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Articles

Meanings of Feeling Well for Women With Fibromyalgia

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Pages 694-706 | Received 09 Nov 2011, Accepted 01 Oct 2012, Published online: 26 Mar 2013

REFERENCES

  • Arnold , L. M. , Crofford , L. J. , Mease , P. J. , Burgess , S. M. , Palmer , S. C. , Abetz , L. and Martin , S. A. 2008 . Patient perspectives on the impact of fibromyalgia . Patient Education and Counselling , 73 : 114 – 120 . doi:10.1016/j.pec.2008.06.005
  • Åsbring , P. and Närvänen , A.-L . 2002 . Women's experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia . Qualitative Health Research , 12 : 148 – 160 . doi:10.1177/104973230201200202
  • Åsbring , P. and Närvänen , A.-L. 2004 . Patient power and control: A study of women with uncertain illness trajectories . Qualitative Health Research , 14 : 226 – 240 . doi:10.1177/1049732303260682
  • Bennett , R. M. , Jones , J. , Turk , D. C. , Russell , I. J. and Matallana , L. 2007 . An Internet survey of 2,596 people with fibromyalgia . BMC Musculoskeletal Disorders , 8 : 27 doi:10.1186/1471-2474-8-27
  • Bennett , R. M. , Russell , J. , Cappelleri , J. C. , Bushmakin , A. G. , Zlateva , G. and Sadosky , A. 2010 . Identification of symptom and functional domains that fibromyalgia patients would like to see improved: A cluster analysis . BMC Musculoskeletal Disorders , 11 : 134 doi:10.1186/1471-2474-11-134
  • Buber , M. 1990 . Det mellanmänskliga [Elemente des Zwischenmenschlichen]. Ludvika, Sweden: Dualis Förlag AB. (Original German work published 1953)
  • Buber , M. 1997 . Distans och relation [Urdistanz und beziehung]. Ludvika, Sweden: Dualis Förlag AB. (Original German work published 1951)
  • Burckhardt , C. S. , Archenholtz , B. , Mannerkorpi , K. and Bjelle , A. 1993 . Quality of life of Swedish women with fibromyalgia syndrome, rheumatoid arthritis or systemic lupus erythematosus . Journal of Musculoskeletal Pain , 1 : 199 – 207 .
  • Burckhardt , C. S. , Clark , S. R. , O′Reilly , C. A. and Bennett , R. M. 1997 . Pain-coping strategies of women with fibromyalgia: Relationship to pain, fatigue and quality of life . Journal of Musculoskeletal Pain , 5 : 5 – 21 .
  • Charmaz , K. 2006 . Measuring pursuits, marking self: Meaning construction in chronic illness . International Journal of Qualitative Studies on Health and Well-Being , 1 : 27 – 37 . doi:10.1080/17482620500534488
  • Corbin , J. and Strauss , A. L. 1987 . Accompaniments of chronic illness: Changes in body, self, biography and biographical time . Research in the Sociology of Health Care , 6 : 249 – 281 .
  • Cudney , S. A. , Butler , M. R. , Weinert , C. and Sullivan , T. 2002 . Ten rural women living with fibromyalgia tell it like it is . Holistic Nursing Practice , 16 : 35 – 45 .
  • Dahlberg , K. , Dahlberg , H. and Nyström , M. 2008 . Reflective lifeworld research , Lund , , Sweden : Studentlitteratur .
  • Dahlberg , K. , Todres , L. and Galvin , K. 2009 . Lifeworld-led healthcare is more than patient-led care: An existential view of well-being . Medicine Health Care and Philosophy , 12 : 265 – 271 . doi:10.1007/s11019-008-9174-7
  • Frank , A. W. 2002 . At the will of the body. Reflections on illness , Boston, MA : Houghton Mifflin Company . New York, NY
  • Frankl , V. 1993 . Livet måste ha en mening , Stockholm , , Sweden : Natur och Kultur . [Man's search for meaning. An introduction to logotherapy], (Original work published 1959)
  • Gadamer , H.-G. 1996 . The enigma of health. The art of healing in a scientific age. , Cambridge , , UK : Polity Press .
  • Hallberg , L. R. M. and Bergman , S. 2011 . Minimizing the dysfunctional interplay between activity and recovery: A grounded theory on living with fibromyalgia . International Journal of Qualitative Studies in Health and Well-Being , 6 2. doi:10.3402/qhw.v6i2.7057
  • Healey-Ogden , M. J. and Austin , W. J. 2011 . Uncovering the lived experience of well-being . Qualitative Health Research , 21 : 85 – 96 . doi:10.1177/1049732310379113
  • Henriksson , C. M. 1995a . Living with continuous muscular pain—Patient perspectives. Part I: Encounter and consequences . Scandinavian Journal of Caring Science , 9 : 67 – 76 .
  • Henriksson , C. M. 1995b . Living with continuous muscular pain—Patient perspectives. Part II: Strategies for daily life . Scandinavian Journal of Caring Science , 9 : 77 – 86 .
  • Huynh , C. N. , Yanni , L. M. and Morgan , L. A. 2008 . Fibromyalgia: Diagnosis and management for the primary healthcare provider . Journal of Women's Health , 17 : 1379 – 1387 . doi:10.1089/jwh.2007.0656
  • Jumisko , E. , Lexell , J. and Söderberg , S. 2009 . The meaning of feeling well in people with moderate or severe traumatic brain injury . Journal of Clinical Nursing , 18 : 2273 – 2281 . doi:10.111/j.1365-2702.2008.02738.x
  • Juuso , P. , Skär , L. , Olsson , M. and Söderberg , S. 2011 . Living with a double burden: Meanings of pain for women with fibromyalgia . International Journal of Qualitative Studies on Health and Well-being , 6 3. doi:10.3402/qhw.v6i3.7184
  • Kengen Traska , T. , Rutledge , D. N. , Mouttappa , M. , Weiss , J. and Aquino , J. 2011 . Strategies used for managing symptoms by women with fibromyalgia . Journal of Clinical Nursing , epub ahead of print. doi:10.111/j.1365-2702.2010.03501.x
  • Kvale , S. and Brinkmann , S. 2009 . Den kvalitativa forskningsintervjun [The qualitative research interview] , (2nd ed.) , Lund, Sweden : Studentlitteratur .
  • LaChapelle , D. L. , Lavoie , S. and Boudreau , A. 2008 . The meaning and process of pain acceptance. Perceptions of women living with arthritis and fibromyalgia . Pain Research Management , 13 : 201 – 210 .
  • Lempp , H. K. , Hatch , S. L. , Carville , S. F. and Choy , E. H. 2009 . Patients’ experiences of living with and receiving treatment for fibromyalgia syndrome: A qualitative study . BMC Musculoskeletal Disorders , 10 124. doi:10.1186/1471-2474-10-124
  • Lindseth , A. and Norberg , A. 2004 . A phenomenological hermeneutical method for researching lived experience . Scandinavian Journal of Caring Science , 18 : 145 – 153 .
  • Löfgren , M. , Ekholm , J. and Öhman , A. 2006 . “A constant struggle”: Successful strategies of women in work despite fibromyalgia . Disability and Rehabilitation , 28 : 447 – 455 .
  • Madden , S. and Sim , J. 2006 . Creating meaning in fibromyalgia syndrome . Social Science & Medicine , 63 : 2962 – 2973 . doi:10.1016/j.socscimed.2006.06.020
  • Mease , P. 2005 . Fibromyalgia syndrome: Review of clinical presentation, pathogenesis, outcome measures and treatment . The Journal of Rheumatology , 75 : 6 – 21 .
  • Mishler , E. 1986 . Research interviewing: Context and narrative , London , , England : Harvard University Press .
  • Morse , J. M. 1997 . Responding to threats to integrity of self . Advances in Nursing Science , 19 : 21 – 36 .
  • Olsson , M. , Skär , L. and Söderberg , S. 2010 . Meanings of feeling well for women with multiple sclerosis . Qualitative Health Research , 20 : 1254 – 1261 . doi: 10.1177/1049732310371103
  • Paiva , E. S. and Jones , K. D. 2010 . Rational treatment of fibromyalgia for a solo practitioner . Best Practice & Research Clinical Rheumatology , 24 : 341 – 352 . doi:10.1016/j.berh.2009.12.010
  • Peterson , E. L. 2007 . Fibromyalgia—Management of a misunderstood disorder . Journal of American Academy of Nurse Practitioners , 19 : 341 – 348 . doi:10.111/j.1745-7599.2007.00235.x
  • Polit , D. F. and Beck , C. T. 2008 . Nursing research. Generating and assessing evidence for nursing practice , (8th ed.) , Philadelphia , PA : Lippincott Williams & Wilkins .
  • Råheim , M. and Håland , W. 2006 . Lived experience of chronic pain and fibromyalgia: Women's stories from daily life . Qualitative Health Research , 16 : 741 – 761 . doi:10.1177/1049732306288521
  • Register , C. 1989 . Living with chronic illness: Days of patience and passion , New York , NY : Bantam Books .
  • Ricoeur , P. 1976 . Interpretation theory: Discourse and the surplus of meaning , Fort Worth , TX : Texas Christian University Press .
  • Rodham , K. , Rance , N. and Blake , D. 2010 . A qualitative exploration of carers’ and patients’ experiences of fibromyalgia: One illness, different perspectives . Musculoskeletal Care , 8 : 68 – 77 . doi:10.1002/msc.167
  • Sallinen , M. , Kukkarainen , M. L. and Peltokallio , L. 2011 . Finally heard, believed and accepted—Peer support in the narratives of women with fibromyalgia . Patient Education and Counseling , 85 : e126 – e130 . doi:10.1016/j.pec.2011.02.011
  • Sandelowski , M. 1991 . Telling stories: Narrative approaches in qualitative research . Journal of Nursing Scholarship , 23 : 161 – 166 .
  • Saxena , A. and Solitar , B. M. 2010 . Fibromyalgia. Knowns, unknowns and current treatment . Bulletin of the NYU Hospital for Joint Diseases , 68 : 157 – 161 .
  • Schaefer , K. M. 2005 . The lived experience of fibromyalgia in African American women . Holistic Nursing Practice , 19 : 17 – 25 .
  • Söderberg , S. 1999 . Women's experiences of living with fibromyalgia: Struggling for dignity , (Medical dissertation.) : Umeå University, Umeå, Sweden .
  • Söderberg , S. and Lundman , B. 2001 . Transitions experienced by women with fibromyalgia . Health Care for Women International , 22 : 617 – 631 .
  • Söderberg , S. , Lundman , B. and Norberg , A. 1997 . Living with fibromyalgia: Sense of coherence, perception of well-being, and stress in daily life . Research in Nursing & Health , 20 : 495 – 503 .
  • Söderberg , S. , Lundman , B. and Norberg , A. 1999 . Struggling for dignity: The meaning of women's experience of living with fibromyalgia . Qualitative Health Research , 9 : 575 – 587 . doi:10.1177/104973299129122090
  • Söderberg , S. , Lundman , B. and Norberg , A. 2002 . The meaning of fatigue and tiredness by women with fibromyalgia and healthy women . Journal of Clinical Nursing , 11 : 247 – 255 .
  • Söderberg , S. and Norberg , A. 1995 . Metaphorical pain language among fibromyalgia patients . Scandinavian Journal of Caring Science , 9 : 55 – 59 .
  • Todres , L. and Galvin , K. 2010 . “Dwelling-mobility”: An existential theory of well-being . International Journal of Qualitative Studies in Health and Well-Being , 5 : 1 – 6 . doi:10.3402/qhw.v5i3.5444
  • Toombs , S. K. 1993 . The meaning of illness. A phenomenological account of the different perspectives of physician and patient. , Dordrecht, Netherlands : Kluwer Academic .
  • Undeland , M. and Malterud , K. 2007 . The fibromyalgia diagnosis—Hardly helpful for the patients? A qualitative focus group study . Scandinavian Journal of Primary Health Care , 25 : 250 – 255 . doi:10.1080/02813430701706568
  • van Wilgen , C. P. , Bloten , H. and Oeseburg , B. 2007 . Results of a multidisciplinary program for patients with fibromyalgia implemented in the primary care . Disability and Rehabilitation , 29 : 1207 – 1213 .
  • Wolfe , F. , Smythe , H. A. , Yunus , M. B. , Bennett , R. M. , Bomardier , C. , Goldenberg , D. L. and … Sheon , R. P. 1990 . The American College of Rheumatology 1990 criteria for the classification of fibromyalgia . Arthritis and Rheumatism , 33 : 160 – 172 .

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