Nurse perspectives on supporting children and youth who use augmentative and alternative communication (AAC) in the pediatric intensive care unit

References

• Avis, M., & Reardon, R. (2008). Understanding the views of parents of children with special needs about the nursing care their child receives when in hospital: A qualitative study. Journal of Child Health Care: For Professionals Working with Children in the Hospital and Community, 12(1), 7–17. doi:10.1177/1367493507085615
   PubMed Web of Science ®Google Scholar
• Beukelman, D. R., & Light, J. C. (2020). Augmentative & Alternative Communication: Supporting Children and adults with complex communication needs. Brookes.
   Google Scholar
• Blackstone, S. W. (2015). Issues and challenges in advancing effective patient-provider communication. In S. W. Blackstone, D. R. Beukelman, & K. M. Yorkston (Eds.), Patient-provider communication: Roles for speech-language pathologists and other health care professionals. (pp. 9–35). San Diego, CA: Plural Publishing.
   Google Scholar
• Brantlinger, E., Jimenez, R., Klingner, J., Pugach, M., & Richardson, V. (2005). Qualitative studies in special education. Exceptional Children, 71(2), 195–207. doi:10.1177/001440290507100205
   Web of Science ®Google Scholar
• Colville, G., Rutt, M., Berger, Z., Titman, P., & Brierley, J. (2018). Moral distress, trauma and burnout in staff in relation to changes in PICU outcomes, challenging cases and media involvement in disagreements about end-of-life care. Archives of Diseases in Childhood, 103(1), A192.2–A193. doi:10.1136/archdischild-2018-rcpch.459
   Google Scholar
• Costello, J. (2000). AAC intervention in the intensive care unit: The children’s hospital Boston model. Augmentative and Alternative Communication, 16(3), 137–153. doi:10.1080/07434610012331279004
   Google Scholar
• Costello, J. M., Patak, L., & Pritchard, J. (2010). Communication vulnerable patients in the pediatric ICU: Enhancing care through augmentative and alternative communication. Journal of Pediatric Rehabilitation Medicine, 3(4), 289–301. doi:10.3233/prm-2010-0140
   PubMedGoogle Scholar
• Costello, J. M., Santiago, R. M., & Blackstone, S. W. (2015). Pediatric acute and intensive care in hospitals. In S. W. Blackstone, D. R. Beukelman, & K. M. Yorkston (Eds.), Patient-provider communication: Roles for speech-language pathologists and other health care professionals. (pp. 187–223). San Diego, CA: Plural Publishing.
   Google Scholar
• Crowe, L., Young, J., & Turner, M. J. (2021). What is the prevalence and risk factors of burnout among pediatric intensive care staff (PICU)? A review. Translational Pediatrics, 10(10), 2825–2835. doi:10.21037/tp-20-400
   PubMed Web of Science ®Google Scholar
• Davidson, J. E., Jones, C., & Bienvenu, O. J. (2012). Family response to critical illness: Postintensive care syndrome-family. Critical Care Medicine, 40(2), 618–624. doi:10.1097/CCM.0b013e318236ebf9
   PubMed Web of Science ®Google Scholar
• Ely, E. W. (2017). The ABCDEF bundle: Science and philosophy of how ICU liberation serves patients and families. Critical Care Medicine, 45(2), 321–330. doi:10.1097/ccm.0000000000002175
   PubMed Web of Science ®Google Scholar
• Gormley, J., & Light, J. (2019). Providing services to individuals with complex communication needs in the inpatient rehabilitation setting: The experiences and perspectives of speech-language pathologists. American Journal of Speech-Language Pathology, 28(2), 456–468. doi:10.1044/2018_AJSLP-18-0076
   PubMed Web of Science ®Google Scholar
• Gormley, J., McNaughton, D., & Light, J. (2023). Supporting children’s communication of choices during inpatient rehabilitation: Effects of a mobile training for health care providers. American Journal of Speech-Language Pathology, 32(2), 545–564. doi:10.1044/2022_AJSLP-22-00200
   PubMed Web of Science ®Google Scholar
• Guntupalli, K. K., Wachtel, S., Mallampalli, A., & Surani, S. (2014). Burnout in the intensive care unit professionals. Indian Journal of Critical Care Medicine: Peer-Reviewed, Official Publication of Indian Society of Critical Care Medicine, 18(3), 139–143. doi:10.4103/0972-5229.128703
   PubMedGoogle Scholar
• Happ, M. B., Garrett, K. L., Tate, J. A., DiVirgilio, D., Houze, M. P., Demirci, J. R., George, E., & Sereika, S. M. (2014). Effect of a multi-level intervention on nurse-patient communication in the intensive care unit: Results of the SPEACS trial. Heart & Lung: The Journal of Critical Care, 43(2), 89–98. doi:10.1016/j.hrtlng.2013.11.010
   PubMed Web of Science ®Google Scholar
• Hemsley, B., Kuek, M., Bastock, K., Scarinci, N., & Davidson, B. (2013). Parents and children with cerebral palsy discuss communication needs in hospital. Developmental Neurorehabilitation, 16(6), 363–374. doi:10.3109/17518423.2012.758187
   PubMed Web of Science ®Google Scholar
• Hemsley, B., Lee, S., Munro, K., Seedat, N., Bastock, K., & Davidson, B. (2014). Supporting communication for children with cerebral palsy in hospital: Views of community and hospital staff. Developmental Neurorehabilitation, 17(3), 156–166. doi:10.3109/17518423.2012.741149
   PubMed Web of Science ®Google Scholar
• Holm, A., Viftrup, A., Karlsson, V., Nikolajsen, L., & Dreyer, P. (2020). Nurses’ communication with mechanically ventilated patients in the intensive care unit: Umbrella review. Journal of Advanced Nursing, 76(11), 2909–2920. doi:10.1111/jan.14524
   PubMed Web of Science ®Google Scholar
• Hurtig, R. R., Alper, R., Altschuler, T., Gendreau, S., Gormley, J., Marshall, S., Santiago, R., & Scibilia, S. (2020). Improving outcomes for hospitalized patients pre- and post-COVID-19. Perspectives of the ASHA Special Interest Groups, 5(6), 1577–1585. doi:10.1044/2020_PERSP-20-00144
   Google Scholar
• Hurtig, R. R., Alper, R. M., & Berkowitz, B. (2018). The cost of not addressing the communication barriers faced by hospitalized patients. Perspectives of the ASHA Special Interest Groups, 3(12), 99–112. doi:10.1044/persp3.sig12.99
   PubMedGoogle Scholar
• Istanboulian, L., Rose, L., Yunusova, Y., Gorospe, F., & Dale, C. (2019). Barriers to and facilitators for use of augmentative and alternative communication and voice restorative devices in the adult intensive care unit: A scoping review protocol. Systematic Reviews, 8(1), 311. doi:10.1186/s13643-019-1232-0
   PubMed Web of Science ®Google Scholar
• Kaushik, V., & Walsh, C. A. (2019). Pragmatism as a research paradigm and its implications for social work research. Social Sciences, 8(9), 255. doi:10.3390/socsci8090255
   Google Scholar
• Patton, M. Q. (2015). Qualitative Research & Evaluation Methods: Integrating Theory and Practice. Sage.
   Google Scholar
• Pun, B. T., Balas, M. C., Barnes-Daly, M. A., Thompson, J. L., Aldrich, J. M., Barr, J., Byrum, D., Carson, S. S., Devlin, J. W., Engel, H. J., Esbrook, C. L., Hargett, K. D., Harmon, L., Hielsberg, C., Jackson, J. C., Kelly, T. L., Kumar, V., Millner, L., Morse, A., … Ely, E. W. (2019). Caring for critically ill patients with the ABCDEF bundle: Results of the ICU liberation collaborative in over 15,000 ADULTS. Critical Care Medicine, 47(1), 3–14. doi:10.1097/ccm.0000000000003482
   PubMed Web of Science ®Google Scholar
• Rennick, J. E., & Rashotte, J. (2009). Psychological outcomes in children following pediatric intensive care unit hospitalization: A systematic review of the research. Journal of Child Health Care: For Professionals Working with Children in the Hospital and Community, 13(2), 128–149. doi:10.1177/1367493509102472
   PubMed Web of Science ®Google Scholar
• Rennick, J. E., Dougherty, G., Chambers, C., Stremler, R., Childerhose, J. E., Stack, D. M., Harrison, D., Campbell-Yeo, M., Dryden-Palmer, K., Zhang, X., & Hutchison, J. (2014). Children’s psychological and behavioral responses following pediatric intensive care unit hospitalization: The caring intensively study [Article]. BMC Pediatrics, 14(1), 1–11. doi:10.1186/1471-2431-14-276
   PubMedGoogle Scholar
• Saldaña, J. (2021). The coding manual for qualitative researchers. (4th ed.). Sage.
   Google Scholar
• Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health, 23(4), 334–340. doi:10.1002/1098-240X(200008)23:4%3C334::AID-NUR9%3E3.0.CO;2-G
   PubMed Web of Science ®Google Scholar
• Sandelowski, M. (2010). What’s in a name? Qualitative description revisited. Research in Nursing & Health, 33(1), 77–84. doi:10.1002/nur.20362
   PubMed Web of Science ®Google Scholar
• Santiago, R., & Costello, J. M. (2013). AAC assessment and intervention in pediatric ICU/acute care: From referral through continuum of care. Perspectives on Augmentative and Alternative Communication, 22(2), 102–111. doi:10.1044/aac22.2.102
   Google Scholar
• Shenton, A. K. (2004). Strategies for ensuring trustworthiness in qualitative research projects. Education for Information, 22(2), 63–75. doi:10.3233/EFI-2004-22201
   Google Scholar
• Simmons, A., McCarthy, J., Koszalinski, R., Hedrick, M., Reilly, K., & Hamby, E. (2021). Knowledge and experiences with augmentative and alternative communication by paediatric nurses: A pilot study. Disability and Rehabilitation. Assistive Technology, 16(6), 567–579. doi:10.1080/17483107.2019.1685015
   PubMed Web of Science ®Google Scholar
• Thomas, D. R. (2006). A general inductive approach for analyzing qualitative evaluation data. American Journal of Evaluation, 27(2), 237–246. doi:10.1177/1098214005283748
   Web of Science ®Google Scholar
• Thunberg, G., Buchholz, M., & Nilsson, S. (2016). Strategies that assist children with communicative disability during hospital stay: Parents’ perceptions and ideas. Journal of Child Health Care: For Professionals Working with Children in the Hospital and Community, 20(2), 224–233. doi:10.1177/1367493514568298
   PubMed Web of Science ®Google Scholar
• Thunberg, G., Tornhage, C.-J., & Nilsson, S. (2016). Evaluating the impact of AAC interventions in reducing hospitalization-related stress: Challenges and possibilities. Augmentative and Alternative Communication (Baltimore, Md. : 1985)), 32(2), 143–150. doi:10.3109/07434618.2016.1157703
   PubMed Web of Science ®Google Scholar
• Walz, A., Canter, M. O., & Betters, K. (2020). The ICU liberation bundle and strategies for implementation in pediatrics. Current Pediatrics Reports, 8(3), 69–78. doi:10.1007/s40124-020-00216-7
   PubMedGoogle Scholar