A multidisciplinary perspective on physician-assisted dying in primary care in The Netherlands: A narrative interview study

References

• Andriessen, K., Krysinska, K., Castelli Dransart, D. A., Dargis, L., & Mishara, B. L. (2019). Grief after euthanasia and physician-assisted suicide: A systematic review. Crisis: The Journal of Crisis Intervention and Suicide Prevention, 41(4), 255–272. https://doi.org/10.1027/0227-5910/a000630
   Web of Science ®Google Scholar
• Batenburg, R., Bosmans, M., Versteeg, S., Vis, E., Asten, B. v., Vandermeulen, L., & Kuis, L. v d. (2018). Balans in vraag en aanbod huisartsenzorg. Nivel, Prismant. https://www.nivel.nl/nl/publicatie/balans-vraag-en-aanbod-huisartsenzorg
   Google Scholar
• Belgrave, L. L., Zablotsky, D., & Guadagno, M. A. (2002). How do we Talk to Each other? Writing qualitative research for quantitative readers. Qualitative Health Research, 12(10), 1427–1439. https://doi.org/10.1177/1049732302238753
   PubMed Web of Science ®Google Scholar
• Birt, L., Scott, S., Cavers, D., Campbell, C., & Walter, F. (2016). Member checking: A tool to enhance trustworthiness or Merely a Nod to validation? Qualitative Health Research, 26(13), 1802–1811. https://doi.org/10.1177/1049732316654870
   PubMed Web of Science ®Google Scholar
• Brown, J., Goodridge, D., Harrison, A., Kemp, J., Thorpe, L., & Weiler, R. (2020). Care considerations in a patient- and family-centered medical assistance in dying program. Journal of Palliative Care, 2020, 082585972095166. https://doi.org/10.1177/0825859720951661
   Google Scholar
• de Boer, M. E., Depla, M., den Breejen, M., Slottje, P., Onwuteaka-Philipsen, B. D., & Hertogh, C. (2019). Pressure in dealing with requests for euthanasia or assisted suicide. Experiences of general practitioners. Journal of Medical Ethics, 45(7), 425–429. https://doi.org/10.1136/medethics-2018-105120
   PubMed Web of Science ®Google Scholar
• Dees, M. K., Vernooij-Dassen, M. J., Dekkers, W. J., Elwyn, G., Vissers, K. C., & van Weel, C. (2013). Perspectives of decision-making in requests for euthanasia: A qualitative research among patients, relatives and treating physicians in the Netherlands. Palliative Medicine, 27(1), 27–37. https://doi.org/10.1177/0269216312463259
   PubMed Web of Science ®Google Scholar
• Government of the Netherlands. (n.d.). Is euthanasia allowed? https://www.government.nl/topics/euthanasia/is-euthanasia-allowed
   Google Scholar
• Greenhalgh, T., Russell, J., & Swinglehurst, D. (2005). Narrative methods in quality improvement research. Quality & Safety in Health Care, 14(6), 443–449. https://doi.org/10.1136/qshc.2005.014712
   PubMed Web of Science ®Google Scholar
• Gudat, H., Ohnsorge, K., Streeck, N., & Rehmann-Sutter, C. (2019). How palliative care patients’ feelings of being a burden to others can motivate a wish to die. Moral challenges in clinics and families. Bioethics, 33(4), 421–430. https://doi.org/10.1111/bioe.12590
   PubMed Web of Science ®Google Scholar
• Hamarat, N., Pillonel, A., Berthod, M.-A., Castelli Dransart, D. A., & Lebeer, G. (2021). Exploring contemporary forms of aid in dying: An ethnography of euthanasia in Belgium and assisted suicide in Switzerland. Death Studies, 2021, 1–15. https://doi.org/10.1080/07481187.2021.1926635
   Google Scholar
• Koksvik, G., Richards, N., Gerson, S. M., Materstvedt, L., & Clark, D. (2020). Medicalisation, suffering and control at the end of life: The interplay of deep continuous palliative sedation and assisted dying. Health, 2020, 136345932097674. https://doi.org/10.1177/1363459320976746
   Google Scholar
• Kouwenhoven, P. S. C., van Thiel, G., van der Heide, A., Rietjens, J. A. C., & van Delden, J. J. M. (2019). Developments in euthanasia practice in the Netherlands: Balancing professional responsibility and the patient’s autonomy. European Journal of General Practice, 25(1), 44–45. https://doi.org/10.1080/13814788.2018.1517154
   PubMed Web of Science ®Google Scholar
• Norwood, F. (2007). Nothing more to do: Euthanasia, general practice, and end-of-life discourse in the Netherlands. Medical Anthropology, 26(2), 139–174. https://doi.org/10.1080/01459740701283165
   PubMed Web of Science ®Google Scholar
• O'Brien, B. C., Harris, I. B., Beckman, T. J., Reed, D. A., & Cook, D. A. (2014). Standards for reporting qualitative research: A synthesis of recommendations. Academic Medicine, 89(9), 1245–1251. https://doi.org/10.1097/ACM.0000000000000388
   PubMed Web of Science ®Google Scholar
• Plat, F., Peters, Y., Smits, M., & Giesen, P. (2019). Knelpunten in de palliative spoedzorg. Huisarts en Wetenschap, 62(10), 29–33. https://doi.org/10.1007/s12445-019-0244-2
   Google Scholar
• Regional Euthanasia Review Committees. (2020). Annual report 2019. https://english.euthanasiecommissie.nl/the-committees/documents/publications/annual-reports/2002/annual-reports/annual-reports
   Google Scholar
• Regional Euthanasia Review Committees. (n.d.). Due care criteria. https://english.euthanasiecommissie.nl/due-care-criteria
   Google Scholar
• Riessman, C. K. (2008). Narrative methods for the human sciences. Sage Publications.
   Google Scholar
• Rietjens, J., Heijltjes, M. T., van Delden, J., Onwuteaka-Philipsen, B. D., & van der Heide, A. (2019). The rising frequency of continuous deep sedation in the netherlands, a repeated cross-sectional survey in 2005, 2010, and 2015. Journal of the American Medical Directors Association, 20(11), 1367–1372. doi:https://doi.org/10.1016/j.jamda.2019.06.012
   PubMed Web of Science ®Google Scholar
• Roest, B. (2021). Old problems in need of new (narrative) approaches? A young physician-bioethicist’s search for ethical guidance in the practice of physician-assisted dying in the Netherlands. Journal of Medical Ethics, 47(4), 274–279. https://doi.org/10.1136/medethics-2019-106016
   Web of Science ®Google Scholar
• Roest, B., Milota, M., & Leget, C. (2021). Developing new ways to listen: The value of narrative approaches in empirical (bio)ethics. BMC Medical Ethics, 22(1), 124. https://doi.org/10.1186/s12910-021-00691-7
   PubMed Web of Science ®Google Scholar
• Smith, K. A., Harvath, T. A., Goy, E. R., & Ganzini, L. (2015). Predictors of pursuit of physician-assisted death. Journal of Pain and Symptom Management, 49(3), 555–561. https://doi.org/10.1016/j.jpainsymman.2014.06.010
   PubMed Web of Science ®Google Scholar
• Snijdewind, M. C., van Tol, D. G., Onwuteaka-Philipsen, B. D., & Willems, D. L. (2014). Complexities in euthanasia or physician-assisted suicide as perceived by Dutch physicians and patients’ relatives. Journal of Pain and Symptom Management, 48(6), 1125–1134. https://doi.org/10.1016/j.jpainsymman.2014.04.016
   PubMed Web of Science ®Google Scholar
• Snijdewind, M. C., van Tol, D. G., Onwuteaka-Philipsen, B. D., & Willems, D. L. (2018). Developments in the practice of physician-assisted dying: Perceptions of physicians who had experience with complex cases. Journal of Medical Ethics, 44(5), 292–296. https://doi.org/10.1136/medethics-2016-103405
   PubMed Web of Science ®Google Scholar
• Tan, A., Zimmermann, C., & Rodin, G. (2005). Interpersonal processes in palliative care: An attachment perspective on the patient-clinician relationship. Palliative Medicine, 19(2), 143–150. https://doi.org/10.1191/0269216305pm994oa
   PubMed Web of Science ®Google Scholar
• Ten Cate, K., van Tol, D. G., & van de Vathorst, S. (2017). Considerations on requests for euthanasia or assisted suicide; a qualitative study with Dutch general practitioners. Family Practice, 34(6), 723–729. https://doi.org/10.1093/fampra/cmx041
   PubMed Web of Science ®Google Scholar
• Thomas, H. L. (2020). Demedicalisation: Radically reframing the assisted dying debate-an essay by Lucy Thomas. BMJ, 371, m2919. https://doi.org/10.1136/bmj.m2919
   PubMedGoogle Scholar
• Van Tol, D. G., van de Vathorst, S., & Keizer, A. A. (2008). Euthanasie voor beginners. Medisch Contact, 63, 140–142.
   Google Scholar