Social service utilisation patterns among children with mild intellectual disability – differences between children integrated into mainstream classes and children in self-contained classes

References

• Allerton, L. A., V. Welch, and E. Emerson. 2011. “Health Inequalities Experienced by Children and Young People With Intellectual Disabilities: A Review of Literature from the United Kingdom.” Journal of Intellectual Disabilities 15 (4): 269–278. doi:10.1177/1744629511430772.10.1177/1744629511430772
   PubMedGoogle Scholar
• American Association on Intellectual and Developmental Disabilities. 2013. Definition of Intellectual Disability. Accessed October 28, 2014. http://aaidd.org/intellectual-disability/definition
   Google Scholar
• Bass, D. M., W. J. Looman, and P. Ehrlich. 1992. “Predicting the Volume of Health and Social Services: Integrating Cognitive Impairment into the Modified Andersen Framework.” The Gerontologist 32 (1): 33–43. doi:10.1093/geront/32.1.33.10.1093/geront/32.1.33
   PubMed Web of Science ®Google Scholar
• Berg Eklundh, L. 2010. “Contact Family: A Preventive Intervention or Short-term-Care?” [Kontaktfamilj: En förebyggande stödinsats eller mellanvård?] Licenciate thesis, Stockholm University.
   Google Scholar
• Bjerre, I., M. Larsson, A.‐M. Franzon, M. S. Nilsson, G. Strömberg, and L. M. Westbom. 2004. “Measure of Processes of Care (MPOC) Applied to Measure Parent’s Perception of the Habilitation Process in Sweden.” Child: Care, Health and Development 30 (2):123–130.
   PubMed Web of Science ®Google Scholar
• Boklund Palm, A. 1995. “Enriching Dissimilarities?: Co-operation Within the Local Social Services in Sweden.” [ Olikheter som berikar?: möjligheter och hinder i samarbetet mellan socialtjänstens äldre- och handikappomsorg, barnomsorg samt individ- och familjeomsorg.] PhD diss. Stockholm University.
   Google Scholar
• Bourke-Taylor, H., J. F. Pallant, M. Law, and L. Howie. 2012. “Predicting Mental Health among Mothers of School-aged Children with Developmental Disabilities: The Relative Contribution of Child, Maternal and Environmental Factors.” Research in Developmental Disabilities 33 (6): 1732–1740. doi:10.1016/j.ridd.2012.04.011.10.1016/j.ridd.2012.04.011
   PubMed Web of Science ®Google Scholar
• Bronfenbrenner, U. 1986. “Ecology of the Family as a Context for Human Development: Research Perspectives.” Developmental Psychology 22 (6): 723.10.1037/0012-1649.22.6.723
   Web of Science ®Google Scholar
• Chang, Y. C., J. D. Lin, H. J. Tung, P. H. Chiang, and S. W. Hsu. 2014. “Outpatient Physical Therapy Utilization for Children and Adolescents with Intellectual Disabilities in Taiwan: A Population-based Nationwide Study.” Research in Developmental Disabilities 35 (2): 498–505. doi:10.1016/j.ridd.2013.12.001.10.1016/j.ridd.2013.12.001
   PubMed Web of Science ®Google Scholar
• Cooney, G., A. Jahoda, A. Gumley, and F. Knott. 2006. “Young People with Intellectual Disabilities Attending Mainstream and Segregated Schooling: Perceived Stigma, Social Comparison and Future Aspirations.” Journal of Intellectual Disabilility Research 50 (6): 432–444. doi:10.1111/j.1365-2788.2006.00789.x.10.1111/jir.2006.50.issue-6
   PubMed Web of Science ®Google Scholar
• Douma, J. C., M. C. Dekker, and H. M. Koot. 2006. “Supporting Parents of Youths with Intellectual Disabilities and Psychopathology.” Journal of Intellectual Disabilility Research 50 (8): 570–581. doi:10.1111/j.1365-2788.2006.00825.x.10.1111/jir.2006.50.issue-8
   PubMed Web of Science ®Google Scholar
• Ellem, K., M. O’Connor, J. Wilson, and S. Williams. 2013. “Social Work with Marginalised People Who have a Mild or Borderline Intellectual Disability: Practicing Gentleness and Encouraging Hope.” Australian Social Work 66: 56–71. doi:10.1080/0312407X.2012.710244.10.1080/0312407X.2012.710244
   Web of Science ®Google Scholar
• Emerson, E. 2007. “Poverty and People with Intellectual Disabilities.” Mental Retardation and Developmental Disabilities Research Reviews 13 (2): 107–113. doi:10.1002/mrdd.20144.10.1002/(ISSN)1098-2779
   PubMedGoogle Scholar
• Emerson, E., C. Hatton, G. Llewellyn, J. Blacher, and H. Graham. 2006. “Socio-economic Position, Household Composition, Health Status and Indicators of the Well-being of Mothers of Children with and Without Intellectual Disabilities.” Journal of Intellectual Disabilility Research 50 (12): 862–873. doi:10.1111/j.1365-2788.2006.00900.x.10.1111/jir.2006.50.issue-12
   PubMed Web of Science ®Google Scholar
• Emerson, E., S. Shahtahmasebi, G. Lancaster, and D. Berridge. 2010. “Poverty Transitions among Families Supporting a Child with Intellectual Disability.” Journal of Intellectual Developmental Disability 35 (4): 224–234. doi:10.3109/13668250.2010.518562.10.3109/13668250.2010.518562
   PubMed Web of Science ®Google Scholar
• Esping-Andersen, Gøsta. 1990. The Three Worlds of Welfare Capitalism. Cambridge: Polity.
   Google Scholar
• Hassall, R., and J. Rose. 2005. “Parental Cognitions and Adaptation to the Demands of Caring for a Child with an Intellectual Disability: A Review of the Literature and Implications for Clinical Interventions.” Behavioural and Cognitive Psychotherapy 33 (1): 71–88. doi:10.1017/S135246580400178X.10.1017/S135246580400178X
   Web of Science ®Google Scholar
• Haveman, M., G. van Berkum, R. Reijnders, and T. Heller. 1997. “Differences in Service Needs, Time Demands, and Caregiving Burden among Parents of Persons with Mental Retardation across the Life Cycle.” Family Relations 46 (4): 417–425.10.2307/585101
   Web of Science ®Google Scholar
• Jones, L., M. A. Bellis, S. Wood, K. Hughes, E. McCoy, L. Eckley, G. Bates, C. Mikton, T. Shakespeare, and A. Officer. 2012. “Prevalence and Risk of Violence Against Children with Disabilities: A Systematic Review and Meta-analysis of Observational Studies.” Lancet 380 (9845): 899–907. doi:10.1016/s0140-6736(12)60692-8.10.1016/S0140-6736(12)60692-8
   PubMed Web of Science ®Google Scholar
• Leonard, H., and X. Wen. 2002. “The Epidemiology of Mental Retardation: Challenges and Opportunities in the New Millennium.” Mental Retardation and Developmental Disabilities Research Reviews 8 (3): 117–134. doi:10.1002/mrdd.10031.10.1002/(ISSN)1098-2779
   PubMedGoogle Scholar
• Lightfoot, E., K. Hill, and T. LaLiberte. 2011. “Prevalence of Children with Disabilities in the Child Welfare System and Out of Home Placement: An Examination of Administrative Records.” Children and Youth Services Review 33 (11): 2069–2075. doi:10.1016/j.childyouth.2011.02.019.10.1016/j.childyouth.2011.02.019
   Web of Science ®Google Scholar
• Majnemer, A., K. Shikako-Thomas, L. Lach, M. Shevell, M. Law, N. Schmitz, and C. Poulin. 2013. “Rehabilitation Service Utilization in Children and Youth with Cerebral Palsy.” Child: Care, Health and Development. Published online 2013. doi:10.1111/cch.12026.
   Google Scholar
• Michailakis, D., and W. Reich. 2009. “Dilemmas of Inclusive Education.” ALTER-European Journal of Disability Research/Revue Européenne de Recherche sur le Handicap 3 (1): 24–44. doi:10.1016/j.alter.2008.10.001.10.1016/j.alter.2008.10.001
   Google Scholar
• Ministry of Health and Social Affairs. 2011. En strategi för genomförande av funktionshinderspolitiken 2011–2016 [ A Strategy for Implementing Disability Policy 2011–2016]. Accessed October 28 2014. Stockholm: Socialdepartementet [ Ministry of Health and Social Affairs].
   Google Scholar
• Molin, Martin. 2004. “Attending a Special Class: About Inclusion and Exclusion in the Upper Secondary School for Pupils with ID.” [ Att vara i särklass: om delaktighet och utanförskap i gymnasiesärskolan.] PhD diss. Linköping University.
   Google Scholar
• National Board of Health and Welfare. 2006. Barn och unga i socialtjänsten: Utreda, planera och följa upp beslutade insatser [ Children and Young People in the Social Services. Investigate, Plan and Follow Up Granted Services]. Stockholm: Socialstyrelsen [ The National Board of Health and Welfare].
   Google Scholar
• National Board of Health and Welfare. 2011. Insatser till kvinnor och män med funktionsnedsättning: Kartläggning och analys av könsskillnader inom LSS och SoL [ Services to Women and Men with Impairments: Identification and Analysis of Gender Differences in Services Under the LSS and the SoL]. Stockholm: Socialstyrelsen [ The National Board of Health and Welfare].
   Google Scholar
• National Board of Health and Welfare. 2012a. Barn och unga – insatser år 2011: Vissa insatser enligt socialtjänstlagen (SoL) och lagen med särskilda bestämmelser om vård av unga (LVU) [ Children and Young People – Services 2011: Services Under the Social Services Act (SoL) and the Care of Young Persons Act (LVU)]. Stockholm: Socialstyrelsen [ The National Board of Health and Welfare].
   Google Scholar
• National Board of Health and Welfare. 2012b. Ekonomiskt bistånd årsstatistik 2011: Utbetalda belopp samt antal biståndsmottagare och antal biståndshushåll [ Financial Alssistance, Annual Statistics 2011: Amounts Paid and the Number of Beneficiaries and Households Obtaining Finacial Assistance]. Stockholm: Socialstyrelsen [ The National Board of Health and Welfare].
   Google Scholar
• National Board of Health and Welfare. 2012c. Personer med funktionsnedsättning – insatser enligt LSS år 2011 [ Persons with Impairments – Services Under the LSS 2011]. Stockholm: Socialstyrelsen [ The National Board of Health and Welfare].
   Google Scholar
• National Board of Health and Welfare. 2012d. Personer med funktionsnedsättning – vård och omsorg den 1 oktober 2011. Kommunala insatser enligt socialtjänstlagen samt hälso- och sjukvårdslagen [ Persons with Impairments – Health and Social Care the 1st of October 2011. Municipal Services under the Social Services Act and the Health and Medical Services Act]. Stockholm: Socialstyrelsen [ The National Board of Health and Welfare].
   Google Scholar
• Nowak, H. I., M. Broberg, and M. Starke. 2013. “Parents' Experience of Support in Sweden: Its Availability, Accessibility, and Quality.” Journal of Intellectual Disabilities 17 (2): 134–144. doi:10.1177/1744629513486229.10.1177/1744629513486229
   PubMedGoogle Scholar
• Olsson, M. B., and C. P. Hwang. 2001. “Depression in Mothers and Fathers of Children with Intellectual Disability.” Journal of Intellectual Disability Research 45 (6): 535–543.10.1046/j.1365-2788.2001.00372.x
   PubMed Web of Science ®Google Scholar
• Olsson, M. B., and C. P. Hwang. 2003. “Influence of Macrostructure of Society on the Life Situation of Families with a Child with Intellectual Disability: Sweden as an Example.” Journal of Intellectual Disability Research 47 (4–5): 328–341. doi:10.1046/j.1365-2788.2003.00494.x.10.1046/j.1365-2788.2003.00494.x
   PubMed Web of Science ®Google Scholar
• Olsson, M. B., and C. P. Hwang. 2006. “Well-being, Involvement in Paid Work and Division of Child-Care in Parents of Children with Intellectual Disabilities in Sweden.” Journal of Intellectual Disabilility Research 50 (12): 963–969. doi:10.1111/j.1365-2788.2006.00930.x.10.1111/jir.2006.50.issue-12
   PubMed Web of Science ®Google Scholar
• Olsson, M. B., and C. P. Hwang. 2008. “Socioeconomic and Psychological Variables as Risk and Protective Factors for Parental Well-being in Families of Children with Intellectual Disabilities.” Journal of Intellectual Disabilility Research 52 (12): 1102–1113. doi:10.1111/j.1365-2788.2008.01081.x.10.1111/jir.2008.52.issue-12
   PubMed Web of Science ®Google Scholar
• Reschly, D. J., T. G. Myers, and C. R. Hartel. 2002. Mental Retardation: Determining Eligibility for Social Security Benefits. Washington: National Academies Press.
   Google Scholar
• Robertson, J., C. Hatton, E. Wells, M. Collins, S. Langer, V. Welch, and E. Emerson. 2011. “The Impacts of Short Break Provision on Families with a Disabled Child: An International Literature Review.” Health and Social Care in the Community 19 (4): 337–371. doi:10.1111/j.1365-2524.2010.00977.x.10.1111/hsc.2011.19.issue-4
   PubMed Web of Science ®Google Scholar
• Roll-Pettersson, L. 2003. “Perceptions of Parents with Children Receiving Special Education Support in the Stockholm and Adjacent Areas.” European Journal of Special Needs Education 18 (3): 293–310. doi:10.1080/0885625032000120198.10.1080/0885625032000120198
   Google Scholar
• SFS. 1993:387. Lag om stöd och service till vissa funktionshindrade [ The Act Concerning Support and Service for Persons with Certain Functional Impairments]. Stockholm: Socialdepartementet [ Ministry of Health and Social Affairs].
   Google Scholar
• SFS. 1997:736. Lag om färdtjänst [ The Special Transport Services Act]. Stockholm: Näringsdepartementet [ Ministry of Enterprise, Energy and Communications].
   Google Scholar
• SFS. 2001:453. Socialtjänstlag [ The Social Services Act]. Stockholm: Socialdepartementet [ Ministry of Health and Social Affairs].
   Google Scholar
• SFS. 2003:460. Lag om etikprövning av forskning som avser människor [ The Act Concerning the Ethical Review of Research Involving Humans]. Stockholm: Utbildningsdepartementet [ Ministry of Education and Research].
   Google Scholar
• SFS. 2010:800. Skollag [ The Education Act]. Stockholm: Utbildningsdepartementet [ Ministry of Education and Research].
   Google Scholar
• Shields, N., M. King, M. Corbett, and C. Imms. 2014. “Is Participation among Children with Intellectual Disabilities in Outside School Activities Similar to their Typically Developing Peers? A Systematic Review.” Developmental Neurorehabilitation 17 (1): 64–71. doi:10.3109/17518423.2013.836256.10.3109/17518423.2013.836256
   PubMed Web of Science ®Google Scholar
• Stein, R. E., and E. J. Silver. 2003. “Patterns of Medical, Educational, and Mental Health Service Use in a National Sample of US Children.” Ambulatory Pediatrics 3 (2): 87–92. doi:10.1367/1539-4409(2003)003<0087:POMEAM>2.0.CO;2.10.1367/1539-4409(2003)003<0087:POMEAM>2.0.CO;2
   PubMedGoogle Scholar
• Stromme, P., and P. Magnus. 2000. “Correlations between Socioeconomic Status, IQ and Aetiology in Mental Retardation: A Population-based Study of Norwegian Children.” Social Psychiatry and Psychiatric Epidemiology 35 (1): 12–18. doi:10.1007/s001270050003.
   Google Scholar
• Svensson, O. 2009. Barnet i fokus? Samverkan kring barn inom socialtjänsten: Problem och möjligheter i kontakter mellan individ- och familjeomsorg och handikappomsorg i Jönköpings läns kommuner [ The Child in Focus? Collaboration Regarding Children in Social Services: Problems and Opportunities in Contacts between Individual and Family Care and Disability Care in Jönköping County’s Municipalities]. Jönköping: Luppen kunskapscentrum.
   Google Scholar
• Swedish National Agency for Education. 2002. I särskola eller i grundskola? [ In Special Education Programme for Pupils with Intellectual Disabilities or in Mainstream Compulsory School?]. Stockholm: Skolverket [ The Swedish National Agency for Education].
   Google Scholar
• Swedish Schools Inspectorate. 2011. Mottagandet i särskolan under lupp: Granskning av handläggning, utredning och information i 58 kommuner [ The Reception in Compulsory School for Pupils with Intellectual Disabilities Under the Microscope: Review of Processing, Investigation, and Information in 58 Municipalities]. Stockholm: Skolinspektionen [ The Swedish Schools Inspectorate].
   Google Scholar
• Weiss, J., and Y. Lunsky. 2010. “Service Utilization Patterns in Parents of Youth and Adults With Intellectual Disability Who Experienced Behavioral Crisis.” Journal of Mental Health Research in Intellectual Disabilities 3 (3): 145–163. doi:10.1080/19315864.2010.490617.10.1080/19315864.2010.490617
   Web of Science ®Google Scholar
• Zwaanswijk, M., P. F. M. Verhaak, J. M. Bensing, J. Van der Ende, and F. C. Verhulst. 2003. “Help Seeking for Emotional and Behavioural Problems in Children and Adolescents.” European Child and Adolescent Psychiatry 12 (4): 153–161. doi:10.1007/s00787-003-0322-6.10.1007/s00787-003-0322-6
   PubMed Web of Science ®Google Scholar