A systematic literature review of qualitative research methods for eliciting the views of young people with ASD about their educational experiences

References

• American Psychiatric Association. 2013. DSM 5. Washington, DC: American Psychiatric Association.
   Google Scholar
• Baric, V. B., K. Hellberg, A. Kjellberg, and H. Hemmingsson. 2015. “Support for Learning Goes beyond Academic Support: Voices of Students with Asperger’s Disorder and Attention Deficit Hyperactivity Disorder.” Autism 20 (2): 183–195. doi:10.1177/1362361315574582.
   Google Scholar
• Barrow, W., and E. F. Hannah. 2012. “Using Computer-assisted Interviewing to Consult with Children with Autism Spectrum Disorders: An Exploratory Study.” School Psychology International 33 (4): 450–464.10.1177/0143034311429167
   Web of Science ®Google Scholar
• Beresford, B., R. Tozer, P. Rabiee, and P. Sloper. 2004. “Developing an Approach to Involving Children with Autistic Spectrum Disorders in a Social Care Research Project.” British Journal of Learning Disabilities 32 (4): 180–185.10.1111/bld.2004.32.issue-4
   Google Scholar
• Bond, C., W. Symes, J. Hebron, N. Humphrey, G. Morewood, and K. Woods. 2016. “Educational Interventions for Children with ASD: A Systematic Literature Review 2008–2013.” School Psychology International 37 (3): 303–320.10.1177/0143034316639638
   Web of Science ®Google Scholar
• Bond, C., K. Woods, N. Humphrey, W. Symes, and L. Green. 2013. “Practitioner Review: The Effectiveness of Solution Focused Brief Therapy with Children and Families: A Systematic and Critical Evaluation of the Literature from 1990–2010.” Journal of Child Psychology and Psychiatry 54 (7): 707–723.10.1111/jcpp.12058
   PubMed Web of Science ®Google Scholar
• BPS (British Psychological Society). 2010. Code of Human Research Ethics. Leicester: BPS.
   Google Scholar
• Browning, J., L. A. Osborne, and P. Reed. 2009. “A Qualitative Comparison of Perceived Stress and Coping in Adolescents with and without Autistic Spectrum Disorders as They Approach Leaving School.” British Journal of Special Education 36 (1): 36–43.10.1111/bjsp.2009.36.issue-1
   Google Scholar
• Cameron, L., and J. Murphy. 2002. “Enabling Young People with a Learning Disability to Make Choices at a Time of Transition.” British Journal of Learning Disabilities 30 (3): 105–112.10.1046/j.1468-3156.2002.00165.x
   Google Scholar
• Detheridge, T., H. Whittle, and C. Detheridge. 2002. Widgit Rebus Symbol Collection. Cambridge: Widgit Software.
   Google Scholar
• DfE (Department for Education). 2014. Special Educational Needs and Disability Code of Practice: 0–25 Years. Statutory Guidance for Organisations Who Work with and Support Children and Young People with Special Educational Needs and Disabilities. London: HMSO.
   Google Scholar
• Gough, D. 2007. “Weight of Evidence: A Framework for the Appraisal of the Quality and Relevance of Evidence.” Research Papers in Education 22 (2): 213–228.10.1080/02671520701296189
   Google Scholar
• Gray, C. 1998. “Social Stories and Comic Strip Conversations with Students with Asperger Syndrome and High Functioning Autism.” In Asperger Syndrome or High Functioning Autism? edited by E. Schopler, G. Mesibov, and L. Kunce, 167–198. New York: Plenum Press.
   Google Scholar
• Haas, K., D. Costley, M. Falkmer, A. Richdale, K. Sofronoff, and T. Falkmer. 2016. “Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders.” Journal of Autism and Developmental Disorders 46 (5): 1793–1805.10.1007/s10803-016-2708-6
   PubMed Web of Science ®Google Scholar
• Harrington, C., M. Foster, S. Rodger, and J. Ashburner. 2013. “Engaging Young People with Autism Spectrum Disorder in Research Interviews.” British Journal of Learning Disabilities 42 (2): 153–161.
   Web of Science ®Google Scholar
• Henwood, K. L., and N. F. Pidgeon. 1992. “Qualitative Research and Psychological Theorising.” British Journal of Psychology 83: 97–111.10.1111/bjop.1992.83.issue-1
   PubMed Web of Science ®Google Scholar
• Humphrey, N., and S. Lewis. 2008. “‘Make me normal’ the Views and Experiences of Pupils on the Autistic Spectrum in Mainstream Secondary Schools.” Autism 12 (1): 23–46.10.1177/1362361307085267
   PubMed Web of Science ®Google Scholar
• Lewis, A. 2009. “Methodological Issues in Exploring the Ideas of Children with Autism concerning Self and Spirituality.” Journal of Religion, Disability & Health 13 (1): 64–76.10.1080/15228960802581446
   Google Scholar
• Locke, J., E. H. Ishijima, C. Kasari, and N. London. 2010. “Loneliness, Friendship Quality and the Social Networks of Adolescents with High-Functioning Autism in an Inclusive School Setting.” Journal of Research in Special Educational Needs 10 (2): 74–81.
   Google Scholar
• Loyd, D. 2013. “Obtaining Consent from Young People with Autism to Participate in Research.” British Journal of Learning Disabilities 41 (2): 133–140.10.1111/bld.2013.41.issue-2
   Web of Science ®Google Scholar
• Loyd, D. 2015. “Gaining Views from Pupils with Autism about Their Participation in Drama Classes.” British Journal of Learning Disabilities 43 (1): 8–15.
   Web of Science ®Google Scholar
• McLaughlin, S., and H. Rafferty. 2014. “Me and ‘It’: Seven Young People given a Diagnosis of Asperger’s Syndrome.” Educational & Child Psychology 31 (1): 63–77.
   Google Scholar
• Milton, D. E. 2012. “On the Ontological Status of Autism: The ‘Double Empathy Problem’.” Disability & Society 27 (6): 883–887.10.1080/09687599.2012.710008
   Web of Science ®Google Scholar
• Ministry of Youth Development. 2008. An Introduction to Youth Participation. http://www.myd.govt.nz/documents/resources-and-reports/publications/a-guide-for-local-government-an-introduction-to-youth-participation-2008.pdf.
   Google Scholar
• Mitchell, W., and B. Beresford. 2014. “Young People with High-Functioning Autism and Asperger’s Syndrome Planning for and Anticipating the Move to College: What Supports a Positive Transition?” British Journal of Special Education 41 (2): 151–171.10.1111/bjsp.2014.41.issue-2
   Google Scholar
• Moher, D., A. Liberati, J. Tetzlaff, and D. G. Altman. 2009. “Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement.” Annals of Internal Medicine 151 (4): 264–269.10.7326/0003-4819-151-4-200908180-00135
   PubMed Web of Science ®Google Scholar
• Morris, J. 2003. “Including All Children: Finding out about the Experiences of Children with Communication and/or Cognitive Impairments.” Children & Society 17 (5): 337–348.Murphy, J. 1998. "Talking Mats: speech and language research in practice." Speech and Language Therapy in Practice, 11–14.10.1002/(ISSN)1099-0860
   Google Scholar
• Nind, M. (2008). "Conducting qualitative research with people with learning, communication and other disabilities." NCRM/012, November. Southampton: ESRC National Centre for Research Methods.Norwich, B. 1996. “Special Needs Education or Education for All: Connective Specialisation and Ideological Impurity.” British Journal of Special Education 23 (3): 100–104.Norwich, B., and Lewis, A. (2001). "Mapping a pedagogy for special educational needs." British Educational Research Journal 27 (3): 313–329.
   Google Scholar
• Parsons, S., K. Guldberg, A. MacLeod, G. Jones, A. Prunty, and T. Balfe. 2011. “International Review of the Evidence on Best Practice in Educational Provision for Children on the Autism Spectrum.” European Journal of Special Needs Education 26 (1): 47–63.10.1080/08856257.2011.543532
   Google Scholar
• Pellicano, E., A. Dinsmore, and T. Charman. 2014. “Views on Researcher-community Engagement in Autism Research in the United Kingdom: A Mixed-methods Study.” PLoS One 9 (10): e109946.10.1371/journal.pone.0109946
   PubMed Web of Science ®Google Scholar
• Poon, K. K., S. Soon, M. E. Wong, S. Kaur, J. Khaw, Z. Ng, and C. S. Tan. 2014. “What is School Like? Perspectives of Singaporean Youth with High-Functioning Autism Spectrum Disorders.” International Journal of Inclusive Education 18 (10): 1069–1081.10.1080/13603116.2012.693401
   Web of Science ®Google Scholar
• Porayska-Pomsta, K., C. Frauenberger, H. Pain, G. Rajendran, T. Smith, R. Menzies, M. E. Foster, et al. 2012. “Developing Technology for Autism: An Interdisciplinary Approach.” Personal and Ubiquitous Computing 16 (2): 117–127.10.1007/s00779-011-0384-2
   Web of Science ®Google Scholar
• Preece, D., and R. Jordan. 2010. “Obtaining the Views of Children and Young People with Autism Spectrum Disorders About Their Experience of Daily Life and Social Care Support.” British Journal of Learning Disabilities 38 (1): 10–20.10.1111/bld.2010.38.issue-1
   Web of Science ®Google Scholar
• Robson, C., and K. McCartan. 2015. Real World Research. 4th ed. London: Wiley.
   Google Scholar
• Runswick-Cole, K., R. Mallett, and S. Timimi. 2016. Re-thinking Autism: Diagnosis, Identity and Equality. London: Jessica Kingsley Publishers.
   Google Scholar
• Saggers, B., Y. S. Hwang, and K. L. Mercer. 2011. “Your Voice Counts: Listening to the Voice of High School Students with Autism Spectrum Disorder.” Australasian Journal of Special Education 35 (2): 173–190.10.1375/ajse.35.2.173
   Google Scholar
• Scotland, J. 2012. “Exploring the Philosophical Underpinnings of Research: Relating Ontology and Epistemology to the Methodology and Methods of the Scientific, Interpretive, and Critical Research Paradigms.” English Language Teaching 5 (9): 9–16.
   Google Scholar
• Shepherd, J. (2015). ‘Interrupted Interviews’: Listening to Young People with Autism in Transition to College. Exchanges: The Warwick Research Journal 2 (2): 249–262.
   Google Scholar
• Spencer, L., J. Ritchie, J. Lewis, and L. Dillon. 2003. Quality in Qualitative Evaluation: A Framework for Assessing Research Evidence. London: Strategy Unit (Cabinet Office).
   Google Scholar
• UN General Assembly. 1989. The Convention on the Rights of the Child. New York: United Nations.
   Google Scholar
• United States Department of Education. (2004). Individuals with Disabilities Education Act. http://idea.ed.gov/.
   Google Scholar
• Van Hees, V., T. Moyson, and H. Roeyers. 2015. “Higher Education Experiences of Students with Autism Spectrum Disorder: Challenges, Benefits and Support Needs.” Journal of Autism and Developmental Disorders 45 (6): 1673–1688.10.1007/s10803-014-2324-2
   PubMed Web of Science ®Google Scholar
• Van Roekel, E., R. H. Scholte, and R. Didden. 2010. “Bullying Among Adolescents with Autism Spectrum Disorders: Prevalence and Perception.” Journal of Autism and Developmental Disorders 40 (1): 63–73.10.1007/s10803-009-0832-2
   PubMed Web of Science ®Google Scholar
• Ware, J. 2004. "Ascertaining the views of people with profound and multiple learning disabilities." British Journal of Learning Disabilities 32 (4): 175–179.Whyte, J. 2006. “Giving a Voice to Children with Disabilities.” The Irish Journal of Psychology 27 (1–2): 16–24.10.1080/03033910.2006.10446224
   Google Scholar
• Williams, J., and D. Hanke. 2007. “‘Do You Know What Sort of School I Want?’: Optimum Features of School Provision for Pupils with Autistic Spectrum Disorder.” Good Autism Practice (GAP) 8 (2): 51–63.
   Google Scholar
• Wing, L. 1993. “The Definition and Prevalence of Autism: A Review.” European Child & Adolescent Psychiatry 2 (1): 61–74.10.1007/BF02098832
   PubMedGoogle Scholar
• Winstone, N., C. Huntington, L. Goldsack, E. Kyrou, and L. Millward. 2014. “Eliciting Rich Dialogue Through the Use of Activity-oriented Interviews: Exploring Self-identity in Autistic Young People.” Childhood 21 (2): 190–206.10.1177/0907568213491771
   Web of Science ®Google Scholar