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Original Articles

Population-Level Trends in Posttreatment Cancer Survivors’ Concerns and Associated Receipt of Care: Results from the 2006 and 2010 LIVESTRONG Surveys

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REFERENCES

  • Ahles , T. A. , Root , J. C. and Ryan , E. L . 2012 . Cancer- and cancer treatment–associated cognitive change: An update on the state of the science . Journal of Clinical Oncology , 30 ( 30 ) : 3675 – 3686 . doi:10.1200/jco.2012.43.0116
  • American Cancer Society . 2012 . Six ways the Affordable Care Act is helping cancer patients Retrieved from http://www.cancer.org/myacs/eastern/areahighlights/affordable-care-act-six-ways
  • American College of Surgeons . 2012 . Cancer program standards 2012, Version 1.1: Ensuring patient-centered care Retrieved from http://www.facs.org/cancer/coc/programstandards2012.html
  • Andrykowski , M. A. , Lykins , E. and Floyd , A. 2008 . Psychological health in cancer survivors . Seminars in Oncology Nursing , 24 ( 3 ) : 193 – 201 . doi:10.1016/j.soncn.2008.05.007
  • Avis , N. E. , Smith , K. W. , McGraw , S. , Smith , R. G. , Petronis , V. M. and Carver , C. S. 2005 . Assessing Quality of Life in Adult Cancer Survivors (QLACS) . Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation , 14 ( 4 ) : 1007 – 1023 . doi:10.1007/s11136-004-2147-2
  • Barbera , L. , Seow , H. , Howell , D. , Sutradhar , R. , Earle , C. , Liu , Y. and Dudgeon , D. 2010 . Symptom burden and performance status in a population-based cohort of ambulatory cancer patients . Cancer , 116 ( 24 ) : 5767 – 5776 . doi:10.1002/cncr.25681
  • Becker , H. , Rechis , R. , Kang , S. J. and Brown , A. 2010 . The post-treatment experience of cancer survivors with pre-existing cardiopulmonary disease . Supportive Care in Cancer , 19 ( 9 ) : 1351 – 1355 . doi:10.1007/s00520-010-0957-z
  • Bellury , L. M. , Ellington , L. , Beck , S. L. , Stein , K. , Pett , M. and Clark , J. 2011 . Elderly cancer survivorship: An integrative review and conceptual framework . European Journal of Oncology Nursing , 15 ( 3 ) : 233 – 242 . doi:10.1016/j.ejon.2011.03.008
  • Bloom , J. R. , Petersen , D. M. and Kang , S. H. 2007 . Multi-dimensional quality of life among long-term (5+ years) adult cancer survivors . Psycho-Oncology , 16 ( 8 ) : 691 – 706 . doi:10.1002/pon.1208
  • Brant , J. M. , Beck , S. , Dudley , W. N. , Cobb , P. , Pepper , G. and Miaskowski , C. 2011 . Symptom trajectories in posttreatment cancer survivors . Cancer Nursing , 34 ( 1 ) : 67 – 77 . doi:10.1097/NCC.0b013e3181f04ae9
  • Campbell , M. K. , Tessaro , I. , Gellin , M. , Valle , C. G. , Golden , S. , Kaye , L. and Miller , K. 2011 . Adult cancer survivorship care: Experiences from the LIVESTRONG centers of excellence network . Journal of Cancer Survivorship , 5 ( 3 ) : 271 – 282 . doi:10.1007/s11764-011-0180-z
  • Chapman , S. 2011 . Chronic pain syndromes in cancer survivors . Nursing Standard , 25 ( 21 ) : 35 – 41 .
  • da Silva , G. and dos Santos , M. A. 2010 . Stressors in breast cancer post-treatment: A qualitative approach . Revista Latino Americana de Enfermagem , 18 ( 4 ) : 688 – 695 .
  • Earle , C. C. and Ganz , P. A. 2012 . Cancer survivorship care: Don't let the perfect be the enemy of the good . Journal of Clinical Oncology , 30 ( 30 ) : 3764 – 3768 . doi:10.1200/jco.2012.41.7667
  • Erikson , C. , Salsberg , E. , Forte , G. , Bruinooge , S. and Goldstein , M. 2007 . Future supply and demand for oncologists: Challenges to assuring access to oncology services . Journal of Oncology Practice , 3 ( 2 ) : 79 – 86 . doi:10.1200/jop. 0723601
  • Fairley , T. L. , Pollack , L. A. , Moore , A. R. and Smith , J. L. 2009 . Addressing cancer survivorship through public health: An update from the Centers for Disease Control and Prevention . Journal of Women's Health (Larchmt) , 18 ( 10 ) : 1525 – 1531 . doi:10.1089/jwh.2009.1666
  • Farley Short , P. , Bradley , C. J. and Yabroff , K. R. 2009 . Employment status among cancer survivors . Journal of the American Medical Association , 302 ( 1 ) : 33 author reply 34–35. doi:10.1001/jama.2009.904
  • Feuerstein , M. , Todd , B. L. , Moskowitz , M. C. , Bruns , G. L. , Stoler , M. R. , Nassif , T. and Yu , X. 2010 . Work in cancer survivors: A model for practice and research . Journal of Cancer Survivorship , 4 ( 4 ) : 415 – 437 .
  • Forsythe , L. P. , Alfano , C. M. , Leach , C. R. , Ganz , P. A. , Stefanek , M. E. and Rowland , J. H. 2012 . Who provides psychosocial follow-up care for post-treatment cancer survivors? A survey of medical oncologists and primary care physicians . Journal of Clinical Oncology , 30 ( 23 ) : 2897 – 2905 . doi:10.1200/jco.2011.39.9832
  • Foster , C. , Wright , D. , Hill , H. , Hopkinson , J. and Roffe , L. 2009 . Psychosocial implications of living 5 years or more following a cancer diagnosis: A systematic review of the research evidence . European Journal of Cancer Care (Engl) , 18 ( 3 ) : 223 – 247 . doi:10.1111/j.1365-2354.2008.01001.x
  • Ganz , P. A. , Kwan , L. , Stanton , A. L. , Bower , J. E. and Belin , T. R. 2011 . Physical and psychosocial recovery in the year after primary treatment of breast cancer . Journal of Clinical Oncology , 29 ( 9 ) : 1101 – 1109 . doi:10.1200/jco.2010.28.8043
  • Gao , W. , Bennett , M. I. , Stark , D. , Murray , S. and Higginson , I. J. 2010 . Psychological distress in cancer from survivorship to end of life care: Prevalence, associated factors and clinical implications . European Journal of Cancer , 46 ( 11 ) : 2036 – 2044 . doi:10.1016/j.ejca.2010.03.033
  • Grunfeld , E. and Earle , C. C. 2010 . The interface between primary and oncology specialty care: Treatment through survivorship . Journal of the National Cancer Institute. Monographs , 2010 ( 40 ) : 25 – 30 . doi:10.1093/jncimonographs/ lgq002
  • Harrington , C. B. , Hansen , J. A. , Moskowitz , M. , Todd , B. L. and Feuerstein , M. 2010 . It's not over when it's over: Long-term symptoms in cancer survivors–A systematic review . International Journal of Psychiatry in Medicine , 40 ( 2 ) : 163 – 181 . doi:10.2190/PM.40.2.c
  • Hauglann , B. , Benth , J. S. , Fossa , S. D. and Dahl , A. A. 2012 . A cohort study of permanently reduced work ability in breast cancer patients . Journal of Cancer Survivorship , 6 ( 3 ) : 345 – 356 . doi:10.1007/s11764-012-0215-0
  • Hesse , B. W. , Hanna , C. , Massett , H. A. and Hesse , N. K. 2010 . Outside the box: Will information technology be a viable intervention to improve the quality of cancer care? . Journal of the National Cancer Institute Monographs , 2010 ( 40 ) : 81 – 89 . doi:10.1093/jncimonographs/lgq004
  • Hesse , B. W. , Moser , R. P. , Rutten , L. J. and Kreps , G. L. 2006 . The health information national trends survey: Research from the baseline . Journal of Health Communication , 11 ( Suppl 1 ) : vii – xvi . doi:10.1080/10810730600692553
  • Howell , D. , Hack , T. F. , Oliver , T. K. , Chulak , T. , Mayo , S. , Aubin , M. and Sinclair , S. 2012 . Models of care for post-treatment follow-up of adult cancer survivors: A systematic review and quality appraisal of the evidence . Journal of Cancer Survivorship , 6 ( 4 ) : 359 – 371 . doi:10.1007/s11764-012-0232-z
  • Hudson , M. M. , Landier , W. and Ganz , P. A. 2011 . Impact of survivorship-based research on defining clinical care guidelines . Cancer Epidemiology Biomarkers and Prevention , 20 ( 10 ) : 2085 – 2092 . doi:10.1158/1055-9965.epi-11-0642
  • Humpel , N. and Iverson , D. C. 2010 . Sleep quality, fatigue and physical activity following a cancer diagnosis . European Journal of Cancer Care (Engl) , 19 ( 6 ) : 761 – 768 . doi:10.1111/j.1365-2354.2009.01126.x
  • Institute of Medicine . 2005 . From cancer patient to cancer survivor: Lost in transition Edited by: Hewitt , M. , Greenfield , S. and Stovall , E. Washington, DC: National Acadamies.
  • Institute of Medicine . 2008 . Cancer care for the whole patient: Meeting psychosocial health needs. N. Adler, A. E. K. Washington, DC: National Acadamies.
  • Jacobsen , P. B. , Holland , J. C. and Steensma , D. P. 2012 . Caring for the whole patient: The science of psychosocial care . Journal of Clinical Oncology , 30 : 1151 – 1153 .
  • Jacobsen , P. B. and Jim , H. S. L. 2011 . Consideration of quality of life in cancer survivorship research . Cancer Epidemiology Biomarkers & Prevention , 20 ( 10 ) : 2035 – 2041 . doi:10.1158/1055-9965.epi-11-0563
  • Jacobsen , P. B. and Wagner , L. I. 2012 . A new quality standard: The integration of psychosocial care into routine cancer care . Journal of Clinical Oncology , 30 ( 11 ) : 1154 – 1159 . doi:10.1200/jco.2011.39.5046
  • Jamoom , E. , Beatty , P. , Bercovitz , A. , Woodwell , D. , Palso , K. and Rechtsteiner , E. 2012 . Physician adoption of electronic health record systems: United States, 2011 (NCHS data brief, no 98) Atlanta, GA: Centers for Disease Control and Prevention. Retrieved from http://www.cdc.gov/nchs/data/databriefs/db98.htm
  • Kirchhoff , A. C. , Kuhlthau , K. , Pajolek , H. , Leisenring , W. , Armstrong , G. T. , Robison , L. L. and Park , E. R. 2012 . Employer-sponsored health insurance coverage limitations: Results from the Childhood Cancer Survivor Study . Support Care Cancer, , 21 ( 2 ) : 377 – 383 . doi:10.1007/s00520-012-1523-7
  • LIVESTRONG . 2011 . Navigating the cancer experience with the help of the Lance Armstrong Foundation , Austin , TX : Author .
  • Mao , J. J. , Armstrong , K. , Bowman , M. A. , Xie , S. X. , Kadakia , R. and Farrar , J. T. 2007 . Symptom burden among cancer survivors: Impact of age and comorbidity . Journal of the American Board of Family Medicine , 20 ( 5 ) : 434 – 443 .
  • McCabe , M. S. , Bhatia , S. , Oeffinger , K. C. , Reaman , G. H. , Tyne , C. , Wollins , D. S. and Hudson , M. M. 2013 . American Society of Clinical Oncology statement: Achieving high-quality cancer survivorship care . Journal of Clinical Oncology. , 31 ( 5 ) : 631 – 640 . doi:10.1200/jco.2012.46.6854
  • Mehnert , A. and Koch , U. 2008 . Psychological comorbidity and health-related quality of life and its association with awareness, utilization, and need for psychosocial support in a cancer register-based sample of long-term breast cancer survivors . Journal of Psychosomatic Research , 64 ( 4 ) : 383 – 391 . doi:10.1016/j.jpsychores.2007.12.005
  • Meneses , K. , Azuero , A. , Hassey , L. , McNees , P. and Pisu , M. 2012 . Does economic burden influence quality of life in breast cancer survivors? . Gynecological Oncology , 124 ( 3 ) : 437 – 443 . doi:10.1016/j.ygyno.2011.11.038
  • Meyerowitz , B. E. , Kurita , K. and D’Orazio , L. M. 2008 . The psychological and emotional fallout of cancer and its treatment . Cancer Journal , 14 ( 6 ) : 410 – 413 . doi:10.1097/PPO.0b013e31818d8757
  • Miedema , B. and Easley , J. 2012 . Barriers to rehabilitative care for young breast cancer survivors: A qualitative understanding . Support Care Cancer , 20 ( 6 ) : 1193 – 1201 . doi:10.1007/s00520-011-1196-7
  • Mohile , S. G. , Heckler , C. , Fan , L. , Mustian , K. , Jean-Pierre , P. , Usuki , K. and Morrow , G. 2011 . Age-related differences in symptoms and their interference with quality of life in 903 cancer patients undergoing radiation therapy . Journal of Geriatric Oncology , 2 ( 4 ) : 225 – 232 . doi:10.1016/j.jgo.2011.08.002
  • Moryl , N. , Coyle , N. , Essandoh , S. and Glare , P. 2010 . Chronic pain management in cancer survivors . Journal of the National Comprehensive Cancer Network , 8 ( 9 ) : 1104 – 1110 .
  • Oerlemans , S. , Mols , F. , Nijziel , M. R. , Lybeert , M. and van de Poll-Franse , L. V. 2011 . The impact of treatment, socio-demographic and clinical characteristics on health-related quality of life among Hodgkin's and non-Hodgkin's lymphoma survivors: A systematic review . Annals of Hematology , 90 ( 9 ) : 993 – 1004 . doi:10.1007/s00277-011-1274-4
  • Pachman , D. R. , Barton , D. L. , Swetz , K. M. and Loprinzi , C. L. 2012 . Troublesome symptoms in cancer survivors: Fatigue, insomnia, neuropathy, and pain . Journal of Clinical Oncology , 30 ( 30 ) : 3687 – 3696 . doi:10.1200/jco.2012.41.7238
  • Padilla , G. and Ropka , M. E. 2005 . Quality of life and chemotherapy-induced neutropenia . Cancer Nursing , 28 ( 3 ) : 167 – 171 .
  • Parry , C. , Kent , E. E. , Mariotto , A. B. , Alfano , C. M. and Rowland , J. H. 2011 . Cancer survivors: A booming population . Cancer Epidemiology Biomarkers & Prevention , 20 ( 10 ) : 1996 – 2005 . doi:10.1158/1055-9965.epi-11-0729
  • Philip , E. J. , Merluzzi , T. V. , Zhang , Z. and Heitzmann , C. A. 2012 . Depression and cancer survivorship: Importance of coping self-efficacy in post-treatment survivors . Psycho-Oncology , 22 ( 5 ) : 987 – 994 . doi:10.1002/pon.3088
  • Phillips , C. 2012 . A closer look: A tough transition: Cancer survivorship plans slow to take hold . NCI Cancer Bulletin , 9 ( 13 ) Retrieved from http://www.cancer.gov/ncicancerbulletin/062612/pages5
  • Pollack , L. A. , Hawkins , N. A. , Peaker , B. L. , Buchanan , N. and Risendal , B. C. 2011 . Dissemination and translation: A frontier for cancer survivorship research . Cancer Epidemiology Biomarkers & Prevention , 20 ( 10 ) : 2093 – 2098 . doi:10.1158/1055-9965.epi-11-0652
  • Potosky , A. L. , Han , P. K. , Rowland , J. , Klabunde , C. N. , Smith , T. , Aziz , N. and Stefanek , M. 2011 . Differences between primary care physicians’ and oncologists’ knowledge, attitudes and practices regarding the care of cancer survivors . Journal of General Internal Medicine , 26 ( 12 ) : 1403 – 1410 . doi:10.1007/s11606-011-1808-4
  • Rechis , R. 2006 . How cancer has affected post treatment survivors: A LIVESTRONG Report Retrieved from http://www.livestrong.org/pdfs/3-0/LSSurvivorSurveyReport
  • Rechis , R. , Beckjord , E. , Arvey , S. , Reynolds , K. A. and Goldrick , D. 2012 . The essential elements of survivorship care: A LIVESTRONG brief report , Austin , TX : LIVESTRONG .
  • Rechis , R. , Boerner , L. , Nutt , S. , Shaw , K. , Berno , D. and Duchover , Y. 2010 . How cancer has affected post-treatment survivors: A LIVESTRONG report , Austin , TX : LIVESTRONG .
  • Rechis , R. , Reynolds , K. A. , Beckjord , E. B. , Nutt , S. , Burns , R. M. and Schaefer , J. S. 2011a . I learned to live with it” is not enough: Challenges reported by post-treatment cancer survivors in the LIVESTRONG Surveys , Austin , TX : LIVESTRONG .
  • Richardson , A. , Addington-Hall , J. , Amir , Z. , Foster , C. , Stark , D. , Armes , J. and Sharpe , M. 2011 . Knowledge, ignorance and priorities for research in key areas of cancer survivorship: Findings from a scoping review . British Journal of Cancer , 105 ( Suppl 1 ) : S82 – 94 . doi:10.1038/bjc.2011.425
  • Robison , L. L. and Demark-Wahnefried , W. 2011 . Cancer survivorship: Focusing on future research opportunities . Cancer Epidemiology Biomarkers & Prevention , 20 ( 10 ) : 1994 – 1995 . doi:10.1158/1055-9965.epi-11-0837
  • Rogers , S. N. , Harvey-Woodworth , C. N. , Hare , J. , Leong , P. and Lowe , D. 2012 . Patients’ perception of the financial impact of head and neck cancer and the relationship to health related quality of life . British Journal of Oral Maxillofacial Surgery , 50 ( 5 ) : 410 – 416 . doi:10.1016/j.bjoms.2011.07.026
  • Rowland , J. H. , Hewitt , M. and Ganz , P. A. 2006 . Cancer survivorship: A new challenge in delivering quality cancer care . Journal of Clinical Oncology , 24 ( 32 ) : 5101 – 5104 . doi:24/32/5101[pii]10.1200/JCO.2006.09.2700
  • Rusiewicz , A. , DuHamel , K. N. , Burkhalter , J. , Ostroff , J. , Winkel , G. , Scigliano , E. and Redd , W. 2008 . Psychological distress in long-term survivors of hematopoietic stem cell transplantation . Psycho-Oncology , 17 : 329 – 337 .
  • Schmidt , M. E. , Chang-Claude , J. , Vrieling , A. , Heinz , J. , Flesch-Janys , D. and Steindorf , K. 2012 . Fatigue and quality of life in breast cancer survivors: Temporal courses and long-term pattern . Journal of Cancer Survivorship , 6 ( 1 ) : 11 – 19 . doi:10.1007/s11764-011-0197-3
  • Shapiro , C. L. , McCabe , M. S. , Syrjala , K. L. , Friedman , D. , Jacobs , L. A. , Ganz , P. A. and Marcus , A. C. 2009 . The LIVESTRONG survivorship center of excellence network . Journal of Cancer Survivorship , 3 ( 1 ) : 4 – 11 . doi:10.1007/s11764-008-0076-8
  • Shi , Q. , Smith , T. G. , Michonski , J. D. , Stein , K. D. , Kaw , C. and Cleeland , C. S. 2011 . Symptom burden in cancer survivors 1 year after diagnosis: A report from the American Cancer Society's Studies of Cancer Survivors . Cancer , 117 ( 12 ) : 2779 – 2790 . doi:10.1002/cncr.26146
  • Short , P. F. , Moran , J. R. and Punekar , R. 2011 . Medical expenditures of adult cancer survivors aged <65 years in the United States . Cancer , 117 ( 12 ) : 2791 – 2800 . doi:10.1002/cncr.25835
  • Siegel , R. , Desantis , C. , Virgo , K. , Stein , K. , Mariotto , A. , Smith , T. and Ward , E. 2012 . Cancer treatment and survivorship statistics, 2012 . CA: A Cancer Journal for Clinicians , 62 ( 4 ) : 220 – 241 . doi:10.3322/caac.21149
  • Silver , J. K. 2011 . Strategies to overcome cancer survivorship care barriers . PM & R , 3 ( 6 ) : 503 – 506 . doi:10.1016/j.pmrj.2011.04.014
  • Smith , S. K. , Crespi , C. M. , Petersen , L. , Zimmerman , S. and Ganz , P. A. 2010 . The impact of cancer and quality of life for post-treatment non-Hodgkin lymphoma survivors . Psycho-Oncology , 19 ( 12 ) : 1259 – 1267 . doi:10.1002/pon.1684
  • Smith , S. K. , Zimmerman , S. , Williams , C. S. , Benecha , H. , Abernethy , A. P. , Mayer , D. K. and Ganz , P. A. 2011 . Post-traumatic stress symptoms in long-term non-Hodgkin's lymphoma survivors: Does time heal? . Journal of Clinical Oncology , 29 ( 34 ) : 4526 – 4533 . doi:10.1200/jco.2011.37.2631
  • Stanton , A. L. 2006 . Psychosocial concerns and interventions for cancer survivors . Journal of Clinical Oncology , 24 ( 32 ) : 5132 – 5137 .
  • Stanton , A. L. 2012 . What happens now? Psychosocial care for cancer survivors after medical treatment completion . Journal of Clinical Oncology , 30 ( 11 ) : 1215 – 1220 .
  • Stricker , C. T. , Jacobs , L. A. , Risendal , B. , Jones , A. , Panzer , S. , Ganz , P. A. and Palmer , S. C. 2011 . Survivorship care planning after the Institute of Medicine recommendations: How are we faring? . Journal of Cancer Survivorship , 5 ( 4 ) : 358 – 370 . doi:10.1007/s11764-011-0196-4
  • Taskila , T. , Martikainen , R. , Hietanen , P. and Lindbohm , M. L. 2007 . Comparative study of work ability between cancer survivors and their referents . European Journal of Cancer , 43 ( 5 ) : 914 – 920 .
  • Thewes , B. , Butow , P. , Zachariae , R. , Christensen , S. , Simard , S. and Gotay , C. 2011 . Fear of cancer recurrence: A systematic literature review of self-report measures . Psycho-Oncology , 21 ( 6 ) : 571 – 587 . doi:10.1002/pon.2070
  • Thijs , K. M. , de Boer , A. G. , Vreugdenhil , G. , van de Wouw , A. J. , Houterman , S. and Schep , G. 2012 . Rehabilitation using high-intensity physical training and long-term return-to-work in cancer survivors . Journal of Occupational Rehabilitation , 22 ( 2 ) : 220 – 229 . doi:10.1007/s10926-011-9341-1
  • Treanor , C. and Donnelly , M. 2012 . An international review of the patterns and determinants of health service utilisation by adult cancer survivors . BMC Health Services Research , 12 : 316 doi:10.1186/1472-6963-12-316
  • Yabroff , K. R. , Lund , J. , Kepka , D. and Mariotto , A. 2011 . Economic burden of cancer in the United States: Estimates, projections, and future research . Cancer Epidemiology Biomarkers and Prevention , 20 ( 10 ) : 2006 – 2014 . doi:10.1158/1055-9965.epi-11-0650
  • Zebrack , B. J. 2011 . Psychological, social, and behavioral issues for young adults with cancer . Cancer , 117 ( S10 ) : 2289 – 2294 .
  • Zebrack , B. J. , Yi , J. , Petersen , L. and Ganz , P. A. 2008 . The impact of cancer and quality of life for long-term survivors . Psycho-Oncology , 17 ( 9 ) : 891 – 900 . doi:10.1002/pon.1300

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