The experience of women carriers of BRCA mutations following risk-reducing surgery: A cultural perspective

References

• Andrews, L., Meiser, B., Apicella, C., & Tucker, K. (2004). Psychological impact of genetic testing for breast cancer susceptibility in women of Ashkenazi Jewish background: A prospective study. Genetic Testing, 8, 240–247.‏ doi:10.1089/gte.2004.8.240
   PubMedGoogle Scholar
• Antonovsky, A. (1979). Health, stress and coping. San Francisco, CA: Jossey-Bass.
   Google Scholar
• Bartky, S. L. (1997). Foucault, femininity, and the modernization of patriarchal power. In K. Conboy, N. Medina & S. Stanbury (Eds.), Writing on the body: Female embodiment and feminist theory (pp. 122–181). New York, NY: Columbia University Press.
   Google Scholar
• Baxter, L. A., & Montgomery, B. M. (1996). Relating: Dialogues and dialectics. New York, NY: Guilford Press.
   Google Scholar
• Berger, J. (1977). Ways of seeing. New York, NY: Penguin Books.
   Google Scholar
• Bordo, S. (2003). Unbearable weight: Feminism, western culture, and the body. Berkeley, CA: University of California Press.
   Google Scholar
• Brueggemann, B. J., Garland-Thomson, R., & Kleege, G. (2005). What her body taught (or teaching about and with a disability): A conversation. Feminist Studies, 31, 13–33. URL http://go.galegroup.com/ps/i.do?
   Web of Science ®Google Scholar
• Bruner J. (1990). Acts of meaning. Cambridge, MA: Harvard University Press.
   Google Scholar
• Bylund, C. L., Fisher, C. L., Brashers, D., Edgerson, S., Glogowski, E. A., Boyar, S. R., Kemel, Y., Spencer, S., & Kissane, D. (2012). Sources of uncertainty about daughters’ breast cancer risk that emerge during genetic counseling consultations. Genetic Counseling, 21, 292–304. doi:10.1007/s10897-015-9889-6.
   PubMed Web of Science ®Google Scholar
• Campfield-Bonadies, D., Moyer, A., & Matloff, E. T. (2011). What I wish I'd known before surgery: BRCA carriers’ perspectives after bilateral salipingo-oophorectomy. Familial Cancer, 10, 79–85. doi:10.1007/s10689-010-9384-z.
   PubMed Web of Science ®Google Scholar
• Carmeli, Y. S., & Applebaum, K. (2004). Consumption and market society in Israel. Oxford, UK: Berg.
   Google Scholar
• Crawford, R. (2004). Risk, ritual, and the management of control and anxiety in medical culture. Health, 8, 505–528.‏ doi:10.1177/1363459304045701
   PubMed Web of Science ®Google Scholar
• Crotser, C. B., & Dickerson, S. S. (2010). Women receiving news of a family BRCA1/2 mutation: Messages of fear and empowerment. Journal of Nursing Scholarship, 42, 367–378. doi:10.1111/j.1547-5069.2010.01366.x
   PubMed Web of Science ®Google Scholar
• Dagan, E., & Goldblatt, H. (2009). The twilight zone between health and sickness: A qualitative exploration with asymptomatic BRCA1 and 2 mutation carriers. Women and Health, 49, 263–279. doi:10.1080/03630240903158321
   PubMed Web of Science ®Google Scholar
• Entwistle, J. (2000). The fashioned body: Fashion, dress and modern social theory. Cambridge, UK: Polity Press.
   Google Scholar
• Finch, A., & Narod, S. A. (2011). Quality of life and health status after prophylactic salpingo-oophorectomy in women who carry a BRCA mutation: A review. Maturitas, 70, 261–265. doi:10.1016/j.maturitas.2011.08.001
   PubMed Web of Science ®Google Scholar
• Friedman, L. C., & Kramer, R. M. (2005). Reproductive issues for women with BRCA mutations. Journal of the National Cancer Institute Monographs, 34, 83–86. doi:10.1093/jncimonographs/lgi012
   Google Scholar
• Gavriel-Fried, B., Shilo, G., & Cohen, O. (2012). How do social workers define the concept of family? The British Journal of Social Work, 44, 992–1010. doi:10.1093/bjsw/bcs176
   Web of Science ®Google Scholar
• Goffman, E. (1959). The presentation of self in everyday life. New York, NY: Random House.
   Google Scholar
• Gordon, O. K. (2010). Positive results: Making the best decisions when you're at high risk for breast or ovarian cancer. Amherst, NY: Prometheus Books.
   Google Scholar
• Guba, E. G. & Lincoln, Y. (1985). Naturalist inquiry.‏ Thousand Oaks, CA: Sage.
   Google Scholar
• Hammer, G. (2012). Blind women's appearance management: Negotiating normalcy between discipline and pleasure. Gender and Society, 26, 403–432. doi:10.1177/0891243212438263
   Web of Science ®Google Scholar
• Hashiloni-Dolev, Y. (2006). Between mothers, fetuses and society: Reproductive genetics in the Israeli-Jewish context. Nashim: A Journal of Jewish Women's Studies and Gender Issues, 12, 129–150.‏ doi:10.1353/nsh.2006.0021
   Google Scholar
• Heiniger, L., Price, M., Charles, M., & Butow, P. (2015). Facilitators and challenges in psychosocial adaptation to being at increased familial risk of breast cancer. Journal of Genetic Counseling, 24, 890–907. doi:10.1007/s10897-015-9824-x
   Google Scholar
• Hesse-Biber, S. (2014). The genetic testing experience of BRCA-positive women: Deciding between surveillance and surgery. Qualitative Health Research, 24, 773–789. doi:10.1177/1049732314529666
   PubMed Web of Science ®Google Scholar
• Hooker, G. W., King, L., Vanhusen, L., Graves, K., Peshkin, B. N., Isaacs, C., Taylor, K. L., Poggi, E., & Schwartz, M. D. (2014). Long-term satisfaction and quality of life following risk reducing surgery in BRCA1/2 mutation carriers. Hereditary Cancer in Clinical Practice, 12, 9. doi:10.1186/1897-4287-12-9
   PubMed Web of Science ®Google Scholar
• Israel Cancer Association. (2015). Breast cancer. Retrieved from http://www.cancer.org.il.
   Google Scholar
• Julian-Reynier, C. M., Bouchard, L. J., Evans, D. G., Eisinger, F. A., Foulkes, W. D., Kerr, B., Blancquaert, I. R., Moatti, J. P., & Sobol, H. H. (2001). Women's attitudes toward preventive strategies for hereditary breast or ovarian carcinoma differ from one country to another. Cancer, 92, 959–968. doi:10.1186/1472-6874-10-24
   PubMed Web of Science ®Google Scholar
• King, A. (2004). The prisoner of Foucault and the discipline of the female body. Journal of International Women's Studies, 5, 29–40. Retrieved from http://vc.bridgew.edu/jiws/vol5/iss2/4
   Google Scholar
• King, M. C., Levy-Lahadm E., & Lahad, A. (2014). Population-based screening for BRCA1 and BRCA2: 2014 Lasker Award. JAMA, 312, 1091–1092. doi:10.1001/jama.2014.12483
   PubMed Web of Science ®Google Scholar
• Kirmayer, L. J. (2012). Rethinking cultural competence. Transcultural Psychiatry, 49, 149–164. doi:10.1177/1363461512444673
   PubMed Web of Science ®Google Scholar
• Koslow, S, Pharmer, L. A., Scott, A. M., Stempel, M., Morrow, M., Pusic, A. L., & King, T. A. (2013). Long-term patient-reported satisfaction after contralateral prophylactic mastectomy and implant reconstruction. Annals of Surgical Oncology, 11, 3422–9. doi:10.1245/s10434-013-3026-2
   Web of Science ®Google Scholar
• Kram, V., Peretz, T., & Sagi, M. (2006). Acceptance of preventive surgeries by Israeli women who had undergone BRCA testing. Familial Cancer, 5, 327–35. doi:10.1007/s10689-006-0002-z
   PubMed Web of Science ®Google Scholar
• Lederberg, M. (1998). The family of the cancer patient. In J. Holland (Ed.), Psychooncology (pp. 981–993). New York, NY: Oxford.
   Google Scholar
• Lemish, D. & Barzel, I. (2000). “Four mothers”: The womb in the public sphere. European Journal of Communication, 15, 147–169.‏ doi:10.1177/0267323100015002001
   Web of Science ®Google Scholar
• Lieblich, A., Tuval-Mashiach, R., & Zilber, T. (1998). Narrative research: Reading, analysis and interpretation. London, UK: Sage.
   Google Scholar
• Manderson, L. (2005). Rethinking wellbeing: Essays on health, disability and disadvantage. Perth, Australia: Curtin University Press.
   Google Scholar
• Manderson, L. (2011). Surface tensions: Surgery, bodily boundaries, and the social self. Walnut Creek, CA: Left Coast Press.
   Google Scholar
• Metcalfe, K. A., Birenbaum-Carmeli, D., Lubinski, J., Gronwald, J., Lynch, H., Moller, P., Ghadirian, P., Foulkes, W. D., Klijn, J., Friedman, E., Kim-Sing, C., Ainsworth, P., Rosen, B., Domchek, S., Wagner, T., Tung, N., Manoukian, S., Couch, F., Sun, P., Narod, S. A., & the Hereditary Breast Cancer Clinical Study Group. (2008). International variation in rates of uptake of preventive options in BRCA1 and BRCA2 mutation carriers. International Journal of Cancer, 122, 2017–2022. doi:10.1002/ijc.23340
   PubMed Web of Science ®Google Scholar
• Metcalfe, K. A., Poll, A., Llacuachaqui, M., Nanda, S, Tulman, A., Mian, N., Sun, P., & Narod, S. A. (2010). Patient satisfaction and cancer-related distress among unselected Jewish women undergoing genetic testing for BRCA1 and BRCA2. Clinical Genetics, 78, 411–417. doi:10.1111/j.1399-0004.2010.01499.x
   PubMed Web of Science ®Google Scholar
• Mishler, E. (1986). Research interview: Context and narrative. Cambridge, MA: Harvard University Press.
   Google Scholar
• Navarro de Souza, A., Groleau, D., Loiselle, C. G., Foulkes, W. D., & Wong, N. (2014). Cultural aspects of healthy BRCA carriers from two ethnocultural groups. Qualitative Health Research, 24, 665–681. doi:10.1177/1049732314528756
   PubMed Web of Science ®Google Scholar
• Phillips, K. A., Warner, E., Meschino, W. S., Hunter, J., Abdolell, M., Glendon, G., & Goodwin, P. J. (2000). Perceptions of Ashkenazi Jewish breast cancer patients on genetic testing for mutations in BRCA1 and BRCA2. Clinical Genetics, 57, 376–383.‏ doi:10.1034/j.1399-0004.2000.570508.x
   PubMed Web of Science ®Google Scholar
• Roach-Higgins, M. E., & Eicher, J. B. (1992). Dress and identity. Clothing and Textiles Research Journal, 10, 1–8. doi:10.1177/0887302X9201000401
   Google Scholar
• Samama, D., Hasson-Ohayon, I., Perry, S., Morag, O., & Goldzweig, G. (2014) Preliminary report of the relationship between experience of death of a relative, illness perception, and psychological outcome among BRCA carriers. Psychology, Health and Medicine, 19, 698–704. doi:10.1080/13548506.2013.861600
   PubMed Web of Science ®Google Scholar
• Sered, S. (2000). What makes women sick? Maternity, modesty, and militarism in Israeli society. Hanover, MA: Brandeis University Press.
   Google Scholar
• Smith, K. R., Ellington, L., Chan, A. Y., Croyle, R. T., & Botkin, J. R. (2004). Fertility intentions following testing for a BRCA1 gene mutation. Cancer Epidemiology Biomarkers and Prevention, 13, 733–740. doi:10.1089/gtmb.2013.0513
   PubMed Web of Science ®Google Scholar
• Smith, B., & Sparkes, A. (2006). Narrative inquiry in psychology: Exploring the tensions within. Qualitative Research in Psychology, 3, 169–192. doi:10.1191/1478088706qrp068oa
   Google Scholar
• Underhill, M., & Crotser C. (2013). Finding the balance: Decision support needs of women without a cancer diagnosis with a known hereditary predisposition to breast and ovarian cancer. Nursing Research, 62, E52. doi:10.12968/ijpn.2004.10.6.13268.
   Google Scholar
• Weitz, R. (2001). Women and their hair: Seeking power through resistance and accommodation. Gender and Society, 15, 667–86. doi:10.1177/089124301015005003
   Web of Science ®Google Scholar
• Werner-Lin, A. (2007). Danger zones: Risk perceptions of young women from families with hereditary breast and ovarian cancer. Family Process, 46(3), 335–350. doi:10.1111/j.1545-5300.2007.00215.x.
   PubMed Web of Science ®Google Scholar
• Werner-Lin, A. (2008). Beating the biological clock: The compressed family life cycle of young women with BRCA gene alterations. Social Work in Health Care, 47, 416–437.‏ doi:10.1080/00981380802173509.
   PubMed Web of Science ®Google Scholar
• Yefet, K. C. (2016). Born to be a mother: Anatomy, autonomy, and substantive citizenship for women in Israel. Harvard Journal of Law and Gender, 39, 257–257.
   Google Scholar