Patients’ experiences and expectations of the General Practitioner’s role during bereavement care after losing a loved one: A qualitative study

References

• Agnew, A., Manktelow, R., Taylor, B., & Jones, L. (2010). Bereavement needs assessment in specialist palliative care: A review of the literature. Palliative Medicine, 24(1), 46–59. https://doi.org/10.1177/0269216309107013
   PubMed Web of Science ®Google Scholar
• An Fhailí, M. N., Flynn, N., & Dowling, S. (2016). Experiences of suicide bereavement: A qualitative study exploring the role of the GP. The British Journal of General Practice : The Journal of the Royal College of General Practitioners, 66(643), e92–e98. https://doi.org/10.3399/bjgp16X683413
   PubMed Web of Science ®Google Scholar
• Benkel, I., Wijk, H., & Molander, U. (2009). Family and friends provide most social support for the bereaved. Palliative Medicine, 23(2), 141–149. https://doi.org/10.1177/0269216308098798
   PubMed Web of Science ®Google Scholar
• Bergman, E. J., Haley, W. E., & Small, B. J. (2010). The role of grief, anxiety, and depressive symptoms in the use of bereavement services. Death Studies, 34(5), 441–458. https://doi.org/10.1080/07481181003697746
   PubMed Web of Science ®Google Scholar
• Billings, J. A., & Kolton, E. (1999). Family satisfaction and bereavement care following death in the hospital. Journal of Palliative Medicine, 2(1), 33–49. https://doi.org/10.1089/jpm.1999.2.33
   PubMedGoogle Scholar
• Charlton, R., & Dolman, E. (1995). Bereavement: A protocol for primary care. British Journal of General Practice, 45(397), 427–430.
   PubMed Web of Science ®Google Scholar
• Dangler, L. A., ODonnell, J., Gingrich, C., & Bope, E. T. (1996). What do family member expect from the family physician of a deceased loved one? Family Medicine, 28(10), 694–697.
   PubMedGoogle Scholar
• Dierckx de Casterle, B., Gastmans, C., Bryon, E., & Denier, Y. (2012). QUAGOL: A guide for qualitative data analysis. International Journal of Nursing Studies, 49(3), 360–371. https://doi.org/10.1016/j.ijnurstu.2011.09.012
   PubMed Web of Science ®Google Scholar
• Erikson, A., Puntillo, K., & McAdam, J. (2019). Family members’ opinions about bereavement care after cardiac intensive care unit patients’ deaths. Nursing in Critical Care, 24(4), 209–221. https://doi.org/10.1111/nicc.12439
   PubMed Web of Science ®Google Scholar
• García, J. A., Landa, V., Grandes, G., Pombo, H., & Mauriz, A. (2013). Effectiveness of “primary bereavement care” for widows: A cluster randomized controlled trial involving family physicians. Death Studies, 37(4), 287–310. https://doi.org/10.1080/07481187.2012.722041
   PubMed Web of Science ®Google Scholar
• Ghesquiere, A. R., Patel, S. R., Kaplan, D. B., & Bruce, M. L. (2014). Primary care providers’ bereavement care practices: Recommendations for research directions. International Journal of Geriatric Psychiatry, 29(12), 1221–1229. https://doi.org/10.1002/gps.4157
   PubMed Web of Science ®Google Scholar
• Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. Aldine Publishing Co.
   Google Scholar
• Guldin, M.-B., Vedsted, P., Jensen, A. B., Olesen, F., & Zachariae, R. (2013). Bereavement care in general practice: A clusterrandomized clinical trial. Family Practice, 30(2), 134–141. https://doi.org/10.1093/fampra/cms053
   PubMed Web of Science ®Google Scholar
• Harrop, E., Goss, S., Farnell, D., Longo, M., Byrne, A., Barawi, K., Torrens-Burton, A., Nelson, A., Seddon, K., Machin, L., Sutton, E., Roulston, A., Finucane, A., Penny, A., Smith, K. V., Sivell, S., & Selman, L. E. (2021). Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine, 35(10), 1985–1997. https://doi.org/10.1177/02692163211043372
   PubMed Web of Science ®Google Scholar
• Hashim, S. M., Eng, T. C., Tohit, N., & Wahab, S. (2013). Bereavement in the elderly: the role of primary care. Mental Health in Family Medicine, 10(3), 159–162.
   PubMedGoogle Scholar
• Krigger, K. W., McNeely, J. D., & Lippmann, S. B. (1997). Dying, death, and grief: Helping patients and their families through the process. Postgraduate Medicine, 101(3), 263–270. https://doi.org/10.3810/pgm.1997.03.187
   PubMed Web of Science ®Google Scholar
• Lemkau, J. P., Mann, B., Little, D., Whitecar, P., Hershberger, P., & Schumm, J. A. (2000). A questionnaire survey of family practice physicians’ perceptions of bereavement care. Archives of Family Medicine, 9(9), 822–829.
   PubMedGoogle Scholar
• Lichtenthal, W. G., Roberts, K. E., & Prigerson, H. G. (2020). Bereavement care in the Wake of COVID-19: Offering condolences and referrals. Annals of Internal Medicine, 173(10), 833–835. https://doi.org/10.7326/M20-2526
   PubMed Web of Science ®Google Scholar
• Main, J. (2000). Improving management of bereavement in general practice based on a survey of recently bereaved subjects in a single general practice. Britisch Journal of General Practice, 50(460), 863–866.
   PubMed Web of Science ®Google Scholar
• Mazza, D. (1998). Bereavement in adult life GPs should be accessible, not intrusive. BMJ (Clinical Research ed.), 317(7157), 538–539. https://doi.org/10.1136/bmj.317.7157.538a
   PubMedGoogle Scholar
• McGrath, P., Holewa, H., & McNaught, M. (2010). Surviving spousal bereavement: Insights for GPs. Australian Family Physician, 39(10), 780–783.
   PubMedGoogle Scholar
• Meichsner, F., O’Connor, M., Skritskaya, N., & Shear, M. K. (2020). Grief before and after bereavement in the elderly: An approach to care. The American Journal of Geriatric Psychiatry : official Journal of the American Association for Geriatric Psychiatry, 28(5), 560–569. https://doi.org/10.1016/j.jagp.2019.12.010
   PubMed Web of Science ®Google Scholar
• Merel, S. E., Stafford, M. M., White, A. A., Fligner, C. L., Amory, J. K., & Hagman, M. M. (2015). Providers’ beliefs about expressing condolences to the family of a deceased patient: A qualitative and quantitative analysis. Journal of Palliative Medicine, 18(3), 217–224. https://doi.org/10.1089/jpm.2014.0217
   PubMed Web of Science ®Google Scholar
• Milberg, A., Olsson, E. C., Jakobsson, M., Olsson, M., & Friedrichsen, M. (2008). Family members’ perceived needs for bereavement follow-up. Journal of Pain and Symptom Management, 35(1), 58–69. https://doi.org/10.1016/j.jpainsymman.2007.02.039
   PubMed Web of Science ®Google Scholar
• Morris, S. E., Nayak, M. M., & Block, S. D. (2020). Insights from bereaved family members about end-of-life care and bereavement. Journal of Palliative Medicine, 23(8), 1030–1037. https://doi.org/10.1089/jpm.2019.0467
   PubMed Web of Science ®Google Scholar
• Muhammed, A., Dodd, A., Guerin, S., Delaney, S., & Dodd, P. (2021). Complicated grief knowledge and practice: A qualitative study of general practitioners in Ireland. Irish Journal of Psychological Medicine, 1–6. https://doi.org/10.1017/ipm.2020.122
   Web of Science ®Google Scholar
• Nagraj, S., & Barclay, S. (2009). Bereavement and coping with Loss. InnovAiT: Education and Inspiration for General Practice, 2(10), 613–618. https://doi.org/10.1093/innovait/inp104
   Google Scholar
• Nagraj, S., & Barclay, S. (2011). Bereavement care in primary care: A systematic literature review and narrative synthesis. British Journal of General Practice, 61(582), e42–e48. https://doi.org/10.3399/bjgp11X549009
   PubMed Web of Science ®Google Scholar
• O’Connor, M., & Breen, L. J. (2014). General Practitioners’ experiences of bereavement care and their educational support needs: A qualitative study. BMC Medical Education, 14(1), 59–10. https://doi.org/10.1186/1472-6920-14-59
   PubMedGoogle Scholar
• Olsen, C. (2000). Good grief. Archives of Family Medicine, 9(9), 833–834. https://doi.org/10.1001/archfami.9.9.833
   PubMedGoogle Scholar
• Palliatieve zorg Vlaanderen. (n.d.). Palliatieve zorg in cijfers. https://palliatievezorgvlaanderen.be/zorgverlener/research/palliatieve-zorg-in-cijfers/
   Google Scholar
• Parkes, C. M. (1998). Coping with loss: Bereavement in adult life. BMJ (Clinical Research ed.), 316(7134), 856–859. https://doi.org/10.1136/bmj.316.7134.856
   PubMed Web of Science ®Google Scholar
• Pearce, C., Wong, G., Kuhn, I., & Barclay, S. (2021). Supporting bereavement and complicated grief in primary care: a realist review. BJGP Open, 5(3), BJGPO.2021.0008. https://doi.org/10.3399/BJGPO.2021.0008
   PubMedGoogle Scholar
• Peters, S., Sukumar, K., Blanchard, S., Ramasamy, A., Malinowski, J., Ginex, P., Senerth, E., Corremans, M., Munn, Z., Kredo, T., Remon, L. P., Ngeh, E., Kalman, L., Alhabib, S., Amer, Y. S., & Gagliardi, A. (2022). Trends in guideline implementation: An updated scoping review protocol. JBI Evidence Synthesis, 20(4), 1106–1112. https://doi.org/10.11124/JBIES-21-00064
   PubMedGoogle Scholar
• Peters, S., Van Hout, E., Jansen, L., & van den Akker, M. (2022). Psychosocial well-being of older spouses during end-of-life caregiving for their partners with cancer: A phenomenological study. Journal of Gerontological Nursing, 48(6), 33–39. https://doi.org/10.3928/00989134-20220506-02
   PubMed Web of Science ®Google Scholar
• Rogiers, R., Declercq, T., & Anthierens, S. (2009). Rouwbegeleiding door de huisarts. Huisarts Nu, 38(6), 229–235.
   Google Scholar
• Saunderson, E. M., & Ridsdale, L. (1999). General practitioners’ beliefs and attitudes about how to respond to death and bereavement: Qualitative study. BMJ (Clinical Research ed.), 319(7205), 293–296. https://doi.org/10.1136/bmj.319.7205.293
   PubMedGoogle Scholar
• Schäfer, W., Kroneman, M., Boerma, W., Berg, M. V. D., Westert, G., Devillé, W., & Ginneken, E. V. (2010). The Netherlands: Health system review. Health SystemTransit. 12(1), 1–228.
   Google Scholar
• Shear, M. K., Muldberg, S., & Periyakoil, V. (2017). Supporting patients who are bereaved. BMJ (Clinical Research ed.), 358, j2854. https://doi.org/10.1136/bmj.j2854
   PubMedGoogle Scholar
• Shear, M. K., Simon, N., Wall, M., Zisook, S., Neimeyer, R., Duan, N., Reynolds, C., Lebowitz, B., Sung, S., Ghesquiere, A., Gorscak, B., Clayton, P., Ito, M., Nakajima, S., Konishi, T., Melhem, N., Meert, K., Schiff, M., O’Connor, M.-F., … Keshaviah, A. (2011). Complicated grief and related bereavement issues for DSM-5. Depression and Anxiety, 28(2), 103–117. https://doi.org/10.1002/da.20780.COMPLICATED
   PubMed Web of Science ®Google Scholar
• Sikstrom, L., Saikaly, R., Ferguson, G., Mosher, P. J., Bonato, S., & Soklaridis, S. (2019). Being there: A scoping review of grief support training in medical education. PLos One, 14(11), e0224325. https://doi.org/10.1371/journal.pone.0224325
   PubMed Web of Science ®Google Scholar
• Starks, H., & Trinidad, S. B. (2007). Choose your method: A comparison of phenomenology, discourse analysis, and grounded theory. Qualitative Health Research, 17(10), 1372–1380. https://doi.org/10.1177/1049732307307031
   PubMed Web of Science ®Google Scholar
• Stroebe, M., Schut, H., & Stroebe, W. (2007). Health outcomes of bereavement. Lancet (London, England), 370(9603), 1960–1973. https://doi.org/10.1016/S0140-6736(07)61816-9
   PubMed Web of Science ®Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care : Journal of the International Society for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Van Hout, E., Peters, S., Jansen, L., Rober, P., & van den Akker, M. (2020). An exploration of spousal caregivers’ well-being after the death of their partners who were older cancer patients – A phenomenological approach. European Journal of Oncology Nursing : The Official Journal of European Oncology Nursing Society, 47(May), 101779. https://doi.org/10.1016/j.ejon.2020.101779
   PubMedGoogle Scholar
• Wakefield, D., Fleming, E., Howorth, K., Waterfield, K., Kavanagh, E., Billett, H. C., Kiltie, R., Robinson, L., Rowley, G., Brown, J., Woods, E., & Dewhurst, F. (2020). Inequalities in awareness and availability of bereavement services in North-East England. BMJ Supportive & Palliative Care, bmjspcare-2020-002422. https://doi.org/10.1136/bmjspcare-2020-002422
   Google Scholar
• Woof, W. R. (1997). The grieving adult and the general practitioner: A literature review in two parts (part 2). British Journal of General Practice, 47(421), 509–514.
   PubMed Web of Science ®Google Scholar
• Zeitlin, S. V. (2001). Grief and Bereavement. Primary Care, 28(2), 415–425. https://doi.org/10.1097/NJH.0000000000000473
   PubMed Web of Science ®Google Scholar