231
Views
1
CrossRef citations to date
0
Altmetric
Research Article

Preference Importance Ratings among African American and White Nursing Home Residents

, PhD, , PhD, , PhD, MGSORCID Icon, , PhD & , PhDORCID Icon

References

  • Abbott, K. M., Bangerter, L. R., Humes, S., Klumpp, R., & Van Haitsma, K. (2018). “It’s important, but … ”: Perceived barriers and situational dependencies to social contact preferences of nursing home residents. The Gerontologist, 58(6), 1126–1135. doi:10.1093/geront/gnx109.
  • Abbott, K. M., Heid, A. R., Kleban, M., Rovine, M.J, & Van Haitsma, K. (2018). The change in nursing home residents’ preferences over time. Journal of the American Medical Directors Association, 19(12), 1092–1098. doi:10.1016/J.JAMDA.2018.08.004.
  • Abbott, K. M., Heid, A. R., & Van Haitsma, K. (2016). “We can’t provide season tickets to the opera”: Staff perceptions of providing preference based person centered care. Clinical Gerontologist, 39(3), 190–209. doi:10.1080/07317115.2016/1151968.
  • Ajrouch, K. J., Antonucci, T. C., & Janevic, M. R. (2001). Social networks among Blacks and Whites: The interaction between race and age. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 56(2), S112–S118. doi:10.1093/geronb/56.2.S112.
  • Bangerter, L. R., Abbott, K., Heid, A. R., Klumpp, R. E., & Van Haitsma, K. (2015). Health care preferences among nursing home residents: Perceived barriers and situational dependencies to person-centered care. Journal of Gerontological Nursing, 42(2), 11–16. doi:10.3928/00989134-20151218-02.
  • Bangerter, L. R., Heid, A. R., Abbott, K., & Van Haitsma, K. (2016). Honoring the everyday preferences of nursing home residents: Perceived choice and satisfaction with care. The Gerontologist, gnv697. doi:10.1093/geront/gnv697.
  • Brennan, P. L., Moos, R. H., & Lemke, S. (1988). Preferences of older adults and experts for physical and architectural features of group living facilities. The Gerontologist, 28(1), 84–90. doi:10.1093/geront/28.1.84.
  • Carpenter, B. D., Van Haitsma, K., Ruckdeschel, K., & Lawton, M. P. (2000). The Psychosocial Preferences of Older Adults: A pilot examination of content and structure. The Gerontologist, 40(3), 335–348. doi:10.1093/geront/40.3.335.
  • Curyto, K., Van Haitsma, K. S., & Towsley, G. L. (2016). Cognitive interviewing: Revising the preferences for everyday living inventory for use in the nursing home. Research in Gerontological Nursing, 9(1), 24–34. doi:10.3928/19404921-20150522-04.
  • Dannefer, D. (2003). Cumulative advantage/disadvantage and the life course: Cross-fertilizing age and social science theory. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 58(6), S327–S337. doi:10.1093/geronb/58.6.S327.
  • Deci, E. L., & Ryan, R. M. (2000). The” what” and” why” of goal pursuits: Human needs and the self-determination of behavior. Psychological Inquiry, 11(4), 227–268. doi:10.1207/S15327965PLI1104_01.
  • Degenholtz, H., Kane, R. A., & Kivnick, H. Q. (1997). Care-related preferences and values of elderly community-based LTC consumers: Can case managers learn what’s important to clients? The Gerontologist, 37(6), 767–776. doi:10.1093/geront/37.6.767.
  • Fahey, T., Montgomery, A. A., Barnes, J., & Protheroe, J. (2003). Quality of care for elderly residents in nursing homes and elderly people living at home: Controlled observational study. Bmj, 326(7389), 580. doi:10.1136/bmj.326.7389.580.
  • Firestone, I. J., Lichtman, C. M., & Evans, J. R. (1980). Privacy and solidarity: Effects of nursing home accommodation on environmental perception and sociability preferences. The International Journal of Aging and Human Development, 11(3), 229–241. doi:10.2190/0W26-MG9K-585K-D6VU.
  • Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). “Mini-mental state”: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189–198. doi:10.1016/0022-3956(75)90026-6.
  • Groger, L. (2002). Coming to terms: African Americans’ complex ways of coping with life in a nursing home. The International Journal of Aging and Human Development, 55(3), 183–205. doi:10.2190/MDLP-UDE7-P376-QXE3.
  • Hansen, B. R., Hodgson, N. A., & Gitlin, L. N. (2016). It’s a matter of trust: Older African Americans speak about their health care encounters. Journal of Applied Gerontology, 35(10), 1058–1076. doi:10.1177/0733464815570662.
  • Harris-Kojetin, L., Sengupta, M., Lendon, J. P., Rome, V., Valverde, R., & Caffrey, C. (2019). Long-term care providers and services users in the United States, 2015–2016. Vital Health Statistics.
  • Hefele, J. G., Acevedo, A., Nsiah‐Jefferson, L., Bishop, C., Abbas, Y., Damien, E., & Ramos, C. (2016). Choosing a nursing home: What do consumers want to know, and do preferences vary across race/ethnicity? Health Services Research, 51, 1167–1187. doi:10.1111/1475-6773.12457.
  • Heid, A. R., Abbott, K. M., Kleban, M., Rovine, M. J., & Van Haitsma, K. (2019). The impact of nursing home residents’ characteristics on ratings of importance of autonomy preferences in daily care over time. Aging & Mental Health, 1–8.
  • Heid, A. R., Bangerter, M. A., Abbott, K. M., & Van Haitsma, K. (2017). Do family proxies get it right? Concordance in reports of nursing home residents’ everyday preferences. Journal of Applied Gerontology, 36(6), 667–691. doi:10.1177/0733464815581485.
  • Heid, A. R., Eshraghi, K., Duntzee, C., Abbott, K., Curyto, K., & Van Haitsma, K. (2016). “It depends”: Reasons why nursing home residents change their minds about care preferences. The Gerontologist, 56(2), 243–255. doi:10.1093/geront/gnu040.
  • Kasser, V. G., & Ryan, R. M. (1999). The relation of psychological needs for autonomy and relatedness to vitality, well-being, and mortality in a nursing home. Journal of Applied Social Psychology, 29(5), 935–954. doi:10.1111/j.1559-1816.1999.tb00133.x.
  • Kloos, N., Tormpetter, H., Bohlmeijer, E. T., & Westerhof, G. J. (2019). Longitudinal associations of autonomy, relatedness, and competence with the well-being of nursing home residents. The Gerontologist, 59(4), 635–643. doi:10.1093/geront/gny005.
  • Kogan, A. C., Wilber, K., & Mosqueda, L. (2016). Person‐centered care for older adults with chronic conditions and functional impairment: A systematic literature review. Journal of the American Geriatrics Society, 64(1), e1–e7. doi:10.1111/jgs.13873.
  • Koren, M. J. (2010). Person-centered care for nursing home residents: The culture-change movement. Health Affairs, 29(2), 312–317. doi:10.1377/hlthaff.2009.0966.
  • Kroenke, K., Strine, T. W., Spitzer, R. L., Williams, J. B. W., Berry, J. T., & Mokdad, A. H. (2009). The PHQ-8 as a measure of current depression in the general population. Journal of Affective Disorders, 114(1–3), 163–173. doi:10.1016/j.jad.2008.06.026.
  • Laderman, M., Jackson, C., Little, K., Duong, T., & Pelton, L. (2019). “What matters” to older adults? A toolkit for health systems to design better care with older adults. Age-Friendly Health Systems.
  • Mor, V., Zinn, J., Angelelli, J., Teno, J. M., & Miller, S. C. (2004). Driven to tiers: Socioeconomic and racial disparities in the quality of nursing home care. The Milbank Quarterly, 82(2), 227–256. doi:10.1111/j.0887-378X.2004.00309.x.
  • O’Rand, A. M. (1996). The precious and the precocious: Understanding cumulative disadvantage and cumulative advantage over the life course. The Gerontologist, 36(2), 230–238. doi:10.1093/geront/36.2.230.
  • Persson, T., & Wasterfors, D. (2009). “Such trivial matters”: How staff account for restrictions of residents’ influence in nursing homes. Journal of Aging Studies, 23(1), 1–11. doi:10.1016/j.jaging.2007.09.005.
  • Roberts, T. J., Gilmore-Bykovskyi, A., Lor, M., Liebzeit, D., Crnich, C. J., & Saliba, D. (2018). Important care and activity preferences in a nationally representative sample of nursing home residents. Journal of the American Medical Directors Association, 19(1), 25–32. doi:10.1016/j.jamda.2017.06.028.
  • Rosenblatt, P. C. (2009). Racism and Black-White relationships in end-of-life care in the United States: A speculative analysis. IIllness, Crisis, & Loss, 17(2), 113–124.
  • Saliba, D., & Buchanan, J. (2009). Development and validation of a revised nursing home assessment tool: MDS 3.0 (Report for Centers for Medicare and Medicaid Services). United States Department of Health and Human Services.
  • Saliba, D., & Buchanan, J. (2012). Making the investment count: Revision of the minimum data set for nursing homes, MDS 3.0. Journal of the American Medical Directors Association, 13(7), 602–610. doi:10.1016/j.jamda.2012.06.002.
  • Segal, D. L., June, A., Payne, M., Coolidge, F. L., & Yochim, B. (2010). Development and initial validation of a self-report assessment tool for anxiety among older adults: The Geriatric Anxiety Scale. Journal of Anxiety Disorders, 24(7), 709–714. doi:10.1016/j.janxdis.2010.05.002.
  • Singer, E., Antonucci, T., & Van Hoewyk, J. (2004). Racial and ethnic variations in knowledge and attitudes about genetic testing. Genetic Testing, 8(1), 31–43. doi:10.1089/109065704323016012.
  • Taylor, R. J., Chatters, L. M., & Jackson, J. S. (2007). Religious and spiritual involvement among older African Americans, Caribbean blacks, and non-Hispanic whites: Findings from the national survey of American life. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 62(4), S238–S250. doi:10.1093/geronb/62.4.S238.
  • Tombaugh, T. N., & McIntyre, N. J. (1992). The mini‐mental state examination: A comprehensive review. Journal of the American Geriatrics Society, 40(9), 922–935. doi:10.1111/j.1532-5415.1992.tb01992.x.
  • Unroe, K. T., Bernard, B., Stump, T. E., Tu, W., & Callahan, C. M. (2017). Variation in hospice services by location of care: Nursing home versus assisted living facility versus home. Journal of the American Geriatrics Society, 65(7), 1490–1496. doi:10.1111/jgs.14826.
  • Van Haitsma, K. S., Curyto, K., Abbott, K. M., Towsley, G. L., Spector, A., & Kleban, M. (2015). A randomized controlled trial for an individualized positive psychosocial intervention for the affective and behavioral symptoms of dementia in nursing home residents. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 70(1), 35–45. doi:10.1093/geronb/gbt102.
  • Van Haitsma, K., Abbott, K. M., Arbogast, A., Bangerter, L. R., Heid, A. R., Behrens, L. L., & Madrigal, C. (2019). A Preference-based model of care: An integrative theoretical Model of the role of preferences in person-centered care. The Gerontologist. doi:10.1093/geront/gnz075.
  • Van Haitsma, K., Abbott, K. M., Heid, A. R., Carpenter, B., Curyto, K., Kleban, M., … Spector, A. (2014). The consistency of self-reported preferences for everyday living: Implications for person centered care delivery. Journal of Gerontological Nursing, 40(1), 34–46. doi:10.3928/00989134-20140820-01.
  • Van Haitsma, K., Curyto, K., Spector, A., Towsley, G., Kleban, M., Carpenter, B., … Koren, M. J. (2013). The preferences for everyday living inventory: Scale development and description of psychosocial preferences responses in community-dwelling elders. The Gerontologist, 53(4), 582–595. doi:10.1093/geront/gns102.
  • Ware, J. E., & Sherbourne, C. D, (1992). The MOS 36-item short-form health survey (SF-36): Conceptual framework and item selection. Medical Care, 30(6), 473–83.
  • Williams, K. N., Ilten, T. B., & Bower, H. (2016). Meeting communication needs: Topics of talk in the nursing home. Journal of Psychosocial Nursing and Mental Health Services, 43(7), 38–45. doi:10.3928/02793695-20050701-05.
  • Williams, K., Abd-Hamid, N. H., & Perkhounkova, Y. (2017). Transitioning communication education to an interactive online module format. The Journal of Continuing Education in Nursing, 48(7), 320–328. doi:10.3928/00220124-20170616-09.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.