Siblings’ voices: A prospective investigation of experiences with a dying child

References

• Barrera, M., Alam, R., D’Agostino, N. M., Nicholas, D. B., & Schneiderman, G. (2013). Parental perceptions of siblings’ grieving after a childhood cancer death: A longitudinal study. Death Studies, 37, 25–46. doi:10.1080/07481187.2012.678262
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2013). Successful qualitative research. Thousand Oaks, CA: Sage.
   Google Scholar
• Brennan, C., Hugh-Jones, S., & Aldridge, J. (2012). Paediatric life-limiting conditions: Coping and adjustment in siblings. Journal of Health Psychology, 18(6), 813–824. doi:10.1177/1359105312456324
   PubMed Web of Science ®Google Scholar
• Bronfenbrenner, U. (1986). Ecology of the family as a context for human development: Research perspectives. Developmental Psychology, 22(6), 723–742. doi:10.1037//0012-1649.22.6.723
   Web of Science ®Google Scholar
• Burton, M. (2010). Supporting adolescents who have a sibling with a life-threatening illness: An exploratory study. Counselling and Psychotherapy Research, 10(4), 316–321. doi:10.1080/14733140903310513
   Google Scholar
• Cadell, S., Hemsworth, D., Smit Quosai, T., Steele, R., Davies, B., Liben, S., & Siden, H. (2014). Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model. American Journal of Orthopsychiatry, 84(2), 123–133. doi:10.1037/h0099384
   PubMed Web of Science ®Google Scholar
• Castiglia, P. T. (1988). Death of a sibling. Journal of Pediatric Health Care, 2(4), 211–213. doi:10.1016/0891-5245(88)90027-2
   PubMedGoogle Scholar
• Daly, K. (2007). Qualitative methods for family studies and human development. Thousand Oaks, CA: Sage.
   Google Scholar
• Davies, B. (1999). Shadows in the sun: The experiences of sibling bereavement in childhood. Philadelphia, PA: Brunner-Mazel.
   Google Scholar
• Davies, B., Spinetta, J., Martinson, I., McClowry, S., & Kulenkamp, E. (1986). Manifestations of levels of functioning in grieving families. Journal of Family Issues, 7(3), 297–313. doi:10.1177/019251386007003005
   Web of Science ®Google Scholar
• Eilegard, A., Steineck, G., Nyberg, T., & Kreicbergs, U. (2013). Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier. Psycho-Oncology, 22, 683–691. doi:10.1002/pon.3053
   PubMed Web of Science ®Google Scholar
• Fletcher, P. C. (2011). My child has cancer: Finding the silver lining in every mother’s nightmare. Issues in Comprehensive Pediatric Nursing, 34(1), 40–45. doi:10.3109/01460862.2011.557905
   PubMedGoogle Scholar
• Foster, T. L., Gilmer, M. J., Davies, B., Dietrich, M. S., Barrera, M., Fairclough, D. L., & Gerhardt, C. A. (2011). Comparison of continuing bonds reported by parents and siblings after a child’s death from cancer. Death Studies, 35(5), 420–440. doi:10.1080/07481187.2011.553308
   PubMed Web of Science ®Google Scholar
• Foster, T. L., Gilmer, M., Vannatta, K., Barrera, M., Davies, B., Dietrich, M., & Gerhardt, C. (2012). Changes in siblings after the death of a child from cancer. Cancer Nursing, 35(5), 347–354. doi:10.1097/ncc.0b013e3182365646
   PubMed Web of Science ®Google Scholar
• Gaab, E. M., Owens, G. R., & MacLeod, R. D. (2014). Siblings caring for and about pediatric palliative care patients. Journal of Palliative Medicine, 17(1), 62–67. doi:10.1089/jpm.2013.0117
   PubMed Web of Science ®Google Scholar
• Gerhardt, C., Fairclough, D., Grossenbacher, J., Barrera, M., Gilmer, M., Foster, T., & Vannatta, K. (2011). Peer relationships of bereaved siblings and comparison classmates after a child’s death from cancer. Journal of Pediatric Psychology, 37(2), 209–219. doi:10.1093/jpepsy/jsr082
   PubMed Web of Science ®Google Scholar
• Gibbons, M. B. (1992). A child dies, a child survives: The impact of sibling loss. Journal of Pediatric Health Care, 6, 65–72. doi:10.1016/0891-5245(92)90123-l
   PubMedGoogle Scholar
• Giovanola, J. (2005). Sibling involvement at the end of life. Journal of Pediatric Oncology Nursing, 22(4), 222–226. doi:10.1177/1043454205276956
   PubMedGoogle Scholar
• Hinds, P., & Martin, J. (1988). Hopefulness and the self-sustaining process in adolescents with cancer. Nursing Research, 37, 336–340. doi:10.1097/00006199-198811000-00005
   PubMed Web of Science ®Google Scholar
• Hogan, N. S., & Greenfeld, D. B. (1991). Adolescent sibling bereavement symptomatology in a large community sample. Journal of Adolescent Research, 6(1), 97–112. doi:10.1177/074355489161008
   Google Scholar
• Kaufman, K. R., & Kaufman, N. D. (2005). Childhood mourning: Prospective case analysis of multiple losses. Death Studies, 29(3), 237–249. doi:10.1080/07481180590916362
   PubMed Web of Science ®Google Scholar
• Lauer, M. E., & Camitta, B. M. (1980). Home care for dying children: A nursing model. Journal of Pediatrics, 97, 1032–1035. doi:10.1016/s0022-3476(80)80452-5
   PubMed Web of Science ®Google Scholar
• Lauer, M. E., Mulhern, R. K., Bohne, E. B., & Camitta, B. M. (1985). Children’s perceptions of their sibling’s death at home or hospital: The precursors of differential adjustment. Cancer Nursing, 8, 21–28. doi:10.1097/00002820-198508010-00002
   PubMedGoogle Scholar
• Martinson, I. M., Armstrong, G. D., Geis, D. P., Anglim, M. A., Gronseth, E. C., MacInnis, H., … Nesbit, M. E. Jr. (1978). Home care for children dying of cancer. Pediatrics, 62, 106–113.
   PubMed Web of Science ®Google Scholar
• Mulhern, R. K., Lauer, M. E., & Hoffmann, R. G. (1983). Death of a child at home or in the hospital: Subsequent psychological adjustment of the family. Pediatrics, 71, 743–747.
   PubMed Web of Science ®Google Scholar
• Nolbris, M., & Hellström, A. L. (2005). Siblings’ needs and issues when a brother or sister dies of cancer. Journal of Pediatric Oncology Nursing, 22(4), 227–233. doi:10.1177/1043454205274722
   PubMedGoogle Scholar
• Packman, W., Horsley, H., Davies, B., & Kramer, R. (2006). Sibling bereavement and continuing bonds. Death Studies, 30, 817–841. doi:10.1080/07481180600886603
   PubMed Web of Science ®Google Scholar
• Read, J., Kinali, M., Muntoni, F., & Garralda, M. E. (2010). Psychosocial adjustment in siblings of young people with Duchenne muscular dystrophy. European Journal of Paediatric Neurology, 14(4), 340–348. doi:10.1016/j.ejpn.2009.09.011
   PubMed Web of Science ®Google Scholar
• Steele, A. C., Kaal, J., Thompson, A. L., Barrera, M., Compas, B. E., Davies, B., … Gerhardt, C. A. (2013). Bereaved parents and siblings offer advice to healthcare providers and researchers. Journal of Pediatric Hematology/Oncology, 35(4), 253–259. doi:10.1097/mph.0b013e31828afe05
   PubMed Web of Science ®Google Scholar
• Stewart, J. L. (2003). “Getting used to it”: Children finding the ordinary and routine in the uncertain context of cancer. Qualitative Health Research, 13(3), 394–407. doi:10.1177/1049732302250336
   PubMed Web of Science ®Google Scholar
• Thorne, S. (2008). Interpretive description. Walnut Creek, CA: Left Coast Press.
   Google Scholar
• Thorne, S., Kirkham, S. R., & O’Flynn-Magee, K. (2004). The analytic challenge in interpretive description. International Journal of Qualitative Methods, 3(1), 1–11.
   Google Scholar
• Walker, C. L. (1993). Sibling bereavement and grief responses. Journal of Pediatric Nursing, 8, 325–334.
   PubMedGoogle Scholar
• Wallander, J. L., & Varni, J. W. (1998). Effects of pediatric chronic physical disorders on child and family adjustment. Journal of Child Psychology and Psychiatry, 39(1), 29–46. doi:10.1017/s0021963097001741
   PubMed Web of Science ®Google Scholar
• Wilkins, K. L., & Woodgate, R. L. (2007). Supporting siblings through the pediatric bone marrow transplant trajectory: Perspectives of siblings of bone marrow transplant recipients. Cancer Nursing, 30(5), 29–34. doi:10.1097/01.ncc.0000290811.06948.2c
   Google Scholar
• Woodgate, R. L. (2006). Siblings’ experiences with childhood cancer. Cancer Nursing, 29(5), 406–414. doi:10.1097/00002820-200609000-00010
   PubMed Web of Science ®Google Scholar
• Woodgate, R. L., & Degner, L. F. (2003). A substantive theory of keeping the spirit alive: The spirit within children with cancer and their families. Journal of Pediatric Oncology Nursing, 20(3), 103–119. doi:10.1053/jpon.2003.75
   PubMedGoogle Scholar