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Original Articles

Development of a Measure of Coping with Multiple Sclerosis Caregiving

Pages 97-118 | Published online: 27 Oct 2010

  • Amirkhan , J.H. 1990 . A factor analytically derived measure of coping: the Coping Strategy Indicator . Journal of Personality and Social Psychology , 59 : 1066 – 1074 .
  • Aronson , K.J. 1997 . Quality of life among persons with multiple sclerosis and their caregivers . Neurology , 48 : 74 – 80 .
  • Barbarin , O.A. , Hughes , D. and Chesler , M.A. 1985 . Stress, coping, and marital functioning among parents of children with cancer . Journal of Marriage, and the Family , 47 : 473 – 480 .
  • Beck , A.T. , Ward , C.H. , Mendelson , M. , Mock , J. and Erbaugh , J. 1961 . An inventory for measuring depression . Archives of General Psychiatry , 4 : 561 – 571 .
  • Bledlin , K. , MacCarthy , B. , Kuipers , L. and Woods , R. 1990 . Daughters of people with dementia: expressed emotion, strain, and coping . British Journal of Psychiatry , 157 : 221 – 227 .
  • Budd , R.J. , Oles , G. and Hughes , T.C.T. 1998 . The relationship between coping styles and burden in the carers of relatives with schizophrenia . Acta Psychiatrica Scandinavica , 98 : 304 – 309 .
  • Carver , C.S. , Scheier , M.F. and Weintraub , J.K. 1989 . Assessing coping strategies: a theoretically based approach . Journal of Personality and Social Psychology , 56 : 267 – 283 .
  • Clutton , S. , Pakenham , K.T. and Buckley , B. 1999 . Predictors of well-being following a "false positive" breast screening result . Psychology and Health , 14 : 263 – 275 .
  • Cockerill , R. and Warren , S. 1990 . Care for caregivers: the needs of family members of MS patients . Journal of Rehabilitation , 56 : 41 – 44 .
  • Coyne , J.C. and Smith , U.A.F. 1991 . Couples coping with myocardial infarction: a contextual perspective on wives' distress . Journal of Personality and Social Psychology , 61 : 404 – 412 .
  • Cronbach , L.J. 1951 . Coefficient alpha and the internal structure of tests . Psychometrika , 16 : 543 – 548 .
  • Cronbach , L.J. and Meehl , P.E. 1955 . Construct validity in psychological tests . Psychological Bulletin , 52 : 281 – 302 .
  • DeLongis , A. and O'Brien , T. 1990 . “ An interpersonal framework for stress and coping: an application to the families of Alzheimer's patients ” . In Stress and Coping in Later-Life Families , Edited by: Stephens , M.H. , Crowther , J.H. , Hobfoll , S.E. and Tennenbaum , D.L. 221 – 239 . New York : Hemisphere Publishing Corporation .
  • Derogatis , L.R. and Spencer , P.M. 1982 . Administration and Procedures: RSI Manual - I , Baltimore : Clinical Psychometric Research .
  • Dunteman , G.H. 1989 . Principal Components Analysis , Quantitative Applications in the Social Sciences Series. No. 69 Thousand Oaks, CA : Sage Publications .
  • Endler , N.S. and Parker , J.D.A. 1994 . Assessment of multidimensional coping: task, emotion, and avoidance strategies. . Psychological Assessment , 6 : 50 – 60 .
  • Folkman , S. and Lazarus , R.S. 1980 . An analysis of coping in a middle-aged community sample . Journal of Health and Social Behavior , 21 : 219 – 239 .
  • Given , C.W. , Given , B. , Slommel , M. , Collins , C. , King , S. and Franklin , S. 1992 . The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments . Research in Nursing and Health , 15 : 271 – 283 .
  • Goode , K.T. , Haley , W.E. , Roth , D.L. and Ford , G.R. 1998 . Predicting longitudinal changes in caregiver physical and mental health: a stress process model . Health Psychology , 17 : 190 – 198 .
  • Hainsworth , M.A. 1996 . Helping spouses with chronic sorrow related to multiple sclerosis . Journal of Psychosocial Nursing , 34 : 36 – 40 .
  • Hauser , S.T. , Jacobson , A.M. , Bliss , R. , Milley , J. , Vicyra , M.A. , Willett , J.B. , Cole , C. , DiPlacido , J. , Paul , E. , Lavori , P. , Wolfsdorf , J.T. , Herskowitz , R.D. and Wertlieb , D. 1993 . “ The family and the onset of its youngster's insulin-dependent diabetes: ways of coping ” . In How Families Cope with Chronic Illness? , Edited by: Cole , R.E. and Reiss , D. 25 – 55 . New Jersey : Lawrence Erlbaum .
  • Hinrichsen , G.A. and Niederehe , G. 1994 . Dementia management strategies and adjustment of family members of older patients . The Gerontologist , 34 : 95 – 102 .
  • Knight , R.G. , Devereux , R.C. and Godfrey , H.P.D. 1997 . Psychosocial consequences of caring for a spouse with multiple sclerosis . Journal of Clinical and Experimental Neuropsychology , 19 : 7 – 19 .
  • Kramer , B.J. 1993 . Expanding the conceptualization of caregiver coping: The importance of relationship-focused coping strategies . Family Relations , 42 : 383 – 391 .
  • Lazarus , R.S. and Folkman , S. 1984 . Stress, Appraisal, and Coping , New York : Springer .
  • Lee , C. 1999 . Health, stress and coping among women caregivers: a review . Journal of Health Psychology , 4 : 27 – 40 .
  • Maes , S. , Leventhal , H. and de Ridder , T.D. 1996 . “ Coping with chronic diseases ” . In Handbook of Coping: Theory, Research, Applications , Edited by: Zeidner , M. and Endler , N.S. NY. : John Wiley and Sons .
  • Magliano , L. , Guarneri , M. , Marasco , C. , Tosini , P. , Morosini , P.L. and Maj , M. 1996 . A new questionnaire assessing coping strategies in relatives of patients with schizophrenia: development and factor analysis . Acta Psychiatrica Scandinavica , 94 : 224 – 228 .
  • MeCubbin , H.I. , McCubbin , M.A. , Patterson , J.M. , Cauble , E.A. , Wilson , L.R. and Warwick , W. 1983 . CHIP -- Coping Health Inventory for Parents: an assessment of parental coping patterns in the care of the chronically ill child . Journal of Marriage and the Family , 45 : 359 – 370 .
  • Mohr , D.C. , Dick , L.P. , Russo , D. , Finn , J. , Boudewyn , A.C. , Likosky , W. and Goodkin , D.E. 1999 . The psychosocial impact of Multiple Sclerosis: exploring the patient's perspective . Health Psychology , 18 : 376 – 382 .
  • Moskowitz , J.T. , Folkman , S. , Collette , L. and Vittinghoff , E. 1996 . Coping and mood during AIDS-related caregiving and bereavement . Annals of Behavioural Medicine , 18 : 49 – 57 .
  • O'Brien , MT. 1993 . Multiple sclerosis: Stressors and coping strategies in spousal caregivers . Journal of Community Health Nursing , 10 : 123 – 135 .
  • O'Brien , T. and DcLongis , A. A three Function Model of Coping: Emotion-Focused, Problem-Focused and Relationship-Focused . Paper presented at the annual conference of the American Psychological Association . San Francisco, CA..
  • Pakenham , K.I. 1998 . Couple coping and adjustment to multiple sclerosis in care receiver-carer dyads . Family Relations , 47 : 269 – 277 .
  • Pakenham , K.I. Application of a stress and coping model to caregiving in multiple sclerosis . Psychology, Health and Medicine , (in press)
  • Pakenham , K.I. 1999 . Adjustment to multiple sclerosis: application of a stress and coping model . Health Psychology , 18 : 383 – 392 .
  • Pakenham , K.I. , Slewart , C.A. and Rogers , A. 1997 . The role of coping in adjustment to multiple sclerosis-related adaptive demands . Psychology, Health and Medicine , 2 : 197 – 211 .
  • Parker , J.D.A. and Endler , N.S. 1992 . Coping with coping assessment: a critical review . European Journal of Personality , 6 : 321 – 344 .
  • Parker , J.D.A. , Endler , N.S. and Babgy , R.M. 1993 . If it changes, it might be unstable: examining the factor structure of the Ways of Coping Questionnaire . Psychological Assessment , 5 : 361 – 368 .
  • Parks , S.H. and Pilisuk , M. 1991 . Caregiver burden: gender and psychological costs of caregiving . American Journal of Orthopsychiatry , 61 : 501 – 509 .
  • Pearlin , L.I. , Mullan , J.T. , Semple , S.J. and Skaff , M.M. 1990a . Caregiving and the stress process: an overview of concepts and their measures . The Gerontologist , 30 : 583 – 594 .
  • Pearlin , L.I. , Turner , H. and Semple , S.J. 1990 . “ Coping and the mediation of caregiver stress ” . In Alzheimer's Disease Treatment and Family Stress , Edited by: Light , E. and Lebowitz , B.D. 198 – 217 . New York : Hemisphere Publishing Corporation .
  • Pratt , C.C. , Schmall , V.L. , Wright , S. and Cleland , M. 1985 . Burden and coping strategies of caregivers to Alzheimer's patients . Family Relations , 34 : 27 – 33 .
  • Quayhagen , M.P. and Quayhagen , M. 1988 . Alzheimer's stress: coping with the caregiving role . The Gerontologist , 28 : 391 – 396 .
  • Revenson , T.A. 1994 . Social support and marital coping with chronic illness . Annals of Behavioural Medicine , 16 : 122 – 130 .
  • Spanier , G.B. 1976 . Measuring dyadic adjustment: new scales for assessing the quality of marriage and similar dyads . Journal of Marriage and the Family , 38 : 15 – 28 .
  • Stone , A.A. , Greenberg , M.A. , Kennedy-Moore , E. and Newman , M.G. 1991 . Self-report, situation-specific coping questionnaires: What are they measuring? . Journal of Personality and Social Psychology , 61 : 648 – 658 .
  • Tilden , V.P. , Hirsch , A.M. and Nelson , C.A. 1994 . The Interpersonal relationship inventory: continued psychometric evaluation . Journal of Nursing Measurement , 2 : 63 – 78 .
  • Tilden , V.P. , Nelson , C.A. and May , B.A. 1990 . The interpersonal relationship inventory: development and psychometric characteristics . Nursing Research , 39 : 337 – 343 .
  • Vitaliano , P.P. , Russo , J. , Carr , J.E. , Maiuro , R.D. and Becker , J. 1985 . The ways of coping checklist: revision and psychometric properties . Multivariate Behavioural Research , 20 : 3 – 26 .
  • Vitaliano , P.P. , de Wolfe , D.J. , Maiuro , R.D. , Russo , J. and Katon , W. 1990 . Appraised changeability of a stressor as a modifier of the relationship between coping and depression: a test of the hypothesis of fit . Journal of Personality and Social Psychology , 59 : 582 – 592 .
  • Vitaliano , P.P. , Young , H.M. , Russo , J. , Romano , J. and Magana-Amalo , A. 1993 . Does expressed emotion in spouses predict subsequent problems among care recipients with Alzheimer's disease? . Journal of Gerontology , 48 : 202 – 209 .
  • Wineman , M. , Durand , E.J. and McCulloch , J. 1994 . Examination of the factor structure of the ways of coping questionnaire with clinical populations . Nursing Research , 43 : 268 – 273 .

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