References
- Alaszewski, A., Wilkinson, Wilkinson, I., Iain, & Iain. (2015). The paradox of hope for working age adults recovering from stroke. Health, 19(2), 172–187. https://doi.org/https://doi.org/10.1177/1363459314555242
- Avan, A., Digaleh, H., Di Napoli, M., Stranges, S., Behrouz, R., Shojaeianbabaei, G., Azarpazhooh, M. R., Tabrizi, R., Mokhber, N., Spence, J. D., & Azarpazhooh, M. R. (2019). Socioeconomic status and stroke incidence, prevalence, mortality, and worldwide burden: An ecological analysis from the global burden of disease study 2017. BMC Medicine, 17(1), 191. https://doi.org/https://doi.org/10.1186/s12916-019-1397-3
- Baxter, B., Baxter, B., Campbell, B. C. V., Carpenter, J. S., Vorwerk, D., Vorwerk, D., Vorwerk, D., Eesa, M., Fischer, U., Hausegger, K., Hirsch, J. A., Shazam Hussain, M., Jansen, O., Jayaraman, M. V., Khalessi, A. A., Kluck, B. W., Lavine, S., Meyers, P. M., Ramee, S., … Schirmer, D. (2018). Multisociety Consensus Quality Improvement Revised Consensus Statement for Endovascular Therapy of Acute Ischemic Stroke. International Journal of Stroke: Official Journal of the International Stroke Society, 13(6), 612–632. https://doi.org/https://doi.org/10.1177/1747493018778713
- Beunder, C., Dekker, J. H. M., Brasser, J. A., & Depla, M. F. I. A. (2015). Home after a stroke; ‘that’s when it really begins’. A qualitative study into the needs for aftercare of stroke patients after being discharged home [Home Care & Hospice 3375]. Thuis Na Een CVA: ‘Dan Begint het Pas.’ Een Kwalitatief Onderzoek Naar de Behoefte aan Nazorg van CVA-patienten Na Terugkeer Naar Huis, 46(4), 196–203. https://doi.org/https://doi.org/10.1007/s12439-015-0139-z
- Burton, C. R. (2000). Living with stroke: A phenomenological study. Journal of Advanced Nursing, 32(2), 301–309. https://doi.org/https://doi.org/10.1046/j.1365-2648.2000.01477.x
- Campbell, R., Pound, P., Pope, C., Britten, N., Pill, R., Morgan, M., & Donovan, J. (2003). Evaluating meta-ethnography: A synthesis of qualitative research on lay experiences of diabetes and diabetes care. Social Science & Medicine, 56(4), 671–684. https://doi.org/https://doi.org/10.1016/s0277-9536(02)00064-3
- Carlsson, G. E., Moller, A., & Blomstrand, C. (2004). A qualitative study of the consequences of ‘hidden dysfunctions’ one year after a mild stroke in persons <75 years [Cardiovascular Disorders 3295]. Disability and Rehabilitation: An International, Multidisciplinary Journal, 26(23), 1373–1380. https://doi.org/https://doi.org/10.1080/09638280400000211
- Carlsson, G. E., Möller, A., & Blomstrand, C. (2009). Managing an everyday life of uncertainty–a qualitative study of coping in persons with mild stroke. Disability and Rehabilitation, 31(10), 773–782. https://doi.org/https://doi.org/10.1080/09638280802638857
- Chen, Y., Mao, Y., Pan, X., Jin, W., & Qiu, T. (2021). Verification and comparison of three prediction models of ischemic stroke in young adults based on the back propagation neural networks. Medicine (Baltimore), 100(11), e25081. https://doi.org/https://doi.org/10.1097/MD.0000000000025081
- Connolly, T., & Mahoney, E. (2018). Stroke survivors’ experiences transitioning from hospital to home [neurological disorders & brain damage 3297]. Journal of Clinical Nursing, 27(21–22), 3979–3987. https://doi.org/https://doi.org/10.1111/jocn.14563
- Cumming, T. B., Blomstrand, C., Skoog, I., & Linden, T. (2016). The high prevalence of anxiety disorders after stroke. The American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 24(2), 154–160. https://doi.org/https://doi.org/10.1016/j.jagp.2015.06.003
- Eddy, K., Jordan, Z., & Stephenson, M. (2016). Health professionals’ experience of teamwork education in acute hospital settings: A systematic review of qualitative literature. JBI Database System Rev Implement Rep, 14(4), 96–137. https://doi.org/https://doi.org/10.11124/JBISRIR-2016-1843
- Edwards, M., Davies, M., & Edwards, A. (2009). What are the external influences on information exchange and shared decision-making in healthcare consultations: A meta-synthesis of the literature. Patient Education and Counseling, 75(1), 37–52. https://doi.org/https://doi.org/10.1016/j.pec.2008.09.025
- Govender, P., Naidoo, D., Bricknell, K., Ayob, Z., Message, H., & Njoko, S. (2019). ‘No one prepared me to go home’: Cerebrovascular accident survivors’ experiences of community reintegration in a peri-urban context. African Journal of Primary Health Care and Family Medicine, 11(1), e1–e8. https://doi.org/https://doi.org/10.4102/phcfm.v11i1.1806
- Gu, H. (2019). Qualitative study on rehabilitation experience of young and mid-aged stroke patients during convalescence (in Chinese). CHINESE NURSING RESEARCH, 33 (16), 2831–2924. CNKI:SUN:SXHZ.0.2019-16-022
- Hamedani, A. G., Wells, C. K., Brass, L. M., Kernan, W. N., Viscoli, C. M., Maraire, J. N., Awad, I. A., & Horwitz, R. I. (2001). A quality-of-life instrument for young hemorrhagic stroke patients. Stroke, 32(3), 687–695. https://doi.org/https://doi.org/10.1161/01.str.32.3.687
- Hannes, K., & Lockwood, C. (2011). Pragmatism as the philosophical foundation for the Joanna Briggs meta-aggregative approach to qualitative evidence synthesis. Journal of Advanced Nursing, 67(7), 1632–1642. https://doi.org/https://doi.org/10.1111/j.1365-2648.2011.05636.x
- Hartke, R. J., Trierweiler, R., & Bode, R. (2011). Critical factors related to return to work after stroke: a qualitative study. Topics in Stroke Rehabilitation, 18(4), 341–351. https://doi.org/https://doi.org/10.1310/tsr1804-341
- Helldén, J., Bergström, L., & Karlsson, S. (2018). Experiences of living with persisting post-stroke dysphagia and of dysphagia management - a qualitative study. International Journal of Qualitative Studies on Health and well-being, 13(sup1), 1522194. https://doi.org/https://doi.org/10.1080/17482631.2018.1522194
- Immenschuh, & Ursula. (2004). “My arm and leg - they are just sleeping”: Perspectives of younger people on their experiences of having a stroke. University of Edinburgh].
- Jarvis, H. L., Brown, S. J., Price, M., Butterworth, C., Groenevelt, R., Jackson, K., Walker, L., Rees, N., Clayton, A., & Reeves, N. D. (2019). Return to employment after stroke in young adults: how important is the speed and energy cost of walking? Stroke, 50(11), 3198–3204. https://doi.org/https://doi.org/10.1161/STROKEAHA.119.025614
- Kisa, A., Kisa, S., & Collaborators, G. S. (2021). Global, regional, and national burden of stroke and its risk factors, 1990–2019: a systematic analysis for the global burden of disease study 2019. The Lancet Neurology, 20(10), 795–820 . https://doi.org/https://doi.org/10.1016/S1474-4422(21)00252-0
- Kuluski, K., Dow, C., Locock, L., Lyons, R. F., & Lasserson, D. (2014). Life interrupted and life regained? Coping with stroke at a young age. International Journal of Qualitative Studies on Health and well-being, 9(1), 22252. https://doi.org/https://doi.org/10.3402/qhw.v9.22252
- Lamb, M., Buchanan, D., Godfrey, C. M., Harrison, M. B., & Oakley, P. (2008). The psychosocial spiritual experience of elderly individuals recovering from stroke: A systematic review. International Journal of evidence-based Healthcare, 6(2), 173–205. https://doi.org/https://doi.org/10.1111/j.1744-1609.2008.00079.x
- Lawrence, M., & Kinn, S. (2012). Determining the needs, priorities, and desired rehabilitation outcomes of young adults who have had a stroke. Rehabilitation Research and Practice, 2012(7), 963978. https://doi.org/https://doi.org/10.1155/2012/963978
- Leahy, D. M., Desmond, D., Coughlan, T., O’Neill, D., & Collins, D. R. (2016). Stroke in young women: An interpretative phenomenological analysis. Journal of Health Psychology, 21(5), 669–678. https://doi.org/https://doi.org/10.1177/1359105314535125
- Lewin, S., Glenton, C., Munthe-Kaas, H., Carlsen, B., Colvin, C. J., Gulmezoglu, M., Noyes, J., Booth, A., Garside, R., & Rashidian, A. (2015). Using qualitative evidence in decision making for health and social interventions: An approach to assess confidence in findings from qualitative evidence syntheses (GRADE-CERQual). PLoS medicine, 12(10), e1001895. https://doi.org/https://doi.org/10.1371/journal.pmed.1001895
- Liu, Q., Xue, L., Zhang, L., Guo, Y., Lin, B., Mei, Y., & Zhang, Z. (2020). Qualitative study on post—traumatic growth among young and middle—aged stroke patients (in Chinese). Chinese Nursing Research, 35(9), 1562–1572. https://doi.org/https://doi.org/10.12014/j.1002-0772.2020.24.13
- Lou, S., Carstensen, K., Jorgensen, C. R., & Nielsen, C. P. (2017). Stroke patients’ and informal carers’ experiences with life after stroke: An overview of qualitative systematic reviews. Disability and Rehabilitation, 39(3), 301–313. https://doi.org/https://doi.org/10.3109/09638288.2016.1140836
- Martinsen, R., Kirkevold, M., & Sveen, U. (2015). Young and midlife stroke survivors’ experiences with the health services and long-term follow-up needs [health & mental health services 3370]. Journal of Neuroscience Nursing, 47(1), 27–35. https://doi.org/https://doi.org/10.1097/JNN.0000000000000107
- McCabe, P. J., Rhudy, L. M., Chamberlain, A. M., & DeVon, H. A. (2016). Fatigue, dyspnea, and intermittent symptoms are associated with treatment-seeking delay for symptoms of atrial fibrillation before diagnosis. European Journal of Cardiovascular Nursing: Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology, 15(6), 459–468. https://doi.org/https://doi.org/10.1177/1474515115603901
- Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & Group, P. (2010). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. International Journal of Surgery, 8(5), 336–341. https://doi.org/https://doi.org/10.1136/bmj.b2535
- Murphy, M., Gordon, E., & Burke, T. (2019). Re-purposing my self: A grounded theory study of young adults’ experiences of haemorrhagic stroke. European Stroke Journal, 4(Suppl. 1), 155–156. https://doi.org/https://doi.org/10.1177/2396987319845581 (5th European Stroke Organisation Conference, ESOC 2019. Milan Italy.)
- Opoku, S., Eliason, C., & Akpalu, A. (2020). Why me?: A qualitative study on the experiences of young stroke survivors in the Accra metropolis of Ghana, West Africa. Journal of Patient Experience, 7(6), 1788–1796. https://doi.org/https://doi.org/10.1177/2374373520967505
- Reunanen, M. A. T., Järvikoski, A., Talvitie, U., Pyöriä, O., & Härkäpää, K. (2016). Individualised home-based rehabilitation after stroke in eastern Finland–the client’s perspective. Health & Social Care in the Community, 24(1), 77–85. https://doi.org/https://doi.org/10.1111/hsc.12190
- Rhudy, L. M., Wells-Pittman, J., & Flemming, K. D. (2020). Psychosocial sequelae of stroke in working-age adults: a pilot study. Journal of Neuroscience Nursing, 52(4), 192–199. https://doi.org/https://doi.org/10.1097/JNN.0000000000000523
- Rochette, A., Tribble, D. S., Desrosiers, J., Bravo, G., & Bourget, A. (2006). Adaptation and coping following a first stroke: A qualitative analysis of a phenomenological orientation. International Journal of Rehabilitation Research. Internationale Zeitschrift Fur Rehabilitationsforschung. Revue Internationale de Recherches de Readaptation, 29(3), 247–249. https://doi.org/https://doi.org/10.1097/01.mrr.0000230051.24228.c8
- Roding, J., Lindstrom, B., Malm, J., & Ohman, A. (2003). Frustrated and invisible–younger stroke patients’ experiences of the rehabilitation process. Disability and Rehabilitation, 25(15), 867–874. https://doi.org/https://doi.org/10.1080/0963828031000122276
- Sadler, E., Wolfe, C. D., Jones, F., & McKevitt, C. (2017). Exploring stroke survivors’ and physiotherapists’ views of self-management after stroke: A qualitative study in the UK. BMJ Open, 7(3), e011631. https://doi.org/https://doi.org/10.1136/bmjopen-2016-011631
- Shipley, J., Luker, J., Thijs, V., & Bernhardt, J. (2018). The personal and social experiences of community-dwelling younger adults after stroke in Australia: A qualitative interview study. BMJ Open, 8(12), e023525. https://doi.org/https://doi.org/10.1136/bmjopen-2018-023525
- Shipley, J., Luker, J., Thijs, V., & Bernhardt, J. (2020). How can stroke care be improved for younger service users? A qualitative study on the unmet needs of younger adults in inpatient and outpatient stroke care in Australia. Disability and Rehabilitation, 42(12), 1697–1704. https://doi.org/https://doi.org/10.1080/09638288.2018.1534278
- Stone, D., & Sharon. (2005). Reactions to invisible disability: The experiences of young women survivors of hemorrhagic stroke. Disability and Rehabilitation, 27(6), 293–304. https://doi.org/https://doi.org/10.1080/09638280400008990
- Takashima, R., Murata, W., & Saeki, K. (2016). Movement changes due to hemiplegia in stroke survivors: A hermeneutic phenomenological study. Disability and Rehabilitation, 38(16), 1578–1591. https://doi.org/https://doi.org/10.3109/09638288.2015.1107629
- Thomas, J., & Harden, A. (2008). Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology, 8(1), 45. https://doi.org/https://doi.org/10.1186/1471-2288-8-45
- Townend, E., Tinson, D., Kwan, J., & Sharpe, M. (2006). Fear of recurrence and beliefs about preventing recurrence in persons who have suffered a stroke. Journal of Psychosomatic Research, 61(6), 747–755. https://doi.org/https://doi.org/10.1016/j.jpsychores.2006.09.006
- Trygged, S. (2012). Return to work and wellbeing after stroke-a success story? International Journal of Therapy and Rehabilitation, 19(8), 431–438. https://doi.org/https://doi.org/10.12968/ijtr.2012.19.8.431
- White, J. H., Gray, K. R., Magin, P., Attia, J., Sturm, J., Carter, G., & Pollack, M. (2012). Exploring the experience of post-stroke fatigue in community dwelling stroke survivors: A prospective qualitative study. Disability and Rehabilitation, 34(16), 1376–1384. https://doi.org/https://doi.org/10.3109/09638288.2011.645111
- Wottrich, A. W., Astrom, K., & Lofgren, M. (2012). On parallel tracks: newly home from hospital-People with stroke describe their expectations [cardiovascular disorders 3295]. Disability and Rehabilitation: An International, Multidisciplinary Journal, 34(14), 1218–1224. https://doi.org/https://doi.org/10.3109/09638288.2011.640381
- Yang, Jia, Li, Y, & Xu, B. (2021). A qualitative study on the psychological experience of young stroke patients (in Chinese). Chinese Journal of Rural Medicine and Pharmacy, 28(2), 40–41.