Bridging the Gaps in Palliative Care Bereavement Support: An International Perspective

References

• Abbott , J. , O'Connor , M. , & Payne , S. ( 2008 ). An Australian survey of palliative care and hospice bereavement services . The Australian Journal of Cancer Nursing , 9 ( 2 ), 12 – 17 .
   Google Scholar
• Agnew , A. , Manktelow , R. , Haynes , T. , & Jones , L. ( 2011 ). Bereavement assessment practice in hospice settings: Challenges for palliative care social workers . British Journal of Social Work , 41 , 111 – 130 .
   Web of Science ®Google Scholar
• Agnew , A. , Manktelow , R. , Taylor , B. J. , & Jones , L. ( 2010 ). Bereavement needs assessment in specialist palliative care: A review of the literature . Palliative Medicine , 24 , 46 – 59 .
   PubMed Web of Science ®Google Scholar
• Alberta Health Services . ( 2009 ). Regional palliative care program – balanced scorecard report 2008–2009 . Edmonton , Canada : Author . Retrieved from http://www.albertahealthservices.ca/default.asp
   Google Scholar
• Alcabes , P. ( 2003 , May 23 ). Epidemiologists need to shatter the myth of a risk-free life . The Chronicle . Retrieved from http://www.ph.ucla.edu/epi/bioter/shattermyth.html
   Google Scholar
• American Psychiatric Association . ( 2013 ). Diagnostic and statistical manual of mental disorders (5th ed.). Washington , DC : Author .
   Google Scholar
• Aoun , S. , Breen , L. J. , O'Connor , M. , Rumbold , B. , & Nordstrom , C. ( 2012 ). A public health approach to bereavement support services in palliative care . Australian and New Zealand Journal of Public Health , 36 , 14 – 16 .
   PubMed Web of Science ®Google Scholar
• Árnason , A. ( 2001a ). Experts of the ordinary: Bereavement counseling in Britain . Journal of the Royal Anthropological Institute , 7 , 299 – 313 .
   Web of Science ®Google Scholar
• Árnason , A. ( 2001b ). The skills we need: Bereavement counselling and governmentality in England . In J. Hockey , J. Katz , & N. Small (Eds.), Grief, mourning and death ritual (pp. 125 – 134 ). Buckingham , UK : Open University Press .
   Google Scholar
• Benkel , I. , Wijk , H. , & Molander , U. ( 2005 ). Family and friends provide most social support for the bereaved . Palliative Medicine , 23 , 141 – 149 .
   Web of Science ®Google Scholar
• Boelen , P. A. , de Keijser , J. , van den Hout , M. A. , & van den Bout , J. ( 2007 ). Treatment of complicated grief: A comparison between cognitive-behavioural therapy and supportive counselling . Journal of Consulting and Clinical Psychology , 75 , 277 – 284 .
   PubMed Web of Science ®Google Scholar
• Bonanno , G. A. , Boerner , K. , & Wortman , C. B. ( 2008 ). Trajectories of grieving . In M. S. Stroebe , R. O. Hansson , H. Schut , & W. Stroebe (Eds.), Handbook of bereavement research and practice: Advances in theory and intervention (pp. 287 – 307 ). Washington , DC : American Psychological Association .
   Google Scholar
• Breen , L. J. , & O'Connor , M. (2007). The fundamental paradox in the grief literature: A critical reflection. Omega , 55, 199–218.
   PubMed Web of Science ®Google Scholar
• Breen , L. J. , & O'Connor , M. ( 2011 ). Family and social networks after bereavement: Experiences of support, change, and isolation . Journal of Family Therapy , 33 , 98 – 120 .
   Web of Science ®Google Scholar
• Brickman , P. , Rabinowitz , V. C. , Karuza , J. , Jr. , Coates , D. , Cohn , E. , & Kidder , L. ( 1982 ). Models of helping and coping . American Psychologist , 37 , 368 – 384 .
   Web of Science ®Google Scholar
• Commonwealth of Australia . ( 2010 ). National palliative care strategy . Barton , Australia : Author . Retrieved from http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-strategy.htm
   Google Scholar
• Conway , S. (Ed.). ( 2011 ). Governing death and loss: Empowerment, involvement and participation . Oxford , UK : Oxford University Press .
   Google Scholar
• Currier , J. M. , Neimeyer , R. A. , & Berman , J. S. ( 2008 ). The effectiveness of psychotherapeutic interventions for bereaved persons: A comprehensive quantitative review . Psychological Bulletin , 134 , 648 – 661 .
   PubMed Web of Science ®Google Scholar
• Demmer , C. ( 2003 ). A national survey of hospice bereavement services . Omega , 47 , 327 – 341 .
   Web of Science ®Google Scholar
• Ferris , F. D. , Balfour , H. M. , Bowen , K. , Farley , J. , Hardwick , M. , Mamontagne , C. , … , & West , P. ( 2002 ). A model to guide hospice palliative care: Based on national principles and norms of practice . Ottawa , Canada : Canadian Hospice Palliative Care Association . Retrieved from http://www.chpca.net/model_to_guide_hpc
   Google Scholar
• Field , D. , Reid , D. , Payne , S. , & Relf , M. ( 2004 ). Survey of UK hospice and specialist palliative care adult bereavement services . International Journal of Palliative Nursing , 10 , 569 – 576 .
   PubMedGoogle Scholar
• Foliart , D. E. , Clausen , M. , & Siljestrom , C. ( 2001 ). Bereavement practices among California hospices: What do palliative support teams actually do? Death Studies , 25 , 461 – 467 .
   PubMed Web of Science ®Google Scholar
• Glasgow , R. E. , Vogt , T. M. , & Boles , S. M. ( 1999 ). Evaluating the public health impact of health promotion interventions: The RE-AIM framework . American Journal of Public Health , 89 , 1322 – 1327 .
   PubMed Web of Science ®Google Scholar
• Haines , I. E. ( 2011 ). Managing patients with advanced cancer: The benefits of early referral for palliative care . Medical Journal of Australia , 194 , 107 – 108 .
   PubMed Web of Science ®Google Scholar
• Hansson , R. O. , & Stroebe , M. S. ( 2007 ). Bereavement in late life: Coping, adaptation, and developmental influences . Washington , DC : American Psychological Association .
   Google Scholar
• Hopkinson , J. B. , Wright , D. N. M. , & Corner , J. L. ( 2005 ). Seeking new methodology for palliative care research: Challenging assumptions about studying people who are approaching the end of life . Palliative Medicine , 19 , 532 – 537 .
   PubMed Web of Science ®Google Scholar
• Hudson , P. , Remedios , C. , Zordan , R. , Thomas , K. , Clifton , D. , Crewden , M. , …  Clarke , D. ( 2010 ). Clinical practice guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients . Melbourne , Australia : Centre for Palliative Care, St Vincent's Hospital Melbourne .
   Google Scholar
• Jansma , F. F. I. , Schure , L. M. , & deJong , B. M. ( 2005 ). Support requirements for caregivers of patients with palliative cancer . Patient Education and Counseling , 58 , 182 – 186 .
   PubMed Web of Science ®Google Scholar
• Lobb , E. A. , Kristjanson , L. J. , Aoun , S. M. , Monterosso , L. , Halkett , G. K. B. , & Davies , A. ( 2010 ). Predictors of complicated grief: A systematic review of empirical studies . Death Studies , 34 , 673 – 698 .
   PubMed Web of Science ®Google Scholar
• Maercker , A. , Brewin , C. R. , Bryant , R. A. , Cloitre , M. , Reed , G. M. , van Ommeren , M. , …  Saxena , S. ( In press ). Prosposals for mental disorders specifically associated with stress in the ICD-11. Lancet .
   Google Scholar
• Mather , M. A. , Good , P. D. , Cavenagh , J. D. , & Ravenscroft , P. J. ( 2008 ). Survey of bereavement support provided by Australian palliative care services . Medical Journal of Australia , 188 , 228 – 230 .
   PubMed Web of Science ®Google Scholar
• Matsushima , T. , Akabayashi , A. , & Nishitateno , K. ( 2002 ). The current status of bereavement follow-up in hospice and palliative care in Japan . Palliative Medicine , 16 , 151 – 158 .
   PubMed Web of Science ®Google Scholar
• National Hospice and Palliative Care Organization . ( 2008 ). Guidelines for bereavement care in hospice () , 2nd ed. . Alexandria , VA : Author .
   Google Scholar
• National Institute for Health and Clinical Excellence . ( 2004 ). Guidance on cancer services: Improving supportive and palliative care for adults with cancer. The Manual . London : Author . Retrieved from http://guidance.nice.org.uk/CSGSP/Guidance/pdf/English
   Google Scholar
• Neimeyer , R. A. ( 2008 ). Grief and bereavement counseling. Retrieved from http://web.mac.com/neimeyer/Home/Scholarship.html
   Google Scholar
• Neimeyer , R. A. , Harris , D. L. , Winokuer , H. R. , & Thornton , G. F. (Eds.) ( 2011 ). Grief and bereavement in contemporary society: Bridging research and practice . New York , NY : Routledge .
   Google Scholar
• O'Connor , M. , Abbott , J.-A. , Payne , S. , & Demmer , C. ( 2009 ). A comparison of bereavement services provided in hospice and palliative care settings in Australia, the UK and the USA . Progress in Palliative Care , 17 , 69 – 74 .
   Google Scholar
• O'Connor , M. , & Lee-Steere , R. ( 2006 ). GPs' attitudes to palliative care: A Western Australian rural perspective . Journal of Palliative Medicine , 9 , 1271 – 1281 .
   PubMed Web of Science ®Google Scholar
• O'Connor , M. , Pugh , J. , Jiwa , M. , Hughes , J. , & Fisher , C. ( 2011 ). The palliative care interdisciplinary team: Where is the community pharmacist? Journal of Palliative Medicine , 14 ( 1 ), 7 – 11 .
   PubMed Web of Science ®Google Scholar
• O'Connor , M. , Fisher , C. , French , L. , Halkett , G. , Jiwa , M. , & Hughes , J. ( 2011 ). Exploring the community pharmacist's role in palliative care: Focusing on the person not just the prescription . Patient Education and Counseling , 83 , 458 – 464 .
   PubMed Web of Science ®Google Scholar
• Palliative Care Australia . ( 2005 ). Standards for providing quality palliative care for all Australians () , 4th ed. . Canberra, Australian Capital Territory , Australia : Author . Retrieved from http://www.palliativecare.org.au/Portals/46/Standards%20for%20providing%20quality%20palliative%20care%20for%20all%20Australians.pdf
   Google Scholar
• Palliative Care Australia . ( 2010 ). National Standards Assessment Program: National quality report . Deakin West, Australian Capital Territory , Australia : Author . Retrieved from http://www.standards.palliativecare.org.au/Portals/20/NSAP%20National%20Quality%20Report.pdf
   Google Scholar
• Prigerson , H. G. , Silverman , G. K. , Jacobs , S. C. , Maciejewski , P. K. , Kasl , S. V. , & Rosenheck , R. A. ( 2001 ). Traumatic grief, disability, and the underutilization of health services: A preliminary examination . Primary Psychiatry , 8 , 61 – 66 .
   Google Scholar
• Prigerson , H. G. , Vanderwerker , L. C. , & Maciejewski , P. K. ( 2008 ). A case for inclusion of prolonged grief disorder in DSM-IV . In M. S. Stroebe , R. O. Hansson , H. Schut , & W. Stroebe , (Eds.), Handbook of bereavement research and practice: Advances in theory and intervention (pp. 165 – 186 ). Washington , DC : American Psychological Association .
   Google Scholar
• Reid , D. , Field , D. , Payne , S. , & Relf , M. ( 2006a ). Adult bereavement in five English hospices: Participants, organisations and pre-bereavement support . International Journal of Pallative Nursing , 12 , 320 – 327 .
   PubMedGoogle Scholar
• Reid , D. , Field , D. , Payne , S. , & Relf , M. ( 2006b ). Adult bereavement in five English hospices: Types of support . International Journal of Pallative Nursing , 12 , 430 – 437 .
   PubMedGoogle Scholar
• Sakaguchi , Y. , Tsuneto , S. , Takayama , K. , Tamura , K. , Ikenaga , M. , & Kashiwagi , T. ( 2004 ). Tasks perceived as necessary for hospice and palliative care unit bereavement services in Japan . Journal of Palliative Care , 20 , 320 – 323 .
   PubMed Web of Science ®Google Scholar
• Salau , S. , Rumbold , B. , & Young , B. ( 2007 ). From concept to care: Enabling community care through a health promoting palliative care approach . Contemporary Nurse , 27 , 132 – 140 .
   PubMed Web of Science ®Google Scholar
• Schut , H. , & Stroebe , M. ( 2005 ). Interventions to enhance adaptation to bereavement . Journal of Palliative Medicine , 8 , S140 – S146 .
   PubMedGoogle Scholar
• Schut , H. , Stroebe , M. S. , van den Bout , J. , & Terheggen , M. (2001). The efficacy of bereavement interventions: Determining who benefits. In M. S. Stroebe , R. O. Hansson , W. Stroebe , & H. Schut (Eds.), Handbook of bereavement research: Consequences, coping, and care (pp. 705–727). Washington , DC : American Psychological Association.
   Google Scholar
• Sepúlveda , C. , Marlin , A. , Yoshida , T. , & Ullrich , A. ( 2002 ). Palliative care: The World Health Organization's global perspective . Journal of Pain and Symptom Management , 24 , 91 – 96 .
   PubMed Web of Science ®Google Scholar
• Small , N. , & Hockey , J. ( 2001 ). Discourse into practice: The production of bereavement care . In J. Hockey , J. Katz , & N. Small (Eds.), Grief, mourning and death ritual (pp. 97 – 124 ). Buckingham , UK : Open University Press .
   Google Scholar
• Vanderwerker , L. C. , Laff , R. E. , Kadan-Lottick , N. S. , McColl , S. , & Prigerson , H. G. ( 2005 ). Psychiatric disorders and mental health service use among caregivers of advanced cancer patients . Journal of Clinical Oncology , 23 , 6899 – 6907 .
   PubMed Web of Science ®Google Scholar
• Victoria Hospice . ( 2010 ). Annual report 2009/2010 . Victoria , British Columbia , Canada : Author . Retrieved from http://www.victoriahospice.org/about/annual-reports
   Google Scholar
• World Health Organization . ( 2007 ). WHO guide for effective programmes: Palliative care . Author . Retrieved from http://www.who.int/cancer/media/FINAL-Palliative%20Care%20Module.pdf
   Google Scholar