References
- Bailin, M. (2007). The sickroom in Victorian fiction: The art of being ill. Cambridge, UK: Cambridge University Press.
- Beck, I., Tornquist, A., Brostrom, L., & Edberg, A. K. (2012). Having to focus on doing rather than being – nurse assistants’ experience of palliative care in municipal residential care settings. International Journal of Nursing Studies, 49(4), 455–464. https://doi.org/10.1016/j.ijnurstu.2011.10.016
- Becker, E. (1973). The denial of death. New York, NY: Free Press.
- Beckstrand, R. L., Hart Hadley, K., Luthy, K. E., & Macintosh, J. L. B. (2017). Critical care nurses’ suggestions to improve end-of-life care obstacles: Minimal change over 17 years. Dimensions of Critical Care Nursing, 36(4), 264–270. https://doi.org/10.1097/DCC.0000000000000252
- Benner, P. (2001). Death as a human passage: Compassionate care for persons dying in critical care units. American Journal of Critical Care: An Official Publication, American Association of Critical-Care Nurses, 10(5), 355–359.
- Berta, W., Laporte, A., Zarnett, D., Valdmanis, V., & Anderson, G. (2006). A pan-Canadian perspective on institutional long-term care. Health Policy, 79(2–3), 175–194. https://doi.org/10.1016/j.healthpol.2005.12.006
- Bratcher, J. R. (2010). How do critical care nurses define a “good death” in the intensive care unit?” Critical Care Nursing Quarterly, 33(1), 87–99.
- Cable-Williams, B., & Wilson, D. M. (2017). Dying and death within the culture of long-term care facilities in Canada. International Journal of Older People Nursing, 12(1), e12125. https://doi.org/10.1111/opn.12125
- Cagle, J. G., Unroe, K. T., Bunting, M., Bernard, B. L., & Miller, S. C. (2017). Caring for dying patients in the nursing home: Voices from frontline nursing home staff. Journal of Pain and Symptom Management, 53(2), 198–207. https://doi.org/http://dx.doi.org/10.1016/j.jpainsymman.2016.08.022
- Carlson, A. L. (2007). Death in the nursing home: Resident, family, and staff perspectives. Journal of Gerontological Nursing, 33(4), 32–41.
- Denham, S. A., Meyer, M. G., Rathbun, A., Toborg, M. A., & Thornton, L. (2006). Knowledge of rural nurses’ aides about end-of-life care. Family & Community Health, 29(3), 229–241.
- Donnelly, S., & Donnelly, C. (2009). The experience of the moment of death in a specialist palliative care unit (SPCU). Irish Medical Journal, 102(5), 143–149.
- Fryer, S., Bellamy, G., Morgan, T., & Gott, M. (2016). “Sometimes I’ve gone home feeling that my voice hasn’t been heard”: A focus group study exploring the views and experiences of health care assistants when caring for dying residents. BMC Palliative Care, 15(1), 78. https://doi.org/10.1186/s12904-016-0150-3
- Goya, F. (1788). St Francis Borja at the deathbed of an impenitent [Oil on canvas]. Valencia, Spain: Valincia Cathedral.
- Granda-Cameron, C., & Houldin, A. (2012). Concept analysis of good death in terminally ill patients. American Journal of Hospice and Palliative Medicine, 29(8), 632–639. https://doi.org/10.1177/1049909111434976
- Herber, O. R., & Johnston, B. M. (2013). The role of healthcare support workers in providing palliative and end-of-life care in the community: A systematic literature review. Health and Health & Social Care in the Community, 21(3), 225–235. https://doi.org/10.1111/j.1365-2524.2012.01092.x
- Hill, C. E., Thompson, B. J., & Williams, E. N. (1997). A guide to conducting consensual qualitative research. The Counseling Psychologist, 25(4), 517–572.
- Hochschild, A. R. (2003). The managed heart: Commercialization of human feeling (Twentieth Anniversary Edition). Berkeley: University of California Press.
- Hunter, P. V., Hadjistavropoulos, T., & Kaasalainen, S. (2016). A qualitative study of nursing assistants’ awareness of person-centred approaches to dementia care. Ageing & Society, 36(6), 1211–1237. https://doi.org/10.1017/S0144686X15000276
- Kane, R. A. (2001). Long-term care and a good quality of life. The Gerontologist, 41(3), 293–304. https://doi.org/10.1093/geront/41.3.293
- Kellehear, A. (2013). Vigils for the dying: Origin and functions of a persistent tradition. Illness, Crisis & Loss, 21(2), 109–124.
- Ko, E., Kwak, J., & Nelson-Becker, H. (2015). What constitutes a good and bad death? Perspectives of homeless older adults. Death Studies, 39(7), 422–432. https://doi.org/10.1080/07481187.2014.958629
- Leclerc, B. S., Lessard, S., Bechennec, C., Le Gal, E., Benoit, S., & Bellerose, L. (2014). Attitudes toward death, dying, end-of-life palliative care, and interdisciplinary practice in long term care workers. Journal of the American Medical Directors Association, 15(3), 207–213. https://doi.org/10.1016/j.jamda.2013.11.017
- Lesnie, M. (2011). The greatest death scenes in opera. Limelight Australia’s Classical Music and Arts Magazine. Retrieved from http://www.limelightmagazine.com.au/Article/276234%2Cthe-greatest-death-scenes-in-opera.aspx
- Lovatt, M., Nanton, V., Roberts, J., Ingleton, C., Noble, B., Pitt, E., … Munday, D. (2015). The provision of emotional labour by health care assistants caring for dying cancer patients in the community: A qualitative study into the experiences of health care assistants and bereaved family carers. International Journal of Nursing Studies, 52(1), 271–279. https://doi.org/10.1016/j.ijnurstu.2014.10.013
- Marcella, J., & Kelley, M. L. (2015). “Death is part of the job” in long-term care homes: Supporting direct care staff with their grief and bereavement. SAGE Open, 5(1), 215824401557391. https://doi.org/10.1177/2158244015573912
- McClement, S., Lobchuk, M., Chochinov, H., M., & Dean, R. (2010). “Broken covenant”. Healthcare aides’ “experience of the ethical” in caring for dying seniors in a personal care home. The Journal of Clinical Ethics, 21(3), 201–211.
- McCormack, B., Roberts, T., Meyer, J., Morgan, D., & Boscart, V. (2012). Appreciating the “person” in long-term care. International Journal of Older People Nursing, 7(4), 284–294. https://doi.org/10.1111/j.1748-3743.2012.00342.x
- Miles, M. B., Huberman, A. M., & Saldana, J. (2014). Qualitative data analysis (3rd ed.). Thousand Oaks, CA: Sage.
- Morse, J. M., & Field, P.-A. (1996). Nursing research: The application of qualitative approaches (2nd ed.). Thousand Oaks, CA: Sage.
- Moss, M. S., Moss, S. Z., Rubinstein, R. L., & Black, H. K. (2003). The metaphor of “family” in staff communication about dying and death. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 58(5), S290–S296. https://doi.org/10.1093/geronb/58.5.S290
- Munch, E. (1896). The death bed [Oil on canvas]. Oslo, Norway: Munch Museum.
- Munch, E. (1907). The sick child [Oil on canvas]. London, UK: Tate. Retrieved from https://www.artsy.net/artwork/55dba9ab726169635300051b
- Seale, C. (1995). Dying alone. Sociology of Health and Illness, 17(3), 376–392. https://doi.org/10.1111/1467-9566.ep10933327
- Seale, C. (2004). Media constructions of dying alone: A form of “bad death”. Social Science & Medicine, 58(5), 967–974. https://doi.org/10.1016/J.SOCSCIMED.2003.10.038
- Speziale, H. J. S., & Carpenter, D. R. (2007). Qualitative research in nursing: Advancing the humanistic imperative (4th ed.). Philadelphia, PA: Lippincott Williams & Wilkins.
- Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L., & Tulsky, J. A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA, 284(19), 2476–2482. https://doi.org/10.1001/jama.284.19.2476
- Sussman, T., Kaasalainen, S., Mintzberg, S., Sinclair, S., Young, L., Ploeg, J., … McKee, M. (2017). Broadening end-of-life comfort to improve palliative care practices in long-term care. Canadian Journal on Aging / La Revue Canadienne Du Vieillissement, 36(3), 306–317. https://doi.org/10.1017/S0714980817000253
- Thorne, S. E. (2008). Interpretive description. Walnut Creek, CA: Left Coast Press.
- Tong, E., McGraw, S. A., Dobihal, E., Baggish, R., Cherlin, E., & Bradley, E. H. (2003). What is a good death? Minority and non-minority perspectives. Journal of Palliative Care, 19(3), 168–175. Retrieved from https://search-proquest-com.uml.idm.oclc.org/docview/214199789?accountid=14569
- Townsend, K. C., & McWhirter, B. T. (2005). Connectedness: A review of the literature with implications for counseling, assessment, and research. Journal of Counseling & Development, 83(2), 191–201. https://doi.org/10.1002/j.1556-6678.2005.tb00596.x
- Waldrop, D. P., & Kirkendall, A. M. (2009). Comfort measures: A qualitative study of nursing home-based end-of-life care. Journal of Palliative Medicine, 12(8), 719–724. https://doi.org/10.1111/j.1547-5069.1991.tb00678.x
- Williams, B. R., Bailey, F. A., Woodby, L. L., Wittich, A. R., & Burgio, K. L. (2013). “A room full of chairs around his bed”: Being present at the death of a loved one in Veterans Affairs Medical Centers. Omega – Journal of Death and Dying, 66(3), 231–263. https://doi.org/10.2190/OM.66.3.c
- Williams, J., Hadjistavropoulos, T., Ghandehar, O., Malloy, D. C., Hunter, P. V., & Martin, R. R. (2016). Resilience and organisational empowerment among long-term care nurses: effects on patient care and absenteeism. Journal of Nursing Management, 24(3), 300–308. https://doi.org/10.1111/jonm.12311
- Wright, D., Brajtman, S., & Bitzas, V. (2009). Human relationships at the end-of-life. Journal of Hospice & Palliative Nursing, 11(4), 219–227. https://doi.org/10.1097/NJH.0b013e3181aada4c