D-CRSE: Diminishing chemotherapy-related side effects through patient education, a mixed-methods pilot study

References

• Papadakos J, McQuestion M, Gokhale A, et al. Informational needs of head and neck cancer patients. J Cancer Educ. 2018;33(4):847–856. doi:10.1007/s13187-017-1176-9
   PubMed Web of Science ®Google Scholar
• Rutten LJF, Arora NK, Bakos AD, Aziz N, Rowland J. Information needs and sources of information among cancer patients: a systematic review of research (1980–2003). Patient Educ Couns. 2005;57(3):250–261. doi:10.1016/j.pec.2004.06.006
   PubMed Web of Science ®Google Scholar
• Reifegerste D, Rosset M, Czerwinski F, et al. Understanding the pathway of cancer information seeking: cancer information services as a supplement to information from other sources. J Cancer Educ. 2023;38(1):175–184. doi:10.1007/s13187-021-02095-y
   PubMed Web of Science ®Google Scholar
• Sajid MS, Iftikhar M, Monteiro RS, Miles AFW, Woods WGA, Baig MK. Internet information on colorectal cancer: commercialization and lack of quality control. Colorectal Dis. 2008;10(4):352–356. doi:10.1111/j.1463-1318.2007.01316.x
   PubMed Web of Science ®Google Scholar
• Knecht K, Kinder D, Stockert A. Biologically-based complementary and alternative medicine (CAM) use in cancer patients: the good, the bad, the misunderstood. Front Nutr. 2019;6:196. doi:10.3389/fnut.2019.00196
   PubMed Web of Science ®Google Scholar
• Tagliaferri M, Cohen I, Tripathy D. Complementary and alternative medicine in early-stage breast cancer. Semin Oncol. 2001;28(1):121–134. doi:10.1016/S0093-7754(01)90049-1
   PubMed Web of Science ®Google Scholar
• Habimana O, Mukeshimana V, Ahishakiye A, et al. Standardization of education of patients with cancer in a low- and middle-income country: a quality improvement project using the cancer and you booklet. J Glob Oncol. 2019;5:1–6. doi:10.1200/jgo.19.00118
   PubMed Web of Science ®Google Scholar
• Bashir NY, Moore JE, Buckland D, et al. Are patient education materials about cancer screening more effective when co-created with patients? A qualitative interview study and randomized controlled trial. Curr Oncol. 2019;26(2):124–136. doi:10.3747/co.26.4621
   PubMed Web of Science ®Google Scholar
• El Abbadi S, Susok L, Stockfleth E, et al. Comparison of the skin cancer quality of life impact tool and the skin cancer index questionnaire in measurement of health-related quality of life and the effect of patient education brochures in patients with actinic keratosis, non-melanoma skin cancer, and cutaneous melanoma. Dermatol Ther. 2021;11(3):929–940. doi:10.1007/s13555-021-00522-y
   Web of Science ®Google Scholar
• Lehmann V, Labrie NHM, van Weert JCM, et al. Tailoring the amount of treatment information to cancer patients’ and survivors’ preferences: effects on patient-reported outcomes. Patient Educ Couns. 2020;103(3):514–520. doi:10.1016/j.pec.2019.09.024
   PubMed Web of Science ®Google Scholar
• Karen A, Skalla M, Marie BM, et al. Patients’ need for information about cancer therapy. Oncol Nurs Forum. 2004;31(2):313–319. doi:10.1188/04.ONF.313-319
   PubMed Web of Science ®Google Scholar
• Alishahi Tabriz A, Turner K, Hong Y-R, Gheytasvand S, Powers BD, Elston Lafata J. Trends and characteristics of potentially preventable emergency department visits among patients with cancer in the US. JAMA Netw Open. 2023;6(1):e2250423. doi:10.1001/jamanetworkopen.2022.50423
   PubMed Web of Science ®Google Scholar
• Facts and statistics – Penn State Cancer Institute – Penn State Health. PSCI. https://cancer.psu.edu/about/facts-and-statistics. Accessed June 10, 2023.
   Google Scholar
• Portenoy RK, Thaler HT, Kornblith AB, et al. The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress. Eur J Cancer. 1994;30A(9):1326–1336. doi:10.1016/0959-8049(94)90182-1
   PubMed Web of Science ®Google Scholar
• Zhu J, Hussain M, Joshi A, et al. Effect of creative writing on mood in patients with cancer. BMJ Support Palliat Care. 2020;10(1):64–67. doi:10.1136/bmjspcare-2018-001710
   PubMed Web of Science ®Google Scholar
• Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap)–a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42(2):377–381. doi:10.1016/j.jbi.2008.08.010
   PubMed Web of Science ®Google Scholar
• Parker PD, Heiney SP, Friedman DB, Adams SA, Dawson RM. The experience of chemotherapy teaching and readability of chemotherapy educational materials for women with breast cancer. J Cancer Educ. 2021;36(1):47–55. doi:10.1007/s13187-019-01596-1
   PubMed Web of Science ®Google Scholar
• Schuitevoerder D, Fortino J, Vetto JT. Hard copy durable patient cancer education materials: do they still matter? J Cancer Educ. 2017;32(3):487–490. doi:10.1007/s13187-016-0987-4
   PubMed Web of Science ®Google Scholar
• Maloney EK, D’Agostino TA, Heerdt A, et al. Sources and types of online information that breast cancer patients read and discuss with their doctors. Palliat Support Care. 2015;13(2):107–114. doi:10.1017/s1478951513000862
   PubMed Web of Science ®Google Scholar
• Smith PJ, Clavarino AM, Long JE, Steadman KJ. The use of a brochure to enable CAM-with-chemotherapy patient education. J Cancer Educ. 2017;32(4):814–819. doi:10.1007/s13187-016-1011-8
   PubMed Web of Science ®Google Scholar