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Articles

What is a Good Death? Health Care Professionals’ Narrations on End-of-Life Care

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Pages 20-27 | Received 09 Jan 2012, Accepted 12 Jun 2012, Published online: 01 Aug 2013

REFERENCES

  • Barbisan, C., Bonetti, M., Feltrin, A., & Furlan, E. (Eds.). ( 2010 ). Etica del morire [Ethics of dying] . Milano , Italy : Franco Angeli .
  • Barnato , A. E. , Bost , J. E. , Farrel , M. H. , Lave , J. R. , Arnold , R. M. , Rubio , D. M. , & Angus , D. C. ( 2006 ). Relationship between staff perceptions of hospital norms and hospital level end-of-life treatment intensity . Journal of Palliative Medicine , 10 , 1093 – 1100 . doi: 10.1089/jpm.2006.0258
  • Becker , G. , Sarhatlic , R. , Olschewski , M. , Xander , C. , Momm , F. , & Blum , H. E. ( 2007 ). End of life care in hospital: Current practice and potentials for improvement . Journal of Pain and Symptom Management , 33 , 711 – 719 . doi: 10.1016/j.jpainsymman.2006.09.030
  • Bertolini , G. , Boffelli , S. , Malacarne , P. , Peta , M. , Marchesi , M. , Barbisan , C. , … & Mazzon , D. ( 2010 ). End-of-life decision-making and quality of ICU performance: An observational study in 84 Italian units . Intensive Care Medicine , 36 , 1495 – 1504 . doi: 10.1007/s00134–010-1910–9
  • Carr , D. , & Moorman , S. M. ( 2009 ). End-of-life treatment preferences among older adults: An assessment of psychosocial influences . Sociological Forum , 24 , 754 – 778 . doi: 10.1111/j.1573–7861.2009.01135.x
  • Cherlin , E. , Fried , T. , Prigerson , H. G. , Schulman-Green , D. , Johnson-Hurzeler , R. , & Bradley , E. H. ( 2005 ). Communication between physicians and family caregivers about care at the end of life: When do discussions occur and what is said? Journal of Palliative Medicine , 8 , 1176 – 1185 . doi: 10.1089/jpm.2005.8.1176
  • Chochinov , H. M. , Hack , T. , Hassard , T. , Kristajanson , L. J. , McClement , S. , & Harlos , M. ( 2002 ). Dignity in the terminally ill: A cross-sectional, cohort study . Lancet , 360 , 2026 – 2030 . doi: 10.1016/S0140–6736(02)12022–8
  • Clark , J. ( 2003 ). Patient centered death . British Medical Journal , 327 , 174 – 175 . doi: 10.1136/bmj.327.7408.174
  • Cohen , J. , Bilsen , J. , Addington Hall , J. , Lofmark , R. , Miccinesi , G. , Kaasa , S. , … & Deliens , L. ( 2008 ). Population-based study of dying in hospital in six European countries . Palliative Medicine , 22 , 702 – 710 . doi: 10.1200/JCO.2009.23.2850
  • Connors , A. F. Jr. , Dawson , N. V. , Desbiens , N. A. , Fulkerson Jr. , W. J. , Goldman , L. , Knaus , W. A. , … & Ransohoff , D. ( 1995 ). A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT) . Journal of the American Medical Association , 274 , 1591 – 1598 .
  • Ditto , P. H. , Danks , J. H. , Smucker , W. D. , Bookwala , J. , Coppola , K. M. , Dresser , R. , … & Zizansy , S. ( 2001 ). Advance directives as acts of communication: A randomized controlled trial . Archives of Internal Medicine , 161 , 421 – 430 .
  • Flick , U. ( 1998 ). An introduction to qualitative research . Thousand Oaks , CA : Sage .
  • Gerstel , E. , Engelberg , R. A. , Koepsell , T. , & Curtis , R. J. ( 2008 ). Duration of withdrawal of life support in the intensive care unit and association with family satisfaction . American Journal of Respiratory Critical Care Medicine , 178 , 798 – 804 . doi: 10.1164/rccm.200711-1617OC
  • Goldsteen , M. , Houtepen , R. , Proot , I. M. , Abu Saad , H. H. , Spreeuwenberg , C. , & Widdershoven , G. ( 2006 ). What is a good death? Terminally ill patients dealing with normative expectations around death and dying . Patients Education and Counseling , 64 , 378 – 386 . doi: 10.1016/j.pec.2006.04.008
  • Gott , M. , Small , N. , Barnes , S. , Payne , S. , & Seamark , D. ( 2008 ). Olders people views of a good death in heart failure: Implications for palliative care provision . Social Science and Medicine , 67 , 1113 – 1121 . doi: 10.1016/j.socscimed.2008.05.024
  • Hadders , H. ( 2011 ). Negotiating leave-taking events in the palliative medicine unit . Qualitative Health Research , 21 , 223 – 232 . doi: 10.1177/1049732310384404
  • Hirano , Y. , Yamamoto-Mitani , N. , Ueno , M. , Takemori , S. , Kashiwagi , M. , Sato , I. , … & Yamada , M. ( 2011 ). Home Care nurses’ provision of support to families of the elderly at the end of life . Qualitative Health Research , 21 , 199 – 213 . doi: 10.1177/1049732310383866
  • Jackson , V. A. , Mack , J. , Matsuyama , R. , Lakoma , M. D. , Sullivan , A. M. , Arnold , R. M. , … & Block , S. D. ( 2008 ). A qualitative study of oncologists’ approaches to end of life care . Journal of Palliative Medicine , 11 , 893 – 906 . doi: 10.1089/jpm.2007.2480
  • Le Conte , P. , Riochet , D. , Batard , E. , Volteau , C. , Giraudeau , B. , Arnaudet , I. , … & Potel , G. ( 2010 ). Death in emergency departments: A multicenter cross-sectional survey with analysis of withholding and withdrawing support . Intensive Care Medicine , 36 , 765 – 772 . doi: 10.1007/s00134–010-1800–1
  • Lynn-McHale , D. J. , & Wiegand , D. ( 2006 ). Withdrawal of life sustaining therapy after sudden unexpected life-threatening illness or injury: Interactions between patients’ families, healthcare providers, and healthcare system . American Journal of Critical Care , 15 , 178 – 187 .
  • MacLeod , R. D. ( 2001 ). On reflection: Doctors learning to care for people who are dying . Social Science and Medicine , 52 , 1719 – 1727 . doi: 10.1016/S0277-9536(00)00289-6
  • Onwuteaka-Philipsen , B. D. , Fisher , S. , Cartwright , C. , Deliens , L. , Miccinesi , G. , Norup , M. , … & van der Wal , G. ( 2006 ). The European End-of-Life Consortium: End-of-life decision making in Europe and Australia: A physician survey . Archives of International Medicine , 66 , 921 – 929 .
  • Patrick , D. L. , Engelberg , R. A. , & Curtis , J. R. ( 2001 ). Evaluating the quality of dying and death . Journal of Pain and Symptom Management , 22 , 717 – 726 . doi: 10.1016/S0885-3924(01)00333-5
  • Puchalski , C. M. , Zhong , Z. , Jacobs , M. M. , Fox , E. , Lynn , J. , Harrold , J. , … & Teno , J. M. ( 2000 ). Patients who want their family and physician to make resuscitation decisions for them: Observations from SUPPORT and HELP . Journal of the American Geriatrics Society , 48 , S84 – S90 .
  • Seale , C. ( 2000 ). Changing patterns of death and dying . Social Science and Medicine , 51 , 917 – 930 . doi: 10.1016/S0277-9536(00)00071-X
  • Seale , C. ( 2009 ). End-of-life decisions in the UK involving medical practitioners . Palliative Medicine , 23 , 198 – 204 . doi: 10.1177/0269216308102042
  • Shanawani , H. , Wenrich , M. D. , Tonell , M. R. , & Curtis , J. R. (2008). Meeting physicians’ responsibilities in providing end of life care. Chest , 133, 775–786. doi: 10.1378/chest.07-2177
  • Smith , R. ( 2000 ). A good death . British Medical Journal , 320 , 129 – 130 . doi: 10.1136/bmj.320.7228.129
  • Sorensen , R. , & Iedema , R. ( 2011 ). End-of-life care in an acute care hospital . Death Studies , 35 , 481 – 503 . doi: 10.1080/07481187.2011.553336
  • Steinhauser , K. E. , Clipp , E. C. , McNeilly , M. , Christakis , N. A. , McIntyre , L. M. , & Tulsky , J. A. ( 2000 ). In search of a good death: Observations of patients, families, and providers . Annals of Internal Medicine , 132 , 825 – 832 .
  • Stewart , A. L. , Teno , J. , Patrick , D. L. , & Lynn , J. ( 1999 ). The concept of quality of life of dying persons in the context of health care . Journal of Pain Symptom Management , 17 , 93 – 108 . doi: 10.1016/S0885-3924(98)00131-6
  • Strauss , A. , & Corbin , J. ( 1998 ). Basics of qualitative research: Techniques and procedures for developing of grounded theory . Thousand Oaks , CA : Sage Publications .
  • Toscani , F. , Di Giulio , P. , Brunelli , C. , Miccinesi , G. , & Laquintana , D. ( 2005 ). How people die in hospital general wards: A descriptive study . Journal of Pain and Symptom Management , 30 , 33 – 40 . doi: 10.1016/j.jpainsymman.2005.01.013
  • Wiegand , D. ( 2008 ). In their own time: The family experience during the process of withdrawal of life sustaining therapy . Journal of Palliative Medicine , 11 , 1115 – 1121 . doi: 10.1089/jpm.2008.0015.

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