Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS

References

• Anderson , JC and Gerbing , DW . 1988 . Structural equation modeling in practice: A review and recommended two-step approach . Psychological Bulletin , 103 : 411 – 423 .
   Web of Science ®Google Scholar
• Bandura , A . 1997 . Self-efficacy: The exercise of control , New York : Freeman .
   Google Scholar
• Bar-Lev , S . 2008 . “We are here to give you emotional support”: Performing emotions in an online HIV/AIDS support group . Qualitative Health Research , 18 : 509 – 521 .
   PubMed Web of Science ®Google Scholar
• Barak , A , Boniel-Nissim , M and Suler , J . 2008 . Fostering empowerment in online support groups . Computers in Human Behavior , 24 : 1867 – 1883 .
   Web of Science ®Google Scholar
• Baron , RM and Kenny , DA . 1986 . The moderator-mediator variable distinction in social psychological research: Conceptual, strategic and statistical considerations . Journal of Personality and Social Psychology , 51 : 1173 – 1192 .
   PubMed Web of Science ®Google Scholar
• Beaudoin , CE and Tao , C-C . 2007 . Benefiting from social capital in online support groups: An empirical study of cancer patients . CyberPsychology and Behavior , 10 : 587 – 590 .
   PubMedGoogle Scholar
• Benight , CC , Antoni , MH , Kilbourn , K , Ironson , G , Kumar , MA , Fletcher , MA Schneiderman , N . 1997 . Coping self-efficacy buffers psychological and physiological disturbances in HIV-infected men following a natural disaster . Health Psychology , 16 : 248 – 255 .
   PubMed Web of Science ®Google Scholar
• Benight , CC and Bandura , A . 2004 . Social cognitive theory of posttraumatic recovery: The role of perceived self-efficacy . Behaviour Research and Therapy , 42 : 1129 – 1148 .
   PubMed Web of Science ®Google Scholar
• Berkman , LF , Glass , T , Brissette , I and Seeman , TE . 2000 . From social integration to health: Durkheim in the new millennium . Social Science and Medicine , 51 : 843 – 857 .
   PubMed Web of Science ®Google Scholar
• Bogart , LM , Catz , SL , Kelly , JA , Gray-Bernhardt , ML , Hartmann , BR , Otto-Salaj , LL Bloom , FR . 2000 . Psychosocial issues in the era of new AIDS treatments from the perspective of persons living with HIV . Journal of Health Psychology , 5 : 500 – 516 .
   PubMedGoogle Scholar
• Braithwaite , DO , Waldron , VR and Finn , J . 1999 . Communication of social support in computer-mediated groups for people with disabilities . Health Communication , 11 : 123 – 151 .
   PubMed Web of Science ®Google Scholar
• Brashers , DE , Neidig , JL and Goldsmith , DJ . 2004 . Social support and the management of uncertainty for people living with HIV or AIDS . Health Communication , 16 : 305 – 331 .
   PubMed Web of Science ®Google Scholar
• Brashers , DE , Neidig , JL , Haas , SM , Dobbs , LK , Cardillo , LW and Russell , JA . 2000 . Communication in the management of uncertainty: The case of persons living with HIV or AIDS . Communication Monographs , 67 : 63 – 84 .
   Web of Science ®Google Scholar
• Brashers , DE , Neidig , JL , Reynolds , NR and Haas , SM . 1998 . Uncertainty in illness across the HIV/AIDS trajectory . Journal of the Association of Nurses in AIDS Care , 9 : 66 – 77 .
   PubMedGoogle Scholar
• Buchanan , H and Coulson , NS . 2007 . Accessing dental anxiety online support groups: An exploratory qualitative study of motives and experiences . Patient Education and Counseling , 66 : 263 – 269 .
   PubMed Web of Science ®Google Scholar
• Byrne , BM . 2001 . Structural equation modeling with AMOS: Basic concepts, applications, and programming , Mahwah , NJ : Lawrence Erlbaum Associates .
   Google Scholar
• Carver , CS . 1997 . You want to measure coping but your protocol's too long: Consider the Brief COPE . International Journal of Behavioral Medicine , 4 : 92 – 100 .
   PubMed Web of Science ®Google Scholar
• Carver , CS and Antoni , MH . 2004 . Finding benefit in breast cancer during the year after diagnosis predicts better adjustment 5 to 8 years after diagnosis . Health Psychology , 23 : 595 – 598 .
   PubMed Web of Science ®Google Scholar
• Carver , CS , Scheier , MF and Weintraub , JK . 1989 . Assessing coping strategies: A theoretically based approach . Journal of Personality and Social Psychology , 56 : 267 – 283 .
   PubMed Web of Science ®Google Scholar
• Cheung , S-K and Sun , SYK . 2000 . Effects of self-efficacy and social support on the mental health conditions of mutual-aid organization members . Social Behavior and Personality: An International Journal , 28 : 413 – 422 .
   Web of Science ®Google Scholar
• Coulson , NS , Buchanan , H and Aubeeluck , A . 2007 . Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group . Patient Education and Counseling , 68 : 173 – 178 .
   PubMed Web of Science ®Google Scholar
• Ferguson , T . 1997 . Health online and the empowered medical consumer . Joint Commission Journal on Quality Improvement , 23 : 251 – 257 .
   PubMedGoogle Scholar
• Fogel , J , Albert , SM , Schnabel , F , Ditkoff , BA and Neugut , AI . 2002 . Internet use and social support in women with breast cancer . Health Psychology , 21 : 398 – 404 .
   PubMed Web of Science ®Google Scholar
• Hansen , NB , Vaughan , EL , Cavanaugh , CE , Connell , CM and Sikkema , KJ . 2009 . Health-related quality of life in bereaved HIV-positive adults: Relationships between HIV symptoms, grief, social support, and Axis II indication . Health Psychology , 28 : 249 – 257 .
   PubMed Web of Science ®Google Scholar
• Herek , GM . 1999 . AIDS and stigma . American Behavioral Scientist , 42 : 1106 – 1116 .
   Web of Science ®Google Scholar
• Houston , TK , Copper , LA and Ford , DE . 2002 . Internet support groups for depression: A 1-year prospective cohort study . American Journal of Psychiatry , 159 : 2062 – 2068 .
   PubMed Web of Science ®Google Scholar
• Høybye , MT , Johansen , C and Tjørnhøj-Thomsen , T . 2005 . Online interaction. Effects of storytelling in an internet breast cancer support group . Psycho-Oncology , 14 : 211 – 220 .
   PubMed Web of Science ®Google Scholar
• Jia , H , Uphold , CR , Wu , S , Reid , K , Findley , K and Duncan , PW . 2004 . Health-related quality of life among men with HIV infection: Effects of social support, coping, and depression . AIDS Patient Care and STDs , 18 : 594 – 603 .
   PubMed Web of Science ®Google Scholar
• Joint United Nations Programme on HIV/AIDS (2007). AIDS epidemic update: December 2007 (Vol. 2008). Geneva: UNAIDS Information Centre
   Google Scholar
• Kalichman , SC , Cain , D , Cherry , C , Pope , H , Eaton , L and Kalichman , MO . 2005 . Internet use among people living with HIV/AIDS: Coping and health-related correlates . AIDS Patient Care and STDs , 19 : 439 – 448 .
   PubMed Web of Science ®Google Scholar
• Kara Kasikci , M and Alberto , J . 2007 . Family support, perceived self-efficacy and self-care behaviour of Turkish patients with chronic obstructive pulmonary disease . Journal of Clinical Nursing , 16 : 1468 – 1478 .
   PubMed Web of Science ®Google Scholar
• Kohn , PM . 1996 . “ On coping adaptively with daily hassles ” . In Handbook of coping , Edited by: Zeidner , M and Endler , NS . 181 – 200 . Oxford, England : John Wiley & Sons .
   Google Scholar
• Lazarus , RS and Folkman , S . 1984 . Stress, appraisal, and coping , New York : Springer .
   Google Scholar
• Lev , EL and Owen , SV . 1996 . A measure of self care self efficacy . Research in Nursing and Health , 19 : 421 – 429 .
   PubMed Web of Science ®Google Scholar
• Levy , LH . 1999 . “ Self-help groups ” . In Handbook of community psychology , Edited by: Rappaport , J and Seidman , E . 591 – 614 . New York : Plenum Press .
   Google Scholar
• Liu , C , Johnson , L , Ostrow , D , Silvestre , A , Visscher , B and Jacobson , LP . 2006 . Predictors for lower quality of life in the HAART era among HIV-infected men . Journal of Acquired Immune Deficiency Syndromes , 42 : 470 – 477 .
   PubMed Web of Science ®Google Scholar
• Luszczynska , A , Sarkar , Y and Knoll , N . 2007 . Received social support, self-efficacy, and finding benefits in disease as predictors of physical functioning and adherence to antiretroviral therapy . Patient Education and Counseling , 66 : 37 – 42 .
   PubMed Web of Science ®Google Scholar
• Mak , WWS , Law , RWM , Woo , J , Cheung , FM and Lee , D . 2009 . Social support and psychological adjustment to SARS: The mediating role of self-care self-efficacy . Psychology and Health , 24 : 161 – 174 .
   PubMed Web of Science ®Google Scholar
• McLure Wasko , M and Faraj , S . 2000 . “It is what one does”: Why people participate and help others in electronic communities of practice . The Journal of Strategic Information Systems , 9 : 155 – 173 .
   Web of Science ®Google Scholar
• Meyer , B . 2001 . Coping with severe mental illness: Relations of the brief COPE with symptoms, functioning, and well-being . Journal of Psychopathology and Behavioral Assessment , 23 : 265 – 277 .
   Web of Science ®Google Scholar
• Mo , PKH and Coulson , NS . 2008 . Exploring the communication of social support within virtual communities: A content analysis of messages posted to an online HIV/AIDS support group . CyberPsychology and Behavior , 11 : 371 – 374 .
   PubMedGoogle Scholar
• Mo , PKH and Coulson , NS . 2010a . Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of ‘lurkers’ and ‘posters’ . Computers in Human Behavior , 26 : 1183 – 1193 .
   Web of Science ®Google Scholar
• Mo , PKH and Coulson , NS . 2010b . Living with HIV/AIDS and use of online support groups . Journal of Health Psychology , 15 : 339 – 350 .
   PubMed Web of Science ®Google Scholar
• Nonnecke , B , Andrews , D and Preece , JJ . 2006 . Non-public and public online community participation: Needs, attitudes and behavior . Electronic Commerce Research , 6 : 7 – 20 .
   Google Scholar
• Park , CL and Folkman , S . 1997 . Meaning in the context of stress and coping . Review of General Psychology , 1 : 115 – 144 .
   Google Scholar
• Rains , SA and Young , V . 2009 . A meta-analysis of research on formal computer-mediated support groups: Examining group characteristics and health outcomes . Human Communication Research , 35 : 309 – 336 .
   Web of Science ®Google Scholar
• Reeves , PM . 2000 . Coping in cyberspace: The impact of internet use on the ability of hiv-positive individuals to deal with their illness . Journal of Health Communication , 5 ( Suppl. 1 ) : 47 – 59 .
   Web of Science ®Google Scholar
• Reeves , PM . 2001 . How individuals coping with HIV/AIDS use the Internet . Health Education Research , 16 : 709 – 719 .
   PubMed Web of Science ®Google Scholar
• Remien , RH and Mellins , CA . 2007 . Long-term psychosocial challenges for people living with HIV: Let's not forget the individual in our global response to the pandemic . AIDS , 21 ( Suppl. 5 ) : S55 – S63 .
   PubMed Web of Science ®Google Scholar
• Riessman , F . 1990 . Restructuring help: A human services paradigm for the 1990s . American Journal of Community Psychology , 18 : 221 – 230 .
   Web of Science ®Google Scholar
• Roberts , LJ , Salem , DA , Rappaport , J , Toro , PA , Luke , DA and Seidman , E . 1999 . Giving and receiving help: Interpersonal transactions in mutual-help meetings and psychosocial adjustment of members . American Journal of Community Psychology , 27 : 841 – 868 .
   PubMed Web of Science ®Google Scholar
• Schrimshaw , EW , Siegel , K , Schrimshaw , EW and Siegel , K . 2003 . Perceived barriers to social support from family and friends among older adults with HIV/AIDS . Journal of Health Psychology , 8 : 738 – 752 .
   PubMed Web of Science ®Google Scholar
• Schwartz , CE and Sendor , RM . 1999 . Helping others helps oneself: Response shift effects in peer support . Social Science and Medicine , 48 : 1563 – 1575 .
   PubMed Web of Science ®Google Scholar
• Shrout , PE and Bolger , N . 2002 . Mediation in experimental and nonexperimental studies: New procedures and recommendations . Psychological Methods , 7 : 422 – 445 .
   PubMed Web of Science ®Google Scholar
• Simoni , JM , Frick , PA and Huang , B . 2006 . A longitudinal evaluation of a social support model of medication adherence among hiv-positive men and women on antiretroviral therapy . Health Psychology , 25 : 74 – 81 .
   PubMed Web of Science ®Google Scholar
• van Uden-Kraan , CF , Drossaert , CHC , Taal , E , Seydel , ER and van de Laar , MAFJ . 2009 . Participation in online patient support groups endorses patients’ empowerment . Patient Education and Counseling , 74 ( 1 ) : 61 – 69 .
   PubMed Web of Science ®Google Scholar
• van Uden-Kraan , CF , Drossaert , CHC , Taal , E , Shaw , BR , Seydel , ER and van de Laar , MAFJ . 2008 . Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia . Qualitative Health Research , 18 : 405 – 417 .
   PubMed Web of Science ®Google Scholar
• World Health Organization . 2007 . Achieving health equity: From root causes to fair outcomes , Geneva : World Health Organization .
   Google Scholar
• Wu , AW , Revicki , DA , Jacobson , D and Malitz , FE . 1997 . Evidence for reliability, validity and usefulness of the Medical Outcomes Study HIV Health Survey (MOS-HIV) . Quality of Life Research , 6 : 481 – 493 .
   PubMed Web of Science ®Google Scholar