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ORIGINAL RESEARCH ARTICLE

Dementia-inclusive group-singing online during COVID-19: A qualitative exploration

ORCID Icon, ORCID Icon & ORCID Icon
Pages 308-326 | Received 26 Jan 2021, Accepted 08 Jul 2021, Published online: 22 Oct 2021

References

  • Alzheimer’s Society. (2020). The impact of COVID-19 on people affected by dementia. https://www.alzheimers.org.uk/sites/default/files/2020-08/The_Impact_of_COVID-19_on_People_Affected_By_Dementia.pdf
  • Arthur, S., & Nazroo, S. (2003). Designing fieldwork strategies and materials. In J. Ritchie & J. Lewis (Eds.), Qualitative research practice (pp. 109–137). Sage Publications.
  • Astell, A. J., Malone, B., Williams, G., Hwang, F., & Ellis, M. P. (2014). Leveraging everyday technology for people living with dementia: A case study. Journal of Assistive Technology, 8(4), 164e76. https://doi.org/10.1108/JAT-01-2014-0004
  • Banerjee, S., Murray, J., Foley, B., Atkins, L., Schneider, J., & Mann, A. (2003). Predictors of institutionalisation in people with dementia. Journal of Neurology, Neurosurgery, and Psychiatry, 74(9), 1315–1316. http://dx.doi.org/10.1136/jnnp.74.9.1315
  • BBC News. (2020, April 22). Coronavirus: Online music therapy group a ‘lifeline’ in pandemic, BBC News. https://www.bbc.com/news/av/uk-england-essex-52375524
  • Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code development. Sage Publications.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Camic, P. M., Williams, C. M., & Meeten, F. (2011). Does a ‘singing together group’ improve the quality of life of people with a dementia and their carers? A pilot evaluation study. Dementia, 12(2), 157–176. https://doi.org/10.1177/1471301211422761
  • Canevelli, M., Valletta, M., Toccaceli Blasi, M., Remoli, G., Sarti, G., Nuti, F., Sciancalepore, F., Ruberti, E., Cesari, M., & Bruno, G. (2020). Facing dementia during the COVID-19 outbreak. Journal of the American Geriatrics Society, 68(8), 1673–1676. https://doi.org/10.1111/jgs.16644
  • Chang, H.-Y., Chiou, C.-J., & Chen, N.-S. (2010). Impact of mental health and caregiver burden on family caregivers’ physical health. Archives of Gerontology and Geriatrics, 30(3), 267–271. https://doi.org/10.1016/j.archger.2009.04.006
  • Cho, H. K. (2018). The effects of music therapy-singing group on quality of life and affect of persons with dementia: A randomized controlled trial. Frontiers in Medicine, 5, 279. https://doi.org/10.3389/fmed.2018.00279
  • Clare, A., & Camic, P. M. (2020). Live and recorded group music interventions with active participation for people with dementias: A systematic review. Arts & Health, 12(3), 197–220. https://doi.org/10.1080/17533015.2019.1675732
  • Clark, I. N., Tamplin, J. D., & Baker, F. A. (2018). Community-dwelling people living with dementia and their family caregivers experience enhanced relationships and feelings of well-being following therapeutic group-singing: A qualitative thematic analysis. Frontiers in Psychology, 9, 1332. https://doi.org/10.3389/fpsyg.2018.01332
  • Cooper, C., Balamurali, T. B. S., & Livingston, G. (2007). A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia. International Psychogeriatrics, 19(2), 175–195. https://doi.org/10.1017/S1041610206004297
  • Creswell, J. W. (2003). Research design: Qualitative, quantitative, and mixed method approaches. Sage Publications.
  • Creswell, J. W., & Plano Clark, V. L. (2011). Designing and conducting mixed methods research (2nd ed.). Sage Publications.
  • Dal Bello-Haas, V. P. M., O’Connell, M. E., Morgan, D. G., & Crossley, M. (2014). Lessons learned: Feasibility and acceptability of a telehealth-delivered exercise intervention for rural dwelling individuals with dementia and their caregivers. Rural and Remote Health, 14(3), 2715. www.rrh.org.au/journal/article/2715
  • Dickinson, C., Dow, J., Gibson, G., Hayes, L., Robalino, S., & Robinson, L. (2017). Psychosocial intervention for carers of people living with dementia: What components are most effective and when? A systematic review of systematic reviews. International Psychogeriatrics, 29(1), 31–43. https://doi.org/10.1017/S1041610216001447
  • Doody, P., Wang, M., Scarlett, S., Hever, A., O’Mahoney, P., & Kenny, R. A. (2020). Internet access and use among adults aged 50 and over in Ireland: Results from wave 5 of the Irish longitudinal study on ageing. Trinity College Dublin. https://www.doi.org/10.38018/TildaRe.2020-06
  • Dorman, G., Alvarez Dengra, A., Fiorini, A., Failla, B., Vallejos, F., Pontello, N., Roca, M., & Bustin, J. (2020). Experience and results with a telehealth treatment program in patients with cognitive disorders during the COVID-19 pandemic [COVID-19 Special issue]. International Journal of Geriatric Psychiatry, 35(12), 1475–1476. https://doi.org/10.1002/gps.5396
  • Draper, B. (2013). Understanding Alzheimer’s Disease and other dementias. Jessica Kingsley Publishers.
  • Dyer, S. M., Harrison, S. L., Laver, K., & Whitehead, C. (2018). An overview of systematic reviews of pharmacological and non-pharmacological interventions for the treatment of behavioural and psychological symptoms of dementia. International Psychogeriatrics, 30(3), 295–309. https://doi.org/10.1017/S1041610217002344
  • Elliott, M., & Gardner, P. (2018). The role of music in the lives of older adults with dementia ageing in place: A scoping review. Dementia (London), 17(2), 199–213. https://doi.org/10.1177/1471301216639424
  • Elliott, R., Fischer, C. T., & Rennie, D. L. (1999). Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38(3), 215–229. https://doi.org/10.1348/014466599162782
  • European Choral Association. (2020). Covid-19 information for choral organisations, choirs and conductors. European Choral Association. https://www.asiwny.org/wp-content/uploads/2020/06/Covid-19-information-for-choral-organisations-choirs-and-conductors.pdf
  • Fancourt, D., & Finn, S. (2019). What is the evidence on the role of the arts in improving health and well-being? A scoping review. European Choral Association: World Health Organisation. https://www.euro.who.int/en/publications/abstracts/what-is-the-evidence-on-the-role-of-the-arts-in-improving-health-and-well-being-a-scoping-review-2019
  • Farina, N., Page, T. E., Daley, S., Brown, A., Bowling, A., Basset, T., Livingstone, G., Knappf, M., Murrayg, J., & Banerjee, S. (2017). Factors associated with the quality of life of family carers of people with dementia: A systematic review. Alzheimer’s & Dementia, 13(5), 572–581. https://doi.org/10.1016/j.jalz.2016.12.010
  • Ferguson, P. (2016). Real-time long-distance music collaboration using the internet. In R. Hepworth-Sawyer, J. Hodgson, J. L. Paterson, & R. Toulson (Eds.), KES transactions on innovation in music: Innovation in music II (Vol. 2, pp. 174–178). Future Technology Press and Virtual Knowledge Solutions Ltd.
  • Glover, K. K. (2020). A phenomenological study of the therapeutic relationship in tele-music therapy in the US (Master’s Thesis, Molloy College, Rockville Centre, NY). Digital Commons at Molloy: Theses and Dissertations https://digitalcommons.molloy.edu/etd/85/
  • Grady, M. P. (1998). Qualitative and action research: A practitioner handbook. Phi Delta Kappa Educational Foundation.
  • Granot, R., Spitz, D. H., Cherki, B. R., Loui, P., Timmers, R., Schaefer, R. S., Vuoskoski, J. K., Cárdenas-Soler, R.-N., Soares-Quadros, J. F., Jr, Li, S., Lega, C., La Rocca, S., Martínez, I. C., Tanco, M., Marchiano, M., Martínez-Castilla, P., Pérez-Acosta, G., Martínez-Ezquerro, J. D., Gutiérrez-Blasco, I. M., & Israel, S. (2021). “Help! I need somebody”: Music as a global resource for obtaining wellbeing goals in times of crisis. PsyArXiv Preprints, Preprint https://doi.org/10.31234/osf.io/frcqn
  • Hennink, M., Hutter, I., & Bailey, A. (2020). Qualitative research methods. Sage Publications.
  • Hori, M., Kubota, M., Ando, K., Kihara, T., Takahashi, R., & Kinoshita, A. (2009). The effect of videophone communication (with skype and webcam) for elderly patients with dementia and their caregivers. Gan to Kagaku Ryoho, 36(Suppl. 1), S36–S38. https://pubmed.ncbi.nlm.nih.gov/22189334/
  • Kelly, B. (2020). Coping with coronavirus: How to stay calm and protect your mental health: A psychological toolkit. Merrion Press.
  • Keyes, C. L. M. (1998). Social well-being. Social Psychology Quarterly, 61(2), 121–140. https://doi.org/10.2307/2787065
  • Laver, K., Milte, R., Dyer, S., & Crotty, M. (2017). A systematic review and meta-analysis comparing carer focused and dyadic multicomponent interventions for carers of people with dementia. Journal of Aging and Health, 29(8), 1308–1349. https://doi.org/10.1177/0898264316660414
  • Lee, S., O’Neill, D., & Moss, H. (2020). Promoting well-being among people with early-stage dementia and their family carers through community-based group-singing: A phenomenological study. Arts & Health, 1–17. https://doi.org/10.1080/17533015.2020.1839776 Advance online publication.
  • LoLa. (2020, March 11). Low Latency AV Streaming System: News. Retrieved January 22, 2021, from https://lola.conts.it/#news
  • Manca, R., De Marco, M., & Venneri, A. (2020). The impact of COVID-19 infection and enforced prolonged social isolation on neuropsychiatric symptoms in older adults with and without dementia: A review. Frontiers in Psychiatry, 11, 1086. https://doi.org/10.3389/fpsyt.2020.585540
  • McDermott, O., Crellin, N., Ridder, H. M., & Orrell, M. (2013). Music therapy in dementia: A narrative synthesis systematic review. International Journal of Geriatric Psychiatry, 28(8), 781–794. https://doi.org/10.1002/gps.3895
  • Mittelman, M. S., & Papayannopoulou, P. M. (2018). The unforgettables: A chorus for people with dementia with their family members and friends. International Psychogeriatrics, 30(6), 779–789. https://doi.org/10.1017/S1041610217001867
  • Moo, L. (2019). Dementia caregiver embrace of home video telehealth visits. Innovation in Aging, 3(Suppl. 1), S243. https://doi.org/10.1093/geroni/igz038.911
  • Naunheim, M. R., Bock, J., Doucette, P. A., Hoch, M., Howell, I., Johns, M. M., Johnson, A. M., Krishna, P., Meyer, D., Milstein, C. F., Nix, J., Pitman, M. J., Robinson-Martin, T., Rubin, A. D., Sataloff, R. T., Sims, H. S., Titze, I. R., & Carroll, T. L. (2020). Safer singing during the SARS-CoV-2 pandemic: What we know and what we don’t. Journal of Voice: Official Journal of the Voice Foundation. https://doi.org/10.1016/j.jvoice.2020.06.028 . Advance online publication
  • Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16(1), 1–13. https://doi.org/10.1177/1609406917733847
  • Numbers, K., & Brodaty, H. (2021). The effects of the COVID-19 pandemic on people with dementia. Nature Reviews. Neurology, 17, 69–70. https://doi.org/10.1038/s41582-020-00450-z
  • Osman, S. E., Tischler, V., & Schneider, J. (2016). ‘Singing for the Brain’: A qualitative study exploring the health and well-being benefits of singing for people living with dementia and their carers. Dementia, 15(6), 1326–1339. https://doi.org/10.1177/1471301214556291
  • Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Sage Publications.
  • Phinney, A., Chaudhury, H., & O’Connor, D. L. (2007). Doing as much as I can do: The meaning of activity for people with dementia. Aging & Mental Health, 11(4), 384–393. https://doi.org/10.1080/13607860601086470
  • Pirhonen, J., Lolich, L., Tuominen, K., Jolanki, O., & Timonen, V. (2020). ‘These devices have not been made for older people’s needs’ – Older adults’ perceptions of digital technologies in Finland and Ireland. Technology in Society, 62, 101287. https://doi.org/10.1016/j.techsoc.2020.101287
  • Prince, M., Bryce, R., & Ferri, C. (2011). World Alzheimer report 2011: The benefits of early diagnosis and intervention. Alzheimer’s Disease International. https://www.alzint.org/u/WorldAlzheimerReport2011.pdf
  • Ruggiano, N., Brown, E. L., Li, J., & Scaccianoce, M. (2018). Rural dementia caregivers and technology: What is the evidence? Research in Gerontological Nursing, 11(4), 216–224. https://doi.org/10.3928/19404921-20180628-04
  • Schoenmakers, B., Buntinx, F., & Delepeleire, J. (2010). Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas, 66(2), 191–200. https://doi.org/10.1016/j.maturitas.2010.02.009
  • Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method, & research. Sage Publications.
  • South, J., Stansfield, J., Amlôt, R., & Weston, D. (2020). Sustaining and strengthening community resilience throughout the COVID-19 pandemic and beyond. Perspectives in Public Health, 140(6), 305–308. https://doi.org/10.1177/1757913920949582
  • Spooner, H., Lee, J. B., Langston, D. G., Sonke, J., Myers, K. J., & Levy, C. (2019). Using distance technology to deliver the creative arts therapies to veterans: Case studies in art, dance/movement and music therapy. Arts in Psychotherapy, 62, 12–18. https://doi.org/10.1016/j.aip.2018.11.012
  • Stoltz, P., Uden, G., & Willman, A. (2004). Support for family carers who care for an elderly person at home: A systematic literature review. Scandinavian Journal of Caring Sciences, 18(2), 111–119. https://doi.org/10.1111/j.1471-6712.2004.00269.x
  • Tamplin, J., Clark, I. N., Lee, Y.-E. C., & Baker, F. A. (2018). Remini-Sing: A feasibility study of therapeutic group-singing to support relationship quality and wellbeing for community-dwelling people living with dementia and their family caregivers. Frontiers in Medicine, 5, 245. https://doi.org/10.3389/fmed.2018.00245
  • Teahan, Á., Lafferty, A., McAuliffe, E., Phelan, A., O’Sullivan, L., O’Shea, D., Nicholson, E., & Fealy, G. (2020). Psychosocial interventions for family carers of people living with dementia: A systematic review and meta-analysis. Journal of Aging and Health, 32(9), 1198–1213. https://doi.org/10.1177/0898264319899793
  • Terry, G., Hayfield, N., Clarke, V., & Braun, V. (2017). Thematic analysis. In C. Willig, and W. S. Rogersed (Eds.), The sage handbook of qualitative research in psychology (2nd ed., pp. 17-37) . Sage Publications .
  • The Alzheimer Society of Ireland. (2020). Caring and coping with dementia during COVID-19. https://alzheimer.ie/wp-content/uploads/2020/07/ASI-Follow-Up-Covid-Report-Final.pdf
  • Thompson, S. (2020, December 9). Zoom singalongs helping older people overcome pandemic isolation. The Irish Times. https://www.irishtimes.com/life-and-style/health-family/zoom-singalongs-helping-older-people-overcome-pandemic-isolation-1.4418984
  • Unadkat, S., Camic, P. M., & Vella-Burrows, T. (2017). Understanding the experience of group-singing for couples where one partner has a diagnosis of dementia. The Gerontologist, 57(3), 469–478. https://doi.org/10.1093/geront/gnv698
  • Vaudreuil, R., Langston, D. G., Magee, W. L., Betts, D., Kass, S., & Levy, C. (2020). Implementing music therapy through telehealth: Considerations for military populations. Disability and Rehabilitation. Assistive Technology. https://doi.org/10.1080/17483107.2020.1775312 . Advance online publication.
  • Victor, C. R., Rippon, I., Quinn, C., Nelis, S. M., Martyr, A., Hart, N., Lamont, R., & Clare, L. (2021). The prevalence and predictors of loneliness in caregivers of people living with dementia: Findings from the IDEAL programme. Aging & Mental Health, 25(7), 1232–1238. https://doi.org/10.1080/13607863.2020.1753014
  • Wengraf, T. (2001). Qualitative research interviewing: Biographic narrative and semi-structured methods. Sage Publications.
  • Williamon, A., Ginsborg, J., Perkins, R., & Waddell, G. (2021). Performing music research: Methods in music education, psychology, and performance science. Oxford University Press.