn.13141
- Emmel, N. (2013). Sampling and choosing cases in qualitative research: A realist approach. London, UK: SAGE Publications Ltd.
- Fazio, S., Pace, D., Flinner, J., & Kallmyer, B. (2018). The fundamentals of person-centered care for individuals with dementia. The Gerontologist, 58(suppl_1), S10–S19. doi:https://doi.org/10.1093/geront/gnx122
- Fazio, S., Pace, D., Maslow, K., Zimmerman, S., & Kallmyer, B. (2018). Alzheimer’s association dementia care practice recommendations. The Gerontologist, 58(suppl_1), S1–S9. doi:https://doi.org/10.1093/geront/gnx182
- Fortune, D., & McKeown, J. (2016). Sharing the journey: Exploring a social leisure program for persons with dementia and their spouses. Leisure Sciences, 38(4), 373–387. doi:https://doi.org/10.1080/01490400.2016.1157776
- Geertz, C. (1973). The interpretation of cultures: Selected essays. New York, NY: Basic Books.
- Gross, N. (2009). A pragmatist theory of social mechanisms. American Sociological Review, 74(3), 358–379. JSTOR . doi:https://doi.org/10.1177/000312240907400302
- Hare, P. (2016). Dementia without walls: Reflections on the Joseph Rowntree foundation programme. Working with Older People, 20(3), 134–143. doi:https://doi.org/10.1108/WWOP-06-2016-0012
- Harmer, B., & Orrell, M. (2008). What is meaningful activity for people with dementia living in care homes? A comparison of the views of older people with dementia, staff and family carers. Aging & Mental Health, 12(5), 548–558. doi:https://doi.org/10.1080/13607860802343019
- Hubbard, G., Downs, M. G., & Tester, S. (2003). Including older people with dementia in research: Challenges and strategies. Aging & Mental Health, 7(5), 351–362. doi:https://doi.org/10.1080/1360786031000150685
- Kitwood, T. (1997). Dementia reconsidered: The person comes first. Buckingham, UK: Open University Press.
- Kontos, P. C., & Naglie, G. (2006). Expressions of personhood in Alzheimer’s: Moving from ethnographic text to performing ethnography. Qualitative Research, 6(3), 301–317. doi:https://doi.org/10.1177/1468794106065005
- Labonte R.(2004). Social inclusion/exclusion: dancing the dialectic. Health promotion international, 19(1), 115–121. https://doi.org/https://doi.org/10.1093/heapro/dah112
- Leibing, A. (2017). Successful selves? Heroic tales of Alzheimer’s disease and personhood in Brazil. In S. Lamb (Ed.), Successful aging? Global perspectives on a contemporary obsession (pp. 203–217). New Brunswick, NJ: Rutgers University Press.
- Leibing, A. (2018). On heroes, Alzheimer’s, and fallacies of care: Stories of utopia and commitment.Frankfurt DE: In H.-P. Zimmermann (Ed.), Kulturen der sorge: Wie unsere gesellschaft ein leben mit demenz ermöglichen kann (pp. 177–194). Campus.
- Leung, P., Orrell, M., & Orgeta, V. (2015). Social support group interventions in people with dementia and mild cognitive impairment: A systematic review of the literature. International Journal of Geriatric Psychiatry, 30(1), 1–9. doi:https://doi.org/10.1002/gps.4166
- Levitas, R. A., Pantazis, C., Fahmy, E., Gordon, D., Lloyd, E., & Patsios, D. (2007). The multi-dimensional analysis of social exclusion. Bristol, UK: Townsend Centre for the International Study of Poverty and University of Bristol.
- Levy-Storms, L. (2013). Dementia care: The quality chasm. dementia initiative.Retrieved July 8, 2019 from https://www.nursinghometoolkit.com/additionalresources/DementiaCare-TheQualityChasm-AWhitePaper.pdf
- Lillekroken, D., Hauge, S., & Slettebø, Å. (2017). The meaning of slow nursing in dementia care. Dementia (London, England), 16(7), 930–947. doi:https://doi.org/10.1177/1471301215625112
- Lloyd, B., Elkins, M., & Innes, L. (2018). Barriers and enablers of patient and family centred care in an Australian acute care hospital: Perspectives of health managers. Patient Experience Journal, 5(3), 55–64. doi:https://doi.org/10.35680/2372-0247.1270
- Lloyd, C., Tse, S., & Deane, F. P. (2006). Community participation and social inclusion: How practitioners can make a difference. Australian E-Journal for the Advancement of Mental Health, 5(3), 185–194. doi:https://doi.org/10.5172/jamh.5.3.185
- Ludwin, K., & Capstick, A. (2016). Ethnography in dementia care research: Observations on ability and capacity. London, UK: SAGE.
- Manthorpe, J., & Samsi, K. (2016). Person-centered dementia care: Current perspectives. Clinical Interventions in Aging, 11, 1733–1740. doi:https://doi.org/10.2147/CIA.S104618
- McKillop, J., & Wilkinson, H. (2004). Make it easy on yourself!: Advice to researchers from someone with dementia on being interviewed. Dementia, 3(2), 117–125. doi:https://doi.org/10.1177/1471301204042332
- Miles, M. B., Huberman, A. M., & Saldana, J. (2014). Qualitative data analysis: A methods sourcebook and the coding manual for qualitative researchers. London, UK: SAGE.
- Moore, L., Britten, N., Lydahl, D., Naldemirci, Ö., Elam, M., & Wolf, A. (2017). Barriers and facilitators to the implementation of person-centred care in different healthcare contexts. Scandinavian Journal of Caring Sciences, 31(4), 662–673. doi:https://doi.org/10.1111/scs.12376
- Motta-Ochoa, R., Bresba, P., Da Silva Castanheira, J., Kwan, C. L., Shaffer, S., Julien, O., … Blain-Moraes, S. (2021). When I hear my language, I travel back in time and I feel at home”: Intersections of culture with social inclusion and exclusion of persons with dementia and their caregivers. Transcultural Psychiatry. (in press). doi: https://doi.org/10.1177/13634615211001707
- Novek, S., & Wilkinson, H. (2019). Safe and inclusive research practices for qualitative research involving people with dementia: A review of key issues and strategies. Dementia (London, England), 18(3), 1042–1059. doi:https://doi.org/10.1177/1471301217701274
- Nygård, L. (2006). How can we get access to the experiences of people with dementia?: Suggestions and reflections. Scandinavian Journal of Occupational Therapy, 13(2), 101–112. doi:https://doi.org/10.1080/11038120600723190
- O’Sullivan, M., Bryant, K., & Hewett, H. (2016). Unlearning Introductions: Problematizing Pedagogies of Inclusion, Diversity, and Experience in the Gender and Women’s Studies Introductory Course. Atlantis,37(2), 22–33.
- Pires, A. (1997). Échantillonnage et recherche qualitative: Essai théorique et méthodologique. In J. Poupart, J. P. Deslauriers, L. H. Groulx, A. Laperrière, L. Mayer, & A. Pires (Eds.), La recherche qualitative. Enjeux épistémologiques et méthodologiques (p. 88). Montreal: Gaëtan Morin.
- Prince, P. N., & Gerber, G. J. (2005). Subjective well-being and community integration among clients of assertive community treatment. Quality of Life Research,14(1), 161–169. https://doi.org/https://doi.org/10.1007/s11136-004-2407-1
- Rawal, N. (2008). Social inclusion and exclusion: A review. Dhaulagiri Journal of Sociology and Anthropology, 2, 161–180. doi:https://doi.org/10.3126/dsaj.v2i0.1362
- Rodriguez, G., De Leo, C., Girtler, N., Vitali, P., Grossi, E., & Nobili, F. (2003). Psychological and social aspects inmanagement of Alzheimer’s patients: An inquiry amongcaregivers. Neurological Sciences, 24(5), 329–335. doi:https://doi.org/10.1007/s10072-003-0184-1
- Schön, D. A. (1983). The reflective practitioner: How professionals think in action. New York, NY: Basic Books.
- Scottish Dementia Working Group. (2014). Core principles for involving people with dementia in research: Innovative practice. Dementia, 13(5), 680–685. doi:https://doi.org/10.1177/1471301214533255
- Taket, A., Crisp, B. R., Nevill, A., Lamaro, G., Graham, M., Barter-Godfrey, S., … Barter-Godfrey, S. (2009). Theorising social exclusion. Abingdon, UK: Routledge.
- Tanner, J. A., Black, B. S., Johnston, D., Hess, E., Leoutsakos, J.-M., Gitlin, L. N., … Samus, Q. M. (2015). A randomized controlled trial of a community-based dementia care coordination intervention: Effects of MIND at home on caregiver outcomes. The American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 23(4), 391–402. doi:https://doi.org/10.1016/j.jagp.2014.08.002
- Townsend, K. C., & McWhirter, B. T. (2005). Connectedness: a review of the literature with implications for counseling, assessment, and research. Journal of Counseling & Development, 83, 191–201. https://doi.org/https://doi.org/10.1002/j.1556-6678.2005.tb00596.x
- Ward, R., Clark, A., Campbell, S., Graham, B., Kullberg, A., Manji, K., … Keady, J. (2018). The lived neighborhood: Understanding how people with dementia engage with their local environment. International Psychogeriatrics, 30(6), 867–880. doi:https://doi.org/10.1017/S1041610217000631
- Williams, A. (2013). Integration and independence: A new approach to autonomy and social inclusion within care homes. Mental Health and Social Inclusion, 17(2), 70–75. doi:https://doi.org/10.1108/20428301311330117