A social program for adolescent and young adult survivors of pediatric brain tumors: The power of a shared medical experience

References

• Abraham, A., Silber, T. J., & Lyon, M. (1999). Psychosocial aspects of chronic illness in adolescence. Indian Journal of Pediatrics, 66, 447–453.
   PubMedGoogle Scholar
• Anderson, D. M., Rennie, K. M., Ziegler, R. S., Neglia, J. P., Robison, L. R., & Gurney, J. G. (2001). Medical and neurocognitive late effects among survivors of childhood central nervous system tumors. Cancer, 92, 2709–2719.
   PubMed Web of Science ®Google Scholar
• Barakat, L. P., Hetzke, J. D., Foley, B., Carey, M. E., Gyato, K., & Phillips, P. C. (2003). Evaluation of a social-skills training group intervention with children treated for brain tumors: A pilot study. Journal of Pediatric Psychology, 28, 299–307.
   PubMed Web of Science ®Google Scholar
• Barrera, M. & Schulte, F. (2009). A group social skills intervention program for survivors of childhood brain tumors. Journal of Pediatric Psychology, 34, 1–11.
   PubMed Web of Science ®Google Scholar
• Bluebond-Langner, M., Perkel, D., Goertzel, T., Nelson, K., & Mcgeary, J. (1990). Children's knowledge of cancer and its treatment: Impact of an oncology camp experience. Journal of Pediatrics, 116, 207–213.
   PubMed Web of Science ®Google Scholar
• Bonner, M. J., Hardy, K. K., Willard, V. W., Anthony, K. K., Hood, M., & Gururangan, S. (2008). Social functioning and facial expression recognition in survivors of pediatric brain tumors. Journal of Pediatric Psychology, 33, 1142–1152.
   PubMed Web of Science ®Google Scholar
• Boydell, K. M., Stasiulis, E., Greenberg, M., Greenberg, C., & Spiegler, B. (2008). I'll show them: The social construction of (in)competence in survivors of childhood brain tumors. Journal of Pediatric Nursing, 25, 164–174.
   Web of Science ®Google Scholar
• Brady, M.J., Cella, D.F., Mo, F., Bonomi, A.E., Tulsky, D.S., Lloyd, & Shiomoto, G. (1997). Reliability and validity of the Functional Assessment of Cancer Therapy-Breast Quality of Life Instrument. Journal of Clinical Oncology, 15, 974–986.
   PubMed Web of Science ®Google Scholar
• Briery, B. G. & Rabian, B. (1999). Psychosocial changes associated with participation in a pediatric summer camp. Journal of Pediatric Psychology, 24, 183–190.
   PubMed Web of Science ®Google Scholar
• Brinkman, T.M., Bass, J.K., Li, Z., Ness, K.K., Gajjar, A., Pappo, A.S., … Gurney, J.G. (2015). Treatment-induced hearing loss and adult social outcomes in survivors of childhood CNS and non-CNS solid tumors: Results from the St. Jude Lifetime Cohort Study. Cancer, 121, 4053–4061.
   PubMed Web of Science ®Google Scholar
• Brinkman, T. M., Krasin, M. J., Liu, W., Armstrong, G. T., Ojha, R. P., Sadighi, Z.S, Gupta, P., Kimberg, C., Srivastava, D., Merchant, T. E., Gajjar, A., Robison, L. L., Hudson, M. M., & Krull, K. R. (2016). Long-term neurocognitive functioning and social attainment in adult survivors of pediatric CNS tumors: Results from the St Jude Lifetime Cohort Study. Journal of Clinical Oncology, 34, 1358–1367.
   Web of Science ®Google Scholar
• Brinkman, T. M., Palmer, S. L., Chen, S., Zhang, H., Evankovich, E., Swain, M. A., Bonner, M. J., Janzen, L., Knight, S., Armstrong, C. L., Boyle, R., & Gajjar, A. (2012). Parent-reported social outcomes after treatment for pediatric embryonal tumors: A prospective longitudinal study. Journal of Clinical Oncology, 30, 4134–4140.
   PubMed Web of Science ®Google Scholar
• Bronfenbrenner, U., & Ceci, S. J. (1994). Nature-nurture reconceptualized in developmental perspective: A bioecological model. Psychology Review, 101, 568–586.
   Google Scholar
• Butler, R. W., & Haser, J. K. (2006). Neurocognitive effects of treatment for childhood cancer. MRDD Research Reviews, 12, 184–191.
   Google Scholar
• Carey, M. E., Barakat, L. P., Foley, B., Gyato, K., & Phillips, P. C. (2001). Neurocognitive and social functioning of survivors of pediatric brain tumors: Evidence of nonverbal learning disability. Child Neuropsychology, 7, 265–272.
   PubMed Web of Science ®Google Scholar
• Children's Oncology Group (2014). Long-term follow-up guidelines for survivors of childhood, adolescent, and young adult cancers. Retrieved from http://www.survivorshipguidelines.com.
   Google Scholar
• Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks, CA: Sage.
   Google Scholar
• Die-Trill, M., Bromberg, J., Lavally, B., Portales, L. A., Sanfeliz, A., & Patenaude, A. F. (1996). Development of social skills in boys with brain tumors: A group approach. Journal of Psychosocial Oncology, 14, 23–41.
   Web of Science ®Google Scholar
• Foseen, A., Abrahamsen, T. G., & Storm-Mathisen, I. (1998). Psychological outcome in children treated for a brain tumor. Pediatric Hematology and Oncology, 15, 479–488.
   PubMed Web of Science ®Google Scholar
• Glaser, A. W., Nik Abdul Rashid, N. F., Walker, U. C. L., & Walker, D. A. (1997). School behavior and health status after central nervous system tumors in childhood. British Journal of Cancer, 76, 643–650.
   PubMed Web of Science ®Google Scholar
• Gurney, J. G., Krull, K. R., Kadan-Lottick, N., Nicholson, S., Nathan, P. C., Zebrack, B., Tersak, J. M., Ness, K. K. (2009). Social outcomes in the childhood cancer survivor study cohort. Journal of Clinical Oncology, 27, 2390–2395.
   PubMed Web of Science ®Google Scholar
• Gurney, J. G., Smith, M. A., & Bunin, G. R. (1999). CNS and miscellaneous intracranial and intraspinal neoplasms. In L. A. G. Ries, M. A. Smith, J. G. Gurney, M. Linet,   Tamara, L. Young, & G. R. Bunin (Eds.), Cancer incidence and survival among children and adolescents: United States SEER program 1975–1999 (pp. 51–64). Bethesda, MD: SEER Program, National Cancer Institute ( NIH publication no. 99-4649).
   Google Scholar
• Hardy, K. K., Willard, V. W., Watral, M. A., & Bonner, M. J. (2010). Perceived social competency in children with brain tumors: Comparison between children on and off therapy. Journal of Pediatric Oncology Nursing, 27, 156–163.
   PubMed Web of Science ®Google Scholar
• Holmquist, L. A., & Scott, J. (2003). Treatment, age, and time-related predictors of behavioral outcome in pediatric brain tumor survivors. Journal of Clinical Psychology in Medical Settings, 9, 315–321.
   Web of Science ®Google Scholar
• Klassen, A. F., Strohm, S. J., Maurice-Stam, H., & Grootenhuis, M. A. (2010). Quality of life questionnaires for children with cancer and childhood cancer survivors: A review of the development of available measures. Supportive Care and Cancer, 18, 1207–1217.
   PubMed Web of Science ®Google Scholar
• Lai, J. S., Cella, D., Tomita, T., Bode, R. K., Newmark, M., & Goldman, S. (2007). Developing a health-related quality of life instrument for childhood brain tumor survivors. Child's Nervous System, 23, 47–57.
   PubMed Web of Science ®Google Scholar
• Liptak, C., Manley, P., Recklitis, C.R. (2013). The feasibility of psychosocial screening for adolescent and young adult brain tumor survivors: The value of self-report. Journal of Cancer Survivorship, 6, 379–387.
   Web of Science ®Google Scholar
• Meltzer, L. J., & Rourke, M. T. (2005). Oncology summer camps: Benefits of social comparison. Children's Health Care, 34, 305–314.
   Web of Science ®Google Scholar
• Meyer, E. A., & Kieran, M. W. (2002). Psychological adjustment of ‘surgery-only’ pediatric neuro-oncology patients: A retrospective study. Psycho-Oncology, 11, 74–79.
   PubMed Web of Science ®Google Scholar
• Moyer, K. H., Willard, V. W., Gross, A. M., Netson, K. L., Ashford, J. M., Kahalley, L. S., … Conklin, H. M. (2012). The impact of attention on social functioning in survivors of pediatric acute lymphoblastic leukemia and brain tumors. Pediatric Blood and Cancer, 15, 1290–1295.
   Web of Science ®Google Scholar
• Mulhern, R. K., & Butler, R. W. (2004). Neurocognitive sequelae of childhood cancers and their treatment. Pediatric Rehabilitation, 7, 1–14.
   PubMedGoogle Scholar
• Mulhern, R. K., Carpentieri, S., Shema, S., Stone, P., & Fairclough, D. (1993). Factors associated with social and behavioral problems among children newly diagnosed with a brain tumor. Journal of Pediatric Psychology, 18, 339–350.
   PubMed Web of Science ®Google Scholar
• Packer, R., Gurney, J. G., Punyko, J. A., Donaldson, S. S., Inskip, P. D., Stovall, M., … Robison, L. L. (2003). Long-term neurologic and neurosensory sequelae in adult survivors of a childhood brain tumor: Childhood cancer survivor study. Journal of Clinical Oncology, 21, 3255–3261.
   PubMed Web of Science ®Google Scholar
• Poggi, G., Liscio, M., Galbiati, S., Adduci, A., Massimino, M., Gandola, L., … Castelli, E. (2005). Brain tumors in children and adolescents: Cognitive and psychological disorders at different ages. Psycho-Oncology, 14, 386–395.
   PubMed Web of Science ®Google Scholar
• Recklitis, C. J., Diller, L. R., Li, X., Najita, J., Robison, L. L., & Zeltzer, L. (2010). Suicide ideation in adult survivors of childhood cancer: A report from the childhood cancer survivor study. Journal of Clinical Oncology, 28, 655–661.
   PubMed Web of Science ®Google Scholar
• Ris, M. D., Beebe, D. W., Armstrong, F. D., Fontanesi, J., Holmes, E., Sanford, R. A., & Wisoff, J. H. (2008). Cognitive and adaptive outcome in extracerebellar low-grade brain tumors in children: A report from the Children's Oncology Group. Journal of Clinical Oncology, 26, 4765–4770.
   PubMed Web of Science ®Google Scholar
• Salley, C. G., Gerhardt, C. A., Fairclough, D. L., Patenaude, A. F., Kupst, M. J., Barrera, M., & Vannatta, L. (2014). Social self-perception among pediatric brain tumor survivors compared with peers. Journal of Developmental and Behavioral Pediatrics, 35, 427–434.
   PubMed Web of Science ®Google Scholar
• Salley, C. G., Hewitt, L. L., Patenaude, A. F., Vasey, M. W., Yeates, K. O., Gerhardt, C. A., & Vannatta, K. (2015). Temperament and social behavior in pediatric brain tumor survivors and comparison peers. Journal of Pediatric Psychology, 40, 297–308.
   PubMed Web of Science ®Google Scholar
• Schulte, F., & Barrera, M. (2010). Social competence in childhood brain tumor survivors: A comprehensive review. Supportive Care and Cancer, 18, 1499–1513.
   PubMed Web of Science ®Google Scholar
• Schulte, F., Vannatta, K., & Barrerra, M. (2013). Social problem-solving and social performance after a group social skills intervention for childhood brain tumor survivors. Psycho-Oncology, 23, 183–189.
   PubMed Web of Science ®Google Scholar
• Seaver, E., Geyer, R., Sulzbacher, S., Warner, M., Batzel, L., Milstein, J., & Berger, M. (1994). Psychosocial adjustment in long-term survivors of childhood medulloblastoma and ependymoma treated with craniospinal irradiation. Pediatric Neurosurgery, 20, 248–253.
   PubMed Web of Science ®Google Scholar
• Shepanski, M. A., Hurd, L. B., Culton, K., Markowitz, J. E., Mamula, P., & Baldassano, R. N. (2005). Health-related quality of life improves in children and adolescents with inflammatory bowel disease after attending a camp sponsored by the Crohn's and Colitis Foundation of America. Inflammatory Bowel Disease, 11, 164–170.
   PubMed Web of Science ®Google Scholar
• Smith, M. A., & Ries, L. A. (2002). Childhood cancer: Incidence, survival, and mortality. In P. A. Pizzo & D. G. Poplack (Eds.), Principles and practice of pediatric oncology (pp. 1–12). Philadelphia: Lippincott Williams & Wilkins.
   Google Scholar
• Treadgold, C. L., & Kuperberg, A. (2010). Been there, done that, wrote the blog: The choices and challenges of supporting adolescents and young adults with cancer. Journal of Clinical Oncology, 28, 1–9.
   PubMed Web of Science ®Google Scholar
• Upton, P., & Eiser, C. (2006). School experiences after treatment for a brain tumour. Child Care Health and Development, 32, 9–17.
   PubMed Web of Science ®Google Scholar
• Vance, Y. H., Eiser, C., & Horne, B. (2004). Parents' views of the impact of childhood brain tumours and treatment on young people's social and family functioning. Clinical Child Psychology and Psychiatry, 9, 271–278.
   Google Scholar
• Vannatta, K., Gartstein, M. A., Short, A., & Noll, E. B. (1998). A controlled study of peer relationships of children surviving brain tumors: Teacher, peer, and self-ratings. Journal of Pediatric Psychology, 23, 279–287.
   PubMed Web of Science ®Google Scholar
• Wood, J. V., & VanderZee, K. (1997). Social comparisons among cancer patients: Under what conditions are comparisons upward and downward? In B. P. Buunk & F. X. Gibbons (Eds.), Health, coping, and well-being: Perspectives from social comparison theory (pp. 299–328). Mahwah, NJ: Lawrence Erlbaum.
   Google Scholar
• Yeates, K. O., Bigler, E. D., Dennis, M., Gerhardt, C. A., Rubin, K. H., Stancin, T., … Vannatta, K. (2007). Social outcomes in childhood brain disorder: A heuristic integration of social neuroscience and developmental psychology. Psychological Bulletin, 133, 535–556.
   PubMed Web of Science ®Google Scholar
• Yoo, H., Kim, D. S., Lai, J. S., Cella, D., Shin, H. Y., & Ra, Y. S. (2011). Validation of pediatric functional assessment of cancer therapy questionnaire (version 2.0) in brain tumor survivor aged 13 years and older (parent form). Journal of Korean Neurosurgery Society, 49, 147–152.
   PubMed Web of Science ®Google Scholar
• Yoo, H., Kim, D. S., Shin, H. Y., Lai, J. S., Cella, D., Park, H. J., … Shin, Y. S. (2010). Validation of the pediatric functional assessment of cancer therapy questionnaire (version 2.0) in brain tumor survivors aged 13 years and older. Journal of Pain and Symptom Management, 40, 559–565.
   PubMed Web of Science ®Google Scholar
• Zebrack, B. J., Gurney, J. G., Oeffinger, K., Whitton, J., Packer, R. J., Mertens, A., … Zeltzer, L. K. (2004). Psychological outcomes in long-term survivors of childhood brain cancer: A report from the childhood cancer survivor study. Journal of Clinical Oncology, 22, 999–206.
   PubMed Web of Science ®Google Scholar
• Zeltzer, L. K., Recklitis, C., Buchbinder, D., Zebrack, B., Casillas, J., Tsao, J. C., … Krull, K. (2009). Psychological status in childhood cancer survivors: A report from the childhood cancer survivor study. Journal of Clinical Oncology, 27, 2396–2402.
   PubMed Web of Science ®Google Scholar