Perceived Mood, Health, and Burden in Female Mexican American Family Cancer Caregivers

REFERENCES

• American Cancer Society . September 13 2006 . A closer look at cancer in US Hispanics/Latinos September 13 , Retrieved April 7, 2007, from http://www.cancer.org
   Google Scholar
• Angel , R. J. , Angel , J. L. and Lein , V. 2005 . The health safety net for Mexican Americans Retrieved June 8, 2006, from www.utexas.edu/lbj/jresearch/shasp/WD_0503.pdf
   Google Scholar
• Aranda , S. and Hayman-White , K. 2001 . Home caregivers of the person with advanced cancer: An Australian perspective . Cancer Nursing , 24 : 300 – 307 .
   PubMed Web of Science ®Google Scholar
• Ayuso-Mateos , J. L. , Vázquez-Barquero , J. L. , Oviedo , A. and Dieź-Manrique , J. F. 1999 . Measuring health status in psychiatric community surveys: Internal and external validity of the Spanish version of the SF-36 . Acta Psychiatrica Scandinavica , 99 ( 1 ) : 26 – 32 .
   PubMed Web of Science ®Google Scholar
• Beck , C. T. 1993 . Critique of deciding on breast cancer treatment: A description of decision behavior . Nursing Scan in Research , 6 ( 5 ) : 14 – 15 .
   Google Scholar
• Borrayo , E. A. , Lawsin , C. and Coit , C. 2005 . Latinas’ appraisal of participation in breast cancer prevention clinical trials . Cancer Control: Journal of the Mofffitt Cancer Center , 12 ( Suppl. 2 ) : 107 – 110 .
   PubMedGoogle Scholar
• Breitmayer , B. J. , Ayres , L. and Knafl , K. A. 1993 . Triangulation in qualitative research: Evaluation of completeness and confirmation purposes . Image: Journal of Nursing Scholarship , 25 : 237 – 243 .
   PubMedGoogle Scholar
• Brown , E. R. , Ojeda , V. D. , Wyn , R. and Levan , R. 2000 . Racial and ethnic disparities in access to health insurance and health care , Los Angeles : UCLA Center for Health Policy Research .
   Google Scholar
• Brown , M. A. and Stetz , K. 1999 . The labor of caregiving: A theoretical model of caregiving during potentially fatal illness . Qualitative Health Research , 9 : 182 – 197 .
   PubMed Web of Science ®Google Scholar
• Burdine , J. N. , Felix , M. R. , Abel , A. L. , Wiltraut , C. J. and Musselman , Y. J. 2000 . Health Services Research , 35 : 885 – 904 .
   PubMed Web of Science ®Google Scholar
• Cagle , C. S. , Appel , S. , Skelly , A. H. and Carter-Edwards , L. 2002 . Mid-life African-American women with type 2 diabetes: Influence on work and the multicaregiver role . Ethnicity & Disease , 12 : 555 – 566 .
   PubMedGoogle Scholar
• Cagle , C. S. , Wells , J. N. , Bradley , P. and Luna-Hollen , M. 2007 . Weaving theory and literature for understanding Mexican American caregiver . Hispanic Healthcare International , 5 ( 4 ) : 149 – 161 .
   Google Scholar
• Cameron , J. L. , Franche , R. L. , Cheung , A. M. and Stewart , D. E. 2002 . Lifestyle interference and emotional distress in family caregivers of advanced cancer patients . Cancer , 94 : 521 – 527 .
   PubMed Web of Science ®Google Scholar
• Cella , D. F. , Jacobsen , P. B. , Orav , E. J. , Holland , J. C. , Silberfarb , P. M. and Rafla , S. 1987 . A brief POMS measure of distress for cancer patients . Journal of Chronic Diseases , 40 : 339 – 342 .
   Google Scholar
• Clark , M. and Huttlinger , K. 1998 . Elder care among Mexican American families . Clinical Nursing Research , 7 ( 1 ) : 64 – 81 .
   PubMedGoogle Scholar
• Cogen , C. 2008 . “ Barriers to healthcare access for Latino service workers in a resort community ” . In Caring for the vulnerable: Perspectives in theory, practice, and research, , 2nd ed. , Edited by: de Chesnay , M. and Anderson , B. A. 303 – 319 . Sudbury, MA : Jones & Bartlett .
   Google Scholar
• Cohen , J. 1988 . Statistical power analysis for the behavioral sciences , Hillsdale, NJ : Lawrence Erlbaum .
   Google Scholar
• Cox , C. and Monk , A. 1996 . Strain among caregivers. Comparing the experiences of African American and Hispanic caregivers of Alzheimer's relatives . International Journal of Aging and Human Development , 43 : 93 – 105 .
   PubMed Web of Science ®Google Scholar
• Crimmins , E. M. , Kim , J. K. , Alley , D. E. , Karlamangla , A. and Seeman , T. 2007 . Hispanic paradox in biological risk profiles . American Journal of Public Health , 97 : 1305 – 1310 .
   PubMed Web of Science ®Google Scholar
• Crist , J. D. , García-Smith , D. and Phillips , L. R. 2006 . Accomodating the stranger en casa: How Mexican Americans elders and caregivers decide to use formal care . Research and Theory for Nursing Practice , 20 : 109 – 126 .
   PubMedGoogle Scholar
• Dilworth-Anderson , P. , Williams , I. and Gibson , B. 2002 . Issues of race, ethnicity, and culture in caregiving research: A 20-year review (1980–2000) . The Gerontologist , 42 : 237 – 272 .
   PubMed Web of Science ®Google Scholar
• Documét , P. and Sharma , R. K. 2004 . Latinos’ health care access: Financial and cultural barriers . Journal of Immigrant Health , 6 ( 1 ) : 5 – 13 .
   PubMedGoogle Scholar
• Dorsey , C. and Murdaugh , C. L. 2003 . The theory of self-care management for vulnerable populations . Journal of Theory Construction & Testing , 7 : 43 – 49 .
   Google Scholar
• Eschbach , K. , Stimpson , J. P. , Kuo , Y. and Goodwin , J. S. 2007 . Mortality of foreign-born and US-born Hispanic adults at younger ages: A reexamination of recent patterns . American Journal of Public Health , 97 : 1297 – 1304 .
   PubMed Web of Science ®Google Scholar
• Febo San Miguel , V. E. , Guarnaccia , P. J. , Shrout , P. E. , Lewis-Fernández , R. and Canino , G. J. 2006 . A quantitative analysis of ataque de nervios in Puerto Rico . Hispanic Journal of Behavioral Sciences , 28 : 313 – 330 .
   Web of Science ®Google Scholar
• Garces , I. C. , Scarinci , I. C. and Harrison , L. 2006 . An examination of sociocultural factors associated with health and health care seeking among Latina immigrants . Journal of Immigrant and Minority Health , 8 : 377 – 385 .
   PubMedGoogle Scholar
• Given , B. A. and Given , C. W. 1991 . Family caregiving for the elderly . Annual Review of Nursing Research , 9 : 77 – 101 .
   PubMedGoogle Scholar
• Glaser , B. G. and Strauss , A. L. 1967 . Discovery of grounded theory: Strategies for qualitative research , Chicago : Aldine .
   Google Scholar
• Grbich , C. , Parker , D. and Maddocks , I. 2001 . The emotions and coping strategies of caregivers of family members with a terminal cancer . Journal of Palliative Care , 17 ( 1 ) : 30 – 36 .
   PubMed Web of Science ®Google Scholar
• Grey , M. , Knafl , K. and McCorkle , R. 2006 . A framework for the study of self- and family management of chronic conditions . Nursing Outlook , 54 : 278 – 286 .
   PubMed Web of Science ®Google Scholar
• Guarnaccia , P. J. , Rivera , M. , Franco , F. and Neighbors , C. 1996 . The experiences of ataques de nervios: Towards an anthropology of emotions in Puerto Rico . Culture, Medicine & Psychiatry , 20 : 343 – 367 .
   PubMed Web of Science ®Google Scholar
• Haley , W. E. , LaMonde , L. A. , Han , B. , Narramore , S. and Schonwetter , R. 2001 . Family caregiving in hospice: Effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia . Hospice Journal , 15 ( 4 ) : 1 – 18 .
   PubMedGoogle Scholar
• Hamner , T. J. and Turner , P. H. 1996 . Parenting in a contemporary society (3rd ed.) , Boston : Allyn & Bacon .
   Google Scholar
• Hanmer , J. , Lawrence , W. F. , Anderson , J. P. , Kaplan , R. M. and Fryback , D. G. 2006 . Report of nationally representative values for the noninstitutionalized U.S. adult population for 7 health-related quality-of-life scores . Medical Decision Making , 26 : 391 – 400 .
   PubMed Web of Science ®Google Scholar
• Happ , M. B. , Dabbs , A. D. , Tate , J. , Hricik , A. and Erlen , J. 2006 . Exemplars of mixed methods data combination and analysis . Nursing Research , 55 ( 2S ) : S43 – S49 .
   PubMed Web of Science ®Google Scholar
• Hazuda , H. P. 1997 . Minority issues in Alzheimer disease outcomes research . Alzheimer's Disease and Associated Disorders , 11 ( 6 ) : 156 – 161 .
   PubMed Web of Science ®Google Scholar
• Hébert , R. , Bravo , G. and Préville , M. 2000 . Reliability, validity and reference values of the Zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia . Canadian Journal on Aging , 19 : 494 – 507 .
   Web of Science ®Google Scholar
• Heilemann , M. S. , Lee , K. A. and Kury , F. S. 2005 . Strength factors among women of Mexican descent . Western Journal of Nursing Research , 27 : 949 – 965 .
   PubMed Web of Science ®Google Scholar
• Hibbard , J. , Neufeld , A. and Harrison , M. J. 1996 . Gender differences in the support networks of caregivers . Journal of Gerontological Nursing , 22 ( 9 ) : 15 – 23 .
   PubMedGoogle Scholar
• Hunt , C. K. 2003 . Concepts in caregiver research . Journal of Nursing Scholarship , 35 ( 1 ) : 27 – 32 .
   PubMed Web of Science ®Google Scholar
• Hunt , C. K. 2004 . Stress, coping, and health in spouses of cancer patients , Unpublished doctoral dissertation, Ohio State University, Columbus, OH .
   Google Scholar
• Hunt , L. M. , Schneider , S. and Comer , B. 2004 . Should “acculturation” be a variable in health research? A critical review of research on US Hispanics . Social Science & Medicine , 59 : 973 – 986 .
   PubMed Web of Science ®Google Scholar
• Hunter , J. L. 2005 . Cervical cancer educational pamphlets: Do they miss the mark for Mexican immigrant women's needs? . Cancer Control: Journal of the Moffitt Cancer Center , 12 ( 2 ) : 42 – 50 .
   PubMedGoogle Scholar
• Hutchinson , S. A. and Wilson , H. S. 2001 . “ Grounded theory: The method ” . In Nursing research: A qualitative perspective , Edited by: Munhall , P. L. 209 – 243 . Sudbury, MA : Jones & Bartlett .
   Google Scholar
• John , R. and McMillian , B. 1998 . Exploring caregiver burden among Mexican Americans: Cultural prescriptions, family dilemmas . Journal of Aging and Ethnicity , 1 : 93 – 111 .
   Google Scholar
• Juarez , G. 2003 . Perceptions of the caregiving experience and quality of life of Mexican/Mexican American caregivers providing care to adults with advanced cancer , Los Angeles, Los Angeles, CA : Unpublished doctoral dissertation, University of California .
   Google Scholar
• Knight , B. , Silverstein , M. , McCallum , T. J. and Fox , L. S. 2000 . A sociocultural stress and coping model for mental health outcomes among African-American caregivers in southern California . Journal of Gerontology Series B: Psychological and Social Sciences , 55 : 142 – 150 .
   PubMed Web of Science ®Google Scholar
• Levine , E. and Franco , J. N. 1981 . A reassessment of self-disclosure patterns among Anglo Americans and Hispanics . Journal of Counseling Psychology , 28 : 522 – 524 .
   Web of Science ®Google Scholar
• Lindenberg , C. S. , Solorzano , R. M. , Vilaro , F. M. and Westbrook , L. O. 2001 . Challenges and strategies for conducting intervention research with culturally diverse populations . Journal of Transcultural Nursing , 12 : 132 – 139 .
   PubMedGoogle Scholar
• Luna Hollen , M. , Balcázar , H. , Medina , A. and Ahmed , N. 2002 . The North Texas salud para su corazón (health for your heart) outreach initiative: Serving Hispanics in Fort Worth and Dallas . Texas Public Health Association Journal , 54 : 5 – 12 .
   Google Scholar
• Marin , G. and Marin , B. 1991 . “ Research with Hispanic populations ” . Newbury Park, CA : Sage Publications .
   Google Scholar
• Marin , G. , Sabogal , F. , Marin , B. and Otero-Sabogal , R. 1987 . Development of a short acculturation scale for Hispanics . Hispanic Journal of Behavioral Sciences , 9 : 183 – 205 .
   Web of Science ®Google Scholar
• McCorkle , R. 2006 . A program of research on patient and family caregiver outcomes: Three phases of evolution . Oncology Nursing Forum , 33 : 25 – 31 .
   Web of Science ®Google Scholar
• McDowell , I. and Newell , C. 1996 . Measuring health: A guide to rating scales and questionnaires , New York : Oxford University Press .
   Google Scholar
• McNair , D. M. , Heuchert , J. W. P. and Shilony , E. 2003 . Profile of mood states bibliography 1964–2002 , New York : MHS .
   Google Scholar
• McNair , D. , Lorr , M. and Droppelman , L. 1992 . Manual for the profile of mood states (rev. ed.) , San Diego, CA : Educational and Industrial Testing Service .
   Google Scholar
• Mendelson , D. 2002 . Health perception of Mexican American women . Journal of Transcultural Nursing , 13 : 210 – 217 .
   PubMedGoogle Scholar
• Mendias , E. P. , Clark , M. C. and Guevara , E. B. 2001 . Women's self-perception and care practice: Implications for health care delivery . Health Care for Women International , 22 : 299 – 312 .
   PubMedGoogle Scholar
• Mok , E. , Chan , F. , Chan , V. and Yeung , E. 2003 . Family experience caring for terminally ill patients with cancer in Hong Kong . Cancer Nursing , 26 : 267 – 275 .
   PubMed Web of Science ®Google Scholar
• Morse , J. 1991 . Qualitative nursing research: A contemporary dialogue (rev. ed.) , Thousand Oaks, CA : Sage Publications, Inc .
   Google Scholar
• Nijboer , C. , Tempelaar , R. , Sanderman , R. , Triemstra , M. , Spruijt , R. J. and Van Den Bos , G. A. 1998 . Cancer and caregiving: The impact on the caregiver's health . Psycho-Oncology , 7 : 3 – 13 .
   PubMed Web of Science ®Google Scholar
• Nijboer , C. , Triemstra , M. , Tempelaar , R. , Mulder , M. , Sanderman , R. and Van De Bos , G. A. 2000 . Patterns of caregiver experiences among partners of cancer patients . Gerontologist , 40 : 738 – 746 .
   PubMed Web of Science ®Google Scholar
• Nijboer , C. , Triemstra , M. , Tempelaar , R. , Sanderman , R. and Van De Bos , G. A. 1999 . Determinants of caregiving experiences and mental health of partners of cancer patients . Cancer , 86 : 577 – 588 .
   PubMed Web of Science ®Google Scholar
• Office of Minority Health . 2007 . Cancer data/statistics Retrieved September 1, 2007, from http://www.omhrc.gov
   Google Scholar
• Pasacreta , J. V. , Barg , F. , Nuamah , I. and McCorkle , R. 2000 . Participant characteristics before and four months after attendance at a family caregiver education program . Cancer Nursing , 23 : 295 – 303 .
   PubMed Web of Science ®Google Scholar
• Perczek , R. , Carver , C. S. , Price , A. A. and Pozo-Kaderman , C. 2000 . Coping, mood, and aspects of personality in Spanish translation and evidence of convergence with English versions . Journal of Personality Assessment , 74 : 63 – 87 .
   PubMed Web of Science ®Google Scholar
• Pinquart , M. and Sorensen , S. 2005 . Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: A meta-analysis . The Gerontologist , 45 : 90 – 106 .
   PubMed Web of Science ®Google Scholar
• Polit , D. F. and Hungler , B. P. 1999 . Nursing research: Principles and methods , Philadelphia : Lippincott .
   Google Scholar
• Pratt , C. C. , Schmall , V. L. and Wright , S. 1986 . Family caregivers and dementia . Social Casework , 67 : 119 – 124 .
   Google Scholar
• Saint-Germain , M. A. , Bassford , T. L. and Montano , G. 1993 . Surveys and focus groups in health research with older Hispanic women . Qualitative Health Research , 3 : 341 – 367 .
   Google Scholar
• Sandelowski , M. 2000 . Combining qualitative and quantitative sampling, data collection, and analysis techniques in mixed-method studies . Research in Nursing & Health , 23 : 246 – 255 .
   PubMed Web of Science ®Google Scholar
• Sanders , S. 2005 . Is the glass half empty or half full? Reflections on strain and gain in caregivers of individuals with Alzheimer's disease . Social Work in Health Care , 40 ( 3 ) : 57 – 73 .
   PubMed Web of Science ®Google Scholar
• Schreiner , A. S. , Morimoto , T. , Arai , Y. and Zarit , S. 2006 . Assessing family caregiver's mental health using a statistically derived cut-off score for the Zarit Burden Interview . Aging & Mental Health , 10 : 107 – 111 .
   PubMed Web of Science ®Google Scholar
• Sharpe , L. , Butow , P. , Smith , C. , McConnell , D. and Clarke , S. 2005 . The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their careers . Psycho-Oncology , 14 : 102 – 114 .
   PubMed Web of Science ®Google Scholar
• Smedley , B. D. , Stith , A. Y. and Nelson , A. R. 2002 . Unequal treatment: Confronting racial and ethnic disparities in health care , Institute of Medicine Report Washington, DC : National Academy Press .
   Google Scholar
• Strauss , A. and Corbin , J. 1998 . Basics of qualitative research: Grounded theory procedures and techniques (2nd ed.) , Newbury Park, CA : Sage .
   Google Scholar
• Tashakkori , A. and Teddlie , C. 2003 . Issues and dilemmas in teaching research methods courses in social and behavioural sciences: US perspective . International Journal of Social Research Methodology , 6 ( 1 ) : 61 – 77 .
   Google Scholar
• Thomas , C. , Morris , S. M. and Harman , J. C. 2002 . Companions through cancer: The care given by informal careers in cancer contexts . Social Science & Medicine , 54 : 529 – 544 .
   PubMed Web of Science ®Google Scholar
• Tukey , J. W. 1977 . John W. Tukey's exploratory data analysis , Reading, MA : Addison-Wesley .
   Google Scholar
• Vitaliano , P. P. , Russo , J. , Young , H. M. , Teri , L. and Maiuro , R. D. 1991 . Predictors of burden in spouse caregivers of individuals with Alzheimer's disease . Psychology and Aging , 6 : 392 – 402 .
   PubMed Web of Science ®Google Scholar
• Ware , J. , Kosinski , M. and Keller , S. D. 1996 . A 12-Item Short-Form Health Survey: Construction of scales and preliminary tests of reliability and validity . Medical Care , 34 : 220 – 233 .
   PubMed Web of Science ®Google Scholar
• Ware , J. E. , Kosinski , M. , Turner-Bowker , D. M. and Gandek , B. 2007 . User's manual for SFv2 Health Survey (With a Supplement Documenting Sf-12 Health Survey) , Rhode Island : QualityMetric Incorporated and Health Assessment Lab .
   Google Scholar
• Wells , J. N. , Cagle , C. S. and Bradley , P. J. 2006 . Building on Mexican-American cultural values . Nursing , 36 ( 7 ) : 20 – 21 .
   PubMedGoogle Scholar
• Wells , J. N. , Cagle , C. , Bradley , P. and Barnes , D. 2008 . Voices of Mexican American caregivers for family members with cancer on becoming stronger . Journal of Transcultural Nursing , 19 : 223 – 233 .
   PubMed Web of Science ®Google Scholar
• World Health Organization (WHO) . 2003 . Joint WHO/FAO Expert Consultation on Diet, Nutrition and the Prevention of Chronic Diseases , Tech. Rep. Ser. 916 Geneva : Author .
   Google Scholar
• Zarit , S. H. , Orr , N. K. and Zarit , J. M. 1985 . The hidden victims of Alzheimer's disease: Families under stress , New York : New York University Press .
   Google Scholar
• Zarit , S. H. , Reever , K. E. and Bach-Peterson , J. 1980 . Relatives of impaired elderly: Correlates of feelings of burden . The Gerontologist , 35 : 225 – 232 .
   Google Scholar
• Zarit , S. H. and Zarit , J. M. 1987 . The Memory and Behavior Problems Checklist—1987R and the Burden Interview , Technical Report University Park, PA : Pennsylvania State University .
   Google Scholar