What Constitutes a Good and Bad Death?: Perspectives of Homeless Older Adults

REFERENCES

• Administration on Aging. (2012). A profile of older Americans: 2012. Retrieved from http://www.aoa.gov/Aging_Statistics/Profile/2012/2.aspx
   Google Scholar
• Asgeirsdottir, G., Sigurbjornsson, E., Traustadottir, R., Sigurdardottir, V., Gunnarsdottir, S. & Kelly, E. (2013). “To cherish each day as it comes”: A qualitative study of spirituality among persons receiving palliative care. Supportive Care in Cancer, 21, 1445–1451.
   PubMed Web of Science ®Google Scholar
• Baggett, T. P., Hwang, S. W., O'Connell, J. J., Porneala, B. C., Stringfellow, E. J., Orav, E. J., Singer, D. E. & Rigotti, N. A. (2013). Mortality among homeless adults in Boston: shifts in causes of death over a 15-year period. JAMA, 173, 189–195.
   Google Scholar
• Brown, R., Kiely, D., Bharel, M. & Mitchell, S. (2012). Geriatric syndromes in older homeless adults. Journal of General Internal Medicine, 27, 16–22.
   PubMed Web of Science ®Google Scholar
• Carr, D. (2003). A “good death” for whom? Quality of spouse's death and psychological distress among older widowed persons. Journal of Health and Social Behavior, 44, 215–232.
   PubMed Web of Science ®Google Scholar
• Chochinov, H. (2006). Dying, dignity, and new horizons in palliative end-of-life care. A Cancer Journal for Clinicians, 56, 84–103.
   PubMed Web of Science ®Google Scholar
• Cicirelli, V. (2004). God as the ultimate attachment figure for older adults. Attachment & Human Development, 6, 371–388.
   PubMed Web of Science ®Google Scholar
• Dietz, T. & Wright, J. D. (2005). Victimization of the elderly homeless. Care Management Journals, 6, 15–21.
   PubMedGoogle Scholar
• Doka, K. J. (1993). Spiritual needs of dying. In K. Doka & J. D. Morgan (Eds.), Death and spirituality (death, value and meaning). Amityville, NY: Baywood Publishing Co.
   Google Scholar
• Emanuel, E. J. & Emanuel, L. L. (1998). The promise of a good death. The Lancet, 351, SII21–SII29.
   PubMed Web of Science ®Google Scholar
• Garibaldi, B., Conde-Martel, A. & O'Toole, T. P. (2005). Self-reported comorbidities, perceived needs, and sources for usual care for older and younger homeless adults. Journal of General Internal Medicine, 20, 726–730.
   PubMed Web of Science ®Google Scholar
• Gott, M. J. G. D. S. (2004). Older people's views about home as a place of care at the end of life. Palliative Medicine, 18, 460–467.
   PubMed Web of Science ®Google Scholar
• Hughes, T., Schumacher, M., Jacobs-Lawson, J. M. & Arnold, S. (2008). Confronting death: Perceptions of a good death in adults with lung cancer. American Journal of Hospice and Palliative Medicine, 25, 39–44.
   PubMed Web of Science ®Google Scholar
• Kehl, K. A. (2006). Moving toward peace: An analysis of the concept of a good death. American Journal of Hospice and Palliative Medicine, 23, 277–286.
   PubMedGoogle Scholar
• Kirkpatrick, L. A. (1998). God as a substitute attachment figure: A Longitudinal study of adult attachment style and religious change in college students. Personality and Social Psychology Bulletin, 24, 961–973.
   Web of Science ®Google Scholar
• Ko, E., Cho, S., Perez, R. L., Yeo, Y. & Palomino, H. (2013). Good and bad death: exploring the perspectives of older Mexican Americans. Journal of Gerontological Social Work, 56, 6–25.
   PubMedGoogle Scholar
• Ko, E. & Nelson-Becker, H. (2013). Does end-of-life decision making matter? Perspectives of the older homeless adults. American Journal of Hospice and Palliative Medicine [epub ahead of print].
   Google Scholar
• Krefting, L. (1991). Rigor in qualitative research: The assessment of trustworthiness. The American Journal of Occupational Therapy, 45, 214–222.
   PubMed Web of Science ®Google Scholar
• Lebrun-Harris, L. A., Baggett, T. P., Jenkins, D. M., Sripipatana, A., Sharma, R., Hayashi, A. S. … Ngo-Metzger, Q. (2013). Health status and health care experiences among homeless patients in federally supported health centers: Findings from the 2009 Patient Survey. Health Services Research, 48, 992–1017.
   PubMed Web of Science ®Google Scholar
• Lee, B. A. & Schreck, C. J. (2005). Danger on the streets: Marginality and victimization among homeless people. American Behavioral Scientist, 48, 1055–1081.
   Web of Science ®Google Scholar
• Lincoln, Y. & Guba, E. (1985). Naturalistic inquiry. New York, NY: Sage.
   Google Scholar
• Manning, L. K. (2012). Spirituality as a lived experience: Exploring the essence of spirituality for women in later life. International Journal of Aging and Human Development, 75, 95–113.
   PubMed Web of Science ®Google Scholar
• McNiel, D. E., Binder, R. L. & Robinson, J. C. (2005). Incarceration associated with homelessness, mental disorder, and co-occurring substance abuse. Psychiatric Services, 56, 840–846.
   PubMed Web of Science ®Google Scholar
• Nelson-Becker, H. (2004). Spiritual, religious, nonspiritual, nonreligious narratives in marginalized older adults: A typology of coping styles. Journal of Religion, Spirituality, and Aging, 17, 21–38.
   Google Scholar
• Nelson-Becker, H. (2006). Voices of resilience: Older adults in hospice care. Journal of Social Work in End-of-Life and Palliative Care, 2(3), 87–106.
   PubMedGoogle Scholar
• O'Connell, J. J. (2005). Premature mortality in homeless populations: A review of the literature. Nashville, TN: National Health Care for the Homeless Council. Retrieved from http://santabarbarastreetmedicine.org/wordpress/wp-content/uploads/2011/04/PrematureMortalityFinal.pdf
   Google Scholar
• Padgett, D. K. (1998). Qualitative methods in social work research. Thousand Oaks, CA: Sage Publication.
   Google Scholar
• Payne, S. A., Langley-Evans, A. & Hillier, R. (1996). Perceptions of a ‘good’ death: a comparative study of the views of hospice staff and patients. Palliative Medicine, 10, 307–312.
   PubMed Web of Science ®Google Scholar
• Pfeiffer, E. (1975). A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. Journal of the American Geriatrics Society, 23, 433–441.
   PubMed Web of Science ®Google Scholar
• Pickard, J. G. & Nelson-Becker, H. (2011). Attachment and Spiritual Coping: Theory and practice with older adults. Journal of Spirituality in Mental Health, 13, 138–155.
   Google Scholar
• Pierson, C. M., Curtis, J. R. & Patrick, D. L. (2002). A good death: a qualitative study of patients with advanced AIDS. AIDS Care, 14, 587–598.
   PubMed Web of Science ®Google Scholar
• Prince-Paul, M. (2008). Understanding the meaning of social well-being at the end of life. Oncology Nursing Forum, 35, 365–371.
   PubMed Web of Science ®Google Scholar
• Substance Abuse and Mental Health Services Administration. (2011). Current statistics on the prevalence and characteristics of people experiencing homelessness in the United States [Electronic Version]. Retrieved from http://homeless.samhsa.gov/ResourceFiles/hrc_factsheet.pdf
   Google Scholar
• Salem, B. E., Nyamathi, A. M., Phillips, L., Menters, J. C., Sarkisian, C. & Leake, B. (2013). Correlates of frailty among homeless adults. Western Journal of Nursing Research, 35, 1128–1152.
   PubMed Web of Science ®Google Scholar
• Seale, C. (2004). Media constructions of dying alone: A form of “bad death”. Social Science & Medicine, 58, 967–974.
   PubMed Web of Science ®Google Scholar
• Singer, P. A., Martin, D. K. & Kelner, M. (1999). Quality end-of-life care: Patients' perspectives. The Journal of the American Medical Association, 281, 163–168.
   PubMed Web of Science ®Google Scholar
• Song, J., Bartels, D. M., Ratner, E. R., Alderton, L., Hudson, B. & Ahluwalia, J. S. (2007). Dying on the streets: homeless persons’ concerns and desires about end of life care. Journal of General Internal Medicine, 22, 435–441.
   PubMed Web of Science ®Google Scholar
• Song, J., Ratner, E. R. & Bartels, D. M. (2005). Dying while homeless: Is it a concern when life itself is such a struggle? The Journal of Clinical Ethics, 16(3), 251–261.
   PubMed Web of Science ®Google Scholar
• Song, J., Ratner, E. R., Bartels, D. M., Alderton, L. & Ahluwalia, J. S. (2007). Experiences with and attitudes toward death and dying among homeless persons. Journal of General Internal Medicine, 22, 427–434.
   PubMed Web of Science ®Google Scholar
• Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., Mclntyre, L. & Tulsky, J. A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. The Journal of the American Medical Association, 284, 2476–2482.
   PubMed Web of Science ®Google Scholar
• Steinhauser, K. E., Clipp, E. C., McNeilly, M., Christakis, N. A., McIntyre, L. M. & Tulsky, J. A. (2000). In search of a good death: Observations of patients, families, and providers. Annals of Internal Medicine, 132, 825–832.
   PubMed Web of Science ®Google Scholar
• Tarzian, A. J., Neal, M. T. & O'Neil, J. A. (2005). Attitudes, experiences, and beliefs affecting end-of-life decision-making among homeless individuals. Journal of Palliative Medicine, 8(1), 36–48.
   PubMedGoogle Scholar
• Vig, E. K., Davenport, N. A. & Pearlman, R. A. (2002). Good deaths, bad deaths, and preferences for the end of life: A qualitative study of geriatric outpatients. Journal of the American Geriatrics Society, 50, 1541–1548.
   PubMed Web of Science ®Google Scholar
• Vig, E. K. & Pearlman, R. A. (2004). Good and bad dying from the perspective of terminally ill men. Archives of Internal Medicine, 164, 977–981.
   PubMed Web of Science ®Google Scholar
• Watts, T. (2012). End-of-life care pathways as tools to promote and support a good death: A critical commentary. European Journal of Cancer Care, 21(1), 20–30.
   PubMed Web of Science ®Google Scholar