MAKING DECISIONS ABOUT TUBE FEEDING FOR SEVERELY DEMENTED PATIENTS AT THE END OF LIFE: CLINICAL, LEGAL, AND ETHICAL CONSIDERATIONS

References

• Ahronheim, J. C. (1984, Summer). Artificial feeding: What's involved? Choice in Dying Newsletter.
   Google Scholar
• Ahronheim , J. C. and Gasner , M. R. 1990 . The sloganism of starvation . The Lancet , 335 : 278 – 279 .
   PubMed Web of Science ®Google Scholar
• American College of Physicians. (1989). American College of Physicians ethics manual (2nd ed.). Annals of Internal Medicine, 111, 327-335.
   Google Scholar
• American College of Physicians. (1992). American College of Physicians ethics manual (3rd ed.). Annals of Internal Medicine, 117, 947-960.
   Google Scholar
• Nurses' Association. , American . 1989 . Guidelines on withdrawing or withholding food and fluid . Biolaw , 2 : 12 – 16 .
   Google Scholar
• American Nurses' Association . 1992 . Compendium of position statements on the nurse's role in end-of-life decisions , Washington, DC : American Nurses Publishing .
   Google Scholar
• American Nurses' Association . 1994a . Position statement on active euthanasia , Washington, DC : American Nurses Publishing .
   Google Scholar
• American Nurses' Association . 1994b . Position statement on assisted suicide , Washington, DC : American Nurses Publishing .
   Google Scholar
• American Thoracic Society. 1991 . Withholding and withdrawing life-sustaining therapy . Annals of Internal Medicine , 115 : 478 – 485 .
   PubMed Web of Science ®Google Scholar
• Andrews, M. R., & Levine, A. M. (1989, January/February). Dehydration in the terminal patient: Perception of hospice nurses. The American Journal of Hospice Care, 31-34.
   Google Scholar
• Billings , J. A. 1985 . Comfort measures for the terminally ill: Is dehydration painful? . Journal of the American Geriatric Society , 33 : 808 – 810 .
   PubMed Web of Science ®Google Scholar
• Cantor , N. L. 1989 . The permanently unconscious patient, non-feeding, and euthanasia . American Journal of Law and Medicine , 15 : 381 – 437 .
   PubMed Web of Science ®Google Scholar
• Catholic Health Association of the United States. (1993). Care of the dying: A Catholic perspective. St. Louis: Author.
   Google Scholar
• Choice in Dying. (1994a, December). State statutes governing nonhospital DNR orders. New York: Author.
   Google Scholar
• Choice in Dying. (1994b). Fact Sheets. In Right to die law digest. New York: Author.
   Google Scholar
• Collaud , T. and Rapin , C.-H. 1991 . Dehydration in dying patients: Study with physicians in French-speaking Switzerland . Journal of Pain and Symptom Management , 6 : 230 – 240 .
   PubMed Web of Science ®Google Scholar
• Council on Ethical and Judicial Affairs. (1982). Quality of life. Code of medical ethics: Current opinions with annotations (Sect 2.10, pp. 9-10). Chicago: American Medical Association.
   Google Scholar
• Council on Ethical and Judicial Affairs. (1990). Persistent vegetative state and the decision to withdraw or withhold life support. Journal of the American Medical Association, 263, 426-30.
   Google Scholar
• Ely , J. W. , Peters , P. G. , Zweig , S. , Elder , N. and Schneider , F. D. 1992 . The physicians' decisions to use tube feedings: The role of the family, the living will, and the Cruzan decision . Journal of the American Geriatric Association , 40 : 471 – 475 .
   PubMed Web of Science ®Google Scholar
• Enck , R. E. Ed. 1994 . The medical care of terminally ill patients , Baltimore : The Johns Hopkins University Press .
   Google Scholar
• Fromme , D. , Questiaux , E. , Gauutier , M. and Schwarzenberg , L. 1984 . Voluntary total fasting: A challenge of the medical community . The Lancet , 324 : 1451 – 1452 .
   Google Scholar
• Hafemeister , T. L. and Hannaford , P. L. 1996 . Resolving disputes over life-sustaining treatment: A health care provider's guide , Williamsburg, VA : National Center for State Courts .
   Google Scholar
• Hastings Center. (1987). Guidelines on the termination of life-sustaining treatment and care of the dying. Briarcliff Manor, NY: Hastings Center.
   Google Scholar
• Hodges , M. O. , Tolle , S. W. , Stocking , C. and Cassel , C. K. 1994 . Tube feeding: Internists' attitudes regarding ethical obligations . Archives of Internal Medicine , 154 : 1013 – 1020 .
   PubMed Web of Science ®Google Scholar
• Oliver , David. 1984 . Terminal dehydration . The Lancet , 323 : 631
   Google Scholar
• Post , S. G. 1990 . Nutrition, hydration, and the demented elderly . The Journal of Medical Humanities , 11 : 185 – 192 .
   PubMedGoogle Scholar
• President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. (1983). Deciding to forego life-sustaining treatment: A report on ethical, medical, and legal issues in treatment decisions. Washington, DC: Government Printing Office.
   Google Scholar
• Council on Ethical and Judicial Affairs. (1991, July). Report 34: Decisions to forgo life-sustaining treatment for incompetent patient. Code of medical ethics. Chicago, IL: American Medical Association.
   Google Scholar
• Council on Ethical and Judicial Affairs. 1992 . Decisions near the end of life . Journal of the American Medical Association , 267 : 2229 – 2233 .
   Web of Science ®Google Scholar
• Council on Ethical and Judicial Affairs. 1994a . Physician assisted suicide . Issues in Law and Medicine , 10 : 91 – 97 .
   PubMedGoogle Scholar
• Council on Ethical and Judicial Affairs. (1994b). Withholding or withdrawing life-sustaining treatment. Code of medical ethics: Current opinions with annotations (Section 2.20, pp. 36-38). Chicago, IL.: American Medical Association.
   Google Scholar
• Cranford , R. E. 1991 . Neurological syndromes and prolonged survival: When can artificial nutrition and hydration be foregone? . Law, Medicine, and Health Care , 19 : 13 – 22 .
   PubMedGoogle Scholar
• Cundiff , D. 1992 . Euthanasia is not the answer: A hospice physician's view , Totowa, NJ : Humana Press .
   Google Scholar
• Printz , L. A. 1988 . Is withholding hydration a valid comfort measure in the terminally ill?" . Geriatrics , 43 : 84 – 88 .
   PubMed Web of Science ®Google Scholar
• Printz , L. A. 1992 . Terminal hydration: A compassionate treatment . Archives of Internal Medicine , 152 : 697 – 700 .
   PubMed Web of Science ®Google Scholar
• Schmitz , P. and O'Brien , M. 1989 . “ Observation on nutrition and hydration in dying cancer patients ” . In By no extraordinary means: The choice to forgo life-sustaining food and water , Edited by: Lynn , J. 29 – 38 . Bloomington, IN : University Press .
   Google Scholar
• Shils , M. E. , Olson , J. A. and Shike , M. Eds. 1994 . Modern nutrition in health and disease , 8th , Philadelphia : Lea and Febiger .
   Google Scholar
• Siegler , M. and Shiedermayer , D. L. 1987 . Should fluid and nutritional support be withheld from terminally ill patients?: Tube feeding in hospice settings . The American Journal of Hospice Care , 4 : 32 – 35 .
   PubMedGoogle Scholar
• Solomon , M. Z. 1993 . Decisions near the end of life: Professional views on life-sustaining treatments . American Journal of Public Health , 83 : 14 – 25 .
   PubMed Web of Science ®Google Scholar
• Sullivan , R. J. 1993 . Accepting death without artificial nutrition and hydration . Journal of General Internal Medicine , 8 : 220 – 224 .
   PubMed Web of Science ®Google Scholar
• Sutcliffe , J. 1994 . Palliative care: Terminal dehydration . Nursing Times , 90 : 60 – 3 .
   PubMedGoogle Scholar
• Uniform Law Commissioners: See National Conference of Commissioners on Uniform State Laws.
   Google Scholar
• Volicer , L. , Rheaume , Y. , Brown , J. , Fabiszewski , K. and Brady , R. 1986 . Hospice approach to the treatment of patients with advanced dementia of the Alzheimer's type . Journal of the American Medical Association , 256 : 2210 – 2213 .
   PubMed Web of Science ®Google Scholar
• Walshe , T. M. and Leonard , C. 1985 . PVS: Extension of the syndrome to include chronic disorders . Archives of Neurology , 42 : 1045 – 47 .
   PubMed Web of Science ®Google Scholar
• Wanzer , S. 1984 . The physicians responsibility toward hopelessly ill patients . New England Journal of Medicine , 310 : 955 – 959 .
   PubMed Web of Science ®Google Scholar
• Weir , R. F. and Gostin , L. 1990 . Decisions to abate life-sustaining treatment for nonautonomous patients: Ethical standards and legal liability for physicians after Cruzan . Journal of the American Medical Association , 264 : 1846 – 1853 .
   PubMed Web of Science ®Google Scholar
• Wicclair, M. R. (1993). Ethics and the elderly. New York: Oxford University Press.
   Google Scholar
• Justice , C. 1995 . The 'natural' death while not eating: A type of palliative care in Banaras, India . Journal of Palliative Care , 11 : 38 – 42 .
   PubMed Web of Science ®Google Scholar
• Kalk , W. and Veriawa , Y. 1991 . Hospital management of voluntary total fasting among political prisoners . The Lancet , 337 : 660 – 662 .
   PubMed Web of Science ®Google Scholar
• Kapp , M. B. and Lo , B. 1985 . Legal perceptions and medical decisionmaking. (Contract Report, Office of Technology Assessment) , Washington, DC : U.S. Congress .
   Google Scholar
• Lemonick, M. D. (1992, December 21). The biology of malnutrition makes rehabilitation difficult. Time.
   Google Scholar
• Lindgren , J. 1993 . Death by default . Law and Contemporary Problems , 56 : 186 – 254 .
   Google Scholar
• Luchins , D.J. and Hanrahan , P. 1993 . What is appropriate health care for end-stage dementia? . Journal of the American Geriatric Association , 41 : 25 – 30 .
   PubMed Web of Science ®Google Scholar
• Lynn , J. Ed. 1989a . By no extraordinary means: The choice to forgo life-sustaining food and water , Bloomington, IN : University Press .
   Google Scholar
• Lynn , J. 1989b . “ Must patients always be given food and water? ” . In By no extraordinary means: The choice to forgo life-sustaining food and water , Edited by: Lynn , J. 47 – 60 . Bloomington, IN : University Press .
   Google Scholar
• Maillet , J. O. and King , D. 1993 . Nutritional care of the terminally ill adult . The Hospice Journal , 9 : 37 – 54 .
   PubMedGoogle Scholar
• Major , D. 1989 . “ The medical procedures for providing food and water: Indications and effects ” . In By no extraordinary means: The choice to forgo life-sustaining food and water , Edited by: Lynn , J. 21 – 28 . Bloomington, IN : University Press .
   Google Scholar
• McCann , R. M. , Hall , W. J. and Grath-Junker , A. 1994 . Comfort care for terminally ill patients: The appropriate use of nutrition and hydration . Journal of the American Medical Association , 272 : 1263 – 6 .
   PubMed Web of Science ®Google Scholar
• Meares , C. J. 1994 . Terminal dehydration: A review . The American Journal of Hospice and Palliative Care , 11 : 10 – 14 .
   PubMedGoogle Scholar
• National Center for State Courts. (1991). Guidelines for state court decision making in life-sustaining medical treatment cases (2nd ed.). Williamsburg, VA: Author.
   Google Scholar
• National Conference of Commissioners on Uniform State Laws. (1993, 30 July-6 August). Uniform health-care decisions act. Approved and Recommended for Enactment in All the States at the Uniform Law Commissioners Annual Conference, Charleston, SC.
   Google Scholar
• New York State Task Force on Life and the Law. (1992). When others must choose: Deciding for patients without capacity. New York: Author.
   Google Scholar
• New York State Task Force on Life and the Law. (1993). When others must choose: Deciding for patients without capacity, supplement to report and proposed legislation. New York: Author.
   Google Scholar
• Office of Technology Assessment. (1987a, April). Life-sustaining technologies and the elderly (OTA-BA-306). Washington, DC: U.S. Government Printing Office.
   Google Scholar
• OTA. See Office of Technology Assessment.
   Google Scholar
• Peck , A. , Cohen , C. E. and Mulvihill , M. N. 1990 . Long-term enteral feeding of aged demented nursing home patients . Journal of the American Geriatrics Society , 38 : 1195 – 1198 .
   PubMed Web of Science ®Google Scholar