How is my child doing – parental understanding of their children when a parent has cancer

References

• Park EM, Miller KL, Knafl KA. Understanding familial response to parental advanced cancer using the family management style framework. J Psychosoc Oncol. 2019;37(6):758–776. doi:10.1080/07347332.2019.1614132
   PubMed Web of Science ®Google Scholar
• Rod NH, Bengtsson J, Budtz-Jørgensen E, et al. Trajectories of childhood adversity and mortality in early adulthood: a population-based cohort study. Lancet. 2020;396(10249):489–497. doi:10.1016/S0140-6736(20)30621-8
   PubMed Web of Science ®Google Scholar
• Semple CJ, McCance T. Parents’ experience of cancer who have young children: a literature review. Cancer Nurs. 2010;33(2):110–118. doi:10.1097/NCC.0b013e3181c024bb
   PubMed Web of Science ®Google Scholar
• Stinesen Kollberg K, Wilderang U, Moller A, Steineck G. Worrying about one’s children after breast cancer diagnosis: desired timing of psychosocial intervention. Support Care Cancer. 2014;22(11):2987–2995. doi:10.1007/s00520-014-2307-z
   PubMed Web of Science ®Google Scholar
• Moore CW, Rauch PK, Baer L, Pirl WF, Muriel AC. Parenting changes in adults with cancer. Cancer. 2015;121(19):3551–3557. ). doi:10.1002/cncr.29525
   PubMed Web of Science ®Google Scholar
• Park EM, Deal AM, Check DK, et al. Parenting concerns, quality of life, and psychological distress in patients with advanced cancer. Psychooncology. 2015;25(8):942–8. doi:10.1002/pon.3935
   PubMed Web of Science ®Google Scholar
• Allemani C, Matsuda T, Di Carlo V, et al. Global surveillance of trends in cancer survival 2000-14 (CONCORD-3): analysis of individual records for 37 513 025 patients diagnosed with one of 18 cancers from 322 population-based registries in 71 countries. Lancet. 2018;391(10125):1023–1075. doi:10.1016/S0140-6736(17)33326-3
   PubMed Web of Science ®Google Scholar
• Inhestern L, Bultmann JC, Beierlein V, et al. Understanding parenting concerns in cancer survivors with minor and young-adult children. J Psychosom Res. 2016;87:1–6. doi:10.1016/j.jpsychores.2016.05.008
   PubMed Web of Science ®Google Scholar
• Matuszczak-Świgoń J, Bakiera L. Experiences of adults as parents with cancer: a systematic review and thematic synthesis of qualitative studies. J Psychosoc Oncol. 2021;39(6):1–22. doi:10.1080/07347332.2020.1859662
   PubMed Web of Science ®Google Scholar
• Inhestern L, Bultmann JC, Beierlein V, et al. Psychometric properties of the Parenting Concerns Questionnaire in cancer survivors with minor and young adult children. Psychooncology. 2016;25(9):1092–1098. doi:10.1002/pon.4049
   PubMed Web of Science ®Google Scholar
• Huizinga GA, Visser A, Zelders-Steyn YE, Teule JA, Reijneveld SA, Roodbol PF. Psychological impact of having a parent with cancer. Eur J Cancer. 2011;47 Suppl 3(Suppl 3):S239–S246. doi:10.1016/S0959-8049(11)70170-8
   PubMedGoogle Scholar
• Krattenmacher T, Kühne F, Ernst J, Bergelt C, Romer G, Möller B. Parental cancer: factors associated with children’s psychosocial adjustment-a systematic review. J Psychosom Res. 2012;72(5):344–356. doi:10.1016/j.jpsychores.2012.01.011
   PubMed Web of Science ®Google Scholar
• Phillips F. Adolescents living with a parent with advanced cancer: a review of the literature. Psychooncology. 2014;23(12):1323–1339. doi:10.1002/pon.3570
   PubMed Web of Science ®Google Scholar
• Bylund Grenklo T, Kreicbergs U, Valdimarsdóttir UA, Nyberg T, Steineck G, Fürst CJ. Self-injury in youths who lost a parent to cancer: nationwide study of the impact of family-related and health-care-related factors. Psychooncology. 2014;23(9):989–997. doi:10.1002/pon.3515
   PubMed Web of Science ®Google Scholar
• Graungaard AH, Roested Bendixen C, Haavet OR, Smith-Sivertsen T, Mäkelä M. Somatic symptoms in children who have a parent with cancer: A systematic review. Child Care Health Dev. 2019;45(2):147–158. doi:10.1111/cch.12647
   PubMed Web of Science ®Google Scholar
• Purc-Stephenson R, Lyseng A. How are the kids holding up? A systematic review and meta-analysis on the psychosocial impact of maternal breast cancer on children. Cancer Treat Rev. 2016;49:45–56. doi:10.1016/j.ctrv.2016.07.005
   PubMed Web of Science ®Google Scholar
• Joergensen AC, Kjaer Urhoj S, Nybo Andersen AM. Primary school achievement and socioeconomic attainment in individuals affected by parental cancer in childhood or adolescence: a Danish nationwide register-based study. J Epidemiol Community Health. 2018;72(11):982–989. doi:10.1136/jech-2018-210472
   PubMed Web of Science ®Google Scholar
• Appel CW, Johansen C, Deltour I, et al. Early parental death and risk of hospitalization for affective disorder in adulthood. Epidemiology. 2013;24(4):608–615. doi:10.1097/EDE.0b013e3182915df8
   PubMed Web of Science ®Google Scholar
• Krauel K, Simon A, Krause-Hebecker N, Czimbalmos A, Bottomley A, Flechtner H. When a parent has cancer: challenges to patients, their families and health providers. Expert Rev Pharmacoecon Outcomes Res. 2012;12(6):795–808. doi:10.1586/erp.12.62
   PubMed Web of Science ®Google Scholar
• Niemela M, Paananen R, Hakko H, Merikukka M, Gissler M, Rasanen S. Mental disorder diagnoses of offspring affected by parental cancer before early adulthood: the 1987 Finnish Birth Cohort study. Psychooncology. 2016;25(12):1477–1484. doi:10.1002/pon.4088.
   PubMed Web of Science ®Google Scholar
• Lewis FM, Zahlis EH, Shands ME, et al. A pilot feasibility study of a group-delivered cancer parenting program: Enhancing Connections-Group. J Psychosoc Oncol. 2021;39(1):1–16. doi:10.1080/07347332.2020.1745987
   PubMed Web of Science ®Google Scholar
• Lewis FM, Hammond MA, Woods NF. The family’s functioning with newly diagnosed breast cancer in the mother: the development of an explanatory model. J Behav Med. 1993;16(4):351–370. doi:10.1007/BF00844777
   PubMed Web of Science ®Google Scholar
• Lewis FM, Hammond MA. The fathers, mothers and asolescents funtioning with breast cancer. Family Relations. 1996;45(4):456–465. doi:10.2307/585176
   Web of Science ®Google Scholar
• Huizinga GA, Visser A, van der Graaf WT, Hoekstra HJ, Gazendam-Donofrio SM, Hoekstra-Weebers JE. Stress response symptoms in adolescents during the first year after a parent’s cancer diagnosis. Support Care Cancer. 2010;18(11):1421–1428. doi:10.1007/s00520-009-0764-6
   PubMed Web of Science ®Google Scholar
• Shands ME, Lewis FM. Parents With Advanced Cancer: Worries About Their Children’s Unspoken Concerns. Am J Hosp Palliat Care. 2021;38(8):920–926. doi:10.1177/1049909120969120
   PubMed Web of Science ®Google Scholar
• Shands ME, Lewis FM, Zahlis EH. Mother and child interactions about the mother’s breast cancer: an interview study. Oncol Nurs Forum. 2000;27(1):77–85. PMID: 10660925
   PubMedGoogle Scholar
• Malterud K. Systematic text condensation: a strategy for qualitative analysis. Scand J Public Health. 2012;40(8):795–805. doi:10.1177/1403494812465030
   PubMed Web of Science ®Google Scholar
• Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet. 2001;358(9280):483–488. doi:10.1016/S0140-6736(01)05627-6
   PubMed Web of Science ®Google Scholar
• Malterud K, Siersma VD, Guassora AD. Sample Size in Qualitative Interview Studies: Guided by Information Power. Qual Health Res. 2016;26(13):1753–1760. doi:10.1177/1049732315617444
   PubMed Web of Science ®Google Scholar
• Niemelä M, Paananen R, Hakko H, Merikukka M, Gissler M, Räsänen S. The prevalence of children affected by parental cancer and their use of specialized psychiatric services: the 1987 Finnish Birth Cohort study. Int J Cancer. 2012;131(9):2117–2125. doi:10.1002/ijc.27466
   PubMed Web of Science ®Google Scholar
• Tavares R, Brandão T, Matos PM. Mothers with breast cancer: A mixed-method systematic review on the impact on the parent-child relationship. Psychooncology. 2018;27(2):367–375. doi:10.1002/pon.4451
   PubMed Web of Science ®Google Scholar
• Osborn T. The psychosocial impact of parental cancer on children and adolescents: a systematic review. Psychooncology. 2007;16(2):101–126. doi:10.1002/pon.1113
   PubMed Web of Science ®Google Scholar
• Grabiak BR, Bender CM, Puskar KR. The impact of parental cancer on the adolescent: an analysis of the literature. Psychooncology. 2007;16(2):127–137. doi:10.1002/pon.1083
   PubMed Web of Science ®Google Scholar
• Maynard A, Patterson P, McDonald FE, Stevens G. What is helpful to adolescents who have a parent diagnosed with cancer? J Psychosoc Oncol. 2013;31(6):675–697. doi:10.1080/07347332.2013.835021
   PubMed Web of Science ®Google Scholar
• Maass SW, Roorda C, Berendsen AJ, Verhaak PF, de Bock GH. The prevalence of long-term symptoms of depression and anxiety after breast cancer treatment: A systematic review. Maturitas. 2015;82(1):100–108. [doi]. doi:10.1016/j.maturitas.2015.04.010
   PubMed Web of Science ®Google Scholar
• Fonagy P, Allison E. 2012. What is mentalization? The concept and its foundations in developmental research. In: Midgley N, Vrouva I, eds. Minding the child - Mentalization-Based Interventions with Children, Young People and Their Families. 1st ed. East Sussex & New York: Routledge.
   Google Scholar
• Niemelä M, Hakko H, Räsänen S. A systematic narrative review of the studies on structured child-centred interventions for families with a parent with cancer. Psychooncology. 2010;19(5):451–461. doi:10.1002/pon.1620
   PubMed Web of Science ®Google Scholar
• Inhestern L, Haller AC, Wlodarczyk O, Bergelt C. Psychosocial interventions for families with parental cancer and barriers and facilitators to implementation and use - a systematic review. PLoS One. 2016;11(6):e0156967 doi:10.1371/journal.pone.0156967
   PubMed Web of Science ®Google Scholar
• Ernst JC, Beierlein V, Romer G, Möller B, Koch U, Bergelt C. Use and need for psychosocial support in cancer patients: a population-based sample of patients with minor children. Cancer. 2013;119(12):2333–2341. doi:10.1002/cncr.28021
   PubMedGoogle Scholar
• Ellis SJ, Wakefield CE, Antill G, Burns M, Patterson P. Supporting children facing a parent’s cancer diagnosis: a systematic review of children’s psychosocial needs and existing interventions. Eur J Cancer Care. 2017;26(1):e12432. doi:10.1111/ecc.12432
   Web of Science ®Google Scholar